Read Current Entries      Sign Guestbook      Message Boards Entry: 2010-07-30 18:06:06 Visitor's Name: Richard Ellis Homepage URL: No website supplied You are from: Commack, New York, USA How you found our site: web search for K-9 Carts for my 16 year old dog Would you recommend our site to others?: yes...very much so! Comments: My 16 year old female dog is half poodle and half AWS. She stopped jumping on the bed over a year ago and started urinating and deficating in the house when she had been totally trained to go outdoors but had reverted. Now she drags her right leg, cannot deficate, and falls down on her rear legs. She can no longer climb stairs. I do not knw if thisi is the disease causing her problems but thanks to you I will look into it further. Thankyou!!! Entry: 2010-06-25 17:22:53 Visitor's Name: Brigita Zile Homepage URL: No website supplied You are from: Toronto, Ontario, CANADA How you found our site: Our Vet Would you recommend our site to others?: Absolutely Comments: My husband and I said good-bye to our beloved 12 year German Sheperd yesterday. His name was Cosmo and he passed away peacefully in my arms at home. He was diagnosed with DM last August. Thank you for this amazing website. We found Dr. Clemmons because of you and our boy did quite well on the medications and dietary supplements up until about one month ago. I hope one day we find a cure to this dreadful disease. I am so sad and deeply heartbroken that our boy is not with us anymore....I hope all of our dogs are happy in heaven, running & playing forever. Brigita Entry: 2010-06-19 08:18:08 Visitor's Name: Michael Woodley Homepage URL: No website supplied You are from: United Kingdom How you found our site: Would you recommend our site to others?: yes Comments: Every time I come to this site it reminds me of my GSD who had this complaint which I throught was his hips the only thing I can say he only had it for 4 weeks befor he had to be put to rest this site will always remind me of him he was only 10 years old Entry: 2010-06-07 22:43:46 Visitor's Name: Natalie Homepage URL: No website supplied You are from: Flat Rock, NC How you found our site: I was looking for support Would you recommend our site to others?: yes Comments: Liebchen, my 13 year and 7 month old German Shepherd was diagnosed almost 2 years ago with DM. It has only been in the last 3 days that she has lost the function of her left hind leg. She has very bad arthritis in her right front leg, so it has put undue pressure on it supporting her back legs. She falls down, now after a few steps..My heart is breaking. I will have a sling and a harness tomorrow to help her. I just wanted to be around those who are experiencing the same things with their loved one... Entry: 2010-05-20 04:52:06 Visitor's Name: Gail Sullivan Homepage URL: No website supplied You are from: Victory Mills, NY 12884 USA How you found our site: About.com Would you recommend our site to others?: Already have Comments: Harold is my Pembroke Welsh Corgi who I rescued in 2004. He has since rescued me...he is my certified Service Dog. Now I am trying to save him again. Entry: 2010-05-08 01:05:13 Visitor's Name: Scott Katzenbarger Homepage URL: No website supplied You are from: Germantown, MD USA How you found our site: Google Would you recommend our site to others?: Absolutely! Comments: In memory of my beloved 125 lb, 10 1/2 yr old GS Duke, whom I had to put to rest this past Monday due to DM, I just wanted to say thanks for all those who contributed to the creation of this website. Entry: 2010-04-12 18:58:39 Visitor's Name: Ken Nolte Homepage URL: No website supplied You are from: Modesto, California, USA How you found our site: Google search for DM in GSD Would you recommend our site to others?: Yes Comments: My GSD was a rescued dog that has had major issues with allergies his whole life. I did not recognize the signs of DM until fairly well advanced. My dog is now 12 and has poor control of hind quarters. This site has been most helpful from support standpoint. TY Entry: 2010-04-06 21:13:27 Visitor's Name: Paulette Penzes Homepage URL: No website supplied You are from: Middleburg Hts., Ohio, USA How you found our site: websearching info on DM swim therapy for my dog Would you recommend our site to others?: YES! Comments: Grateful for this website as my dog, Ramses, was just diagnosed with DM and I had not idea there was so much to learn to help him through this. I feel like my heart is being ripped out with this diagnosis of one of my best friends. Entry: 2010-02-08 23:38:18 Visitor's Name: Mary Homepage URL: www.pawfectdogschool.com You are from: uk How you found our site: web searching Would you recommend our site to others?: yes Comments: My beautiful GSD Ash, I believe has DM, you site will guide us as we journey to the final stage, so glad I found you. Entry: 2009-12-26 03:51:19 Visitor's Name: Paige Green Homepage URL: No website supplied You are from: Tecumseh, MI USA How you found our site: Google search Would you recommend our site to others?: Yes, very helpful Comments: Our 12.5 year old GSD Tash was diagnosed a couple of years ago with DM but has been showing the signs for much longer. At this point she is getting noticeably worse but is still the Alpha in our pack of five. She can still get around but with the Michigan winter upon us I'm afraid it will just be a matter of time before she'll need help getting in and out of the house. This website has great information on how to care for her as the disease progresses. Thank you, thank you, thank you! Entry: 2009-12-12 20:56:47 Visitor's Name: Carol Halt Homepage URL: No website supplied You are from: Ontario,,Canada How you found our site: Link From Golden Retriever Forum Would you recommend our site to others?: Definitely Comments: Our 6 yr old Golden Retriever has some symptoms which seem to be consistent with DM. I am trying to learn as much as I can so I can have a discussion with our vet who says DM is not a GR disease . Entry: 2009-12-08 18:19:44 Visitor's Name: Eri N. Homepage URL: No website supplied You are from: New York How you found our site: on line research Would you recommend our site to others?: definitely Comments: My Akita - 13 years old - Tasha - just got diagnosed with DM yesterday, though she has had all the symptoms that I am seeing connected with DM now that I am doing all this research on line. For over a year now, she has been incontinent - so that she has been in diapers. My vet put her on medication for incontinence but it didn't work - and so he has been saying it could be because her spinal cord is weakening. She has had stiff hindlegs and so we've been treating her for arthritis, and her tail has not curled up for awhile - probably at least a year - and when she was younger her tail was up all the time. Also, she's been tripping over the past year, and jokingly I would say to her "how does a 4 legged creature trip while walking on a flat surface?" Now I realize why. So i live in a fifth floor walk up so there is no way that I can walk her outside now because I can't get her up and down 4 flights of stairs - she's 100 pounds though she is losing weight. She still eats and drinks and she will walk around my apartment - especially whenever I change positions - she will move to be close to me. this is all making me very sad. Entry: 2009-11-21 05:00:40 Visitor's Name: Wesley Ng and Kyrie Hudson Homepage URL: No website supplied You are from: San Francisco, CA How you found our site: Google Search Would you recommend our site to others?: Absolutely Positively Yes Comments: We just recently lost our Shepard mix, Jerry, who lived a wonderful 13 years and 9 months. We never had been given a diagnosis of DM for him, however, after coming across this site, We can honestly say our precious dog was afflicted with this awful condition. Without the diagnosis, we were completely baffled of what happened to him. He had been to 3 different Veterinarians in the past two years, and never did they give us any indication that DM could have been a possible cause of his hind leg weakness. I guess it started about a year and half ago, subtle changes, starting with his gait being just a bit off, not being able to run, having to cut our walks shorter and shorter. The vets had attributed this to his age and arthritis. This seemed to make sense. He was prescribed Carpoprofen for the arthritis, and it did seem to help a little bit. In December of 2008, he developed a malignant sebaceous adenoma on his cheek. He had surgery to remove the tumor, and we were assured that the prognosis was pretty good. After that setback things were great for a few months, he recovered from surgery just fine an was the dog that we all knew and loved. Then in June, another lump showed up on his neck. The first doctor performed needle aspirations on the tumor, but could give us no diagnosis of any sort. We took him to another vet who was able confirm that it was malignant tumor. Decision time, surgery-no it would be too invasive and traumatic (the tumor was larger and more internal than the previous one) Chemotherapy-no at his advanced age just too rough on the body. We, including the vet, decided the best thing to do was to just make life as wonderful as we could for him until the end which at that point was about another 6 months at best. So we move on and try the best we can to accommodate his needs. He was having some difficulties, problems with his hind legs, heavy breathing, getting winded very easily. His walks had to be ceased as he could not even make it down a city block. He was however still mobile, although with difficulties. The whole time we were attributing this degeneration to arthritis, age, and most prevalently, the cancer. We were trying to prepare ourselves for the realization that this was the ending stage of his life and he probably would not live more that a few more months. Then on November, Friday the 13th of all days, our boy started into his rapid decline. That evening, after barely touching his food, we let him out to relieve himself, and he could not get back up the stairs to our 2nd floor flat on his own. Saturday, he needed to be carried up and down the stairs, losing complete use of his hind legs and his front legs were extremely unstable. Sunday he had no use of any of legs, couldn't stand or sit up, he had to be hand fed food and water and eliminate laying on his side. Monday he could barely lift his head, and Tuesday he was a completely paralyzed. We knew that we were going to have put him down, but were reluctant to take him to vet's office as it would be too traumatic for him. He was still there, fighting, we could still see it in his eyes. We spent all of Tuesday petting him, stroking him, talking to him, attending to his needs, keeping him clean, and saying goodbye. Wednesday came and it was time, he had lost the glint in his eyes and was barely acknowledging our presence. In his own way he was telling it was time to let him go. The vet came to house, and performed the awful task, he went very quickly and peacefully while we held him in our arms. Through the whole six day ordeal, he did not seem to be in any significant pain, he was a trooper to the end. We did not know what did this to him, it was fast and furious, and absolutely perplexing. We did not need a doctor to tell us that our dog was on his deathbed, that was quite obvious. But what was it that took him from us at this shocking speed? This website has helped us realize that Jerry was a victim of DM. It is actually amazing that he carried on so long undiagnosed. We are actually a little bit glad that the end stage occurred so rapidly, as he did not have spend much time as an invalid. We will always love and miss Jerry, but at least we now know how and why he was taken from us. This site and everyone who has contributed their experiences and knowledge have helped us to deal with our tremendous grief and sorrow. Entry: 2009-11-09 00:04:24 Visitor's Name: Bill Homepage URL: No website supplied You are from: Lake District,Cumbria, UK How you found our site: Google Would you recommend our site to others?: You bet Comments: previous entry should say our 9 year old GSD. Entry: 2009-11-09 00:00:06 Visitor's Name: Bill Homepage URL: No website supplied You are from: Lake District, Cumbria. UK How you found our site: Google Would you recommend our site to others?: You bet Comments: Our year old Shepherd "Ritter Von Todd" is in late stages of this hiddeous disease. He is more or less down now, but will not give in. Vet gave him a month or so to live, that has long since passed and he is still with us. The spark may have dimmed but its still there. He gets all the treats he wants, apart from the right to eat our cat. Custard cream bickies and choccy covered raisens are his all time fav foods, and lets face it that will not kill him any faster than DM. Entry: 2009-11-04 04:54:24 Visitor's Name: Jill Homepage URL: No website supplied You are from: East Tennessee How you found our site: Would you recommend our site to others?: Comments: My 14 year old English Springer Spaniel appears to have DM. My vet said he thought she had it a few months ago; but I guess I was in denial until I read more about it today on the Internet. She exhibits all of the symptoms including crossing her hind legs and sometimes curling her hind toes under. She has good days and bad days, and she still gets very frisky at meal time and even still wants to play with her toys with me most days. She seems to feel fine other than losing control of her hind quarters. She has also had a few accidents in the house lately (#2) which is highly unusual for her. It seems weird that I haven't seen anything about this breed having DM; but I want to do everything I can to maximize whatever time I have left with her. Entry: 2009-10-02 05:32:48 Visitor's Name: Madeline Kallista Homepage URL: No website supplied You are from: Australia How you found our site: Google Would you recommend our site to others?: YESSSS!!!!!! Comments: My beloved first dog and best friend Grover was diagnosed with DM just yesterday. My husband and I are incredibly upset as Grove is only 16 months old. Grover has a beautiful kind and loving soul and has been such a great friend to me and my family. Unfortunately Grove already has front and rear weakness and is slowely losing control of his bladder. Our neurologist has suggested that we will only have to weeks to months left with our beloved friend and so this site has encouraged and supported me through this awful news. Grover will be truly loved and spoilt for as long as we have the absolute pleasure of his company. Thank you for this web site and the help and inspiration it has given me. Love you Grove!! ******************** From Marjorie: Please take your dog to another vet- DM does not affect the front until the dog is totally down in the rear and it it does not affect 16 month old dogs. This is an incorrect diagnosis! You say you saw a neurologist-PLEASE get a second opinion! What you have described is not consistent with DM! Entry: 2009-09-28 11:31:21 Visitor's Name: Sherrie Connelly Homepage URL: www.caringbridge.org/tundraconnelly You are from: Vallejo, CA, USA How you found our site: search Would you recommend our site to others?: you bet Comments: My dear female white shepherd Tundra was diagnosed with DM on September 24. I have put up a CaringBridge website, written Dr. Clemmons, ordered Dr. Schoen's books, and bought ingredients for RMC's dog diet,which I'll cook for the first time tomorrow. Please tell me more about the group Entry: 2009-09-22 04:35:36 Visitor's Name: Kerri Pratt Homepage URL: No website supplied You are from: Melbourne,FL USA How you found our site: searching for DM sites Would you recommend our site to others?: absolutely Comments: My 9 year old german shephard was diagnosed with DM in October 2008 by a neurologist. My vet is one of the few on the list of knowledgeable vets listed on the link for vets (Dr. Cole)....and I would recommend him to anyone in the area. He helped me from the beginning. King is to the point where he can no longer walk and he will pull himself from area to area. We have a cart from Eddies Wheels that he loves!! I just wish there was a way for him to wear it 24/7. This has to be the most heart wrenching disease around. The thought of putting your best friend down and their mind is still fully intact pulls at me to no end. I will hope and pray for a cure for this horrible disease. Until then, King and I will do what we can to keep him happy. Entry: 2009-09-21 02:54:56 Visitor's Name: Jon Cameron Homepage URL: No website supplied You are from: Wilmington, MA How you found our site: Googleing info on DM Would you recommend our site to others?: Yes Comments: This weekend was one of the worst of my life. I had to put my best friend down. Tyson was a 14 year old German Shepard who had a battle with DM for the past 2 years. Last night he became ill and we rushed him to the vet only to find his stomach had turned. Vet said due to his age and his condition (almost no use of his rear legs) she didn't feel that he would survive surgery. What an awful choice to have to make. He was in so much pain. He drifted off in mine and my wifes arms. I'll miss him dearly. Thank you for all the info your site gave me over the past couple years. Entry: 2009-09-11 12:25:28 Visitor's Name: Cassie Hanley Homepage URL: No website supplied You are from: Brisbane, QLD Australia How you found our site: looking for info on DM Would you recommend our site to others?: yes Comments: Hello, Our family dog has DM and is in the stage where he cannot get up and support his weight without our help. Which he needs especially around meal time. He's only just had his 8th birthday this month. I wish you all the best in finding a cure or putting a stop to this disease. All the best, Cassie Entry: 2009-08-30 01:28:05 Visitor's Name: Tammy Graves Homepage URL: No website supplied You are from: Chepachet, RI USA How you found our site: Googling DM Would you recommend our site to others?: YES!!!!!!!!!!!!!!!!!!!!!!! Comments: Thank you for this site! There is so much knowledge and support here! I keep referring to it over and over again! Entry: 2009-08-04 20:37:08 Visitor's Name: T.Je Homepage URL: No website supplied You are from: Southern, CA How you found our site: researching DM Would you recommend our site to others?: yes! Comments: Thank you for taking the time, and having such a compassionate heart to make a site like this to help support those who are struggling with this painful diagnosis in our beloved pets. Bless you and Jack for all your information and efforts. Our pug of 9 yrs has been officially diagnosed as of last month, and we are trying to do the best we can for him to make his remaining time as comfortable as possible - with the emphasis on quality of life... not quantity. Hydrotherapy has always helped his arthritic hips, so we will continue this, as we search for more ways to help him cope. Happy to have come across this site on the anniversary of Jack's passing. It is bittersweet, but I'm sure he is glad to know his legacy is still noble and helping so many others, every day. He is a special soul. Entry: 2009-07-27 18:16:36 Visitor's Name: Jim Homepage URL: http://www.buygolfequipment.net/ You are from: Texas,USA How you found our site: yes Would you recommend our site to others?: yes Comments: Congrats with the good site ! Entry: 2009-06-26 12:55:17 Visitor's Name: B. wagstaff, keeping Nash alive and moving... Homepage URL: No website supplied You are from: Baltimore, Maryland, USA How you found our site: google Would you recommend our site to others?: Yes, yes, yes Comments: My husband's beloved guidedog, Nash, was diagnosed wth DM almost a year ago. I immediatly put him on Dr. Clemmons meds and protocal. He is still with us toady as I write, but would have been put down last August if not for the meds. I now use a fleese cinch for a horse, put a belt through it, to lift him up and down stairs. He can still walk, but it has slowed down to a crawl. He still looks forward to his walks. I don't know how much longer he has, and we have with him, but he will be forever loved. Thank you for this site!!! Entry: 2009-06-20 05:14:28 Visitor's Name: Christina Mesher Homepage URL: No website supplied You are from: Chateauguay, Quebec How you found our site: Would you recommend our site to others?: Yes Comments: I came across your site while doing research on DM. I just wanted to share that DM also affects the Rottweiler breed, I just got the bad news a few days ago from our vet after taking our big guy Diesel in for prostate problems. I first thought, like many others I'm sure, his slowness in getting up was due to arthritis. It's hard news to take right now because he is only just going on 7 years old. My GSD Nicky lived to be 17 years, and health to the end. We only put her down a year ago, to have to think about going through it again so soon is hard. Anyway I look forward to getting as much info from your site as I can to help him for as long as he is going to be with us. Entry: 2009-06-15 19:13:14 Visitor's Name: Russell Turner Homepage URL: No website supplied You are from: TOWNSEND, TN How you found our site: Dr. Clemmons Website Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2009-06-05 04:47:45 Visitor's Name: Diane Boyce Homepage URL: No website supplied You are from: PA How you found our site: researching DM Would you recommend our site to others?: Yes Comments: It's been six months since my best friend was diagnosed with DM and I feel that the time went too fast. Today he passed away in my arms, I wouldn't have had it any other way. Entry: 2009-06-01 01:56:12 Visitor's Name: Brenda Green Homepage URL: No website supplied You are from: Brooksville, FL 34613 How you found our site: Looking for tips to express my dog's bladder Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2009-05-15 00:43:42 Visitor's Name: Judy Bailey Homepage URL: www.savetheboxers.com You are from: Carrollton, TX 75007 How you found our site: google DM in Dogs Would you recommend our site to others?: yes Comments: Thanks so much for the wealth of information on DM. It's obvious how much love and devotion you had for Jack Flash. He was a beautiful boy. I am with Legacy Boxer Rescue. I have been in Boxer rescue for 8 years and in the Boxer community for 17 years. DM affects this breed. I have just started fostering Smokey who has the begining stages of DM. We have 2 other volunteers that have had at least 3 dogs each with DM. It's such a aweful disease. I really just wanted to thank you for all the helpful information regarding DM. Judy Entry: 2009-05-06 14:59:26 Visitor's Name: Pam Homepage URL: No website supplied You are from: Boise Idaho How you found our site: google search Would you recommend our site to others?: yes Comments: My 13 old golden has DM. For the past three days he wil not eat and I have had to force medication down him. He still walks if he has his boots on (see neopaws.com) the boots have really helped him on hardwood floors, however I think his journey with us is close to ending. I don't know what else to do. I'm bringing him in for acupuncture on Friday as this has also helped him, but refusing food is just not him. I'm so scared. Entry: 2009-05-05 04:21:10 Visitor's Name: wood Homepage URL: No website supplied You are from: Ladysmith,Va How you found our site: Internet Surfing-DM Would you recommend our site to others?: Yes, most definately Comments: Update on Yogi in March 2009 I was able to order a relatively "reasonably priced" cart from Lori at Doggone Wheels, Montana. [Sometimes they put them up on Ebay.] Well luckily Yogi now got his cartin April and we have been going on walks 3 times a week as I have introduced the cart to him BEFORE he lost all the strength in his back legs. He now realizes we aren't going to give up on him!!! He loves his cart, I call it his bike! Cause the back wheels are 16 " just like bike wheels and he can go fast (when he wants too)over any type of terrain. Still I use a leash, cause there are many hills and dropoffs in my property , I don't have fenced in acreage and I don't want to lose him to an accident while he is learning. His demeanor picked up immediately once he realized what this was. THey advise you to gradually introduce the cart to your dog. I was lucky, my dog is SMART !. He immediately realized that this cart was his 'new freedom from boredom ! Gradually building him up to longer distances. Right now we are at the 1/4 mile stage. He seems to enjoy it even if it is not as much exercise as he used to get. It seems to be working to assist the slow down of him DM. Will keep you posted. Thanks for all your help and my fellow posters. ************************************ This makes my heart sing :) Thank you for this good news! Entry: 2009-05-05 02:06:41 Visitor's Name: Beth Van Nostrand Homepage URL: None You are from: Newberry, FL How you found our site: I was looking to wish Joyce Loeser Happy Birthday Would you recommend our site to others?: yes Comments: Kind of odd -- I have an adopted German Shepherd that I'm just now doing Schutzhund training with. Please tell Joyce Happy Birthday from Beth Van Nostrand! Entry: 2009-04-24 19:29:02 Visitor's Name: Bo Edmonds Homepage URL: No website supplied You are from: Charleston, SC,USA How you found our site: Google Would you recommend our site to others?: Comments: My beloved German Shepard "Zeke" my most loved friend and companion of 12 years recently was diagnosed with DM, and I am heart broken. He has entered the stage where he cannot support his own weight, I am really struggling with it, we have been through so much, and he has always been there for me loyal, loving unconditionally. I am doing everything to prolong my time with him, the toughest thing in the world will be having to make the decision to put him down, I just don't know if I can do it, and I don't know when the appropriate time will be. I am hoping for strength, and the blessing of a little more time with him, and that he will not suffer. If you have been through this, please pray for "zeke" and I. This website has been helpful to me. Entry: 2009-04-22 01:06:11 Visitor's Name: joannahopkin Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: Hi my name is Joanna. I am 24 years old. I come from United Kingdom London Entry: 2009-04-15 00:34:11 Visitor's Name: praiggers Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: Hi Everyone, I'm new here and willing to learn a lot. Entry: 2009-04-13 01:26:40 Visitor's Name: Eva Homepage URL: No website supplied You are from: Magnolia, TX How you found our site: google Would you recommend our site to others?: yes Comments: Our beloved friend and companion has been recently diagnosed with DM. We also mistook it for arthritis or hyp dysplasia. We are totally heart broken. She is currently imobile and we are at a loss as to what we should do. She is still full of life. We ordered a cart today to help her out and enjoy the time she has left. However, sometimes she has down days and then we struggle with the final decision. Thanks for all the info. It really helps to know about what is to come and what we may need to do. Entry: 2009-04-01 11:04:25 Visitor's Name: Eleni Montiadou and Wolfie Homepage URL: No website supplied You are from: Thessaloniki, Greece, Europe How you found our site: Dr. Clemmons' website Would you recommend our site to others?: Yes Comments: My Wolfie has DM. We live in Greece, Europe and there are no physiotherapists or pools or acupuncture that I can do in order to help him. During my research on the internet, I came across BIKO. From what I’ve read and considering the companies that recommend BIKO, such as the Veterinary Instrumentation in the United Kingdom(just type harnes on their search engine and you will find it), it seems to help DM dogs. I have purchase it and have start using it. I can not inform you on the results yet since it is the second day that we use it. But, take a look at it. I think it will be helpful for our dogs. Good luck to everyone and I pray that all of our dogs live the rest of their lives on their feet. P.S. In case anyone of you needs to know BIKO's webpage, you may contact me at hmont@act.edu and I will send the webpages to you. Entry: 2009-03-30 22:47:36 Visitor's Name: Bonnie Norton Homepage URL: No website supplied You are from: Orlando, FL, USA How you found our site: google search for DM leading to Dr. Clemmons Would you recommend our site to others?: Oh, yes! Comments: My GS Jake was misdiagnosed with arthritis, possibly Hip Dysplasis. We are behind in what we should be doing for treatment of DM. Just as you owe Jack Flash your life, I owe Jake mine. Two pit bulls attacked us while out walking. I decided to take one on while he handled the other, but Jake -- Mr. Cool -- actually backed them down and we left w/o a scratch. Thank you and Jack Flash for the inspiration you have given us to continue the fight against DM as long as possible. Entry: 2009-03-19 07:57:32 Visitor's Name: Nancy Homepage URL: No website supplied You are from: Atascadero, CA USA How you found our site: Researching aminocaproic acid Would you recommend our site to others?: Definitely Comments: Thanks so much for all this helpful information. I have 2 corgis afflicted with this disease, mother (Emily, aged 13) and son (Mikey, age 10, mother still on her feet but barely, son beginning to show definite signs. I've been giving them each 2 300 mg timed release doses, 12 hours apart. The improvement is more apparent in mom than son. It's expensive but worth every penny to see Emily exuberantly running down a slight hill, despite her weak and crooked gait. Entry: 2009-03-18 15:35:04 Visitor's Name: Stephanie Ahmad Homepage URL: No website supplied You are from: Royal Oak, MI How you found our site: google Would you recommend our site to others?: yes Comments: My Boxer, Hannah, was just diagnosed with DM yesterday. We have started her on supplements. My vet recommends Gabapentin. Has anyone had any luck with this drug? ******************************** Gabapentin is used for seizures, neuropathic pain ( but in true DM, there is no pain!) bi-polar diorder, and anxiety. Sounds like this is an off label use. Entry: 2009-03-16 19:03:48 Visitor's Name: Renate Trayor & Trapper Homepage URL: No website supplied You are from: Stuart , FL 34996 How you found our site: Sign. for DM flash test continuance Would you recommend our site to others?: YES Comments: Great Entry: 2009-03-15 14:59:45 Visitor's Name: Debbie Tillman Homepage URL: No website supplied You are from: Loxley, AL (US) How you found our site: Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2009-03-13 18:45:41 Visitor's Name: Stephanie Polizzi Homepage URL: No website supplied You are from: Glassboro How you found our site: surfing Would you recommend our site to others?: Yes! Comments: My beloved collie, Phoenix, has just been diagnosed with DM this past Wednesday. I am devastated and cannot bear the thought of my life without him. This horrible disease is robbing the life of my faithful companion and there is nothing in my power I can do. Phoenix will be 10 in July and I have noticed the last past year that he has slowly been deteriorating. The last few months he has deteriorated more rapidly and it is harder for my baby boy to walk. I cannot imagine my life without him nor can I imagine putting him to sleep but I know that time will come soon. I can no longer walk my Phoenix because his legs are really bad and one of his foot drags as well but for all of you who are going through this, we will all see our beloved babies again when we die and we will kiss and hug them and never let them go. It is then that we will walk with our beloved pets for all eternity. Entry: 2009-03-10 23:14:13 Visitor's Name: Dani and John Posner Homepage URL: none You are from: Stowe, PA US How you found our site: google Would you recommend our site to others?: Yes! Comments: We have been learning how to live with Addison's disease and recurrent uveitis in our 2 yr old Siberian Husky since Oct08 and now DM in our 11 yr old GSD. Our hearts are heavy, but our dogs are amazing. They are not sad; they play without the burden of knowing whats wrong. I am thankful for that and to have found such a great site to learn about DM. We ordered boots for our girl today, she can still walk a mile and we want to keep her going as long as possible! Entry: 2009-03-06 18:39:18 Visitor's Name: Trish Ranney Homepage URL: No website supplied You are from: Ballston Lake, NY, USA How you found our site: Researching DM Would you recommend our site to others?: Yes Comments: I'm at my wits end. My beloved Thumper has DM (also "confirmed" with DNA testing), and the disease has progressed rapidly the last couple of weeks. He's losing control of his bowels, and I don't know where to turn. Entry: 2009-03-04 03:52:54 Visitor's Name: Ami Pinnick Homepage URL: No website supplied You are from: Huron, OH, USA How you found our site: google Would you recommend our site to others?: Absolutely Comments: Just trying to figure out where to begin. Io - our almost 10 year old GSD - was diagnosed yesterday with DM, and we're just at such a loss as to what we need to do to help her. Entry: 2009-03-03 14:57:05 Visitor's Name: Dave Johnson Homepage URL: No website supplied You are from: WV, USA How you found our site: Google Would you recommend our site to others?: Yes Comments: Great information but this is just not the way I wanted to see him to go. Entry: 2009-03-01 20:02:47 Visitor's Name: Nike Dwyer Homepage URL: No website supplied You are from: Flemington NJ USA How you found our site: google Would you recommend our site to others?: Yes Comments: My boy Jackie CH.Covy-Tucker Hill's Ajax Flyer had DM Entry: 2009-02-27 07:07:29 Visitor's Name: Nancy Homepage URL: No website supplied You are from: Myrtle Beach, S.C., U.S.A. How you found our site: googling "degenerative myelopathy" Would you recommend our site to others?: DEFINITELY!!! Comments: I was unable to use your email buttons for some reason; please add me to the newsletter list...also, I think my vet would be eligible for your vet list (again, those email buttons!). If you contact me, I'd be happy to furnish my vet's info along w/ my dog's pedigree...she's had DM for about 2 1/2 years now and is still going strong! I've gotten a lot on information from your website, which I believe has helped us enormously! It's great to see so much information in one place...best of luck to any and all who are going through the DM process with their dogs; don't give up hope, even on the bad days! Best wishes to all! Entry: 2009-02-26 23:05:29 Visitor's Name: Dorian mantei Homepage URL: No website supplied You are from: Monroe Michigan How you found our site: Looking for help for a beloved pet Would you recommend our site to others?: yes Comments: Thank you for taking the time to set this up. We will be losing a beloved friend but we will be fighting all the way. Entry: 2009-02-24 05:57:23 Visitor's Name: Sandy MacDonald Homepage URL: No website supplied You are from: Victoria, B. C. Canada How you found our site: Looking up DM Would you recommend our site to others?: Yes Comments: Wow, that is amazing, I felt that I was reading my story with my Wylie. He is a 14 year old Shepherd who was diagnosed about one year ago, and I have gone through almost all the same identical steps, and all the same feelings. But instead of a swimming pool, he went for treadmill in water therapy. He has also been for acupuncture and we are now trying laser therapy to slow down the process. But now he is totally imobile on his own. I use a sling to get him short distances. And we now have a really wonderful cart from Eddies Wheels which he has only had for about 2 weeks now, but he is able to walk (slowly but surely) for about 20 minutes. It has given him his freedom again to a degree. He is able to now sniff lightposts etc, greet other doggies and greet the many people that stop us with questions about his condition and the cart etc. I know that it is probably just a matter of months (if that), but for now he is also just such a happy dog still that we will do everything we can to make his last time with us enjoyable for him. I have not as yet tried all the vitamins, but was just looking into that which is how I stumbled across your site. Thankyou for sharing it all, I can sure relate so very much. Entry: 2009-02-23 12:32:54 Visitor's Name: Eleni Montiadou and Wolfie Homepage URL: No website supplied You are from: Thessaloniki, Greece How you found our site: Dr. Clemmons's website Would you recommend our site to others?: Yes Comments: I need your help because my Wolfie was diagnosed with DM the last week. Entry: 2009-02-22 21:17:22 Visitor's Name: Jackie and Tom McIntyre Homepage URL: No website supplied You are from: Minneapolis, MN Hennepin How you found our site: Searching Would you recommend our site to others?: Yes Comments: We are so upset and wondering what to do next and when to take the last step. We have never had children so our dogs are our kids. We just got the FL paper back that states JD is positive. Now what??? Entry: 2009-02-20 13:42:34 Visitor's Name: John Bartelous Homepage URL: http://www.kirraczar.co.uk/ You are from: Brede, nr. Rye, East Sussex in the UK How you found our site: Searching for information about DM Would you recommend our site to others?: Most certainly Comments: On Friday 18th February at 11.20am Ralph my beloved GSD - friend and constant companion for the last 8 and half years, closed his eyes for the last time as he lay his head in my arms and we were as one. So as he fell quickly into a deep sleep he passed peacefully away released from his struggle against the evils of DM. I can’t begin to describe the heart ache and pain watching him over many weeks struggle to fight his losing battle and knowing there was only one end. His brave approach was a real inspiration to observe. I will forever marvel at his courage and determination to always be with me night or day! In a way suffering a similar problems myself helped me to understand his, and together we fought a fight we were never likely to win, but might just gain a little extra time together! It was worth it, we had many precious moments together whether in the house, office or in his favourite woods and the memory of his excitement and his robust barking as I put my boots on for our “stumbling” walk together in the woods will never leave me! He taught me many things, not least to love and treasure his company and to become a real “dog lover!” That was his great achievement! He taught me patience, and the importance of his respect, love and companionship! I can truthfully say never in the 8 plus years did I once lose my temper or raise a finger against him! So having discovered the value of companionship and the love of the GSD breed I feel a better person to give hopefully another good home to the little lady who is to be his successor. Of course there will never be another Ralph – he was just too specially and probably why I have chosen to have a girl! So a long and very wonderful chapter has closed! I have a mass of photos going back to the time he joined me as an 8week old pup, his published dairy to say nothing of his website. My beloved Ralph – we will walk together forever! Entry: 2009-02-17 12:26:18 Visitor's Name: Wood Homepage URL: No website supplied You are from: Ladysmith, Va USA How you found our site: Googled Hip Dysplasia then DM Would you recommend our site to others?: Yes, wholeheartedly , yes Comments: My approx 9 yr old GSD 'Yogi' has all of the signs here. We take daily walks but I have noticed a progression of his inabilities over the last 6 months. I thought it was just his hips. But he has been more incontinent lately both urine & fecal. He used to go into his doghouse & sleep but now he won't go in it even when it drops to 14 degrees outside.He has the Super size Indigo Dogloo with cedar shavings in it. Last year he would go in it every night. This year when he wouldn't go in it, I figured something was up. He crosses his hind legs frequently on walks and acts like he is drunk and sometimes can't stand correctly. It like a loss of nerve control. He isn't able to run anymore. I wonder what to do next. Even if a veterinarian isn't going to be able to fix his condition, I know I don't want him to suffer. Yogi was a gift from a 90 year old friend who had lost the ability to care for him some 5 years ago. I adopted him with the thought of caring and loving him forever. Thanks for your site. Entry: 2009-02-14 14:31:15 Visitor's Name: setona page Homepage URL: No website supplied You are from: savannah, ga. How you found our site: looking up DM Would you recommend our site to others?: most definitely Comments: Tiger, my Brindle Boxer was just diagnosed from a vet who looking at the signs and symptoms came to this conclusion. I have never hard about this....don't know what to do. Tiger is exactly 11 years....is healthy otherwise...started incontinence a couple of months ago..but the back weakness for the last year...thought it was hip dysplasia. Entry: 2009-02-11 01:17:50 Visitor's Name: Jo Ann Dimon Homepage URL: www.akitarescuewny.com You are from: Toms River, NJ USA How you found our site: Friends in GSD rescue Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2009-02-09 18:16:51 Visitor's Name: Richard Hille Homepage URL: http://www.vonhausdemuth.nl/ You are from: Lunteren, the Netherlands How you found our site: visited before Would you recommend our site to others?: yes Comments: APPEAL, visitors of this guestbook living in Europe, please contact us when you have aerman shepherd diagnosed with DM. We are collecting data of DM incidences in Europe to, in time, convince the SV and other GSD authorities of the importance of compulsary testing. Entry: 2009-02-09 18:15:07 Visitor's Name: Richard Hille Homepage URL: http://www.vonhausdemuth.nl/ You are from: Lunteren, the Netherlands How you found our site: visited before Would you recommend our site to others?: yes Comments: APPEAL, visitors of this guestbook living in Europe, please contact us when you have aerman shepherd diagnosed with DM. We are collecting data of DM incidences in Europe to, in time, convince the SV and other GSD authorities of the importance of compulsary testing. Entry: 2009-02-03 00:44:30 Visitor's Name: Kimberly Dobb Homepage URL: No website supplied You are from: Zephyrhills, FL, USA How you found our site: Searching Would you recommend our site to others?: yes Comments: My poor Ben has been Diagnosed with DM, he is 9 years old and I fear we are in the final stages. We are treating with Dr. C treatments provided to us by our vet. Somedays they seem to help and others not. It is a very sad sad situation Entry: 2009-02-01 15:02:16 Visitor's Name: Chepa Homepage URL: No website supplied You are from: Toronto, Ontario, Canada How you found our site: Google search engine Would you recommend our site to others?: absolutely! Comments: I have a 11-month old Rottie recently diagnosed with degenerative knee problems and some dog breeders suggested to put her down. We love her so much and we search all over the internet trying to help her.You site gives me strength and hope. Thank you very much!!! Entry: 2009-01-27 23:21:13 Visitor's Name: Eugenia Calocassides Homepage URL: No website supplied You are from: Metamora, MI How you found our site: web researching DM Would you recommend our site to others?: reesoudingly yes Comments: Marjorie - you are a God-send, and have touched and contributed to so many lives - thank you. This is heartbreaking - as all of you know I realize from reading these messages - it's amazing, there are so many good people out there, who care, truly care so much for their families. Zues, our big hearted, handsome boy, has DM. We are starting him on the diet, vitamins, got him a wheelchair, and can you believe it, that 12 1/2 year old boy is the one keeping OUR spirits up. His courage, strength, and determination is heart-breaking and inspiring all at the same time. I wish we were worthy of him - and ever day, we will try to live up to the example he is setting for us - although it is mighty high. Bless you all, and know that here is one more family, feeling your pain and having the grace of God to have a big hearted lover-boy in your lives. It is we who are truly blessed. Entry: 2009-01-27 19:27:10 Visitor's Name: Ted Homepage URL: No website supplied You are from: Metamora, Mi How you found our site: Google Would you recommend our site to others?: YES Comments: Thanks for sending us in the right direction to help our guy Zues Entry: 2009-01-26 01:49:11 Visitor's Name: Wren Homepage URL: http://www.dogster.com/dogs/69132 You are from: California, USA How you found our site: Link on the "For the Love of Dog" blog Would you recommend our site to others?: yes Comments: It's nice to find so much information and support in one place. Entry: 2009-01-24 21:42:20 Visitor's Name: Gwynneth Homepage URL: No website supplied You are from: UK How you found our site: Google search Would you recommend our site to others?: yes Comments: Just found out my dog bailey has DM and i googled DM and found this site. Great info, and a great help. Thanks loads x Entry: 2009-01-24 19:44:44 Visitor's Name: Ronda Homepage URL: No website supplied You are from: USA How you found our site: Searching info about disease Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2009-01-20 00:17:39 Visitor's Name: joe holroyd Homepage URL: No website supplied You are from: huddersfield uk How you found our site: google Would you recommend our site to others?: don't konw Comments: am a DL I need help Entry: 2009-01-19 14:42:11 Visitor's Name: Richard Hille Homepage URL: http://www.vonhausdemuth.nl You are from: Lunteren, the Netherlands How you found our site: dr. Clemmons Would you recommend our site to others?: yes Comments: In our entry of 2008-11-12 we mentioned two dogs with DM. Balto has slept in early December and Bess on December 31st. Although there are many websites about DM, we have made one of our own. I have tried to use a business-like appraoch, yet personal too. The website is in Dutch, of course, but the page on Degenerative Myelopathy has an English version. We hope that we will be able to better the knowledge of DM, especially in Europe, where the decease is being ignored in a big way. We wish everone with a DM dog strenght, take hart and take care of your dog. Remember, even when so awful, YOUR DOG HAS NO PAIN. We should know afer 4 DM dogs now. Entry: 2009-01-17 03:25:42 Visitor's Name: Susan Cameron Homepage URL: No website supplied You are from: Darien, CT, USA How you found our site: Google Would you recommend our site to others?: yes Comments: Today my 10 year old GSD was given a probable diagnosis of degenerative myelopathy. Your site has a wealth of information. Thank you so much. Entry: 2009-01-14 04:34:34 Visitor's Name: Stacey Ulrich Homepage URL: No website supplied You are from: New York How you found our site: web search Would you recommend our site to others?: YES Comments: I cannot tell you how many tears I have shed while reading of Jack Flash. I have actually read his story several times since the awful diagnosis was made w/my Lab. It breaks my heart to know that others have had to face this horrible, unforgiving disease. Your story has helped me through many, many difficult times in this, and is helping come to terms with the inevitable decision that every parent dreads. Thank you so very much for sharing Jack's story. Entry: 2009-01-13 18:26:20 Visitor's Name: Marie Altobelli Homepage URL: No website supplied You are from: Kearny, NJ USA How you found our site: Internet Would you recommend our site to others?: yes Comments: My 14 yr old lab/greyhound mix has deteriorated suddenly, over a course of a month. She has no use of her rear limbs and is incontinent. She is on cortizone and the Dr. said it could take a month, but it has been 2 weeks and I see no improvement. I'm not sure what to do next. Do you think hydrotherapy would help? Thank you, Marie PS Thank you for the information on this site. Entry: 2009-01-11 18:46:11 Visitor's Name: Mark Roland Homepage URL: No website supplied You are from: Canada How you found our site: googled DM Would you recommend our site to others?: y Comments: My Nitro being put down next week. A DM sufferer. 11yrs. old he wont make in April/09 He is telling me today with his eyes that he can no longer retrieve his ball. He has had a full life and we love him for all the pleasure and memories he gave to us. A remarkable animal in everyway! Entry: 2009-01-08 18:14:33 Visitor's Name: Margo Weight Homepage URL: No website supplied You are from: Mapleton, Utah, USA How you found our site: internet Would you recommend our site to others?: yes Comments: Sadie, 10 year old female, noble friend and love of my life came up with partial left rear leg paralysis on Dec 26 2009. One of the worst days of my life. In hindsight I am thinking that her symptoms of incontinence are related to DM and have gone on for sometime (2 1/2 years). I am waiting for my first shipment of drugs to arrive from Westlab and am hoping I will be able to get them in her as we are battling a severe loss of appetite. I was afraid she would starve to death and am trying everything I can do just to get her to eat. She is very sensitive and will quit eating at the drop of a hat. Her condition has gradually improved and she is able to go for walks. We are also dealing with a torn ACL from September 2008. I am hoping to have her with me just a little longer with a good quality of life. If I seem more improvement after giving her the meds from Westlab does she stay on them for the rest of her life? Thanks, Margo Entry: 2009-01-08 15:20:28 Visitor's Name: Michelle S. Homepage URL: Columbus, WI. USA You are from: How you found our site: Would you recommend our site to others?: Comments: Thank you soooo much for that information (NOT to give my dog an IMMUNE BOOSTING supplement !!!) I had no idea it would be HARMFUL, but when I read up on it (with no information on how it would effect a DM dog) I was hopeful it could at least help him short term. Next Tuesday I will be taking Sam in for another exam to hopefully get some answers! I do pray it's not DM, but at the same time I am being realistic! P.S. Do any of your dogs stumble and have their legs fall out from under them, but get out into the yard and RUN like nothing is wrong??? Entry: 2009-01-07 18:48:20 Visitor's Name: Michelle S. Homepage URL: No website supplied You are from: Columbus, WI. USA How you found our site: Would you recommend our site to others?: yes Comments: I have two GS dogs. My male (Sam), age 8 years, is our silly boy who always loves to play and mess with his sister (Vixen) also 8 years. Vix is more of an "old soul" and thankfully from different parents then Sam. I always thought my girl would leave me before my boy, but now I'm not so sure. I think my dog may have DM! Back in June, 2008 Sam was given a clean bill of health along with shots at his vet visit, a few weeks later he seemed to get very ill. We took Sam to the vet because he was dragging his right back leg and was very lethargic, vomiting, loose stools and he seemed very sensitive to the light, his eyes were dilated. To make a long story short, he was sent home with meds. for a "back" problem. Not much changed so we went to a specialist who believed it was a tic born illness and was put on anti-biotics. Well, over all Sam got better. He started eating better and gained energy back but still had the slight foot drag. His vet then thought maybe Cauida Equina. In December, 2008 we noticed more of a foot drag, and more weakness in the back legs in general. Sam has also lost a lot of muscle mass (something we noticed even earlier on, back in June). Now he seems to be weaker, slipping and having his legs give out on him from time to time and more crossing of the hind legs. Sam also has an arched look to his back which also seems more pronounced. I hate to see my very high spirited dog, now with less energy and not so full of life!! ) I'm wondering if anyone out there has had a dog with DM with the same type of illness at the onset of their dog,s DM? Also has anyone tried immune boosting pills? Did it change anything? Also, I would like to find a more natural dog food for Sam. Currently he is on Iams lamb and rice (sensitive stomach kind of guy). Thank You so much for this site!! I pray our dogs will someday have a cure for this dishonor placed on them. Please write back to the guestbook if you have any info. My computer is not allowing me to sign in on the message board. Thank you and best wishes to you and your dog(s). *********************** From Marjorie Please do NOT give immune boosting pills or supplements to a dog with DM!!! The very LAST thing one would want to do to a dog or person with an autoimmune condition, is to boost the immune system! With an autoimmune disease, you would want to turn OFF the immune system- NOT RAMP it up! In an autoimmune disease, the more you boost the immune system, the more the body attacks itself! In fact, in some autoimmune conditions, Chemotherapy is given to deliberately crash the immune system, to stop the body from attacking itself, which it mistakenly perceives as the enemy :( Entry: 2009-01-06 01:36:39 Visitor's Name: Marc Andrews Homepage URL: No website supplied You are from: Portland, OR, USA How you found our site: Eddys weels Would you recommend our site to others?: yes Comments: I am so scared of losing my 10 yr old Welsh Corgie to DM. and i just don't know whear to start to help him Entry: 2009-01-05 20:20:38 Visitor's Name: Erika Thimm Homepage URL: No website supplied You are from: Port Perry, Ontario How you found our site: internet search Would you recommend our site to others?: Comments: (No comment made) Entry: 2009-01-05 19:09:42 Visitor's Name: John Bartelous Homepage URL: http://www.kirraczar.co.uk/ You are from: Brede, nr. Rye, East Sussex in the UK How you found our site: A search for information on DM via Google Would you recommend our site to others?: Most certainly Comments: My beloved, loyal and faithful companion Ralph - a most gentle, intelligent and wonderful friend whom I have had the privilege of barely had eight and half year to be with, is at this moment fighting this dreadful disease. With a similar incurable condition myself he is an inspiration to be with as his courage is to be constantly marvelled! Your web site spurred me to not give upon him, but to fight for and with him! Whilst I cannot stop what is to happen, I can I hope make his remaining period of life a rich as possible not only through my love and devotion to him but with some real and beneficial assistance. Marjorie Zimmerman – believe me I am living your worst moments every hour of every day as I see my wonderful GSD being slowly paralysed and I know the road ahead will not be a happy one – far from it. Thank you for making your unashamed grief so sharable - As I enter a similar fateful period it give me the strength to be there for my Ralph to the very end! Entry: 2009-01-04 13:06:58 Visitor's Name: Gene Bass Homepage URL: No website supplied You are from: Eureka, CA, USA How you found our site: Google Would you recommend our site to others?: Yes Comments: Tara, our family GSD has DM. I would love her to see her 16th Birthday in October but things don't look good for her. She has lead a long wonderful life with our family and by GSD standards done well. I appreciate your time and efforts to put together this information. Our decision day is surely nearing and it helps to read about how others have known it was time. Warm regards, Gene Bass, Eureka, CA Entry: 2009-01-04 06:18:31 Visitor's Name: Eric and Carmen Homepage URL: No website supplied You are from: Draper, Utah How you found our site: web search on DM Would you recommend our site to others?: absolutely! Comments: Our family has two beautiful german shephards- black and tan female, Hedi (not pronounced as Heidi) and one white male, Baron or better known as Bear-Bear. Baron has had DM for the past year(January 3, 2008). I initially noticed in the early spring of 2007 that Baron seemed to be limping ever so slightly. So slightly in fact, that no one else in my family could tell except for me. I insisted that my husband check his paws frequently to see if he was injured. I finally gave up being worried there was something wrong until September of 2007 his limp became very pronounced. I figured he had hurt himself going on walks with my husband and chasing deer and skunks in the mountains of Utah. My next door neighbor is a vet and we had him check Baron out multiple times before we finally took him in to our local vet for x-rays and blood tests in January 2008. Baron seems to be hanging in there, still seems like he has a quality of life. Our neighbor vet has moved further into the mountains of Coalville and has offered to put our dog down at our home when the time comes. We are grateful for his care of our family member and his friendship over the years. Losing close family members is nothing knew to our family-when we put are first dog down due to old age about 4 years ago, it was hard for my family since we had already lost a brother-in-law in the military at the age of 25 and our nephew at the young age of 7 due to a rare heart condition. Now I have a son with a mutation of that rare heart condition and another son with scoliosis...Baron with DM and my heart sinking to prepare for the day that is quickly approaching to say good-bye to our beloved pet. Everyday my family cares for Baron by helping him go to the bathroom, grooming and preparing his meals while making sure we flip him to prevent body sores. The four of us make time everyday to spend quality time with him to keep his spirits up. I pray that God will continue to give my family the strength to pull through this when the time comes. Thank you for your site and the support it has provided me and my family. Entry: 2009-01-02 00:16:15 Visitor's Name: kate seabeck Homepage URL: No website supplied You are from: La conner, washington, usa How you found our site: internet under myelopathy Would you recommend our site to others?: yes Comments: i really need help understanding this.so far you have been MOST helpful! Entry: 2008-12-31 17:04:44 Visitor's Name: Pam Morris Homepage URL: No website supplied You are from: Winston-Salem, NC 27103 How you found our site: Googling to find out more about DM Would you recommend our site to others?: Yes Comments: Thank you for sharing your information. Our Boxer/Pit mix is suffering from (confirmed by spinal fluid evaluation)DM and it is now progressing rapidly. Entry: 2008-12-30 05:35:36 Visitor's Name: Pam Homepage URL: No website supplied You are from: Deltona Fl How you found our site: West Lab Would you recommend our site to others?: With out a second thought Comments: I just want to say I'm losing my best friend Kia to DM.My daughter bought Kia when she was just 6 weeks old just alittle ball of fur well Kia only wanted me so my daughter gave her to me.We bounded from day one,she is the most beautiful German Shepard inside and out, she's having diffucult times now the DM is getting worst..Kia will never be forgotten................never Entry: 2008-12-30 00:19:16 Visitor's Name: dana Homepage URL: none You are from: blue bell pa. usa How you found our site: research Would you recommend our site to others?: yes!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Comments: my gs i beleieve is in begining stages . i had him to vet two weeks ago.been on predisone two weeks. did not help.vet wants to xray and is doing blood work. possibly mri to eliminate other problems. i will do anything for my KING but i don't want to put him through a battery of useless tests. hes ten yrs. still very active but i beleive he has dm. i live in blue bell pa. near philadelphia. my vet is dr. goldner at hickory animal hosp. please help. dana Entry: 2008-12-29 00:21:28 Visitor's Name: Linda Homepage URL: No website supplied You are from: California How you found our site: while looking at info on DM and carts. Would you recommend our site to others?: yes! Comments: fantastic site! my gs is 14 and could not get up this morning. after reading all the parts on your site, i now realize she has been exhibiting the symtoms the past few months. your site has helped me so much. thank you for all your dedicated work. Entry: 2008-12-28 23:12:45 Visitor's Name: Pamela Belmore Homepage URL: Deltona Fl Volusia You are from: How you found our site: Dr Clemons Would you recommend our site to others?: Yes Comments: Looking for surpport with my German Shepard dog Kia Entry: 2008-12-19 02:57:45 Visitor's Name: Kristin Homepage URL: No website supplied You are from: Charleston SC How you found our site: looking for information on MS Would you recommend our site to others?: Yes Comments: My beloved Shepard is in the final stage of MS. Your words helped me not to feel guilty about what i have to do. I read this and thought it might help others "Harley, we have sent you on a jouney to a land free from pain, not because we dont love you but because we loved you too much to force you to stay. We will all miss you.... Entry: 2008-12-17 14:52:01 Visitor's Name: Elaine Homepage URL: No website supplied You are from: State College, PA How you found our site: searching for info about DM Would you recommend our site to others?: yes Comments: My White German Shepherd, Snow, was diagnosed yesterday with DM. He is the greatest dog ever and my very best friend. I don't know how to deal with the thought of losing him. I just love him so much. Entry: 2008-12-15 02:39:04 Visitor's Name: Alene Sutherland Homepage URL: No website supplied You are from: Elo, NV How you found our site: recommended by the customer serv. rep at Foster and Smith Would you recommend our site to others?: only with Kleenex close by Comments: My wonderful GS, Maggie, had had DM for less than a year. Symptoms are progressing at this time so that she is slow and cautious getting up, stumbles often and is loosing hind leg muscle mass. I'm searching for information that can help her. Entry: 2008-12-09 17:20:55 Visitor's Name: Kory Muniz Homepage URL: No website supplied You are from: Florida How you found our site: Would you recommend our site to others?: Comments: THe best dog in the worlf Jets T. My baby was diagnosed today with DM. What a shock to me? He has helped raise 3 children who love him. How can I live without him??? Is there anything we can DO to help him ?? Entry: 2008-12-09 00:00:18 Visitor's Name: patti Homepage URL: none You are from: providence Rhode Island How you found our site: surfing Would you recommend our site to others?: for sure Comments: my dog is suffering from this disease after twelve and half years of being my best friend. Her name is kingston and is a great shepard and am happy I could be part of her life. Entry: 2008-12-06 17:53:20 Visitor's Name: Lori Grossnickle Homepage URL: No website supplied You are from: Winona Lake,Indiana USA How you found our site: google search Would you recommend our site to others?: yes Comments: My 11yr. old female Corgi was recently diagnosed with DM and I am devastated. It is great to know there is a support group. Entry: 2008-12-04 14:46:08 Visitor's Name: wendy Homepage URL: No website supplied You are from: lake zurich ill usa How you found our site: google Would you recommend our site to others?: yes Comments: I just put my 15 year old sheaprd to sleep last month-now my rottie is going down hill fast--any suggestions would really help-I'm lost Entry: 2008-12-04 11:16:07 Visitor's Name: Karen Cambio Homepage URL: No website supplied You are from: North Providence, RI How you found our site: web search Would you recommend our site to others?: absolutely Comments: (No comment made) Entry: 2008-11-28 06:31:13 Visitor's Name: Nina Hedberg Homepage URL: No website supplied You are from: Salem, OR USA How you found our site: thru PF support group Would you recommend our site to others?: Yes Comments: Would like to receive email information on this disease and join the support group. Entry: 2008-11-23 22:58:03 Visitor's Name: d mazzulli Homepage URL: No website supplied You are from: rochester ny How you found our site: looking for help Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-11-20 23:21:53 Visitor's Name: Deanna Suskovich Homepage URL: No website supplied You are from: Fishers, Indiana, USA How you found our site: Search Would you recommend our site to others?: Yes Comments: My German Shepherd, Lexie, was diagnosed with DM at age 6. Originally she was given 7 to 10 months. Through the help of our vet and a holistic vet it has now been 18 months. Entry: 2008-11-20 22:30:21 Visitor's Name: Amanda Stevens Homepage URL: No website supplied You are from: Albuquerque, NM How you found our site: Google Would you recommend our site to others?: yes Comments: my 12 1/2 year old white shepard mix Argos just was diagnosed with DM and I am totally devestated. I am afraid he may be towards the end of the progression, as I think I missed some of the earlier signs due to his hip dysplasia he has had since he was a year old. My vet has not been very knowledgable or helpful, so I am hoping to get some advice from others who are experiencing the same thing. Entry: 2008-11-18 15:41:08 Visitor's Name: Jane Brudek Homepage URL: No website supplied You are from: Arcade, NY How you found our site: just searching the web Would you recommend our site to others?: Yes I would Comments: I felt this was very helpful and informative. thank you! Entry: 2008-11-17 23:36:27 Visitor's Name: Sabine Homepage URL: none You are from: haddam,ct How you found our site: google search Would you recommend our site to others?: yes Comments: I am reading these messages and am crying. My Alex, a Sharpei mix was just diagnosed with DM. He is 10 and is my whole life. I started giving him vitamins, and he is on an anti inflamatory. He was just diagnosed on Saturday, so two days ago. I thought it was his hip bothering him, he is so healthy, solid muscles never had any health problems. Can anyone suggest what to do next? Entry: 2008-11-13 04:42:38 Visitor's Name: m scheffke Homepage URL: No website supplied You are from: Evanston, IL, USA How you found our site: through Eddies wheels Would you recommend our site to others?: most definitely! Comments: I have a frenchie with DM - so I was curious on how to adjust the amounts of medications you recommend for GSDs vs a frenchie Entry: 2008-11-13 04:35:31 Visitor's Name: cindy Homepage URL: No website supplied You are from: williamstown, NJ united states How you found our site: google.com Would you recommend our site to others?: yes Comments: thank you for your story about jack flash. My gsd rocky was diagnosed with dm. i am trying alternative treatments with several doctors, trying to find a cure rather than the bandaids. one doctor said dm is caused by gut dysbiosis, cure that and cure dm. also, trying other alternatives such as frozen live aloe. Entry: 2008-11-12 17:21:08 Visitor's Name: Richard Hille Homepage URL: www.vonhausdemuth.nl You are from: Lunteren, the Netherlands How you found our site: googled for German Shepherd DM Would you recommend our site to others?: yes Comments: As small breeders of German Shepherds we have encountered GSDM several times now. The illness is not commonly known in the Netherlands, don't ask me why. Neither is the research about GSDM. We have lost one dog to GSDM and at present we are desperatingly trying to prolong the life of another one. Three more dogs from the same litter have GSDM, one has recently died. We fear that our Bess (6 years of age next month) and her brother Balto will soon go the same way. We are medicating to the guidelines of dr. Clemmons. Hopefully we may prolong the life of Bubles as she is in the early stage. Entry: 2008-11-11 20:50:27 Visitor's Name: joe Homepage URL: ? You are from: huddersfield How you found our site: google Would you recommend our site to others?: do not know Comments: I am trieing to find DLs in huddersfield help me Entry: 2008-11-09 02:56:10 Visitor's Name: Camille Tinling Homepage URL: No website supplied You are from: Sacramento, CA, U.S.A. How you found our site: on-line, through Dr. Clemmons site Would you recommend our site to others?: yes Comments: Hard to find your way to the support group(s) ****************************** From Marjorie: No, it is not! You need to take the time to read through the site. We are here to help, but you also must help yourself...There is an entire page of the site devoted to the message boards with a link to the Boards. There is also a drop down menu on the opening page of this very guestbook you signed, with the DM Message Boards as a choice on the drop down menu!! Additionally, there is also a button on the buttons page of the site (the index page) which also will take you to the page that connects to the Message Boards. In fact, it is quite hard to miss all the links to the boards..The only way you couldnt find it is if you didnt take the time to read through the site. The message boards could not be easier to get to! Entry: 2008-11-07 09:33:27 Visitor's Name: Chuck Clarke Homepage URL: No website supplied You are from: Fresno,CA,USA How you found our site: Would you recommend our site to others?: yes Comments: I lost my Weimaraner pal of almost 14 years several years ago, due to DM. He had other problems which complicated it also. The course of the disease in his case was about 2.5 years from the foot-drag stage to where he had more or less complete paralysis of his back end, along with incontinence and the rest. The last couple days, he also lost use of his front legs also, and then refused to eat, which is when I knew it was time. An interesting note for those researching this is that he also had had HOD as a puppy ( though mild to moderate in course)which is another autoimmune disease. Weims are in fact prone to immune and autoimmune diseases, and it might be interesting to see if the testing would work with them, also. In Max's case, the steroids helped somewhat in the last couple weeks of his life, but things were too far gone by that point. Entry: 2008-11-07 08:34:27 Visitor's Name: Becky Homepage URL: n/a You are from: Akron, Ohio USA How you found our site: googled DM in GSD Would you recommend our site to others?: Absolutely! Comments: My 6 yr old foster GSD of 2 weeks is showing signs of DM and I am devastated for him. Thank you so much for this help for my gentle giant. Entry: 2008-11-03 23:36:13 Visitor's Name: Shelley Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: judgeslebow, I can not answer your question " Am I defeating the purpose of the Westlab meds? " However I can offer a suggestion as to how to aide GSD to have the motivation to get in the car for you... Mine is also very bull headed always was, I have found that the fav treat, put in on the seat of the car just enough out of reach that they have no choice but to get some paws in the car to reach it.. has always worked for me... works well getting out of the car as well... Also if you live near a street curb,, I found parking close to the curb, to create a extra step up and down, made it much easier for King,, if not maybe a sturdy box of some sort might help? Oh his fav treat,,, turkey hot dogs,, I will break off a tiny piece .... thats all it takes... As for covering the taste of some of the meds,,, Maybe a ham hock cooked in water,, and just the broth might work? There again I do not know if it would defeat the purpose, but then again if you are having problems getting your GSD to take the meds to begin with,, its sounds like a catch 22 situation,, Maybe some one else can help with that one... ********************************** From Marjorie This is why there is a DM Support Group Message Board- for people to get the help they need. Questions cant be answered through the guest book- there just isnt enough space. There is a link on the website to the message boards. There are many creative minds there that can help with all different situations, and offer advice. I suggest you join the message boards to get questions answered. I know the people there will be happy to help :) Entry: 2008-11-03 22:48:59 Visitor's Name: Shelley Homepage URL: No website supplied You are from: Pa. How you found our site: Google Would you recommend our site to others?: Yes Comments: I left a comment a while back here, first I need to correct myself, I meant DM not MD. Secondly, King has had complications, he also has a very bad tumor on his neck and the vet gave him about a month to live. He will be living a life that owes up to his name for the next few days, then I will allow him to rest in peace, as he rightfully deserves. I just wanted to say thank you again so much for this site, it brought support when there was no one else, and for that I will be for ever grateful... I hope King and Jack Flash have a chance to meet ;o) Entry: 2008-11-02 21:19:03 Visitor's Name: Alex Smith Homepage URL: No website supplied You are from: United Kingdom How you found our site: recommended by friend Would you recommend our site to others?: Without hesitation Comments: Your website has been so invaluable to me. My boy has DM and your site has been a constant source of reference. Entry: 2008-10-30 21:18:07 Visitor's Name: judgeslebow Homepage URL: No website supplied You are from: Ft. Lauderdale, Florida, USA How you found our site: Would you recommend our site to others?: Comments: This is for David & Kristie Frost: Have you had your dog checked for polyradiculoneuritis (coonhound paralysis)? A friend made me aware of this as a possibility, but my vet does think my sweetheart has DM. Message to all: 3 vets have now diagnosed my 8 year old GSD with DM (regular vet, neurologist, holistic) Awaiting 2nd blood work results from UF. I began the recommended treatment, but he refuses to injest any of the medicines even with the chicken broth added. So, I have been giving the Antiox with sardines which smell worse than the medicine and adding other meds to regualr feeding. Am I defeating the purpose of the Westlab meds? Other than the clear liquid medicines, he somehow detects every small amount of tofu, every capsule, gelcap, tablet, herb, etc. in his food and refuses to eat unless is just chicken/turkey and brown rice with the small amounts of broccoli, carrot and spinich. Any suggestions? He is also refusing to walk as much as he should. He is 116 lbs and very strong (minded) and this disease seems to be evolving rapidly. Any suggestions will be greatly appreciated. PS, I am only caretaker and can no longer help him into car. I have been taking him for acupuncture every other week, but although nothing, including that, seems to be helping, my vet has agreed to make a house call to continue the acupuncture. Entry: 2008-10-30 20:21:17 Visitor's Name: judgeslebow Homepage URL: No website supplied You are from: Ft. Lauderdale, Florida, USA How you found our site: Would you recommend our site to others?: absolutely Comments: (No comment made) Entry: 2008-10-26 22:33:28 Visitor's Name: Pat Fisher Homepage URL: No website supplied You are from: Massapequa, NY, USA How you found our site: researching DM Would you recommend our site to others?: Yes Comments: I amazed that so many vets aren't aware of this. Entry: 2008-10-26 00:47:28 Visitor's Name: Renee Johnson Homepage URL: none You are from: Desert Hot Springs, Ca USA How you found our site: google Would you recommend our site to others?: yes Comments: Thank You for your wonderful and informative website, it has helped me to not feel so alone. I see so many similarities in our German Shepherd Dogs, they love their toys, don't they? My Scout needs assistance to walk now, back legs just don't work anymore. Thank you for being here and all your hard work. So sorry for your loss of Jack Flash. Entry: 2008-10-24 17:40:44 Visitor's Name: David &Kristie Frost Homepage URL: No website supplied You are from: Salt Lake City, UT, USA How you found our site: Google search for DM Would you recommend our site to others?: Yes Comments: Kera is only 5 years old. My love, my running partner. She is always ready for a run. 6 weeks ago we ran 18 miles together, It was great, she was grinning and happy. Now were trying to find out whats wrong all signs of DM are present. She is in the first stages of tests. The blood came back clean. I am praying that we find something in the X-rays. The only hope we have is that her signs of weekness were sudden and in a weeks time progressed rapidly. Entry: 2008-10-23 03:37:54 Visitor's Name: Lisa Behm Homepage URL: none You are from: Lake in the Hills, IL How you found our site: web Would you recommend our site to others?: yes Comments: We have a 10 year old boxer, Buddy, we are putting down on Friday, he is not at the point of paralysis, but close. It breaks our heart to have to put him down. He was diagnosed with DM a couple months ago. Originally a year ago it was hip displasia with a different vet. It breaks our heart to see him trying to walk now, but it also tears us up to make this decision, but it is only fair to him. I wish we would have known it sooner, to try to prolong his life a little. your website has really helped with information. I really hope other people learn their dog has dm earlier so they can spend more time with their dogs and enjoy their life before they go! Entry: 2008-10-21 03:06:53 Visitor's Name: Lisa Jakober Homepage URL: No website supplied You are from: Bordentown, NJ USA How you found our site: browser Would you recommend our site to others?: yes Comments: I have a shepherd/collie mix, Charlie, that has been living with DM for 14 months. Charlie is 9 years old. He has been in a wheelchair for 8 months now and using diapers for the last coupleof months. It is scaring me now that he is acting depressed more days than not. His bark has reached the stage of almost being non existent. His sister misses playing with him and I know she will be heart broken right along side of us. It is going to be time soon, I know, but I am having a hard time since we lost his mother due to complications of SARDS and his Aunt passed away in her sleep. Charlie has been such an inspiration of determination and not letting anything get in the way of chasing the squirrels. I am sad but understand all when I look in his big brown eyes. Entry: 2008-10-18 03:09:06 Visitor's Name: Sandy Reynolds Homepage URL: No website supplied You are from: Bourbonnais, IL USA How you found our site: google Would you recommend our site to others?: definitely!! Comments: I have an 11 1/2 year old Golden Retriever named Bailey who has recently been diagnosed with DM. It is such a devastating disease and I am grateful for your website and the information provided. Thank you Entry: 2008-10-17 10:17:10 Visitor's Name: Shelley Homepage URL: .... You are from: Pa How you found our site: Google Search Would you recommend our site to others?: With out any doubt Comments: This site is awesome. My baby boy, King, is 11 and a half and has MD. He has not been tested officially, but he has all the signs and has been seeing the same vet for his whole life. At first like many others I have read, I thought it was hip dysplasia. I called my vet and asked about wheel chairs and a possible hip replacement. It was at that point he started asking me for Kings symptoms. He asked if King was dragging his feet and crossing them when he walked, and if he had scrapes on the top of his claws on the back paws. I had to answer yes to all of these, at which point my vet told me, the chances were very high King had MD. I had never heard of it before and was shocked. I asked what treatments were available , at which point he told me not many that are proven effective. King can still walk although it is a great struggle for him. He is on Deranmaxx. He gets a half a pill every 12 hours, it seems to be working well for the pain. I have had king since he was 8 weeks old, and he has been my best friend and the love of my life, for 11 and a half years. I have been a complete and utter mess over all of this, I had female I just had to send to the other side, in June, she had a rare liver, kidney problem that causes massive seizures, she was only 2 and a half. Now dealing with my big boy and this MD, its killing me from me from the inside out. He is a very strong and bullheaded German Shepherd and watching this disease pummel him is about more then I can bear. His mind is clear and sharp and his spirit is solid, but his body is just breaking down on him, and I feel so helpless like there is little I can do to stop it. I have watched it get considerably worse here in the past few months, and was asking myself if it was time to let him go, before this thing destroys him. Asking when is enough, enough, then the guilt, how can I even think about letting him go? This disease truly is the most horrible thing to fight and live with. Thats when I decided to do some research and see if I could find any answers. Then I found your site. My tears will not stop flowing, and the emotions are so strong there are no words. May what ever god you serve , bless you 10 fold... Entry: 2008-10-16 17:03:30 Visitor's Name: Jennifer Homepage URL: No website supplied You are from: Brampton How you found our site: Web Would you recommend our site to others?: Yes Comments: My GS is 13 now and showing all signs of DM. I wondered if anyone else in Ontario has ordered the prescribed medications from the U.S. or found them somewhere else in Ontario where they can be purchased. Any comments would be greatly appreciated. Thank you. Entry: 2008-10-15 17:30:41 Visitor's Name: Bonita R Homepage URL: No website supplied You are from: Baltimore, Maryland How you found our site: Google search Would you recommend our site to others?: YES!!!! Comments: My beautiful Lobo is a 10 year old GSD who has been the love of my life since I rescued him from a shelter when he was 18 months. He was diagnosed with DM about a year ago. My poor boy has had many medical issues throughout his life including an early diagnosis of hip displaysia and an occurance of bloat. My husband and I have done everything and anything we can to make him happy and comfortable. Now we are faced with something that we can't fix and we are devestated. Lobo is getting worse at a rapid speed and I know he won't be with us much longer. Thank you so much for your site and for the beautiful story about Jack Flash. I was crying uncontrollably as I could feel the pain you were feeling when you were writing it. I wish I had found your site sooner. Entry: 2008-10-15 16:02:45 Visitor's Name: Carol Jurca Homepage URL: www.thearcinc.net You are from: North Aurora, IL How you found our site: Google Search Would you recommend our site to others?: Sure Comments: I also do dog therapy out in North Aurora, Il. Please lislt and visit my website as well. THANKS!~! thearcinc.net Entry: 2008-10-14 19:39:42 Visitor's Name: Sudamys Alfonso Homepage URL: No website supplied You are from: Jacksonville, FL How you found our site: google Would you recommend our site to others?: yes Comments: Just getting my dog through all exams including CAT SCAN to hopefully rule out DM. I am already going through so much pain with this. Entry: 2008-10-12 10:16:22 Visitor's Name: robert Homepage URL: No website supplied You are from: nottingham.england How you found our site: searching for information Would you recommend our site to others?: yes-it is a very informative ,excellently presented site. Comments: its heartbreaking reading these sad stories,but the love shown towards the dogs shines through. Entry: 2008-10-08 02:44:17 Visitor's Name: Brigi Homepage URL: No website supplied You are from: Grand Haven, MI How you found our site: Looking up DM information Would you recommend our site to others?: Yes Comments: Thank you for sharing your story. I just found out my 6 year old Brutus has DM. We are heartbroken. I am surprised to find out how many families have been effected by DM. Entry: 2008-10-07 01:30:34 Visitor's Name: Tracy Yost Homepage URL: No website supplied You are from: Penticton, BC Canada How you found our site: looking up MD for my brother Would you recommend our site to others?: yes & I have Comments: Wish I would have found you before I lost my dog to this... my brothers dog may have it so I've passed on your site as well as many others. Thanks so much. Entry: 2008-10-06 21:28:54 Visitor's Name: judgeslebow Homepage URL: No website supplied You are from: Ft. Lauderdale, Fl USA How you found our site: Would you recommend our site to others?: Definitely Comments: Dear Marjorie: Thank you so much for your comprehensive response regarding the blood testing for DM. I am taking my baby for his third acupuncture treatment later this week and will ask that there be a second blood sample sent to U of F for another DMFlash Test. I want to make sure he is not being treated for the wrong disease. Thanks again for all your efforts. Entry: 2008-10-06 21:07:52 Visitor's Name: Karen Orrock Homepage URL: No website supplied You are from: Zimmerman, Minnesota How you found our site: Purina Pro Club newsletter Would you recommend our site to others?: Yes Comments: I wish I would have known of this horrible disease earlier so I could have taken some proactive actions with my dog. I hope I'm not too late to do any good. This website has been very helpful in helping me to understand and cope with DM. Just knowing how many others out there are going through the same experience is a great encouragement to me. Entry: 2008-10-06 00:16:52 Visitor's Name: John Molnar Homepage URL: No website supplied You are from: Griffith IN 46319 How you found our site: Searching for info related to DM Would you recommend our site to others?: Yea Comments: Roscoe, my 11 yr german shep mix is in a cart and I have just ordered diapers, what's next? Entry: 2008-10-02 05:57:48 Visitor's Name: Denise Homepage URL: No website supplied You are from: Blaxland, NSW, Australia How you found our site: Google Would you recommend our site to others?: Absolutely Comments: Having grown up with and shared most of my adult life with GSDs, I am still suffering disbelief after our vet advised us that our beautiful Eva has DM. It is comforting to find this website and gain additional knowledge and to know that there are many GSD lovers who will empathise. Loved the photos of handsome Jack Flash. Entry: 2008-10-02 04:46:51 Visitor's Name: Natali Rodriguez Homepage URL: No website supplied You are from: Sarasota Fl USA How you found our site: Would you recommend our site to others?: yes Comments: Thank you to share your story. My dog Maxi 11 years old has been diagnose with MD is very sad that this happening to our dogs right now I have to except this and is very painful and will be, but thanks to you story I have little picture ahead thank you so much.I will think about it a lot. Entry: 2008-10-01 10:06:27 Visitor's Name: Donna Griffith Homepage URL: No website supplied You are from: VIC Australia How you found our site: Google search on MD Would you recommend our site to others?: Definitely Comments: Thank you for sharing your beautiful boy, experiences and knowledge with me and the rest of the world. Entry: 2008-09-30 20:34:21 Visitor's Name: Georgia Henzler Homepage URL: No website supplied You are from: Norwich, New York USA How you found our site: web Would you recommend our site to others?: absolutely Comments: I just found out today that my Greta (a beautiful German Shepherd Dog) has DM. she is at a stage 3 out of 6. Entry: 2008-09-29 17:24:02 Visitor's Name: DEBBIE Homepage URL: No website supplied You are from: johnson city, tn. 37601 How you found our site: while researching Would you recommend our site to others?: yes Comments: my gsd is 10 years old. she is a white shepard. i actually have 2, both females, 10 and 13. i just recently found out that Dakota, has DM. From everything i have read, i just don't see any hope. I love my girl so very much, and i am at a loss on what to do. what besides unconditional love can i offer her. i just went through a cancer situation with my 13 year old. Entry: 2008-09-29 16:22:38 Visitor's Name: irene wong Homepage URL: No website supplied You are from: Kuala Lumpur, Selangor, Malaysia How you found our site: whilst searching the internet for a wheelchair for Mikko Would you recommend our site to others?: YES! Comments: Majorie, plse advise me how to get to Dr Clemmons' program to slow the progression of DM for Mikko. Thks. I cried & cried when I read your article. I had to put to sleep Mikko's brother, Mikki, this April and it was heart rending. Mikko is going thru this now. Entry: 2008-09-29 05:33:40 Visitor's Name: Gloria M. Lee Homepage URL: No website supplied You are from: Justice,Il USA How you found our site: Eddies Wheels Would you recommend our site to others?: Most defenately Comments: The site has helped me to realize that I'm not being selfish in wanting to have have my best friend with me until she tells me she's ready to leave. Entry: 2008-09-28 14:10:27 Visitor's Name: S King Homepage URL: N/A You are from: Canada How you found our site: Google - refferal Would you recommend our site to others?: Yes 110% Comments: Your story is beautiful, it touched my heart. I cried and dried my eyes and cried some more. My dog is German Sheppard and Lab mix and is living with DM. It's been about 1 yr now where I can see it slowly taking over, but after reading your story I am hoping this is a prayer answered for me, that I can try all you have and give my baby a longer life together. Thank you for your inspiration. 2008. Sept Entry: 2008-09-26 16:42:57 Visitor's Name: Carole Rhoades Homepage URL: No website supplied You are from: Anderson,SC How you found our site: "I feel lucky" on Google" Would you recommend our site to others?: Yes Comments: I'm praying we can get a diagnosis for Max snd be able to save him. Entry: 2008-09-25 20:41:46 Visitor's Name: judgeslebow Homepage URL: No website supplied You are from: Fort Lauderdale, Florida USA How you found our site: Would you recommend our site to others?: Comments: This is the first time I have ever logged on to a message board, and never would but for love of my dog. Udah just turned 8 in May. I was referred to specialist (neurologist) as well as a holistic vet. The holistic vet took blood and sent it to University of Florida, and it came back as a negative (for DM) But, I was told it could be a false negative. The neurologist sent blood to Univeristy of Missouri for testing and it came back high positive. I am told this test is more accurate since it is based on DNA analysis. I am starting him on the protocol recommended by University of Florida. Has anyone else heard of the research being done at University of Missouri? **************************** From Marjorie: It does not surprise me that some people will find variation in our results and the gene test. We have found that, too. Our test is broader and may look at things they do not. Even so, their test and ours may look at different aspects of the disease. Even if they looked at the same thing, there will be some differences. I know our sensitivity and specificity, but I do not know theirs. They will have to defend their own test, but we can defend ours. They are currently trying to get funding to do the testing which we did in the beginning to see the significance of the test in the general population compared to those with the disease. I suspect they will have similar results. Be that as it is, most of the problems with the tests are not the tests, but the initial diagnosis. So, when we find a “DM” dog who is negative, we suggest they check the diagnosis. Often, it is the diagnosis that is wrong. There is the worst case scenario, we suggest they get a better answer. If the dog turns out to have DM when we did not find it with the test, yet it is confirmed through other diagnostics to have DM, the correct diagnosis is ultimately made. No test is perfect. With a 96% sensitivity and 99% specificity, the DM Flash test is awful close to perfect. However, we designed the test the way we did for a reason. We do not want dogs who are positive in the test to not have the disease. (We cannot help that in non-clinical patients which is why neither ours or the gene tests are good screening tests.) If we had non-affected dogs test positive, then they would not get the diagnostics needed to diagnose their real problem. On the other hand, we accept a limited level of false negatives (4% in our case) where the affected dog tests negative. The worst case is that they have the other diagnostics needed to find out what is really wrong. You cannot have both. If Sensitivity is held too high, then Specificity goes down and vice versa. So, generally we strive for the highest specificity (few false positives) while maintaining the highest sensitivity (false negatives) possible. We have that in the DM Flash test. Generally, combining 2 tests (even if doing the DM Flash test twice) will reduce both false negatives and false positives to improve the overall outcome of the results. We do that test mostly in dogs who have clinical signs. At least that is what we know about the DM Flash test. I will say that the wrong diagnosis is most of the problem when the test is “negative” and the owner thinks the dog has DM. The last case DR Clemmons had where that was the complaint was a dog with Wobbler’s disease which went undiagnosed until he saw the video. The owner was sure it was DM. The DM Flash test and the gene test both said it was not DM, but the owner did not want to believe either test. Of course some diagnostics had been done, just not the right one. One last comment. Both are DNA tests. The gene test looks (supposedly) at SOD1 only. We may be looking at additional areas as well when running the DM Flash test. No one knows for sure which DNA regions (since it is probably more than one) are the most critical in developing DM. Entry: 2008-09-24 22:05:21 Visitor's Name: Barb Wilson Homepage URL: No website supplied You are from: Brookline, MO USA How you found our site: surfing Would you recommend our site to others?: yes Comments: My 12 1/2 year old lab was diagnosed with dm about 4 mths ago. Her back legs are paralyzed and she doesn't eat very well. My doctor wants to put her down but I'm just not ready. Entry: 2008-09-24 19:50:48 Visitor's Name: Eileen Pangere Homepage URL: No website supplied You are from: Crown Point, IN USA How you found our site: Search Engine under DM Would you recommend our site to others?: Yes Comments: Just found out from vet that my husbands leader dog has DM. I don't know how to tell him. It is breaking my heart. What do I say? Entry: 2008-09-22 04:18:44 Visitor's Name: Sonja Homepage URL: No website supplied You are from: Dayton, OH USA How you found our site: Google search for DM Would you recommend our site to others?: Yes Comments: This week, we will be euthanising my sweet boy, Quincy. Quincy is a beagle/terrier mix that I got from the pound 13 years ago. He has been suffering from DM for quite sometime though it went undiagnosed for a much longer time. Thank you for giving me the courage to make the right decision for him. Entry: 2008-09-15 03:24:22 Visitor's Name: Cheryl Homepage URL: No website supplied You are from: manchester, CT How you found our site: Searching DM Would you recommend our site to others?: yes Comments: I cried for Jack, as I will for my Shadow who is near her end of life with DM. I am praying she will go peacefully in her sleep at home on her bed. Entry: 2008-09-14 18:26:52 Visitor's Name: Suzie Majorovas Homepage URL: No website supplied You are from: San Marcos, Ca., USA How you found our site: Was looking for support Would you recommend our site to others?: Most definately, most do not know our pain. Comments: I hope that I can become educated so that I might help others. In my dogs name, Honey, I want to lend help and comfort and education so that others might understand. Entry: 2008-09-11 12:41:47 Visitor's Name: Paul Homepage URL: No website supplied You are from: Barossa Valley, South Australia, Australia How you found our site: Looking up degenerative Myelopathy Would you recommend our site to others?: Without a doubt.. Comments: I cried and cried when I was reading your story as we are at the "put to sleep" stage tomorrow 12th Sept 08. I will make it my mission to find a cure for this. It has taken my best and only friend which I will never forget. Entry: 2008-09-11 02:18:11 Visitor's Name: Francene Homepage URL: No website supplied You are from: Toronto, Ontario, Canada How you found our site: Throught Toronto German Shepherd Rescue Website Would you recommend our site to others?: Sure Comments: Jack Flash certainly looked like a very special friend. I had tears in my eyes. What a beautiful dog. Entry: 2008-09-07 04:26:21 Visitor's Name: Roberta Brooks Homepage URL: No website supplied You are from: New York ,New York How you found our site: My wonderful...Vet. Dr. FRaccisco diPolo Would you recommend our site to others?: yes Comments: Thank you, my sweet darling 11 yr. old dog has just been diagonosed with DM. I am having a very difficult time with this.She is quite healthy otherwise. I would love some feed back on Dr. Clemmons treatment for DM.Is it a suppliment over the counte,or a perscrition med. Thank you, Roberta Brooks ************************************* From Marjorie: Missie T has DM- she is my second DM dog. She was dx at 4 yrs of age, which is very early. I put her on the anti-ox, suggested by Dr Clemmons, made by Westlab Pharmacy, she she went into remission for 3 years. She is now 7 yrs old . 2 months ago, Missie T began scraping her feet when she walked, and her toes were always bloody. I started her on the N-Acetylcysteine and the Aminocaproic Acid (both prescriptions) and several weeks after beginning them, she no longer scuffs her feet. The full program is on Dr Clemmons website and listed on the DM medication page of my website. Its always best to check his site to see if he has added anyting. Entry: 2008-09-06 05:44:08 Visitor's Name: Therese Homepage URL: No website supplied You are from: Scottsdale,AZ How you found our site: My daughter found it Would you recommend our site to others?: Yes Comments: My 13 year old German Shepard, Julie, was diagnosed with DM almost a year ago. Sadly, we will be saying good-bye to her next week. We believe it is time to stop her suffering. I love her so much...she is like a part of me and I don't want to lose her. i feel I have made the right choice, but i am very, very, sad! Entry: 2008-09-06 04:23:56 Visitor's Name: kathleen ward Homepage URL: No website supplied You are from: palos park illinois How you found our site: googled degenerative meyelopathy Would you recommend our site to others?: yes Comments: yesterday I had to put down my best boy,Kirby,who was just 7 years old. His progression with this horrible disease was over 6 months and terrible to watch. The diet seemed to help for just a week or so. But we continued it until the end. I held my boy in my arms with the vet coming to our home. It was a peaceful but so premature death. Our family is devastated. I wish I found this site earlier. Entry: 2008-09-02 20:54:35 Visitor's Name: Deb Markham Homepage URL: No website supplied You are from: Agawam, MA How you found our site: google Would you recommend our site to others?: yes Comments: This is my second dog (GSD & King Shepherd) with DM. THey are absolutely no blood relation. Entry: 2008-09-02 20:14:50 Visitor's Name: Rosie Homepage URL: http://www.dogster.com/dogs/320889 You are from: Houston,TX USA How you found our site: online search Would you recommend our site to others?: yes Comments: My dog has was diagnosed last month but has been showing symptoms since May of this year. We originally thought it was hip dysplasia. I'm following Dr. Clemmonds treatments in hopes that she can improve. It is very hard and wish she could walk and run as she used to. She is a very happy dog has a tremendous drive and vibrance. I will help her as much as I can. Thank you for your website it brings peace by knowing that others are going through the same. Entry: 2008-09-01 04:39:04 Visitor's Name: Rita Dower Homepage URL: No website supplied You are from: Jacksonville, Fl, USA How you found our site: looking for carts, harnesses, etc Would you recommend our site to others?: yes Comments: You and Jack have inspired me to help my 11.5 yr old lab in anyway I can. I wish I could afford to get her the material things to make her more comfortable and to assist her in walking. She was diagnosed with DM about 4 months ago and it has gotten progessively worse. It make me so sad to watch her try to walk and scoot around on her backend or slide on her tummy. Thanking you in advance for any help you can give us. Rita and Shadow Entry: 2008-08-28 19:50:16 Visitor's Name: Michele Steele Homepage URL: n/a You are from: Indianalis, IN USA How you found our site: search on yahoo Would you recommend our site to others?: absolutely Comments: I just received word today my beautiful almost 13 yeard old labrador retriever Eddie has the disease. I'm upset beyond words but your site has given me some hope to give him quality of life that may get us another year or so with him. Thanks for all that you are doing. Whoever said a pet is just a pet has never truly embraced what love an animal can truly give you in both times of happiness and sadness. Entry: 2008-08-28 17:23:08 Visitor's Name: julie hayer Homepage URL: No website supplied You are from: port st. luice, fl, usa How you found our site: searching the web Would you recommend our site to others?: yes, yes, yes Comments: thanks for being there!!!!! we just found out two days ago that our Zeb (8 1/2 year old, boxer) has DM needless to say i have been without composure since, because when you say two heart beat as one - boy do i know what you mean - you see when he breaths out i breath in !!!!! so to know that there is support for this incredible sufficating feeling i am having is somewhat consoling thanks Entry: 2008-08-25 22:53:59 Visitor's Name: Donald Parker and Bonnie Wagstaff Homepage URL: No website supplied You are from: Parkville, Maryland, USA How you found our site: We were looking for info on DM Would you recommend our site to others?: Yes, yes, yes Comments: A wednesday afternoon when things were darkest, we found your site, and your medical info and research links. We had been told my husband's guide dog, Nash, probably has DM. We were devastated. Thank you for your info and references. We have Nash on Dr. clemmons (?) program as you used. So far, so good. thank you for this site as the DM desease is really devastating! Entry: 2008-08-22 22:21:52 Visitor's Name: Krin Asselta Homepage URL: www.pamperedpaws-corinthtx.com You are from: Corinth, TX 76210 How you found our site: Wikipedia - Canine Degenerative Myelopathy Would you recommend our site to others?: Yes Comments: You have a beautiful site. Entry: 2008-08-21 03:24:25 Visitor's Name: Grace & Dakota Homepage URL: No website supplied You are from: Old Westbury, NY How you found our site: I am an old friend to this site Would you recommend our site to others?: ABSOLUTELY Comments: This site was what helped me through some of the saddest & darkest days of my life. Having a dog with DM was heartbreaking and I could of never gotten through it without the wonderful support of Marjorie & Vickie. Two angels that will always hold a special place in my heart! My thoughts and prayers are with all of you on this DM journey.Don't give up the fight! ********************** Grace- I was just thinking of you the other day! How strange you stopped by the guestbook!!! The little tree in the dish planter you brought to my house, when we were working on the surveys, has really grown- that little tree holds so many memories.. Hugs to you- Dakota and Jack Flash must be the best of friends... Entry: 2008-08-20 06:32:42 Visitor's Name: Jennifer Mocaby Homepage URL: No website supplied You are from: Kuna Idaho How you found our site: looking for information Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-08-18 16:58:38 Visitor's Name: Shehla Homepage URL: No website supplied You are from: Aurora, CO, USA How you found our site: googled Degenerative Myelopathy Would you recommend our site to others?: you bet Comments: I'm new to the disease - my Harley is being diagnosed late due to arthritis and SLO. Entry: 2008-08-14 16:37:55 Visitor's Name: Victoria Crowley Homepage URL: No website supplied You are from: Cocoa, FL How you found our site: Would you recommend our site to others?: Yes Comments: Thank you Entry: 2008-08-06 11:17:55 Visitor's Name: ANDREA TURIA Homepage URL: No website supplied You are from: New Zealand How you found our site: google Would you recommend our site to others?: YES YES & YES Comments: Our dog JAK left us a few months ago. We had to get him put down. The vet travelled to our home and did it for us so JAK was with us from the time he took his first breath when his mother gave birth to him and his 11 brother and sisters in our home. Jak had been suffering from this tragic disease for the last 4 years of his life. During the last 2 years he was on regular prednisone, deer velvet pills and also a mild laxative (to help him do his business without too much stress on his hind legs). OUr family was absolutely GUTTED as we watched our dear friend progressively get worst. It was so sad watching our 'boy's' body failing him while he still had all his "marbles" upstairs. Well anyway, just thought i'd share my story and i better go get some more tissues!!!!!!!! MISS YOU HEAPS JAK......AND LUV YA!! Entry: 2008-08-06 03:50:26 Visitor's Name: Bill Byles Homepage URL: none You are from: Upland, CA, USA How you found our site: Googled degenerative myelopathy Would you recommend our site to others?: Yes Comments: My dog is a German Shepherd mix, 14 1/2 years of age, weighs 52 lbs, has black and tan hair. She began exhibiting symptoms of DM about 8 or 9 months ago, but I didn't know what it was...I thought it was probably arthritis and wasn't too alarmed due to her age. She was just a little stiff in her hindquarters but just walked a little slower than usual. About a couple of months ago she began to drag her rear feet, and seemed to be losing a little coordination. I talked to my vet on the phone and asked if giving her canine aspirin would help arthritis; he said that it might so I started giving her one 120 mg tablet with food in the morning and the same in the evening with her food. The aspirin did help, increasing her mobility for about 5 weeks or so, then her symptoms got worse so I took her to my vet here in Upland, CA and he examined her. He told me that she has DM and that while arthritis may be involved her biggest problem is the DM. He gave me a very good explanation of DM which corresponded very closely with what I found on your website. He told me that there are no medical miracles available and suggested moderate exercise plus food supplements. I asked him if steroids would help and he said they might help in the short run. He gave Gypsy a steroid injection and Prednisone tablets to follow up. I had carried her in to the vet's office for the exam, carried her out to my truck to go home, and had to carry her into the house. I put her on the carpet in my bedroom and came out here to work on the computer. About an hour and a half later here came Gypsy walking really well out here to see me. I was like a miracle, so I gave the Prednisone as prescribed for about a week and a half. She was like a new dog. Then, last Saturday morning, ten days after the steroid shot, she again was having considerable difficulty walking. I called the vet again, took her in, and she got another injection of the steroid. This time it hardly helped at all, even with the Prednisone. So yesterday I started taking her for a short walk, about two blocks which was about all she could comfortably do. Today, she was a little better. I am just taking it day by day...I can't imagine being without Gypsy. She has been the high point in my life since she was 9 weeks old. I have gotten a lot of information from your website about DM, its treatment, and what to expect. Thanks for putting this together. Bill Byles Entry: 2008-08-04 18:07:39 Visitor's Name: sara Homepage URL: No website supplied You are from: cypress, texas usa How you found our site: just looking around and found it Would you recommend our site to others?: Comments: My Annie (Annieboo) is 13 and I suspect that she has had this for at least a year, mabye longer but was just now diagnosed formally. I am not about to give up on her without a fight so I am gathering as much information as I can about this and treatments. I pray that it is not too late for us to help my Annieboo. Entry: 2008-08-03 18:16:38 Visitor's Name: patricia mellars Homepage URL: No website supplied You are from: middlesex london How you found our site: surfing Would you recommend our site to others?: yes Comments: best site todate for degenrative mylopathy in German Sheapherd dog that is easy to understand. Entry: 2008-08-02 18:23:13 Visitor's Name: Susan Stotler Homepage URL: No website supplied You are from: Meriden CT USA How you found our site: ref by Linda Walker Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-07-31 03:03:33 Visitor's Name: Gina Watson Homepage URL: No website supplied You are from: Umatilla, Florida How you found our site: google - looking for info on DM Would you recommend our site to others?: yes, but hope I won't have to... Comments: I have a 14 yr old Pembroke Welsh Corgi named Journey. Everything I have read tonight has led me to believe she may have been suffering with DM for the last year or so. She has all the symptoms - difficulty getting up and down and walking, and falls frequently. Her left back leg is rotating inward and she drags the top of it when she walks. She now has also become incontinent. We have an appt with our Vet Saturday. I thought this was just arthritis or old age... I had no idea... I've never heard of this condition and not sure if my vet has either. I'm afraid it's too late for any type of aggresive treatment plan for her at this point... I wish I had found your website sooner... God bless you for what you have done for all of us, and God help me with the decision I must make for my beloved Journey. Entry: 2008-07-30 02:21:45 Visitor's Name: David Dolan Homepage URL: No website supplied You are from: Chicago,IL How you found our site: google search Would you recommend our site to others?: absolutely Comments: (No comment made) Entry: 2008-07-30 01:37:17 Visitor's Name: sonya franks Homepage URL: No website supplied You are from: inman sc usa How you found our site: found on web Would you recommend our site to others?: yes Comments: I have a corgi i believe has DM not sure Entry: 2008-07-29 00:01:40 Visitor's Name: Sheila Lauder Homepage URL: No website supplied You are from: Washington How you found our site: Google search for GM Would you recommend our site to others?: Yes Comments: I noticed my Cheseapeak dragging one hind leg because I heard her paw scraping on the rug. We've had x-rays done and no sign of hip problems and her health is otherwise excellent and she's in good weight. Our vet has did diagnose her for anything, just said if she gets uncomfortable bring her in. I understand from the AKC that diagnosis should be available from DNA alone very soon and I plan to do that then. In the meantime, I'm trying to follow the Dr.Clemments advice on diet and supplements. This is heartbreaking - more so I think because in every other way Scoop seems her old happy and busy self. So far, only one limb seems to be affected. My heart goes out to all of you. ********* From Marjorie: Sadly, the AKC does not distinguish between the types of DM-the DM of German Sheherd Dogs is not the same as DM of other breeds- therefore, the test, IMHO, may be useless for the different types of DM and only good for the type of DM they are studying. Many breeds get a myelopathy that is progressive and chronic, but the DM of the GSD has an autoimmune factor behind it. Entry: 2008-07-28 18:13:57 Visitor's Name: Tina and Mike Phillips Homepage URL: No website supplied You are from: Colorado Springs, CO How you found our site: Searching for DM info Would you recommend our site to others?: Absolutely- you are a godsend. Comments: We had to put our beloved girl Sallie down on Saturday. She was diagnosed 4 years ago, and thanks to the care of Dr. Jim Friedly of Falcon, Colorado, she had a lot of quality time with us. She was the biggest, sweetest, most protective girl I've ever known. Thank you for this site. I believe I saved her any additional suffering because things I read here. I lool forward to the day when I stop crying because it won't be any time soon. Til we meet again, my Angel. Entry: 2008-07-27 21:22:29 Visitor's Name: Valerie Rich-Shelley Homepage URL: No website supplied You are from: Jackman Maine USA How you found our site: through the msn german shepard dog Would you recommend our site to others?: yes Comments: this is a beautiful tribute to your dog, I have had german shepards all my life also meaning my grandmother, mother and now me. they have such a beautiful soul that seems to understand us, your Jack looks alot like my King that I had as a teenager, just georgous..thank you so much for sharing, and I understand how hard it is to lose such a friend, bless you. Entry: 2008-07-26 22:57:49 Visitor's Name: Kriste Smitley Homepage URL: No website supplied You are from: Pennsylvania, USA How you found our site: About.com Would you recommend our site to others?: Yes Comments: I have a 13-year-old Pitt Bull Lab named Jed that has been suffering from DM for a little over a year. We are in the stages of deciding whether to euthanize or not. His will is still strong as he wants to play but cannot. Its very sad to watch and the decision is hard. I know he will not make it through the winter or deal well with being indoors as the Alzheimers is worse when he is confined. I thank you for this site and the wealth of info here. Entry: 2008-07-23 19:46:10 Visitor's Name: Sally Hammar Homepage URL: No website supplied You are from: Portland, Oregon How you found our site: Would you recommend our site to others?: YES! Comments: Yesterday we had our beautiful Bernese Mt Dog euthanized. She was 9, and had DM for over a year, but had never lost her regal look. Unfortunately, her constant falling had made her eyes full of fear. She was greatly loved. Entry: 2008-07-16 15:52:18 Visitor's Name: Kathleen Homepage URL: No website supplied You are from: Toronto, Canada How you found our site: websearch Would you recommend our site to others?: yes Comments: Thank you Marjorie and Jack Flash, I have read your story and am sitting here crying. I respect and honour the relationship you two have shared and I am sure that continues on. Your story very much reminds me of the relationship I have the pleasure to have with my lovely 1/2 shephard, 1/2 hound, Basil... and I suspect that Basil is also developing the condition. I have noticed the ebb and flow of these signs over the past year or so (some before then, but he has always had hip issue and a bit of back leg drag when he is fatigued), but have found little input from current vets. He is nearing 13 years of age; so, I assume they figure it part of the aging process and offered no suggestion. There can be periods of blissfully little or no symptoms and then the odd stumble or difficulty getting up reminds me that we do have a situation at hand. On a symptomatic day... the signs seem pretty clear... we had a bad incident yesterday and that is how I found you. I have found the university of Florida site also and will follow the protocol (we are already doing some of those things for general health... but will add the others and be more vigilent). Basil is not a swimmer - he doesn't know that he knows how and is 'scared' of entering open water; so, I am not sure if stressing him to try would be a good idea. He does love to walk and I take him to soft trails in the woods and grassy areas as long as he is up to it. It can be heartbreaking to see other older dogs out and about with mobility issues and see people staring or bothering the pet's person with unintellegent comments. It is clear that these people love their pets and are in pain and trying their best to be postive and supportive it would be nice if the could just walk out into a smile each day while they try to exercise their sweet ones. I am a teacher/dept. head with busy schedule and lots of responsibilities. It is so troubling knowing that I cannot help but be away to earn a living and think each day of how I am going to support him through these transitions when they arise. Basil's best friend cat, Edgar, passed away at 23 years old about a year and half ago and Basil had an awful breakdown reaction for some weeks until we started to foster some cats in need. A local stray cat has provided him with two litters of foster kittens to deal with since then.. which hasn't been the best situation, but he does seem to love the least cuddley, most tempermental one like his old friend. (we have two adults and two kitties awaiting adoption with us now) They all love him, but he gets a bit overwhelmed by their affection and actually snapped awake and tried to jump up when one sweet one cuddled up next to him while he was sleeping yesterday. He moved badly and couldn't get up or or get his strength for a few minutes. We'd been out for some very big exercise earlier in the day and he was likely pretty tired. Whether the vets have said it or not, Basil seems to have the condition (he has had all the signs mentioned to some degree). I am wondering if anyone knows of a good, compassionate, affordable vet in the Toronto area who is on board witht he University of Florida treatment plan. I am hoping it is someone who will make housecalls as I too, prefer Basil to be at home like his dear cat friend was at his end time (though, it isn't a consideration now at all). I have looked up housecall vets and did have a very nice and compassionate vet come out for our dear cat. I am just not certain if the prescription drugs will be easily available on this side of the boarder. I am the only human in our household at the moment and have speant a lot on caring for and taming the cats born in the neighbours yard that no one else, will seem to take on (still trying to catch the mom, she is a wise one). Some of the kitties have had some issues and all have needed to be fixed, etc... it has cost a lot... depleting my resources. I have a long commute and a very old car and worry about that too... and I worry about Basil and doing the best by him that I can. I think I have stepped out of a normal life in a way and have surrendered the idea of an 'outside' life. We used to run together. I feel guilty doing that by myself... so... we walk instead. I can't even imagine going to 'our' places by myself and though the big gaint cat should go up for adoption (and I simply can't afford any more vet bills)... he's the one Basil likes the best... so, he stays and... when I can't be at home... he is with a friend that way. Basil also needs his teeth cleaned... but I have put it off.. because of the anaesthetic issues. I actually have heard that some places will do it without and he is gentle...so, maybe we should find a place that will try. I try to be positive, but it all breaks my heart. It is probably not a great time to be solo... but being that Basil is the first priority and work is demanding... that's how it is. All the pets that I have had have been abandonned by someone else to me. I met Basil when he was a puppy, when someone I knew was looking for a dog. He sat all civilized and tender and attentive in the shelter amongst barking chaos and I said, I believe that is the one. After he was adopted, he came over to me and sat his 6 month big boy body in my lap (which he continued to do when fully grown... even a few times on a park bench.. much to the amusement of on-lookers). His adopter, in the end, didn't want the responsibility and Basil ended up staying with me... and we are like your two hearts... we love exploring new places together and familair trails. We continue to take road trips with short stops and tiny walks on the way. After the agin process and lifecare of another 1/2 shephard that was abandonned to me a few years before I met Basil... I wasn't sure I could take on the costs, schedule contraints and heartache again....but I certainly can't say no to someone I know and love ... or a beautiful innocent being. That's our story. K. Entry: 2008-07-14 18:04:17 Visitor's Name: Elizabeth A. Poloian Homepage URL: No website supplied You are from: Tewksbury, MA 01876 USA How you found our site: Googled Would you recommend our site to others?: Yes Comments: Thank you for sharing some beautiful moments with your dogs. Entry: 2008-07-08 00:59:27 Visitor's Name: Gerald & Jill Homepage URL: No website supplied You are from: Little Rock, Arkansas How you found our site: Would you recommend our site to others?: Yes Comments: One thing I have noticed in all postings are words like cherished, beloved, faithful, etc. These words and more describe our Thunder. He has been our only child for 10 wonderful years and altho we know we can't have him for much longer, there is NOTHING we would take for the wonderful years this noble dog shared with us. Thunder's rear legs are pretty much useless now and he is confined to a rear harness for inside and a wheelchair for outside. Recently he has started losing control of his bowels & looks so embarrassed when he makes a mess inside. The only consolation we get is in knowing that he is in little to no pain. These are the most intuitive dogs I have ever seen and we all know that our "babies" know something is wrong. But for the life of me, I just haven't been able to figure out how to say goodbye to my best friend. Entry: 2008-07-06 03:25:18 Visitor's Name: nancy prather Homepage URL: No website supplied You are from: raleigh, nc usa How you found our site: deb sullivan sent a link to me Would you recommend our site to others?: yes Comments: my dear and beloved brother lightfoot is nearing the end of his life as a great black dog who certainly had a bear as a father. this disease is horrible and cruel. thank you for your work. Entry: 2008-07-03 02:58:50 Visitor's Name: phyllis & terry Homepage URL: No website supplied You are from: owensboro, ky usa How you found our site: handicapped pets.com Would you recommend our site to others?: yes Comments: This is our 2nd entry on this site. We had to put down Cyrus, our beloved German Shepherd on June 19, 2008. We cared for him 2 1/2 yrs after he was diagnosed with DM. The vet came to the house to put him down as Cyrus no longer had use of his legs. This also saved Cyrus the trauma of going to the vet. During the time we cared for him, we learned to do things to make him more comfortable. We fixed up an eggshell mattress for him. We covered it with 2 big plastic leaf bags. Then we put a sheet over it followed by an underpad for Cyrus. When he was no longer able to go to the bathroom on his own, we bought the belted undergarments that adults wear. We put them on him sideways and knotted each belt to make them a little tighter. Cyrus seemed very happy with the diapers because he did not like making messes. The diapers took care of the pee. For the BM's, we used paper towels to pick them up and throw them outside in the woods. We found an industrial spray that you spray right on the spot where he went. It killed bacteria and the odor immediately. Found that at a local store that sells industrial cleaning supplies. Told them what we needed and they came thru. For a good while, me husband was able to pick Cyrus up by the back end when he could walk on his front paws. The front paws stopped working toward the end of March so Cyrus stayed in the living room. One of us slept on the couch so he wouldn't be left along. We could leave the house for up to 4 hrs and he would be fine. We had a friend who occasionally sat with him if we had to go somewhere that kept us away longer. Cyrus seemed pretty content during all this. Sometimes I know he was frustrated but most of the time, he was okay since he was with us. I never saw a dog who loved his human masters as much as he did. He was such a selfless dog and didn't seem to dwell on his discomfort as long as he was with us. However, we could see the discomfort and could see it in his face. Toward the end, he was starting to whine. He still had a great appetite and seemed okay most of the time but since we were seeing the discomfort, we did make the decision we had been dreading. We had 10 good years with Cyrus and will always love him. Thanks for letting us use this space. Entry: 2008-06-28 12:53:13 Visitor's Name: smjohansen Homepage URL: No website supplied You are from: Brant Lake NY, USA How you found our site: web search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-06-26 08:17:33 Visitor's Name: Simon Homepage URL: No website supplied You are from: Australia How you found our site: Would you recommend our site to others?: Comments: Jasper is an eleven year-old German Shepherd. I found him at age four having been badly neglected; 15 kgs and furless. He soon put weight on and has been the most beautiful dog. Very much resembles Jack to the left there <-- . they are the best dogs. Right now he is in the back yard and his back legs have collapsed worse than they ever have before, though it is spasticity and doesnt seem painful. I don't know what to do everything is a panic I just want to get him inside to his bed but he is flailing too badly. Dont know what to do, guess I'm looking for a miracle Entry: 2008-06-17 22:18:40 Visitor's Name: Sandi Homepage URL: No website supplied You are from: Hawaii How you found our site: Google search Would you recommend our site to others?: Comments: I lost my dog Buddy on April 2, 2008. Buddy was a 10 year old Maltese/Shih Tzu mixed breed. He was my best friend. It all started with lameness in one of his rear legs in late 2007. He walked with what our vet described it as a "spinal walk". We were told that it might be due to arthritis, so he was placed on Deramaxx. I bought him a stroller for Christmas as he could no longer tolerate the long walks that he loved so much. There was no improvement after several weeks of Deramaxx. His paws were now ulcerated and bled frequently. He was a house dog and always on carpet so I knew that the bleeding was not from "dragging" his paws like they told me. There appeared to be tiny clots beneath the skin of the pads. We returned to the vet again. I was told that he was an "older dog" and probably had a "progressive neurological disorder". Why??? was my question. I am positive that Buddy had DM after reading about this disease. His condition deteriorated so rapidly. He began to have trouble chewing. I crushed his food and hand fed him. His appetite was good but the chewing and swallowing mechanisms were not working. It would take him a long time to drink just a little water. Trips to the vet were fruitless. I came away with no more information than I had come in with. No one could tell me why this was happening to him. The most difficult thing was watching him deteriorate every day and not knowing how to help him. Buddy's chewing and swallowing problems progressed rapidly. On the morning of April 2, 2008, but could no longer swallow food or water. He sat at my feet while I prepared his breakfast but the food and water just sat in his mouth. Even a syringe didn't help. I knew that I could no longer put him through this. He remained alert until the very end. Thank you for posting this website. Although still very difficult, it has helped me to be more accepting and understanding of Buddy's death. Entry: 2008-06-17 06:46:47 Visitor's Name: Jessica Kramer Homepage URL: No website supplied You are from: Buffalo, NY, U.S How you found our site: Google search DM Would you recommend our site to others?: Yes Comments: Our family just recently lost our beloved Winnie girl on June 16th to DM. She lived a wonderful happy eleven years and she will be missed greatly. Entry: 2008-06-14 00:09:22 Visitor's Name: Terri Parker Homepage URL: No website supplied You are from: Virginia Beach, VA, USA How you found our site: Donna Joseph Would you recommend our site to others?: Yes Comments: First two stories on Jack were very tough to read...but necessary. My heart is both warmed and heavy... Entry: 2008-06-12 21:13:12 Visitor's Name: Toni Wood Homepage URL: No website supplied You are from: The Colony, TX , U.S.A. How you found our site: Referral Would you recommend our site to others?: Yes Comments: My GS dog has early stage DM. I recently purchased the meds Dr. Clemmons suggested (EACA, NAC and Antiox-Q, plus the four other supplments to complete the Antiox-Q. My questions is this. I read a statment from Dr. Clemmons that these meds should be given over a two month period, then back off the EACA and NAC, and continue with the Antiox-Q and supplements and see if there is a signs of symptoms. I would like to know from others has this been successful, or would you suggest I keep him on the EACA & NAC indefinately. Also, can anyone give me Dr. Clemmons chatroom address? Entry: 2008-06-11 14:01:30 Visitor's Name: catherine fboyng Homepage URL: No website supplied You are from: Albany, NY How you found our site: Would you recommend our site to others?: Yes Comments: This is my second entry on this guestbook. Last night I had to put down my beautiful boy Bubba. He was a fifteen year old rescued Greyhound whom I have had for eleven years. He lost his battle to DM. Though he seemed relatively healthy, his hind end was no longer cooperating with him any more. His quality of life was no longer the same and I wanted him to depart with some dignity. We all come to love our pets like our own children and it is extremely painful to watch them struggle. My boy is safe and no longer struggling. I will miss him so much and he will always have a place in my heart. Thank you again for your story, I know all your pain and I know the joy that you boy gave you. Our pets come into our lives and leave lasting impressions in our hearts and bring happiness to us. We thank them for making us so happy when they were here and we hope that they were happy too. Thank you for your website, it has brought comfort to me. Entry: 2008-06-10 06:52:56 Visitor's Name: Lisa Homepage URL: No website supplied You are from: Washington How you found our site: google Would you recommend our site to others?: yes! Comments: WE have a soul and a body, and ANIMALS have a soul and a body too. Anyone who thinks otherwise is an ignorant fool! Honestly, in a contest between animals and humans, animals would win every time in terms of their evolvement, their enlightenment, their compassion, EVERYTHING! Entry: 2008-06-08 22:01:22 Visitor's Name: Lisa Gooch Homepage URL: No website supplied You are from: Bellingham, WA, USA How you found our site: google Would you recommend our site to others?: yes! yes! yes! Comments: Hi Marjorie: I want to tell you how much I appreciate this website. Two years ago my shepherd mix was incorrectly diagnosed with caudal equina syndrome, otherwise know as lumbar-sacral stenosis. I did not agree with the diagnosis, and after searching the net I found your site and was certain that the symptoms of degenerative myelopathy fit what I was seeing in my dog Jazzmine to a "T." I took her up to the holistic vet and homeopath who had treated one of my other pets, and she (without my mentioning what I thought was actually wrong with Jazz) immediately diagnosed Jazzmine's condition as DM. Jazz got worse before she got better (in November of 2006 she had to walk with a "hip helper harness" - thanks for that link - and needed help to get up off the floor - it took a while to figure out the right remedy for her) but she is 13-1/2 years old now, has been living with DM for over 2 years (probably closer to 3 if I count back to the initial "telltale warning signs.") She still walks for about an hour every day, and has enjoyed tremendously good health. She does not need any help getting up off the floor, has control of her bladder and bowel, and can even climb up on couches and beds! I thank you so much for all the information and links that you provide, AND I want to point out that homeopathy can do amazing things when it comes to putting this disease into remission. It is something that I strongly suggest your readers look into. The first consultation can be fairly expensive, but after that most consults can be conducted by phone and it's really quite reasonable financially. Remedies are really inexpensive, and the results can be amazing. Would you please put this information out there for your readers? I want to be sure that they know there are alternative methods of dealing with this disease. Jazzmine has followed a fairly specific diet (a raw food diet - no grains - supplemented by a multivitamin, salmon oil, and dimethylglycene), but other than that, she just takes her remedies as needed. I don't know how much longer Jazz will grace us with her presence, but every day is a gift and I have been so impressed by what my holistic vet and homeopath have been able to achieve. Please let your readers know that this is an option for them, and thank you so much for all the amazing information you provide. We really appreciate you and all that you have done in Jack's name. Thank you! Sincerely, Lisa Gooch Entry: 2008-06-07 15:50:03 Visitor's Name: Amber Homepage URL: No website supplied You are from: Missouri How you found our site: Google Would you recommend our site to others?: Definitely Comments: I had to put my baby girl down almost 5 months ago and still cannot talk about it without tears. The vet always told us she had hip dysplasia, so we had no idea that she also had DM. She was diagnosed 3 days before we had to put her down from complete paralysis. She was only 6 1/2 and still had so much life left in her, but the pain and fear in her eyes when she could no longer walk meant it was her time. She loved her football, the lake and her family. I had never heard of this disease and now it haunts me. Thanks to everyone out here, I know you understand. Entry: 2008-06-05 21:46:58 Visitor's Name: Toni Wood Homepage URL: No website supplied You are from: The Cololy, Texas U.S.A. How you found our site: Found through West Lab - Vet referral Would you recommend our site to others?: Yes Comments: 12 years ago I lost a beloved dog to this disease. Now, again, I have a beautiful shepherd who has been diagnosed. I need all the information and support I can get to get through this for Nori and I. Entry: 2008-06-03 21:27:08 Visitor's Name: Jane Homepage URL: No website supplied You are from: Far Hills NJ USA How you found our site: google Would you recommend our site to others?: yes Comments: My 10 year old Boxer was just diagnosed with DM and it is breaking my heart. He seems to have a particularly aggressive form, as he is so much worse today than last week. Buster is my best friend and the best dog anyone could ever want - he's always been there for me and now I'll be there for him. I just ordered a special harness so I can help him stabilize and there were also "boots" to help with his knuckling. Thank you so much for this site - it helps knowing there are people who care. Entry: 2008-06-02 11:55:50 Visitor's Name: Michael Kluck Homepage URL: No website supplied You are from: Lowell, MA USA How you found our site: Google Search Would you recommend our site to others?: You Bet Comments: Today I am going to lose my best friend Molly. A shelter rescue 8yrs ago. She's 10. She was diagnosed 2 yrs. when first signs of DM appeared. I cried for her but not for her to see. We have done everything possible but the disease is methodicaly relentless. As all dog lovers know their time comes way to soon but we love them and share our lives with them for as long as we can. And now, Molly's time is here. She can not walk without a special harness, or bark playfully. She can no longer swim or chase squirels. She just watches them scurry by and looks at me with saddness in her eyes. She can no longer ride in our Jeep, her bowels and bladder are to unstable. Now when she has a mishap she looks at me with great sadness and needs to be reassured and told "it's OK" She puts her head in my lap and needs to be held and petted. Molly is a mixed breed and weighs 75lbs. I shouldn't walk her due to double hernia surgery last week. Which was caused by walking her. And she won't go for anyone else. But I walk her anyway. So today we will say our quite goodbyes. I will be strong for her as she knows when I'm feeling down. Tears fill my eyes now as I thank everyone on this site for their kindness, inspiration and support. I would read Jack's story to know that Molly & I are not alone. My friends and family just don't understand how much I love her. Thank you from the bottom of my heart. Entry: 2008-05-31 03:30:12 Visitor's Name: Homepage URL: No website supplied You are from: BUTON MI USA How you found our site: google Would you recommend our site to others?: yes Comments: I FOUND YOUR WEB-SITE LAST WEEK. TODAY MY DAUGHTER AND I HAD TO PUT TO REST OUR FAMILY MEMBER... SHE WAS A DAUGHTER-SISTER-FRIEND-COMPANION-PROTECTOR....AND WILL BE SADLY MISSED. SHE LEFT HER PAIN AND OUR FAMILY AT 12:22PM. SHE WAS 10 YEARS OLD. I JUST WISH THAT THERE WAS MORE THAT I COULD OF DONE BEFORE, ALL THE VET EVER SAID WAS THAT SHE HAD ARTHURITIS (SPELLING BAD). WITH LOTS OF TEARS AND SADNESS FROM BURTON MI DALE AND MICHELE STEPHENS Entry: 2008-05-30 20:55:31 Visitor's Name: Dawn Donetz Homepage URL: No website supplied You are from: Maywood, NJ How you found our site: google search for DM Would you recommend our site to others?: Yes - Definitely Comments: Thanks so much for sharing your wonderful story. My husband & I recently found out that our 11 year old yellow lab named Pongo also has DM. I am trying to do as much research as possible to help him in his battle against this disease. Your website was a tremendous help. Entry: 2008-05-30 09:29:55 Visitor's Name: Kathy Canon Homepage URL: No website supplied You are from: Frankfort, KY, USA How you found our site: surfing Would you recommend our site to others?: yes Comments: The pictures of the dog in the left border look just like my Flint, who was put to sleep a few weeks ago(DM). I only wish I had found yur website sooner- for the information, and for the comfort of knowing that others love their dogs like I loved Flint. Entry: 2008-05-29 22:33:17 Visitor's Name: I. MORA Homepage URL: No website supplied You are from: U.K How you found our site: looking for this terrible disease Would you recommend our site to others?: yes Comments: Jack was so loved your tribute is so beautiful.One of my boys has DM like you i am doing my best to keep him going . Entry: 2008-05-25 23:29:02 Visitor's Name: Delaina Andrews Homepage URL: No website supplied You are from: Nashville, TN, United States How you found our site: search about degenerative myelopathy on Google Would you recommend our site to others?: yes Comments: My pug dog Murphy was diagnosed with DM at the age of 9. After doing some research online, I found a site that recommended the combination of ester-C, antioxidants A and E, and brewer's yeast. I found supplements at Drs. Foster & Smith called Oxi-tabs, and gave these to Murphy every day along with a brewer's yeast pill. She lived for another 6-1/2 years, until the age of 15. Up until the last 6 months or so, her quality of life was pretty good. She had a K-9 Kart that she would use to go on walks and she LOVED it! I truly believe the combo of vitamin supplements prolonged her life. A couple of times I ran out and a few days would go buy before my order came in, and I could always tell a difference. It's a terrible disease with no cure, but I do recommend at least supplementing their diet with these vitamins. As my vet said, it can't hurt, and I Say, it definitely helped her! Entry: 2008-05-25 02:52:37 Visitor's Name: dale stephens Homepage URL: No website supplied You are from: burton, mi usa How you found our site: google Would you recommend our site to others?: yes Comments: I am searching for information on my daughter ANGEL. She is 11 years old German Shepard. The vet has said she has hip arthuritis.( I know i did not spell right) you can almost feel her hip crumble. the meds have not helped, and then the meds he put her on are too expensive. what can I do Entry: 2008-05-22 19:33:07 Visitor's Name: Joelle Callaghan Homepage URL: No website supplied You are from: Calgary, Ab, Canada How you found our site: Google Would you recommend our site to others?: Comments: I too have a dog with DM. He is nearing the end and he is my best friend also. I thank you for posting this site in tribute to Jack Flash and trying to stop this horrible disease. Entry: 2008-05-21 06:35:43 Visitor's Name: Ami Young Homepage URL: No website supplied You are from: Alabama How you found our site: google Would you recommend our site to others?: yes Comments: Today I lost a best friend.Thunder was my german shepherd that my daddy got me as a gift when I was a little girl. I remember playing with him and doing his favorite thing ever, riding on the back of the truck.I never experienced so much love from one animal.Thunder began suffering from DM about a year and a half ago. He first began walking funny using a criss cross motion, sort of as if he were dancing. Later he could barely walk and eventually he was paralyzed. We didn't know about DM untill just recently when it was already too late.We made the decision to put him to sleep becuase he was suffering so much. He could't walk,had sores on his body,and could only move his head. It has only been 12 hours and I miss him so much.It was really hard knowing that everything I did today would be the last time I would ever get to do it with him. Thunder has been one of the best dogs in the whole world and I made sure to tell him before we had him put to sleep. Not only did he help me grow as a child, but he also taught me how to love. He taught me that it doesn't matter if your fat or skinny, short or tall, beautiful or ugly, or even if your a german shepherd dog and a little girl, love can be found somewhere. I will never forget my baby Thunder and he will always be in my heart forever. Until we meet again Thunder, I'll be loving you..... Entry: 2008-05-21 04:06:18 Visitor's Name: Jen Gutshall Homepage URL: No website supplied You are from: Pennsylvania, USA How you found our site: google Would you recommend our site to others?: YES Comments: I have a 9 year old boxer (she was the wedding gift my husband and I gave each other). Our vet thought that she initially had arthritis but after aspirin, steroids, beta blockers, pain meds, etc, the harsh reality is that she has DM. She is not in pain, but stumbles, drags her paws til the nails bleed, and struggles to get up the stairs. She can't walk on our hardwood floors without her legs sliding out. I cherish everyday with her but wonder how many more we have. I can't imagine a day without her. Entry: 2008-05-16 18:31:09 Visitor's Name: Matthew Hanrahan Homepage URL: No website supplied You are from: Albany How you found our site: Research Information Would you recommend our site to others?: Yes Comments: Today would have been Merle's 11th. birthday. Merle was a German Shepard/Australian Shepard mix. Merle died on March 6, 2008 as a result of DM. Everything happened so quick (within the course of days) that I think I am still trying to process it. It still seems so unbelieveable!! I know I was there in the room with him, holding him as he transitioned. In my heart I knew that if I couldn't bring Merle home they way he lived (like a king), I couldn't keep him for my own selfish reasons. I know that I did the right thing having him leave this world out on top. DM had progressed overnight!!! Merle went from being active, to being unable to get up. It has been heartbreaking. I commend this site as a way to heal and feel like I am not crazy!! It is somewhat comforting to know that I am not the only person that is still hoping that this disease is nothing more than a bad dream. Entry: 2008-05-16 15:26:59 Visitor's Name: Elaine Homepage URL: No website supplied You are from: Kansas City,MO,USA How you found our site: Search Would you recommend our site to others?: Yes Comments: I want to thank you for this site. I have struggled with a Welch Corgi with DM for 1 1/2 yrs and this is where I came to find help, and suggestions when many had no answers. It is through this site we found Doggone wheels and gave our dog 6 great months of freedom before progression made it impossible. Through your site we educated our vet, learned what supps to buy, and how to cook appropriate food. What you gave us was hope and action. We lost the battle,but felt like we gave our best fight. Thank You for letting the little dog run with the big dog pack. Entry: 2008-05-12 21:29:52 Visitor's Name: jerry mullins Homepage URL: No website supplied You are from: huntsville,, alabama How you found our site: searching for answers after losing my boxer Would you recommend our site to others?: Comments: How do you deal with the pain of losing your best friend? My boxer, Lex, passed on on February 28 after slowly deteriorating with what I was told was degenerative arthritis but the DM symptoms sound like the same thing. It has been eleven weeks now but the pain of losing him will no ease up. I will set up a memorial at Rainbow Bridge but cannot yet handle doing it because I break down every time. I know he understands in the same way we always communicated with each other. Do you have any suggestions on dealing with this loss? He was my shadow for 8 years and this is the worst loss I have ever dealt with and it is so hard. "I could have missed the pain but I would have had to miss the dance" Entry: 2008-05-10 17:22:12 Visitor's Name: Shauna Swale Homepage URL: No website supplied You are from: Parachute, Colorado How you found our site: On a search for DM Would you recommend our site to others?: Yes Comments: I just lost my boy Kodiak last weekend. He suffered from DM. Entry: 2008-05-06 01:47:05 Visitor's Name: Catherine Feng Homepage URL: none You are from: Albany, NY USA How you found our site: typed degenerative myelopathy Would you recommend our site to others?: Yes Comments: My 15 year old Greyhound Bubba has DM and it has progressively gotten worse within the past year. At this point right now, I cherish all the moments and all the joy he has brought into my life. It is hard to see your baby go through something like this, just knowing that it will get worse. I am doing all I can to make my Bubba comfortable. Thanks for sharing your experience. It is very helpful. Entry: 2008-05-05 23:07:19 Visitor's Name: Pauline Gregory Homepage URL: No website supplied You are from: United Kingdom How you found our site: typed indegenerative myloepathy Would you recommend our site to others?: yes Comments: I have already lost my beloved Maisie, she was 12 years, on the 1st August, 2006. I still very sad and think about her often. I have Daisie still with me and she is now also suffering with this terrible disease. Both my girls are dalmatians and havfe always been very healthy up until their latter ages, Daisie is now coming up to 12 years in June. I wish i could do something more but i dont know what to do. Just give her hugs and kisses and i massage her every night. She is thankfully very well apart from falling down occasionaly, this is something that is happening more often now. Its hard having these wonderful pets around becuase i HATE saying goodbye! Pauline x Entry: 2008-05-02 16:38:48 Visitor's Name: Chrissy Werneth Homepage URL: No website supplied You are from: Citra, FL, USA How you found our site: Doing research on DM Would you recommend our site to others?: Yes Comments: I can't tell you how much your website has meant to me and my GSD Chipper. Thank you for all your hard work and your boy, Jack Flash, was a truly magnificent companion like so many GSDs. Entry: 2008-05-01 13:22:34 Visitor's Name: Laura Jordan Homepage URL: No website supplied You are from: Sherwood, WI, USA How you found our site: Did a search on About.com on symptoms that our dog is having Would you recommend our site to others?: 100% Yes I would! Comments: Out Yellow Lab Moose who is now 12 started having progressing problems with stability in the hind as well as horseness barks and we are just looking to help make him comfortable. Entry: 2008-04-30 05:10:42 Visitor's Name: michele gehring Homepage URL: No website supplied You are from: west lawn, pa usa How you found our site: typed degenerative mylopathy Would you recommend our site to others?: yes Comments: my 13 yr old blk lab, scooby, was diagnosed 3 yrs ago, with help of this site and others , change in diet and much love, he is still with us...all coming to end soon regretfully. i am not handling this very well now, i believe i need to make a decision. i don't know if i am not ready or he is not ready, or both! this wk his hind legs seem to be retaining fluid, not swelling really because not tightening of skin but a larger appearance. still acting the same...following me everywhere to the best of his ability, begging for treats and being a big presence within the family! just trying to brace myself for the loss i guess...he has been my saving grace through many stages of my life...you all know what i mean. help! Entry: 2008-04-25 21:25:16 Visitor's Name: Tammy Myers Homepage URL: No website supplied You are from: Nashville, TN 37203 How you found our site: google Would you recommend our site to others?: yes Comments: I found a german shepherd 8 yrs. ago on the freeway. She had been hit by a car after escaping from a puppy mill (where she was used to breed, never let out of a cage). Her hips were broken, but we took her home where she had surgery & healed for 8 wks. Fast forward--"Ally" (we found her in Alabama) was diagnosed w/DM last summer. Her back legs are scraping more each day, but the hardest thing to deal w/is the bowel incontinence. Her stool doesn't form well anymore, and if I give her anything other than organic dry, she has horrible diarrhea. Did anyone else deal w/this problem or have any suggestions? Entry: 2008-04-25 15:00:50 Visitor's Name: Jimmy Porter and Diane Cleary. Homepage URL: No website supplied You are from: Dubois,WY USA How you found our site: Search Engine Google. Would you recommend our site to others?: Yes. Comments: This web page does not have and edit line nor an email line. Here is my email: jporter@dteworld.com. I will talk to anyone and I have lots of questions, especially about euthanasia of alert animals with DM. *************************************** From Marjorie: This site has a both a CONTACT button and it also has a FULL PAGE devoted to how to reach our message boards, which is where questions are answered! If one wants help, one must also help themselves by availing themselves of the information contained upon the site. I also have a DM dog, and a family and the message boards were created for people to communicate upon. It would be impossible for one person, alone, to answer all the mail. I built the site so people could educate themselves and communicate with others that also have DM dogs. Questions are to be directed to the message boards, which is quite clear if you took the time to actually read through the site. Entry: 2008-04-25 03:54:55 Visitor's Name: Jimmy Porter & Diane Cleary, domestic partners. Homepage URL: No website supplied You are from: USA How you found our site: Search Engine for dogs that could not walk. Would you recommend our site to others?: Yes. Comments: I cry too much. I will never be able to hand any sort of death, although I know it is a part of life. I is so hard. Entry: 2008-04-22 20:42:11 Visitor's Name: Gary and Cyndie Mitchell Homepage URL: No website supplied You are from: tecumseh, MI How you found our site: searching for myelopathy info Would you recommend our site to others?: yes Comments: Our beloved Sadie has had DM for the past few months and we are hearbroken watching her decline. It is so unexpected and surprising, she is only 9 and healthy otherwise with her usual big heart full of love. We don't know what to do !!!!!! Entry: 2008-04-14 06:27:52 Visitor's Name: NORMA LEONARD Homepage URL: No website supplied You are from: Los Angeles, CA How you found our site: Surfing Would you recommend our site to others?: YES Comments: I wanted to include my email address: Norleonard@aol.com Entry: 2008-04-14 06:24:44 Visitor's Name: Norma Leonard Homepage URL: No website supplied You are from: Los Angeles, CA How you found our site: Surfing Would you recommend our site to others?: Absolutely Comments: I would like to share my experience with DM with anyone who is interested. My GS "Nitro" was diagnosed with DM 22 months ago on his birthday at the age of 9. It came as such a surprise, I had never heard of the disease. I scrambled to get information on DM while also dealing with a compressed disc that needed attention. The doctor recommended surgery to relieve his pain from the compressed disc, then deal with DM. However, they decided he needed a MRI first which took a walking dog and subsequently paralyzed his rear legs. After a month he regained use of his legs, then it was necessary to have the surgery. Again, after surgery he had no use of his rear legs. Months later after much care and attention, Nitro was able to walk on his own. I then started Dr. Clemmons therapy for meds/diet, but Nitro did not tolerate it very well. The disease progressed but he was a happy dog. We used various slings to help him walk and we managed fine. I do believe I should have gotten him a cart very early, but did not, a mistake. Fast forward and Nitro has lost use of his front legs. We still seem to manage well, his spirit is good but I can see that he's tired. I am with him 24/7 to keep him occupied and well cared for. I just want everyone to know that you need to treat your pet as if nothing is wrong. Be happy around them, don't let them see your pain or your sorrow, they will sense that. They do not know their future, it is up to us to make the most of every day for them. You will know when the time is right. There is so much to write, so many thoughts and how/to's and dont's, so please email me if you have any questions about my experience. I just cannot believe that this disease is so prevelent, especially for such a wonderful breed like the GS. I am totally in love with the breed. I just encourage everyone to get as much information as you can before you decide on tests, treatments and care for your dog, talk to as many people as you can who have experienced this and don't rely solely on vets as many are not familiar with the disease. My heart goes out to all of you dealing with this and I am so happy that I could give my Nitro such a great life dispite this adversity. Entry: 2008-04-09 19:43:15 Visitor's Name: Kathie Vogel Homepage URL: none You are from: Va. Bch, Virginia USA How you found our site: Fla. Univ web after I googled DM in GSD Would you recommend our site to others?: absolutely Comments: Thank you for your site--this is the second time to deal w/ DM & the first time I feel I can help my sweet old "Scooby"--he`s such a gentle deserving soul! Entry: 2008-04-08 19:33:57 Visitor's Name: Andrea Homepage URL: No website supplied You are from: Minneapolis, MN How you found our site: Internet search Would you recommend our site to others?: Yes Comments: I stumbled across this site while searching for answers about DM online. Thank you for putting all of this important information together! My little pug girl, 8 years old, has been exhibiting signs of DM for a while now. It started with her usually curled up tail becoming straight and handing towards the ground. She developed a clumsy walk and then progressed to her toes curling off and on when she stands. Her backend seems to wave with the wind. About every four days she has an episode where one or both of her back legs drag behind her. The weakness in the back legs became noticable in February of this year. I do not want to put her through anything requiring sedation as I read that it can be very harmful to DM dogs. That's why we haven't done an MRI. She had an ultrasound recently because of three urinary tract infections in a row. The ultrasound revealed healthy liver, bladder, stomach, and lymph nodes. She has also started to release drops of stool in the house randomly (this is new as of about a week). She doesn't seem to know when it's time to go outside. My little pug is pain free and seems unaware of her failing legs. All of this has led us to believe she is indeed suffering from DM. My vet doesn't seem to have much information on treating DM. I'm so thankful I found your site. I plan to bring the recommended medicine schedule to my vet in hopes of getting her started on prescriptions. Has anyone heard of a dog having urinary tract infection problems associated with DM? Also, how long does it take to get access to the message boards? I would love to be able to ask questions and read more information on there. I requested access yesterday, April 7. Thank you! Entry: 2008-04-05 12:33:32 Visitor's Name: Jim Homepage URL: http://www.badboytires.com You are from: Charlotte, NC USA How you found our site: Google Would you recommend our site to others?: Yes Comments: Thanks for the website. Our dog Steeler was diagnoised back in December 2007. He's 3 months shy of his 13th birthday. This terrible disease will be taking Steeler's life today, April 5th, 2008. His sideways walking, falling and generally being terrified of stairs is too much to put him through. I believe that he does not want to live in such a manner. Goodbye my friend, I'll love you forever. Love Dad.. Entry: 2008-04-04 23:55:53 Visitor's Name: Marijean Homepage URL: No website supplied You are from: Martinsville, IN How you found our site: website search Would you recommend our site to others?: YES! Comments: I've felt like my whole world has turned upside down this past week. My dog, Kacy, is an eleven year old Pembroke Welsh Corgi. Kacy started developing a bad rear limp early this winter. Since she's an older dog, I presumed her limp was due to arthritis and cold weather. I started giving her glucosamine supplements, and Rimadyl for comfort. When I saw no improvement, I took Kacy to my vet, who sent me to an orthopedic surgeon, thinking she may have experienced a spinal cord compression fracture. My vet was concerned about the obvious neurological problems she had with walking, and thought it might be due to a spinal cord fracture. There was no discussion about Kacy possibly having DM. This past Wednesday, the surgeon did a myelogram, which ruled out any fracture. He diagnosed her with DM. He told me that nothing could be done for Kacy, and she would soon die from this disease. My world literally ripped open hearing this news. The past forty-eight hours have been a nightmare, thinking that my beautiful friend was dying and there was nothing I could do to help her. Very late last night, after returning home from work, I started doing a little internet research on DM, (since I had been given no information). I was elated to find LOTS of information about DM, and completely blown away to learn of Dr. Clemmons and his work. There are no words to say how relieved I am to learn of the treatment options for DM dogs. I continued reading about DM this morning, and came across this website. I feel like some guardian angel directed me here. What a beautiful experience this website is! Visiting this website has been a life changing event! I also called my local vet today, and "educated" him about Dr. Clemmons and his recommended treatment plan for DM dogs. After visiting Dr. Clemmons' website, my vet called in scripts for Kacy with Westlab Pharmacy. Help is on the way, Kacy! By the way, I read that myelograms are not the preferred diagnostic procedure for DM. But for all the symptoms Kacy has been exhibiting, DM appears to be a correct diagnosis. I have seen rather subtle worsening of DM symptoms since her myelogram on Wednesday. I don't know if that's due to the procedure itself, or from her being caged in a crate overnight at the surgeon's clinic, and not being able to exercise for over 12 hours. Thank you so much for this wonderful website! Thank you in particular, Jack Flash! Entry: 2008-04-04 19:24:31 Visitor's Name: Susan Homepage URL: No website supplied You are from: Champlin, MN How you found our site: surfing Would you recommend our site to others?: yes Comments: My 8 yr old GSD was diagnosed about 1 year ago after falling and showing a slow progression of neurologic signs. He made it 4 months after a diagnosis. I tried all of the vitamins and Aminocaproic Acid. It made him very ill, digestive upset and depression, but didn't help with the DM. I took him off of it and his attitude improved 150%. He is now resting comfortably and is able to chase squirrels again in heaven. Entry: 2008-04-03 17:14:06 Visitor's Name: Kim Ludwig Homepage URL: No website supplied You are from: Wantage, NJ , USA How you found our site: surfing Would you recommend our site to others?: Yes Comments: Our 11 year old GSD Max was just diagnosed yesterday with DM. Regrettably I feel we missed the early warning signs mistaking them for hip dysplasia and old age.. When Max lost bowel function I knew there was a neurolgical componant. I have delt with the human form Multiple Sclerosis with my mother and the irony here was a big emotional blow. Max is a wonderful family member and can best be compared in attributes to the famed dog Nana in "Peter Pan." I am looking for any information on Homeopathic treatments or medications that have helped others I want to help the quality of Max's life. Sincerey, Kim Ludwig Entry: 2008-04-03 05:18:31 Visitor's Name: judy craig Homepage URL: No website supplied You are from: Palm City,Fla How you found our site: surfing Would you recommend our site to others?: yes Comments: My GSD,Hudson was diagnosed today with DM. I am heart broken but will not let this wonderful animal and friend suffer. When it's time I'll send him off to the "Rainbow Bridge" where he will wait for me. judy craig Entry: 2008-04-02 22:50:27 Visitor's Name: Cathy Homepage URL: No website supplied You are from: Maine How you found our site: surfing Would you recommend our site to others?: absolutely Comments: If anyone is in need of a cart, I have one for sale for a large female dog from Eddie’s Wheels. Female, Neutral-balanced with stirrups. Measurements: A- 25, B-18, C-6.5, D-17.5, E-8.5. (Measure your dog according to the chart on Eddie's Wheels website. Then compare your dog’s measurements to mine. Measurements “C” and “E” need to match perfectly, as these dimensions are the welded parts of the frame, and there is NO adjustment larger or smaller. There is approximately 20% adjustment for height and length, but the proportions between A and D need to be the same. Males cannot use carts built for female dogs.) Purchased cart August 2007 for $535.00 and never used, attempted several times. New condition. If interested please go to the DM message Boards, register for the message boards and look under Carts, etc for sale for my contact information. Thank you! Entry: 2008-04-02 06:46:38 Visitor's Name: Kayoko Larmour Homepage URL: No website supplied You are from: San Diego, CA USA How you found our site: My Vet Would you recommend our site to others?: Yes Comments: Dear Marjorie, I have two GSDs. One is going to be 12 years old this coming January and his name is Mason. I also have Frieda and she is 9 years old. I have been told that both dogs have DM. We ruled out all other possibilities by taking X-rays, ultra sound, muscle biopsy, bone scan and MRI. They could not find anything on Frieda. However, Mason has elbow dysplasia and I knew this when I adopted him when he was a year old. He has been a very healthy dog all his life. When he was 9 years old I was told he may have DM and since then has developed arthritis around his elbows. Just about 3 months ago, I noticed that he was getting slower and having difficulty getting up. I took him to 2 orthopedic surgeons and a neurologist and found out he has arthritis all his joints and spines. He lost so much weight he has practically no muscle and fat left. One doctor told me that they can try stem cell injections and it may work but another doctor said that he doesn't have enough fat left to harvest any stem cells. I am sure you already know that for the dog's stem cell injection the stem cells comes from their own dog’s fat. I had thought about this option but decided against having it done. He has been through test after test and each time he looks more miserable and weaker. I used to use a sling to take him outside and squeeze his bladder and do his “other” business but his front legs are getting worse from dysplasia and I now squeeze his bladder while he is lying down. Frieda, my lovely friend is getting worse and she now drags her bottom to follow me around the house. We tried acupuncture for a while but I think it has worsened her condition. During the summer, she swam in our swimming pool for exercise to keep her muscle strong, however, unfortunately my pool is not heated so I am taking her to the swim therapist to swim in their heated swimming pool at least 2 times a week. My #1 question is “do you have any particular dog cart maker that you can recommend?” I had looked into internet and had found that one cart maker in England makes dog cart that enables dog to lay down without un-harnessing the cart each time a dog decided to lay down. #2 question is “if dog can lay down and rest comfortably with his cart on when he gets tired during his walk, why Dagon Wheels or K9 cart companies in the US have not manufactured the same type of cart? Is there a problem with the cart?” If you have any information regarding this please let me know or call me collect. My number is 858 748 0635. I live in San Diego, CA. Thank you. Sincerely, Kayoko PS&#12288;I would like to write you more about Mason in the future. He is no longer can walk but his spirit is high. Only time he looks sad when I have to take care of his #2 business, so I tell him “Mason, you have taken good care of me all these years and it is my turn to take care of you”. I think he understood. Now he lets me know when he has to go to the bathroom, hungry, needs to drink water, wants to play ball and wants to be turned over to the other side, etc. He has now trained me so I can recognize his needs with his different barks and sounds. I squeeze his bladder first around 6:00am, 2nd around noon, 3rd around 6:00pm and the last one around 11:00pm. I take care of his other business 1st after breakfast around 8:00am and 2nd after the dinner, which is around 8:00pm. I use 3 Q tips that I bundle them at the one end with florist tape and dip the other end into the Vaseline and gently insert into his anus to stimulate. This will keep Mason clean and free of using the diaper. According to my doctor, bowel is normally processed approx. 10 to 12 hours and once it has processed it will come out with a little stimulation. I wrote this information so that it may help other DM dog owners in the same type of situation as I am in. But everyone has different situations. I am thankful because I am retired and children are grown up and I am able to do this but each case is different and has different situation. Mason used to sleep in my bedroom however, it has become more and more difficult for me to drag his and his bed into my bedroom (I am only 5’1”and Mason is a big boy) so I sleep in the sofa next to him in the living room. I have written the above story (rather long) twice to Marjorie in December of 2007, however, for some reason I did not receive any responses. So I am sending this message again and hope someone has a chance read it and respond. The questions that I had before have changed since then. I have purchased the wheelchair for Frieda from Doggon Wheels and I have so much trouble putting the harness on. Once you have harness on the dog, you must hold her dead weight up with one hand while trying to attach the harness onto the chair (altogether there are 6 clips on the harness that must be fastened into the chair) with other hand. Time I completed these tasks I am already exhausted and I am taking her to the park less and less because of this. I also feel so guilty that I can no longer take Mason to anywhere anymore except to the backyard to watch birds. The question I have now, “has anyone used the Eddies Wheel chair”? I heard that this chair is much easier and sturdier compare to others. I would appreciate it if anyone can give me an advice before I purchase it. My Frieda is a very active dog and she really enjoys her wheels however, the one she has now is not sturdy enough to keep up with her when she decided to run. The Wheel chair will tip and she will go with it. Thank you for reading this long story. ******** From Marjorie: Eddie's Wheels makes a wonderful cart! The correct way to get an answer to a question is to join the DM Message boards- if you read the site, you will get a direct link to the Message Boards, where questions are answered. RE: Stem Cell Transplants from Fat Cells: They are still not stem cells, only the nuclear cells in the fat that are not fat cells. A few might be stem cells, but most are just blood cells and/or tissue macrophages and fibroblasts. At any rate, taking blood out of an animal and re-injecting it back at certain locations has been practiced for years (thousands). It does change the local immunity and promote healing even if all it does is invoke a change in tissue fluid exchange. Might see some initial improvement, in some, but many show no improvement, at all. Marrow stem cells, far more effective, have been studied, but more research money is needed to continue with studies. Entry: 2008-03-31 13:56:21 Visitor's Name: Terry L. Homepage URL: none You are from: Oshkosh, WI, USA How you found our site: Googled it Would you recommend our site to others?: yes Comments: Smokey, our beautiful tand and black male GSD, will be 12 years old next week. Having owned another Shepherd with DM, we recognized the signs soon after they appeared -- wobbly legs, eventually leading to knuckling under of his rear paws. He's still hanging in there -- it's been about 6 months now since the DN first appeared. His appetite is good; he is still alert and happy. I'm dreading the day that Smokey will close his eyes for the last time, but it will be soon. Entry: 2008-03-31 04:48:17 Visitor's Name: Gumbee Homepage URL: No website supplied You are from: Oshawa, Ontario (Toronto) How you found our site: Would you recommend our site to others?: Comments: PLEASE don't despair if your dog has RECENTLY been diagnosed with DM. IT IS A SUBJECTIVE TEST!! My GSD was diagnosed with this tragic illness in June 2007 and he still has shown NO signs. Yeah!!! Initially I was completely distraught and filled with despair. He may still get it one day, but for now, I just love him so much everyday and I'm grateful for our time together (but shouldn't we live in the moment with our friends anyway, I mean life is unpredictable). My heart truly goes out to those who are dealing with such a tragic disease. For most of us I hope this is just a misdiagnoses. Wonderful site BTW, I can't help but cry and hug my baby whenever I visit. Thanks for reminding me about the big picture. Dave Entry: 2008-03-30 19:01:04 Visitor's Name: Carole Godfrey Homepage URL: No website supplied You are from: Loris, South Carolina, USA How you found our site: friend Would you recommend our site to others?: already have many times Comments: Please read and answer the email I just sent to Marjorie. **************************** From Marjorie: I didnt get an email, Carole :( Please resend.. Had another death in the family and houseguests were on computer- perhaps they messed up my mail.... Entry: 2008-03-29 23:53:37 Visitor's Name: Christine Arnott Homepage URL: No website supplied You are from: How you found our site: Web search Would you recommend our site to others?: yes Comments: Please can someone help me....my beloved 11 year old GSD has CDRM....he is really wobbly and struggles with getting up and steps and I dont know when or how to make the choice to have to him let go...he is my first dog and its awful........I love him so much and dont want to let him down. My OH only says what he wants me to hear and Im scared Im keeping my boy hanging on just for me.... Entry: 2008-03-29 15:26:47 Visitor's Name: phyllis & terry Homepage URL: No website supplied You are from: owensboro, ky usa How you found our site: handicapped pets.com Would you recommend our site to others?: yes Comments: Our Germanshepherd, Cyrus, was diagnosed with DM 2 years ago. Started with the balancing problem, then went to back legs. Now affected front. We have an eggshell mattress for him and we take good care of him and he still "takes care of us". We know at some point, we will have to make the decision but right now, he is not in pain and seems very content with us. I wish there was a cure. We do have him on the vitamins and the medicine from Univ. of Fla. Any info. we find on the internet, we share with our vet in order to help future patients. Entry: 2008-03-26 19:11:34 Visitor's Name: Debbie Doob Homepage URL: No website supplied You are from: Loganville, WI, USA How you found our site: google Would you recommend our site to others?: Already have to many!!!!!!! Comments: Very impressive, if overwhelmingly sad, site. Entry: 2008-03-26 08:48:15 Visitor's Name: Bob---Crickett's dad Homepage URL: none You are from: Crystal Lake, Il How you found our site: By accident while reading about doggie wheel chairs Would you recommend our site to others?: I will send this to all my dog loving friends Comments: I feel like I have won the "lottery of information" on this mostly un-known terrible disease that is often mistaken for hip dysplasia or arthiritis or old age. We are facing the fact that we will have to be putting our sweet 14 year old Blk Lab mix to sleep soon. She does not appear to be in any pain, but reading many of the stories and the great story of Jack Flash, she is a textbook case of DM. She has been declining since 11/06 and now is immobile, incontinent, but still the greatest girl in our history of being dog people. She will be missed so dearly. We also have a 6 year old Golden who will now be watched with a sharper eye as a caution of this disease. Our vet briefly mentioned this during our first concerned exam in 2/06 about her slowing down and not moving too well, but it wasn't given a name other than a "nerve disease" that is common in GSD, not Labs. Our vets will be given this website and informed that the "pain medicine" they have been injecting her with every 2 weeks since 2/07 probably wasn't doing much for her health or comfort level. They have been real concerned about her health, but if I can find this website as a non-vet and regular person, why didn't they?? I would have loved to have known all of this info a year ago when we started this "pain shot" syndrome. Maybe Dr. Clemmons method may have helped her improve her quality of life and the effects of this disease. I can only hope that more people learn about this disease and contribute as I will to the cause of the wonderful people who are doing research on DM as well as the creators and maintainers of this incredible website. Thank you, Thank you, Thank you. Cricketts Family Entry: 2008-03-25 23:52:54 Visitor's Name: Annette Rodriguez Homepage URL: No website supplied You are from: Niagara Falls, NY How you found our site: Googled Would you recommend our site to others?: Yes Comments: We have a beautiful female GSD named Chichi. She will be 12 yrs. old May 5th. She was diagnosed with Hip Dysplasia at 2 years. We have been blessed to have this wonderful dog for this long but we know the time is getting very close to making that awful decision. Although she does not cry or make sounds that she is in pain, you can see it in her face and of course her walk. We love her too much and will miss her terribly. Thank you for this website and the support it gives its readers. Entry: 2008-03-25 20:48:18 Visitor's Name: eric corsi Homepage URL: No website supplied You are from: ottsville pa. 18942 How you found our site: internet Would you recommend our site to others?: yes Comments: my 11 year old english springer spaniel has been diagnosed with DM.We are seeing a holistic vet for accu- puncture and als treating with fish oil,glycoflex,and spectra. Any other ideas would be appreciated. Entry: 2008-03-24 18:57:27 Visitor's Name: Sandra Wikle Homepage URL: No website supplied You are from: Miami, FL USA How you found our site: Google Would you recommend our site to others?: yes Comments: My 14-year-old Shar Pei mix "Reno" has just been diagnosed with Myelopathy. I'm heartbroken. My vet and I agreed to go for the quality of life rather than the quantity. She's on prednesone to cut down on the inflamation. Thank you for your website, it's very informative. God bless you. Entry: 2008-03-19 20:49:24 Visitor's Name: Kerri triaga Homepage URL: No website supplied You are from: Buford, GA, USA How you found our site: Lookig for Dm diagnosis Would you recommend our site to others?: Yes Comments: We have a beautiful White German Shepherd named Max. Sadly we had to put max to sleep yesterday due to this cruel disease. Max just turned 10 and went to the vet two weeks prior, coming home with a clean bill of health. The Vet said he looked great. Two weeks later he began walking funny, like he was unbalanced. My husband wanted to dismiss this as he over did it playing with kids. That night my husband had to help him up the stairs and realized it needed further looking into. When we brought Max back to the vet. He said that it could be Dm, hip displaysia or a blown knee. We wanted the best outcome. Over the next day it got much worse. I looked up this website along with others and knew he had DM. His toes started tucking under and his nails were dragging on the floor. It was so painful to wacth my Strong, Loyal, protective companion go through this. I wanted so badly to find anything I could to try and help him get better. I put him on the clemmons diet and started the vitmans and minerals. It wasn't getting better for him. My husband and I decided to do the most humane thing we could. We put him down before the worst of this disease could get him. He was a dog with dignity and we wanted him to have that to the very end. Being a german shepherd he would continue to work to his dying day for us. It was the hardest thing to do. WE love him so much enough that we wanted him to never have the pain and humilation that comes along with this disease. I hope he is running in heaven chasing the angels. Until we meet again ..We love you Max ..You were truly the best dog we could have had..Thanks for 10 great years- Mom,Dad, Jon and Hailey:) ************************************* From Marjorie: This dog did not have DM- DM does NOT come on suddenly, within a 2 week time span, nor is there pain associated with DM. There are many conditions that present with the same symptoms as DM, but in fact, are not DM. That is why a proper diagnosis is so important! Many of these other conditions have a surgical fix! Dr Clemmons program will not help other conditions, even if the symptoms are similiar. Entry: 2008-03-09 02:06:21 Visitor's Name: Bobbi and MollyBrown Homepage URL: No website supplied You are from: Mendham, NJ, USA How you found our site: search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-03-05 00:49:09 Visitor's Name: Ginny Coile Homepage URL: No website supplied You are from: Tallahassee, FL USA How you found our site: from Dr. Clemmon's site Would you recommend our site to others?: yes Comments: I can't seem to figure out how to find your DM discussions, I find comments here, but no question/answer/feedback. Can you please direct me? I very much want to join the forum and get feedback from others. My dog is not a German Shepard, he is a collie mix (very prevalent collie, but possibly GSD could be in him?). Anyway, he is my best friend and I would really appreciate being able to join your support group and asking questions, as well as contributing to where Osten (my buddy) and I are at this point. Please email me and let me know where I need to go on this site to find discussions, etc. I will be filling out your survey in the next couple days, yes, it is long, and I want to answer as accurately as I can. Thanks you so much. Ginny ************ From Marjorie There is an entire page of the website devoted to how to get to our discussion/message boards- please read the site. Entry: 2008-03-03 14:26:41 Visitor's Name: donna unger Homepage URL: No website supplied You are from: trappe, pa 19426 USA How you found our site: search under canine dm Would you recommend our site to others?: yes Comments: very informative and enlightening....my 17 yr olf jack russell has been showing these symptoms for several months, and it has been chalked up to bad knees joint, ols age, and arthritis...NOW i know what it is...being such a small dog, it is much easier to deal with than in a large breed, but no less devastating.....your advice for continued exercise confirmed my own thoughts about battling muscle atrophy...thanks for the help! Entry: 2008-03-03 00:58:10 Visitor's Name: Cathy Homepage URL: No website supplied You are from: Portland, ME How you found our site: Surfing Would you recommend our site to others?: Yes! Comments: Marjorie, I wanted to let you know that I am sorry to learn, as you shared in your December post response, that your mom passed away. Please accept my sincere sympathies. You have done so much for so many with your website and support group. I first discovered the site about a year and a half ago. I have revisited periodically for support as I deal with probalby DM for my lab/shep mix who just turned 14! Thank you and know that others who only "know" you through this site understand your grieving and send condolances. Entry: 2008-03-01 22:20:40 Visitor's Name: Susan Holton Homepage URL: No website supplied You are from: Newcastle, WA (near Seattle) How you found our site: web surfing Would you recommend our site to others?: most assuredly! Comments: Our Mason (Australian Shepard) started developing signs of DM at about age 7. Rear foot dragging and then weakness in the back hindquarters. After multiple vet visits (and shots for horses with bad joints), we made a decision. That was to invest the $$$ we would have put into tests and specialits - into a K-9 Cart. It was the best decision we could have made! Unquestionably. Mason - who cannot walk - can now chase cats and catch frisbees again! We can go for walks - through snow and sand on the beach. It's been incredible to see his joy in having his independence again! In the house, he has to drag himself around - but open the door, show him his cart and watch his eyes sparkle and then the wind in his ears as he takes off! And, he loves the attention he gets in his "wheels". He's been in the cart since last July. No other meds, tests or vet visits. We're happy to answer questions by email. You can also contact my husband "Chuck" at keywestflyer@comcast.net. (He's retired and has more email time than I do.) By the way, we've also noticed a few seizures in Mason over the years. No rhyme or reason. His temperament is still as sweet as ever! Hugs to everyone with a 4-footed child with DM. Susan Entry: 2008-03-01 19:34:08 Visitor's Name: Grief Stricken Homepage URL: No website supplied You are from: Ma How you found our site: Google Would you recommend our site to others?: Yes Comments: I came across this site, and Im so glad I did. There is nothing like losing a pet. A close family member had to put down her 10 1/2 year old German Shephard yesterday, and I went with her. I never imagined what it was going to be like. My heart felt like it dropped in my stomach. I was overcome with such sadness. He went a few years ago due to his left leg, they said it was the start of hip dyplasia and that they wanted to take the leg, but we couldnt do that! He would only have one left and if that went it was done. They said he had six months. Yesterday was just shy of 3 years later!! That alone, we couldn't of asked for anything else. Seeing handsome man around for 3 more years was more then anything else we could ask for. The last thing they said was Spinal Myelopathy and all the symptoms are here. He would have good days and bad. It was so sad making this decision, for he will never be forgotten. However, I seem to not come to terms with it just yet for obvious reasons as it was only yesterday we had to let him free, but also for the fact that he brain function was so sharp. It was all heartwrenching. I know he is a better place and I know he knows it was best, but lord I hope he honestly knows it. It's the pain that is unbearable and learning to go on in life without a great dog , friend, and companion. Till we meet again, love ya always handsome man. I know you will be watching all of us. Love Auntie Entry: 2008-02-29 01:10:48 Visitor's Name: Donna Homepage URL: No website supplied You are from: MA, USA How you found our site: Google Would you recommend our site to others?: YES! Comments: My Bridge GSD had many autoimmune related disorders (Hypothyroid, IBD, Cushings) and when she left us, she had all the symtoms of DM as well, although it was not diagnosed. My current 8.5 YO Pembroke Corgi is beginning to follow her footsteps and I'm told that DM is a "curse" to this breed as well, but I'm not finding nearly as much info as I have here. A wealth of information here! I just wish I wasn't researching it. Donna Entry: 2008-02-28 20:07:33 Visitor's Name: Debby Ferreri Homepage URL: No website supplied You are from: Youngstown,Ohio USA How you found our site: Looking for information on DM Would you recommend our site to others?: YES Comments: My GSD,Maxwell has not been officially diagnosed with DM however he has all the symptoms. Two years ago he lost his balance,dragged his back legs and would crisscross them when he walk. He went into remission and now it is back with a vengence and I don\'t want to let him go. He is the best friend ever and a gentle giant.He gives me a sense of secruity and I don\'t know what I will do without him. Tomorrow I am taking him to a Vet that is on the list and I am evne thinking of getting him a wheel chair. If someone has one please e-mail me if you don\'t need it anymore. Entry: 2008-02-25 19:40:23 Visitor's Name: Jess Homepage URL: www.lovinggsd.com You are from: UK How you found our site: From our website, someone who have a GSD with DM and search Would you recommend our site to others?: Yes Comments: Brilliant informative site, keep the great job up. Admin of lovinggsd.com Loving GSD. Entry: 2008-02-24 09:59:21 Visitor's Name: Judyann Homepage URL: No website supplied You are from: Massachusetts/USA How you found our site: search engine Would you recommend our site to others?: yes Comments: I had two dogs at two seperate incidences both lost the use of their hind legs & eventually died.I got another dog three years ago and hes started showing signs of weak hind legs.I was talking to a woman friend that has shelter horses she gives her horses a natural herb called MSM the ingredient is Methylsulfonylmethane good for mild pain and joint health,I have weakness in my legs as well and use same MSM.I read a womans report on animal health risks;she stated that the vaccines aren't what we think they are? I had my doubts about shots for my pets.I had one dog for 12 years my husband took him to the vets to be fixed; a year later he lost the use of his hind legs a few months after that he was suffering so bad we had to have him put to sleep.I'm sorry to sound so pathetic but i'm so upset over the loss of all our loving pets by the millions. Entry: 2008-02-22 18:23:19 Visitor's Name: melissa inman Homepage URL: No website supplied You are from: Mandeville, LA. 70471 How you found our site: google search Would you recommend our site to others?: yes Comments: My dog Annie was diagnosed with DM today and I am so worried it's too late. I am heartbroken. She is still so full of life that I can't imagine her on the brink of death. Entry: 2008-02-20 16:25:13 Visitor's Name: Marilyn Gillespie Homepage URL: No website supplied You are from: Holden, Louisiana How you found our site: google search on degenerative myelopathy Would you recommend our site to others?: very definitely Comments: Your site has been wonderful - although very sad - in cleary up the many questions I have. Thank you for a wonderful site. Entry: 2008-02-20 14:05:38 Visitor's Name: Linda Homepage URL: No website supplied You are from: Phila., PA How you found our site: google search Would you recommend our site to others?: yes Comments: I wish I would've found this site 7 months ago when my baby was diagnosed. She's been on steroids since then and I know her time has come. I just need the strength to let her go... Entry: 2008-02-19 21:50:24 Visitor's Name: neil Homepage URL: No website supplied You are from: walton ,NY ,USA How you found our site: looking for help Would you recommend our site to others?: oh yeah Comments: My GSD has DM his name is ATREYU {trey}. Treys 8 and a half. vet gave him 5 months to live. We feel your pain and are desparetly looking for someone that might beable to help him. Hes showed signs of DM for about 5 months. I guess we refuse to think its the end of our best friend someone please help us. Entry: 2008-02-19 20:19:48 Visitor's Name: renee johnson Homepage URL: No website supplied You are from: desert hot springs, ca How you found our site: google Would you recommend our site to others?: absolutely Comments: thank you for being here Entry: 2008-02-13 15:08:02 Visitor's Name: Jane Hemker Homepage URL: No website supplied You are from: Delphos, Ohio, USA How you found our site: website on myelopathy Would you recommend our site to others?: yes Comments: My female shepherd was just diagnosed. Trying to learn as much as I can about this disease and try to make her as comfortable and enjoyable as I possible can. Entry: 2008-02-12 05:57:50 Visitor's Name: Sue Homepage URL: http://fortheloveofdogs.homestead.com/one.html You are from: Gr Junction, MI USA How you found our site: Google Would you recommend our site to others?: oh, YES! Comments: Just an update to my previous signing. Both My GSD's, (Ace a rescue from the pound & Bear rescued from a back yard breeder) were the loves of our lives. We have no HUMAN kids and these animals are our world. To see these beautiful dogs laying on piddle pads because they can't feel when they have to go to the bathroom and they still want to play catch with you and a ball is just so damn painful. Ace was 9 and Bear was 11. Ozzy cries. Atleast with Bear and Ace it didn't seem painful, just more of a problem with them moving. My husband would have to carry Bear(125 pound) down 6 stairs. Ace (62 pounds) I could. It just seemed like they would look in your eyes and ask why. We have 4 rescues now. Ozzy has Parasis, Angus has EPI, Emma has her spine and front leg bone fuzing together and Shelby is just fat and happy. I would never give up getting GSD rescues from the pound or from rescue centers, but going through all this pain is just tearing me apart! The loss is GREAT. But we WILL see them again one day. Happy, healthy and so glad to see us again. We just have to get through this hard part.....life. Entry: 2008-02-12 05:42:44 Visitor's Name: Sue Homepage URL: No website supplied You are from: Gr. Junction, MI USA How you found our site: google Would you recommend our site to others?: yes! Comments: I lost my beloved Ace to DM, 7-06 and my baby Bear to DM on 3-27-07. No I have Ozzy who is 2 and has Parsis. I am horrified by this and I am still not over the loss of Bear and Ace. I pray that Ozzy gets better soon and that the acupuncture I am taking through helps soon. Thank you for all your work and information! Entry: 2008-02-12 04:42:47 Visitor's Name: Kelli Homepage URL: No website supplied You are from: white, ga How you found our site: surfing Would you recommend our site to others?: yes Comments: I just put my 12 year GSD to sleep today due to DM. It was horrible she could no longer walk. Wish they could end this terrible disease. Entry: 2008-02-11 06:31:42 Visitor's Name: Teidi Tucker Homepage URL: No website supplied You are from: San Diego, CA How you found our site: google Would you recommend our site to others?: yes Comments: Dear Marjorie: My Alpha, Hank, a GSD mix, has just been diagnosed with DM at the age of 11. I am trying to do as much research as possible to support him in delaying the progression of DM. Thanks for such a good resource. Entry: 2008-02-08 21:56:48 Visitor's Name: Pat Smith Homepage URL: No website supplied You are from: Brunswick ME How you found our site: Google Would you recommend our site to others?: Yes Comments: My dog began by deciding he would not dot he stairs anymore (we live on the second floor). He and a half-sister were Dx last week. Bernie and Bunny are Pembroke Welsh Corgis. Their mother had 2 littermates that died from the disease, but she tested negative. Entry: 2008-02-08 21:56:43 Visitor's Name: Pat Smith Homepage URL: No website supplied You are from: Brunswick ME How you found our site: Google Would you recommend our site to others?: Yes Comments: My dog began by deciding he would not dot he stairs anymore (we live on the second floor). He and a half-sister were Dx last week. Bernie and Bunny are Pembroke Welsh Corgis. Their mother had 2 littermates that died from the disease, but she tested negative. Entry: 2008-02-04 15:58:29 Visitor's Name: Julie Rollison Homepage URL: No website supplied You are from: Holly Hill, SC How you found our site: My heart belongs to GSDs/ My new Sister told me Would you recommend our site to others?: Absolutely Comments: Marjorie, What a beautiful site!!! Entry: 2008-02-04 15:05:50 Visitor's Name: Nancy Wright Homepage URL: No website supplied You are from: Maple City, Michigan, USA How you found our site: searching for information on DM Would you recommend our site to others?: very much so Comments: This is a beautiful website and what a gorgeous dog! I found out 3 weeks ago that my choc lab - Abby - 10 years old was diagnosed with DM. Her back legs were giving out. Right now her regimen is Prednisone but it doesn't seem to be working too well. I also have her on several vitamins. I am so impressed with Dr. Clemmons and would like to contact him to discuss Abby. Marjorie, can you tell me how expensive the meds are? I really feel I need to try this new natural route and pray that it will help my precious Abby. Boy, how we love her dogs! God's very special gifts to us!. Thanks so much for your response to me and what you are doing. Entry: 2008-02-03 01:45:44 Visitor's Name: kelley Homepage URL: No website supplied You are from: laurel md 20723 How you found our site: search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-01-31 18:13:02 Visitor's Name: Karen Storck Homepage URL: No website supplied You are from: Denver, CO USA How you found our site: internet search Would you recommend our site to others?: yes Comments: Our 12-1/2 year old Pembroke Welsh Corgi has DM and I feel helpless as I watch him struggle. Entry: 2008-01-31 00:33:29 Visitor's Name: stephen w sullivan Homepage URL: about.com You are from: forest park Illinois How you found our site: google DM Would you recommend our site to others?: Yes Comments: My eight year old male German Shepherd (Shep)is in the beginning process to determine if he has DM. Some of the signs are there. I am waiting for some results from my Vet at the moment. It is nice to find your site that I can turn to for help and to make Sheps life as comfortable as possible. Unfortunatly I am financially strapped and may not be able to afford all the necessary tests for Shep. I love him very much and would appriciate any advice you can give. Right now I am hopeing for the best Thank You. Entry: 2008-01-30 01:35:58 Visitor's Name: Sylvia Fiano Homepage URL: No website supplied You are from: Matthews,NC US How you found our site: Friend with a beautifal dog, having symptoms Would you recommend our site to others?: definetley Comments: My Heart is With all of you. Entry: 2008-01-26 20:03:58 Visitor's Name: Glenn Gilliam Homepage URL: No website supplied You are from: Hillsborough Ca USA How you found our site: search Would you recommend our site to others?: yes Comments: I have a large Rhodesian Ridgeback that was just diagnosed with DM. What can I do for my beloved pet? Entry: 2008-01-22 21:47:23 Visitor's Name: Lisa Semmens Homepage URL: No website supplied You are from: Holly Springs, North Carolina How you found our site: Would you recommend our site to others?: Yes Comments: This is a message for Chris Duclos - I too have a corgi with DM - he has progressed fairly rapidly to the point of not being able to use his hind limbs (although with a sling, he can still get around outside with a lot of support from me). He had some trouble adapting at firstand seemed depressed for a while, but now seems to have accepted his new reality and is pretty much the happy guy he has always been. Please feel free to e-mail me if you want to talk to another corgi owner ... not sure if I have any good advice, but sometimes it is just nice to share with someone who understands what you are going through. E-mail me at Lisa.Semmens@earthlink.net or Lois.Semmens@kingpharm.com Entry: 2008-01-21 04:47:38 Visitor's Name: Chris Duclos Homepage URL: No website supplied You are from: Middletown, RI How you found our site: web surfing Would you recommend our site to others?: yes Comments: I don't have a German Shepherd. I have a lovely not-quite 8 year old Pembroke Welsh Corgy who was diagnosed almost 3 years ago. My Cinnamon is a sweet girl and is sort-of stable at the moment. Some days are worse than others. Entry: 2008-01-15 22:10:18 Visitor's Name: Anita Homepage URL: No website supplied You are from: Colorado How you found our site: surfing Would you recommend our site to others?: yes Comments: We just lost our GSD to probable complications from a myelogram to "rule out" DM. I wish I had read your website only 24 hours ago, which cautioned about using this invasive test only as a last resort. My GSD, who was about 7 years old (a rescue), was admittedly not in the best of health, having previously been operated on for laryngeal paralysis and for a double TPLO, but he began to have serious seizures less than 24 hours after the myelogram, and then he died from heart failure. My husband and I plan to continue to rescue GSD's, but I will print off a copy of the recommended testing procedures on this site for the next vet we see, as it appears that they have a need to be educated on this topic too. We had another GSD a few years ago that was diagnosed with DM, and then a mere couple of weeks later he began to have seizures as well, that seemed at the time to be unrelated to the diagnosis? When the vets put him on anti-seizure meds to control the escalating seizures, he suddenly lost his completely ability to use all 4 of his legs. About 10 days later, we were forced to make the decision to end his pain, as he could not support himself on any of his legs. It seems to me that there must be some relationship between the occurence of the seizures in both my dogs at the same time that they were diagnosed with DM? Any insight? Entry: 2008-01-13 01:15:11 Visitor's Name: Dawn Jacobson Homepage URL: No website supplied You are from: San Bernardino, Ca How you found our site: wonderful Would you recommend our site to others?: yes Comments: I have a lab with DM (Tristan) I was told by my vet that he wasn't going to get worse. By this website I am seeing he only has more degeneration to come. It breaks my heart to see this happening to him but he is still very happy at this point. my husband wants me to put him down but the vet says he is not in pain and it is my choice since he appears to be so happy still. He is really sucking up to all of the attention he gets from me now... before we would throw his ball and play with him but at bathroom time he just went out the door and took care of his business. I never walked him as a routine, just for fun. Now I walk him with a harness 2-3 times before I go to work and he is loving the attention... am I selfish for keeping him alive??? Dawn Entry: 2008-01-10 20:32:50 Visitor's Name: kATHY GREENWOOD Homepage URL: No website supplied You are from: ft worth, tx us How you found our site: dm Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2008-01-10 20:19:32 Visitor's Name: RGW Homepage URL: No website supplied You are from: Milford, Michigan,US of A How you found our site: Google Would you recommend our site to others?: Yes Comments: Our 12 1/2 year old GSD Jake has just been diagnosed with MD. I am trying to be upbeat about it so I will tell Jake's story. 7 1/2 years ago my wife and I were thinking about getting our female GSD (Sasha) a little brother to play with. When I stopped by the breeder she had no litters coming up but had a rescued shepherd named Jake that needed a home. Jake was the result of horrible neglect as well as his sister Sadie. Both GSDs had been kept in a 4x6 foot pen that had not been cleaned in months and their food and water were minimal at best. A passer by spotted them and reported them to the local Humane Society. Needless to say the were removed from those conditions. Sadly, Jake's sister was put down due to malnutrition and could not be saved. Jake weighed a mere 71 lbs and had open sores on all four paws from the filth they were forced to live in. Not only that but Jake also had massive PFs and IBS. Over the past years (almost 7 1/2) we have brought him back to great health to a very handsome 125 lb spoiled boy. We eventually found out that Jake was Sasha's nephew. Those two could not be separated until 3 years ago this month we had to put Sasha to sleep because of inoperable cancer. Since then he has ruled the roost and been a gentle giant. Even after the mistreatment he and his sister endured, he has remained true and loving. The only consolation my wife and I now have is that the last 7 1/2 years of his life could not have been better. And I plan now to spoil him to the max. If someone could email me and let me know this. Jake is early stages of DM and does not seem to be able to urinate fully and does not know when he has to do number 2. I was under the assumption that this issue was for GSD in the more advanced stages of DM. Any help would be greatly appreciated. I am so happy my wife and I have come across such a wonderful site. It does not make the pain of loosing a wonderful friend and companion any easier, but knowing we are not alone is consoling. Entry: 2008-01-08 05:16:16 Visitor's Name: Mackie Homepage URL: No website supplied You are from: New York, NY How you found our site: Internet reseasrch Would you recommend our site to others?: Definitely Comments: I am overwhelmed at the prospect that my beloved Callie (shepherd/rotty mix) who adopted me as his stray human 4 years ago may have DM. All the signs you indicate are there. He is estimated to be 7-8 years old. He is currently hospitalized and has had all the prescribed tests. There appear to be 2 ruptured disks -- one in the neck and the other in the 7th lumbar region. The neurologist suggested this too could be the cause of DM symptoms. Since his vital signs and bloodwork are good I've decided to go ahead with the surgery as I will always second guess myself if I don't. I am physically ill over this. I can only find solace in the belief that we will someday be reunited with our cherished companions. Thank you for a very informative although heartwrenching website. It is apparent that you did everything humanly possible for Jack Flash who I can picture romping in a lush green meadow with All Creatures Great and Small. Sincerely, Eileen Entry: 2008-01-05 01:55:24 Visitor's Name: JIm Hines Homepage URL: No website supplied You are from: Woodbridge, VA USA How you found our site: looking for info on DM Would you recommend our site to others?: already have Comments: As I read the Dr. Clemmons' U of FLA report, I felt I was reading about Misty, my German Short-Haired Pointer, whose breed I've not yet found listed as one that is susceptible. Thank you for your work in this area. I can understand some of how you have felt. Entry: 2008-01-02 17:10:55 Visitor's Name: Judit Gueth Homepage URL: www.juditgueth.com You are from: Canada How you found our site: Google, searching for info on DM Would you recommend our site to others?: Definitely Comments: Dear Marjorie, Our dog Rusty (collie mix) just passed away due to DM on Boxing Day. He was 14 years old. I found your site a few months ago, searching for any information on DM. The story of Jack Flash was just like reading my own diary.... I know what you went through, and I know the agony you felt, when you tried to decide if he should go to sleep forever... We're still second guessing ourselves, each day. I just wanted to say thank you for all the information you posted. It was helpful in many ways. Take care, Judit and Ed from Toronto Entry: 2008-01-01 17:30:15 Visitor's Name: Rosanne Rohac Homepage URL: No website supplied You are from: Tijeras, New Mexico, USA How you found our site: Google search for DM Would you recommend our site to others?: Yes Comments: My 9 year old mixed breed female has just received a diagnosis of high probablility of DM. Entry: 2008-01-01 15:39:58 Visitor's Name: Pat Rudy Homepage URL: No website supplied You are from: Greensboro NC USA How you found our site: Google Would you recommend our site to others?: Absolutely Comments: This is a PS to my entry below about Oscar. My email address is PatTealRudy@yahoo.com I welcome any and all ideas ..... Entry: 2008-01-01 15:30:42 Visitor's Name: Pat Rudy Homepage URL: No website supplied You are from: Greensboro NC USA How you found our site: Google Would you recommend our site to others?: Absolutely Comments: Hello Marjorie - We are interested in joining your support group. Oscar, our 13 year old lab mix, was diagnosed with DM back in October and I immediately found Jack Flash's web site which has been tremendously helpful. Please send me directions for joining your support group. Oscar first started showing symptoms of DM back in March of last year ... he had a tendency not to bend his left hind leg. It was very subtle. Of course, we had never heard of DM and the vet thought it might be a little arthritis in his knee and put him on a very mild anti-inflammatory drug. There were several other things that happened as his disease progressed ... during this treck to being diagnosed. I know you know the drill so I won't go into all the details. At one point our vet mentioned DM but I thought he was talking about the same condition I have in my back (degenerative disk disease). So I wasn't alarmed. Well, after an MRI of the brain, an MRI of the spine, a spinal tap, and several other tests, Oscar's neurologist back in October diagnosed him with DM (as he ruled out everything else). Ken and I were numb when we found out what DM was. Like you, I got on the Internet determined to found a "cure." That is when I came across your precious Jack Flash. As I read about DM, I realized that Oscar is a text book case. Oscar has been in physical therapy -- or rehab as his vet calls it. His physical therapist is actually a vet. He has daily home exercises and goes for water aerobics (underwater treadmill) twice a week. We are interested in learning and doing more. Please send us instructions as to how to join your support group. Thanks! Pat Rudy and Ken Cox Greensboro NC Cell 336-580-9966 Entry: 2007-12-31 00:32:49 Visitor's Name: Susan Palermo Homepage URL: No website supplied You are from: Oakdale, NY How you found our site: Looking up DM Would you recommend our site to others?: yes Comments: My Border Collie mix was diagnosed and I am currently taking her to a holistic vet and she is taking chinese herbal medications. It is very expensive and I am not sure of the results yet. Entry: 2007-12-30 22:30:54 Visitor's Name: Dennis Homepage URL: None You are from: Fountain Hills, AZ How you found our site: From Dr. Clemmons web site Would you recommend our site to others?: Yes Comments: Just read Jack Flash's web site and now realize my boy Harley has DM. Our Vet. was not sure I am now and can't stop crying. I will do everything I can to prolong his life, for his life is mine and my life is his. Entry: 2007-12-30 00:44:05 Visitor's Name: Susie Homepage URL: No website supplied You are from: Kyle, TX USA How you found our site: Dr. Clemmons website Would you recommend our site to others?: yes Comments: My boy Sir, had DM for the last year or so. I made the painful decision to let him go to Heaven on Dec. 8 2007. Entry: 2007-12-29 21:20:24 Visitor's Name: Treble Cierpke Homepage URL: No website supplied You are from: Nashville, TN USA How you found our site: Yahoo search Would you recommend our site to others?: yes Comments: I need your help. I believe I've reached the end of my capability to care for my collie Tessie. She is the love of my life and it breaks my heart to know I can't help her anymore. I'm at the point where I'm considering euthenasia but I am searching for other options. I would love to find a home for her where she can be properly cared for but I don't know where to look. Please contact me! Treble Entry: 2007-12-27 21:05:05 Visitor's Name: Jackie Du Charme Homepage URL: No website supplied You are from: Forest Lake, Minnesota , USA How you found our site: google Would you recommend our site to others?: yes Comments: I have decided to put our German Shephard down this afternoon. His ability to walk is getting very poor, incontinent now. He turned 9 in Oct. Diogie, is so good natured and loves life but life isn't loving him right now. I will miss you my friend. Entry: 2007-12-27 07:56:06 Visitor's Name: L.Jones Homepage URL: No website supplied You are from: Fort Collins, CO How you found our site: google Would you recommend our site to others?: yes Comments: Abby is a 9yr old GSD and our vet suspected DM in the spring ('07). In the spring she was wobbling and as I brought her to swim in the lake other could notice something was wrong. During the summer we moved and during our drive (from NV to CO) was the first time she actually didn't use her left hind leg. She started to drag her left foot in August and by October she was draggin her hind end. I ordered a cart which she loves but you can only use it outside and she doesn't like to use it when relieving herself. We are new to the area and although I have taken her to a neurologist here we don't really have a family vet. I am feeling very lost. My husband is ready to say goodbye but she still seems to have a desire to live to me. She follows me around and is always there waiting when our 2yr old is getting up from his highchair knowing there will be 'treats' left over. She doesn't have bed sores but she is getting irritations where she drags her hind legs. This is such a horrible disease!! If she seemed in pain or unhappy I think I could be mature enough to say goodbye but she's fine with her disability. I do have a recommendation for a caring couple who are both vets so I think I will call after the new year to see if they have any suggestions for her sores and establish some sort of relationship. Abby is the most mild mannered dog and many trainers and vets have commented on her temperment. She has been to school for show and tell with both of my older children and was very happy to be around all the children. As soon as we moved here we needed to take a short trip and I called a number on a flier that advertised 2 older children (supervised by their parents) were dog/pet sitting. They watched Abby in August and then again in November. When I talked to the mom in November she mentioned that her child had written about Abby in a paper for school. Even as a disabled dog she is still winning others hearts. The most amazing thing is that she will bark at any stranger coming to our house and I am sure she would defend our family in a crisis but as soon as she realizes that I am comfortable with the person she will just crawl into their lap given the opportunity. She does think she is a lap dog and won my heart when she first crawled into mine at the breeders home. I can't imagine life without her. I can't imagine picking a day to say goodbye. I think the day will just somehow present itself and I will know. I can't imagine having another GSD and having the possibility of going through this again and I can't imagine having any other breed. Thanks for listening. It is somehow comforting to know that I am not the only one making these decisions. I wish I could attach a photo with Abby and my toddler snuggling! Entry: 2007-12-26 16:05:24 Visitor's Name: Rich Vicars Homepage URL: www.handsnclay.com You are from: Fort Wayne, IN USA How you found our site: Google Would you recommend our site to others?: Yes Comments: Our German Shepherd, William, just turned 8. It seems that almost to that exact day, he started showing signs of GSDM. He is uncoordinated in his back legs and has started to scuff the tops of his claws. We have started Dr. Clemmons vitamin plan, and I will ask the vet for the other drugs this week. I am numb and distraught over this. My wife is in denial which makes it even tougher on me. He is our beloved boy and first German Shepherd. What an incredible breed. Entry: 2007-12-25 22:36:42 Visitor's Name: KC Homepage URL: www.KindCuisine.com You are from: Phildelphia, PA, 19152 How you found our site: Google Would you recommend our site to others?: YEs Comments: (No comment made) Entry: 2007-12-22 14:40:27 Visitor's Name: Gary Homepage URL: No website supplied You are from: How you found our site: surfing for a cure Would you recommend our site to others?: Comments: I have DM, but i'm not a dog. Any new ideas for effective treatment. Entry: 2007-12-18 18:45:39 Visitor's Name: Amy Homepage URL: No website supplied You are from: Golden, Colorado How you found our site: Research DM Would you recommend our site to others?: Yes Comments: My 9 year old boxer "Tess" is having an MRI right now, and I am afraid the diagnosis will be DM. The neurologist is very familiear with this desease, and breifed me on it yesterday. I have read that there are some vitamins and other chemicals that may help. Any help or advise would be much appreciated, she is such an awesome buddy, my heart is breaking over this. Thanks Entry: 2007-12-17 04:42:29 Visitor's Name: Kayoko Larmour Homepage URL: No website supplied You are from: Poway, CA 92064 USA How you found our site: yahoo Would you recommend our site to others?: Comments: I have e-mailed to Margerie for an advice last month. I would like to find out if she had a chance to read my email. I have 2 DM dogs at home and one is bedridden. I would like to discusss about my dogs and ask for an advise. ***************************************** My mom has passed away and I am grieving for her. I established the DM Message Board so people would always have access to help. I do not have enough hours in the day to answer every email I receive. I would have no life at all, and I also have another DM dog at the present time. The message board is the venue that should be utilized, for help, which is why it was created. You will find the link to the message board in the DM Support Group Website- it has its own button, so it should be easy enough to find, if you avail yourself of the site. People have many of the same questions, so questions are asked and answered in one place, which is a tremendous time saver. I need to have time for my own family and my own dog. Last night I was in the emergency room with my own dog until 2:30 am! I am only one person.. Marjorie Entry: 2007-12-10 03:13:23 Visitor's Name: nancy horvath Homepage URL: No website supplied You are from: hazleton, pa. U.S.A How you found our site: found it on internet Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-12-09 04:40:35 Visitor's Name: Rebecca Homepage URL: none You are from: nc How you found our site: google Would you recommend our site to others?: yes Comments: Hello, Our dog Lucy was recently diagnosed with DM as well. She is a mutt with obvious terrier. I always thought she had a lot of GSD but everyone else said Lab just because she is black. Now she has a GSD disease! Because she was not one of the obvious breeds it took a while for her to be diagnosed. We are starting down the path of water therapy and I will try that really complicated diet. I am glad to have something to hang some hope onto. Like every one I was devastated to find out what DM is and the prognosis was not good. I love my Lucy just as Jack Flash was so loved. Thank you for the support to know we are not alone down this wobbly path! Entry: 2007-12-07 15:12:05 Visitor's Name: robyn plunkett Homepage URL: No website supplied You are from: melbourne,victoria, australia How you found our site: google Would you recommend our site to others?: yes Comments: i lost my beloved german shep shannon on the 24th october. i had her put to sleep on the advice of my vet, but now after the info on your site, i think she would have still been able to survive for longer. it's really cutting me badly without her. i hope shes at peace and not angry with me. shannon is sadly missed and forever loved. Entry: 2007-12-06 00:31:36 Visitor's Name: Rose McCutcheon Homepage URL: No website supplied You are from: braggs, oklahoma USA How you found our site: computer Would you recommend our site to others?: yes Comments: I had to euthanize my German Shepherd today and it is no easy chore. My love for her is beyond this universe. Degenerative Myelopathy needs resolution. Nothing stops DM, diet, medications nothing. It runs it course and is not stopped by anything tried. 12-05-2007. I have 2 of her daughters and pray that they will not get the disease.. They are 4 years old Entry: 2007-12-05 02:59:27 Visitor's Name: Crystal Hayward Homepage URL: No website supplied You are from: Fenton, Mi USA How you found our site: Google seach Would you recommend our site to others?: yes Comments: I need a point in the right direction. Please help Entry: 2007-12-04 03:34:42 Visitor's Name: Patrick Homepage URL: No website supplied You are from: Denver, CO, USA How you found our site: Web search for DM Would you recommend our site to others?: YES Comments: I'm so thankful to have found your site! It's incredible how much strength I've gained from visiting this site and reading all the comments from everyone going through similar situations with their best friends. I want to share my experience and hopefully have a positive impact on someone who is struggling... My best friend, Buster, is a 16 1/2 American Eskimo and has been dealing with symptoms of DM for nearly 2 years. He's always had such a sweet and completely innocent way about him - in fact most people mistook him for a puppy on our walks, up until about 6 months ago. Honestly, I'm not sure how or if I'm going to survive without him, but I guess that will be determined at some point. During the past 2 years it's been a slow and gradual decline, as most of you have witnessed first hand with your babies. Just recently, he's taken a bad turn and is starting to seriously lose mobility with his back legs. Five days ago he could not walk, and was crying for help as he tried to get up. The sound and site of Buster crying in that completely helpless manner was something I don't think I'll ever get over. It's been a slow progression for him, and he's been resilient through the whole ordeal. I made a relatively major decision about 4 months ago, I took him off most of his MEDS and starting spoiling him rotten - with scrambled eggs, tenderloin, sirloin, chicken and rice, etc. The only medication I give him is quality of life stuff, a liquid pain med and Missing Link that I mix into some baby food in the morning. He LOVES it! I didn't want him to spend the last days of his life being force fed pills and food he hated. I'm not sure if this was the best thing for him from a medical standpoint, although he flourished in many ways, but it felt right and he's really enjoyed his snacks and meals! It's been a rough 2 years, to say the least this disease is so cruel. During the last week it's been downright excruciating to see him suffering. After a solid week of crying, worrying and downright panic over losing my baby (I've tried not to do this in front of him) - I found your site and had a bit of an epiphany this morning... I've wiped away the tears and decided that I'll cry after he's gone. I put a smile on my face and I'm determined to let him think that I'm not worried. I'm also stepping up my methods for spoiling him!!! Today, I made him some incredible scrambled eggs with his favorite cheese, and I got him a vanilla milk shake that I'm giving him in small increments so it doesn't make him sick. Tomorrow I'm going to take him to one of his previously favorite spots, get him a cheeseburger and go sit out in the sun at one of his previously favorite parks, letting him enjoy his feast and the sun. I thought about what he enjoys. He loves being with me, and he has fun eating some items that are soft and easy on his teeth and stomach. When you think about it, sometimes the only thing DM dogs have to hang onto would be food and US! I'm determined to let Buster have fun with his food, and let him know that I love him and I'm not worried. These are two things I can actually control, with a disease that is so stubborn. Funny thing, today after not being able to walk for four days he started cruising around the house and actually peed on his own, standing up. I'm SURE there are some extremely tough days and nights ahead, along with some tough decisions that will need to be made, but I'm determined to make his last days the best they can be... Thank you for reading about Buster! :) Entry: 2007-12-02 14:50:58 Visitor's Name: barb Homepage URL: No website supplied You are from: PA. USA How you found our site: pure luck Would you recommend our site to others?: of course Comments: just lost my beloved pit-lab mix on 11-28-07 he was 16- In the spring of 2006 he started sliding on the laminated kitchen floor and dragging his right rear leg, more clumsy, had trouble getting up and down steps. into the car- tail fur also worn off. The vet said it could be arthritis, gave us glycoflex stage 3, also said it could be DM- to look it up on the web..when i read about it i was in state of denial and just kept up rx for arthritis and got supply of DGP- hoping this would help.But his rear legs did get worse and a friend told me about bottoms up leash which really did help restore him but winter weather ruined our steady walks and it came to the point that i was doing the lifting of his rear legs and his front legs were getting stressed. he still enjoyed life and didnt appear to have pain but i was grieving every day-we couldnt walk in the woods like we used to or go in the car.- (he would fall forward) Incontinence got worse and worse andthen around july 4th he started having seizures and i got pb from the vet- pb controlled the sz and made him thirsty, sedated at times especially at first. this slowed his walking progress--i had pressure from neighbor that i was making him suffer but he really wasnt. About this time i noticed a lump under his right upper lip- it kept getting bigger and interfered with his eating-the vet said hed have to be put under.I kept our routine up-fed 2x day with Lifes Abundance and carried him outside 2x day for fresh air-he would vigorously chew at the grass and soil. But soon he could not sit up - and it was nursing care-got hints from your site- his appetite was prettty good up until the last month when he started eating less and less with more difficulty-and then stopped-sz became more freq -still he was aware of us and looked around--i would keep him clean and dry , reposition freq-- at one point the vet said it was a brain tumor but never had any tests--i still think it had to be DM. although we found another lump on his throat area so itwas probably a combination. He died in the living room in his bed peacefully. Iam very sad. beyond words althou it was expected.this was a very preciousdog to me and my son -the 3 0f us were very close and our lives were intertwined and it was so nice when we settled down for the nite to have him with us-everything was right with the world. I feel bad that i didnt have him on DM rx early on, maybe i shoudve gotten him a cart too. Ill never find a dog like him i know for sure. Your site was very helpful and i felt less isolated and had some plan- some hope. thanks to jack flash Entry: 2007-11-30 07:36:21 Visitor's Name: SashaLo Homepage URL: No website supplied You are from: Auburn, Wa USA How you found our site: google Would you recommend our site to others?: yes Comments: I lost my 12 year old GS lab mix just over a month ago. She was being cared for by a vet, but DM was never mentioned. From what I've read I really think she had it. She had surgery in June to remove a melon sized tumor attached to her spleen and began showing problems with her right hind leg almost immediately after surgery. The vet said it was arthritis. The pain pills we tried didn't work, only made her sick. Prednisone was the last thing we tried, and I think it made her even weaker. Losing my dog has been the hardest thing I've had to deal with in a long time. And this site actually makes me wonder if she had DM. She had every symptom listed. My poor girl, I miss her so much. Thank you for providing this site. I'm curious to know if dogs with DM are more apt to get pancreatis... because I think she got that, and that was probably the cause of her death. (She died at home, in my arms the morning we were to take her in to the vet to put her to sleep) Entry: 2007-11-30 07:34:19 Visitor's Name: SashaLo Homepage URL: No website supplied You are from: Auburn, Wa USA How you found our site: google Would you recommend our site to others?: yes Comments: I lost my 12 year old GS lab mix just over a month ago. She was being cared for by a vet, but DM was never mentioned. From what I've read I really think she had it. She had surgery in June to remove a melon sized tumor attached to her spleen and began showing problems with her right hind leg almost immediately after surgery. The vet said it was arthritis. The pain pills we tried didn't work, only made her sick. Prednisone was the last thing we tried, and I think it made her even weaker. Losing my dog has been the hardest thing I've had to deal with in a long time. And this site actually makes me wonder if she had DM. She had every symptom listed. My poor girl, I miss her so much. Thank you for providing this site. I'm curious to know if dogs with DM are more apt to get pancreatis... because I think she got that, and that was probably the cause of her death. (She died at home, in my arms the morning we were to take her in to the vet to put her to sleep) Entry: 2007-11-25 18:33:13 Visitor's Name: Nina Cole Homepage URL: www.ninasnanniesforpets.co.uk You are from: Bedfordshire, England How you found our site: Google Would you recommend our site to others?: Absolutely Comments: Suspecting our 12 1/2 year old GSD has the start of Degenerative Myelopathy, I scoured the internet in search of information. Although I found a vet site awash with technical terms, only this site has given me a laymans understanding of my dogs illness. For this I am very grateful. Entry: 2007-11-22 01:05:21 Visitor's Name: sam sardino Homepage URL: No website supplied You are from: Stittville,New york How you found our site: surfing for info on DM Would you recommend our site to others?: Yes Comments: My dog Dakota who is 11.75 years young has the beginings of DM and we are heart Broken over this desease and the up coming battle we are entering. Entry: 2007-11-21 00:43:36 Visitor's Name: Laurie Homepage URL: No website supplied You are from: Linwood, New Jersey US How you found our site: browsing for information on DM Would you recommend our site to others?: Absolutely Comments: My Dog is staarting to show more serious signs of DM. We are sad and frustrated and our Vet for 20 yrs has retired leaving me feeling helpless Entry: 2007-11-20 16:29:36 Visitor's Name: Sue Shiflett Homepage URL: No website supplied You are from: East Berlin, PA How you found our site: surfing the net Would you recommend our site to others?: YES!!! Comments: Hi Marj, I hope all is well with you, we haven't talked for a long time. I was surfing the net looking for your sites for a friend who suspects her GSD bitch may have some sort of a neurological problem. I thought I'd contact you to say "hi" and to wish you and yours a happy holiday. All is well here, Blitz is 6 now and hasn't had a sick day, thank heavens. I hope your girl is doing well too. I think of you often and marvel over your determination to do all you can to stop this horrible disease in its tracks. You are always the first person I think of when I hear that DM is suspected or diganosed. Take care...........Sue Entry: 2007-11-19 17:02:41 Visitor's Name: Larry & Debra Hagan Homepage URL: No website supplied You are from: Seven Sisters Falls , Manitoba , Canada How you found our site: looking up DM site Would you recommend our site to others?: oh yes Comments: My wife and I have both cried over Jacks site it is exactly what we are going through with our 11 yr old shepperd our baby girl SELA our sweetheart , it is not fare to have this happen to innocent dogs , what did they do to deserve this DM thing , this I ask God repeatally . The Dr Clemmons diet sounds quite detailed but I'm going to discuss it with my vet . Glad we found your site , we are aware of whats ahead we are not aware of how we will live without our baby . Thanks and will talk ahain. Larry and Debra Hagan Entry: 2007-11-18 21:02:51 Visitor's Name: mary Homepage URL: google You are from: UK How you found our site: google Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-11-18 02:35:22 Visitor's Name: Paul Clark Homepage URL: No website supplied You are from: bundoora Melbourne Australia How you found our site: Would you recommend our site to others?: Comments: (No comment made) Entry: 2007-11-15 00:43:01 Visitor's Name: shirley whalen Homepage URL: No website supplied You are from: blairsden, ca. usa How you found our site: research on DM Would you recommend our site to others?: yes Comments: If I had had any clue to DM - I was told it was hip displacia and arthritis and this is what King was being treated for. Only a chance remark about a lesion on his back spine sent me searching for what ait could be. Then I found DM and called my vet and am sending him copies of all the articles I have found about this condition. King is my 3rd. G.S. with this condition, but all lived to be between 14 and 16 years of age. I have one more G.D. and she is showing muscle weakness now. Entry: 2007-11-13 19:25:18 Visitor's Name: Sheri Homepage URL: No website supplied You are from: Winchester, CT How you found our site: surfing Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-11-13 18:57:03 Visitor's Name: Tamara Hall Homepage URL: No website supplied You are from: Boring Oregon u.s.a. How you found our site: Google Would you recommend our site to others?: Absolutely Comments: I would like2thank u so very much. In all this darkness u r a beacon of light and hope. Entry: 2007-11-12 04:22:19 Visitor's Name: Kathie Johnson Homepage URL: No website supplied You are from: Pecatonica, IL How you found our site: googled DM Would you recommend our site to others?: Most definitely Comments: My beautiful 8 year old boxer girl, Pearl has recently been diagnosed with DM. I cried for a week at the unfairness of possibly losing her to this horrible disease at such a young age. I will do whatever I can to slow the progression of it. She has started on Dr. Clemmons regiment of supplements and meds from Westlab Pharmacy. I also have her on acupuncture every 10 days to 2 weeks and she also has gotten a chiropractic adjustment. I pray every night that she can beat the odds and fight this disease for many more months or years. She's my baby girl. Entry: 2007-11-09 01:31:56 Visitor's Name: Shannon O'Bannon Homepage URL: shannonobannon01@hotmail.com You are from: sherwood,Ore,usa How you found our site: dm web search Would you recommend our site to others?: Yes! Comments: I lost my best friend less then 2 month's ago when the vet said she had DM I went into a mad search on the web to see what I could do to fix her! and soon found out that I could not do anything... the vet said she had less then a year to live and the quality would go down hill fast, Dr Smith had a shepherd who passed away with DM, so he was very very sad for me and Baby, he knew first had what was coming. I took Baby to my Chiroprator, What a great Man! he would give her free adjustments every week, to see if that would help her, and I do think it did, She lived 14 months after I was told she had DM, and I could have kept her longer, But I could not see her not be able to use her back legs, I looked into wheelchairs and anything I could do to help my best friend... I told myself she would let me know when it was time to go, when she did not know when she went potty it was time, she felt so bad when she had an accident, it just broke her heart, like she let me down ;-( I wanted her to go when she was still happy, I could not let her suffer one bit! she was to good of a dog for that and way to goood of a freind! I loved her so much, she knew me so well, and her kisses always made my day. I still wake up in the night and think I hear her tags jungle jungle, but then I wake up and its not. I know someday I will see my best friend again and she will follow my every footstep again! I love you and miss you Baby Farfignewton Entry: 2007-11-04 00:48:43 Visitor's Name: Christina Clark Homepage URL: http://www.geocities.com/jecmc21/JECMC_Family_Home_Page.html You are from: Deer Creek, IL, USA How you found our site: Searching for swimming pools. Would you recommend our site to others?: YES! Comments: My first Guestbook entry was written on April 15, 2007. I came on the website today because I found myself filtering thru some of Diego`s things that I had saved on the computer. I went to his memorial site at diego.critters and watched the slideshow, then I found the link to his homepage at geocities.com/jecmc31/Diego_Page, and next bumped into my DM folder. I remembered making a guestbook entry and wanted to find it, so I filter thru until I did. That`s when I noticed the date I wrote it, April 15 `07, and immediately noticed it was exactly one month before I lost him to DM. I was so positive, and so enthusiastic. Only I had no idea I had just 30 more short days left with him. I miss him terribly. How do you ever get over the loss of one you love so much. Diego is the greatest dog I have ever shared my life with. He will always be my best bud and will forever remain part of my heart. Forever One! -Christina Clark Entry: 2007-11-03 04:52:05 Visitor's Name: Lisa Ashby Homepage URL: No website supplied You are from: tomball texas usa How you found our site: search Would you recommend our site to others?: yes Comments: DO NOT GIVE UP--ON DR CLEMMONS PROTOCOL OF AMINO CARPROIC ACID ACETYLCYSTEINE AND ANTI-OX Q...... MY afghan hound Faisal (DOG) HAS HAD DM FOR ABOUT 1.5 YEARS NOW AND HAS REBOUNDED 4 TIMES SINCE MARCH. REBOUND, MEANING HE COULD NOT GET UP ON HIS OWN AND WALK...SO DURING THESE DOWN PHASES (WHICH ALWAYS SEEM TO FOLLOW A STRESS RELATED INCIDENT) I HAVE HELPED HIM UP AND USED A TOWEL FOR A CRADLE HELPING HIM WALK SO HE WOULD NOT STRUGGLE AND FALL THRU THE ROUGH TIMES....AND AFTER A FEW WEEKS OR A FEW DAYS AND HE REBOUNDS AND GETS UP AND WALKS ON HIS OWN AGAIN. I STILL FOLLOW HIM OUTSIDE AND GIVE HIM A LITTLE SUPPORT WHEN HE POOPS SO HE DOES NOT USE ALL OF HIS ENERGY SQUATTING. HERE IS MY STORY ...SO FAR ANYWAY. My 11 year old afghan hound was diagnosed with DM the first of this year. I started noticing about a 1.5 years ago that he would duck his head (like he was scared)when I clapped. Clapping my hands had never scared him before. The second thing I noticed was that a few times-- maybe just once a month he would struggle to get up. I thought he had been sleeping on his leg wrong or he had a cramp--he was 11 so I thought it came with age. This happened a couple more times and I became concerned. He also would have to poop immediately after eating and sometimes would not make it outside. This was NOT normal for him to go inside. It all happened sporadically so I did not know what was going on until in January of this year I told my vet about all of the symptoms combined and he examined him and said it was DM. I was told there was not much I could do but there was amino carpoic acid I could try. I started researching online and took him for x rays and his spine looked fine so we knew it was DM. I have had him on all 3 meds since March and he is still walking but it is not easy. He has now been diagnosed with a fast grwoing cancer in his neck so I also have started Prednisone. This has actually helped his strength and stamina. I know I dont have much longer with my boy but until he tells me its time I will stay by his side and help him with complete love and adoration. I have gone thru this 4 times now with Faisal (the DOWN periods where I thought he had given up---and the first 3 times I had prepared for a few days mentally and called my vet to come over to lay him to rest. The Miracle----- I am not kidding now----This DOG must have heard my phone conversations or knew on three seperate occasions that this was the day he was going to cross over the rainbow bridge---by my decision---because EVERY time the vet was supposed to come over the dog has gotten up ON HIS OWN and started walking around...before the hour the vet was to arrive to my house to do the sad deed. He has had another bout with not being able to get up...it lasted for a few days...I just deal with it and know that if I support him and help him thru his TIRED days-----he will rise again. He just has his good days and bad days..and if you listen to a human that has MS Muscular Sclerosis(same thing pretty much) they need rest and have relapses and remissions. The DM will eventually take over but if you have the will to help your dog and he has the will to continue you can have more time with him than you thought. Let him tell you when and do not be to quick to judge...because he might do what Faisal has done and show you he wants to stay with you longer! I pray my boy will be with my for quite a while longer but I will not let him suffer. Entry: 2007-10-31 16:03:01 Visitor's Name: Karin Anderson Homepage URL: No website supplied You are from: Dallas, TX How you found our site: Google Would you recommend our site to others?: Yes Comments: My dog, Sammy, was just diagnosed with DM yesterday. They say that everyone has a "Heart Dog," and Sammy is mine. I am so sad to read how many other sweet doggies are afflicted with this horrible disease. Thank you for writing about Jack -- I know how gut-wrenching that must have been. I am incredibly sad and angry that my sweet dog will be taken from me at such a young age (he's 7), but if there's anything at all that is positive about this disease, at least I can say that I'm glad that Sammy has no pain, and that there is time for me to make sure he knows how much he means to me. As Sammy and I go through this, I will be thinking of all the other sweet dogs and sad people who are going through this too. Thank you. Entry: 2007-10-29 22:18:00 Visitor's Name: J & J Pike Homepage URL: No website supplied You are from: Hubbardston, MA How you found our site: google Would you recommend our site to others?: yes Comments: We just brought our German Shepherd, Maxy back from our vet today, with the diagnosis of a 'classic case' of DM. The worst part is realizing he is in the final phases, and I don't think we have much time left together. We knew Maxy was getting much worse, and needed confirmation from our vet that there was nothing we could do to stop his deterioration. Your website gave us comfort - just knowing more about the disease, what to expect, and how to help us and our Maxy cope - is an enormous help. Maxy gave us many great years, we'll make his last time as good as it gets. Thanks for the info and words of strenth. Entry: 2007-10-29 06:30:43 Visitor's Name: Stephanie Homepage URL: No website supplied You are from: Villa Grove, IL How you found our site: google search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-10-26 03:16:12 Visitor's Name: Charlene Rummell Homepage URL: Jack Flash's You are from: Strongsville, Ohio USA How you found our site: Surfing the web for answers Would you recommend our site to others?: Yes Comments: I have a Lab "Bosco" 12 1/2 yrs ..he has been recently diagnosed..I've cried and prayed..Thank God someone else out there understands what we are going thru..God bless all of you. Entry: 2007-10-25 10:37:10 Visitor's Name: Susan Peter-Thompson Homepage URL: No website supplied You are from: Davis, CA USA How you found our site: Did Yahoo search for DM Would you recommend our site to others?: yes Comments: Bull is my mother's Black Lab/Pointer mix, and is just about the sweetest dog on the planet. We just got the diagnosis today from UC Davis Veterinary Teaching Hospital and we were just devastated. The only treatment the neurologist offered for Bull was physical therapy. I looked up some nearby veterinarians on this website and will see if Mom would like to take Bull to one of them. We just can't give up on him, he deserves better than that! Entry: 2007-10-24 18:14:10 Visitor's Name: cheryl dodson Homepage URL: No website supplied You are from: kirkland, il. How you found our site: searched the web for info on DM in GSD Would you recommend our site to others?: definately Comments: Thank you for your thorough and insightful account of your journey with Jack. We just got our Bandit diagnosed last Friday and our vet said nothing can be done. I plan to do all that I can to see to it our Bandit has quality to whatever time is left. It's heartbreaking to know there were signs we missed early on. Sincerely, Cheryl Dodson Entry: 2007-10-21 21:20:45 Visitor's Name: Lisa Homepage URL: No website supplied You are from: Bordentown, NJ USA How you found our site: websearch Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-10-21 03:49:26 Visitor's Name: Maria Homepage URL: No website supplied You are from: Flushing, NY How you found our site: Google search Would you recommend our site to others?: Yes Comments: This site has often provided our family with the strength and courage that was so easily held by our dear Lucky, our German Shepherd and hero for 13 years. Lucky had all of the typical signs a few years ago, mislabeled as "getting old". Yet even in its later stages, Lucky never changed. He remained, as many of the heroes in your own lives- courageous, determined and ready to serve. It was such an honor to take care of him then (diapers and all), because he reminded us of the simple lesson that we often forget- not to take this life we are given for granted. Watching him struggle to get up and drink because he was too proud to be given his bowl, empowered our family to have the same thirst for life. It also taught us to appreciate the everyday things that we may overlook and label as mundane. Those were the true joys then. Lucky was sweet, protective, delightfully stubborn and our best friend. Being with him in these later years were perhaps the sweetest moments because we got to give back to him all of the love he gave so freely through the years. This is the first time since he's passed on that I can write about this, it was just too painful two months ago. But I want to encourage those who have a dog with this disease- cherish them. Lucky lives on in our hearts and his struggles were the same of your pets. I can now look at his pictures and see the soulful eyes that still speak back to me. After seeing a dog that reminded me of our dear Lucky today, I was inspired to write and reach out to a community who understands to ask these questions: What can we do to get the word out about this disease? How can we affect research (Dr. Clemmons mainly) to find treatments/sources for those affected? I was so touched and inspired in reading all of your stories and feel that this love we have for our animals affected by DM can be put to great use. Thank you for this site, which provides strength and information to so many including me. And to our Lucky, who taught us so much and whose presence filled the memories of our hearts forever. Entry: 2007-10-19 22:41:23 Visitor's Name: roger james Homepage URL: none You are from: Lompoc, california, usa How you found our site: looked up degenerative myelopathy on internet Would you recommend our site to others?: don't know yet Comments: (No comment made) Entry: 2007-10-17 19:21:31 Visitor's Name: Rebecca Homepage URL: No website supplied You are from: Destin, Florida How you found our site: Searched Would you recommend our site to others?: Definitley!! Comments: We are struggling with what to do with our beloved ex-police dog Rex. He was diagnosed 2 weeks ago and it is getting worse. I am a single mom and the kids are already upset and I cannot find it in myself to give up just yet!! Entry: 2007-10-17 19:03:32 Visitor's Name: Lisa Semmens Homepage URL: No website supplied You are from: Holly Springs, North Carolina How you found our site: Searching for info on DM Would you recommend our site to others?: Yes Comments: My Pembroke Welsh corgi, Mwldyr, was diagnosed with DM on Sept 28, he had to have spinal surgery for a ruptured disk last January and had fully recovered from that (Thanks to the good work of the Animal Rehabilitation and Wellness Clinic in Raleigh) when I started noticing he was knuckling over again on his back left leg - in just the past few weeks he has almost completely lost the use of the left hind limb and is starting to have symptoms in his right hind limb. I started a new diet (Farm Selects by Nature's Recipe) after reading Dr. Clemmons site - it is close to his homemade recipe for food. Mwldyr is also showing some improvement with Vitamin E and a Multi-vitamin daily. Last week was very bad, but this week he seems to be doing better. He is going to Rehab for controlled exercise (under-water treadmill) 3X week, which I am hoping will slow the progression. This is a terrible disease and I pray for the strength to help Mwldyr cope with it. Entry: 2007-10-17 03:38:21 Visitor's Name: marsha copenhaver Homepage URL: No website supplied You are from: Orlando, Fl. How you found our site: web info Would you recommend our site to others?: yes Comments: I just received a diagnosis yesterday for gretchen and am trying to get the supplements and medications started as soon as I can. Entry: 2007-10-17 02:19:10 Visitor's Name: Kim Homepage URL: yahoo You are from: GA How you found our site: research Would you recommend our site to others?: yes Comments: My best friend Taco was diagnosed with DM about a month ago. We are about to start recommended drugs but I am having trouble with the expenses. I love Taco so much and will do anything for her. Does anyone have any ideas on how to get the vitamins cheaper? Please help! Entry: 2007-10-12 17:59:19 Visitor's Name: dawn harries Homepage URL: No website supplied You are from: walsall england How you found our site: google Would you recommend our site to others?: absolutely yes Comments: my parents gsd max was diagnosed with dm about 4 months ago, he more or less drags himself around now and is incontinent, my parents are in their mid 60`s so are finding it very difficult to cope. he is my dads world and it is so painful to see the devastation in his face. max is adored by all the family and we can`t imagine him not bein here. i`m crying just writing this. all we know is that max will live in our hearts for ever and ever and ever. Entry: 2007-10-11 18:05:14 Visitor's Name: Eunice Stevens Homepage URL: None You are from: Leesburg, Florida USA How you found our site: Dr. Knight, Neurologist at Affliated Vet Specialist Would you recommend our site to others?: Yes..Thank you for the information and support on this site. Comments: Dexter...Our beloved Boxer developed problems with his hid quarters approx one year ago. Out Vet sent us to a Neuorologist at AVS who did MRI, X-rays and various other tests. Diagnosis... needed surgery on L-5, S-2 but wouldn't not quarantee us it would solve his problem. We had the surgery and he didn't improve. They mentioned DM and said nothing could be done about it. However, one doctor told us about Dr. Clemmons and I searched the web for him and found this site as well. My guess would be Dexter is now in the middle stages of DM but we do have an appointment with Dr. Clemmons on Oct. 17, 2007. After speaking with a person at his office, they informed me they would never have operated on Dexter because if he had DM, the meds could exasperated the DM. They should have sent a blood speciment to the University before suggesting surgery! I think it has made it worse and the operating doctor said he was worse at his six-week post op check-up than he was before surgery. He is now high stepping and starting to drag the other foot as well. His booty falls when he shakes, but he can still get up and walk in a clumsy manner and has some incontenance. We're eager to get him on the meds and looking forward to Dr. Clemmons's opinion. There is nothing we will stop at insure our Precious Baby has the Best! He is so loved by his Mom, Dad, and Brother Dwayne! Entry: 2007-10-09 22:46:37 Visitor's Name: mack carr Homepage URL: carrscanines.org You are from: holly , mi usa How you found our site: looking for information on DM Would you recommend our site to others?: yes Comments: Jack is a handsome dog Entry: 2007-10-08 23:52:30 Visitor's Name: Gary Homepage URL: No website supplied You are from: Austin, TX USA How you found our site: google Would you recommend our site to others?: yes Comments: I am taking my buddy Sampson in for what appears to be DM. He is to have a spinal tap to find out for sure, but all of the symptoms are there. I'm scared to death to lose me friend of all these years. Thanks for the site. Entry: 2007-10-07 19:29:04 Visitor's Name: Charlette A. Miller Homepage URL: No website supplied You are from: Gainesville, FL 32608 How you found our site: By looking uner German Shepherd support groups Would you recommend our site to others?: Definitely Comments: Our beautiful german shepherd female, Duchess, who we rescued 14 months ago at the age of about 6 was diagnosed with the disease by Dr. Clemmons here in Gainesville. She has been started on his diet and medication treatment, but she seems to be progressing fast toward not being able to use her hind legs. It is very painful to watch. We would like to hear what can be done, beside wheels, when she becomes incontinent, and how to take care of that problem. Please, Marjorie, you called us about a month ago, and we would like more details. Entry: 2007-10-05 06:16:19 Visitor's Name: Anita Pace Homepage URL: No website supplied You are from: Beaverton, OR USA How you found our site: from a link given by someone else regarding DM Would you recommend our site to others?: Yes Comments: I just got the necropsy results tonight. Siskiyou, our handsome, beloved Siberian Husky, had severe DM. He had died from bloat that twisted is stomach, but all the symptoms he had were from DM. He had been diagnosed with Canine Cognitive Dysfunction, Doggie Alzheimer's, even with an MRI. I had tried to help him with various supplements and I thought he was improving with homeopathic medicine, but then the bloat took his life. Had I known it was DM all along, I would have been able to try more meds and supplements months ago. The neurologist never mentioned this, so I'm very surprised. Your story about Jack Flash and you is extremely touching. Thank you. Entry: 2007-10-04 20:31:47 Visitor's Name: Diana Lauhon Homepage URL: No website supplied You are from: Minerva, OH 44657 How you found our site: google Would you recommend our site to others?: yes Comments: Love Jack's pics. My husband and I are grieving the loss of our handsome guy, Tobin. I am a nurse, but did not recognize DM - thought it was arthritis from ACL repair x 2. Tobin declined rapidly, but in retrospect had symptoms for a long while. Our loyal friend went to sleep one week ago 9-28-07. He would be 9 on Oct 13. We miss him so. Thanks for your story. We know are not alone. Entry: 2007-09-29 23:34:58 Visitor's Name: Jorji Homepage URL: No website supplied You are from: Portland, Oregon, USA How you found our site: google Would you recommend our site to others?: yes Comments: I have a 12 year old mix (Lab, Chow, Bull Mastif) and she has all the dragging leg and rearend weaknesses described. Had an MRI which showed bulging disc and neuro wanted to do surgery and at that point would be able to detect if DM was the diagnosis, or not. At her age, I just couldn't see doing that! I have a Holistic Vet would believe Chiropractic adjustment would help, what are your experiences with that thought? I have MS myself, and everything I go through, my dog seems to be going through, so I am giving her the supplements I take. Any comments are so appreciated. Thank you! Entry: 2007-09-26 17:41:52 Visitor's Name: Mike Homepage URL: No website supplied You are from: How you found our site: Google Would you recommend our site to others?: Yes Comments: Our German Shepherd Daisy was diagnosed with DM just over a year ago. At the time, the vet told ut it was at the early stages but he gave her about 3 months at that time. Now she is about to reach 12 years old but the scaping of her back nails is very pronounced. As much as think I am prepared for that final day, I know I will be devastaded. But on a positive note, I have cherished her and have really appreciated her companionship even more than I could have imagened every day she has been around since the diagnoses. Thank you for your site. Entry: 2007-09-18 21:33:03 Visitor's Name: JAN Homepage URL: No website supplied You are from: england How you found our site: google Would you recommend our site to others?: yes Comments: HI THERE, 2 days ago i signed this guestbook today at 9am we loved our beloved zack age 12 years old. he as our vet told us he fought all the way had no pain killers he just had the will to live. today he lost that nearly 2 years he fought on ALL I CAN SAY GIVE YOUR DOG THE WILL TO LIVE AND THEY AMAZE YOU HE SURVIVED NEARLY 2 YEARS AFTER BEING TOLD THIS DONT GIVE UP ANYONE GIVE THE FIGHT TO THEM . REST IN PEACE MY ZACK YOUR MEMORY WILL LIVE ON XXXX MANY THANKS JAN FROM ENGLAND. Entry: 2007-09-18 08:04:20 Visitor's Name: Carla Homepage URL: No website supplied You are from: Toronto,ON CAN How you found our site: desperately searching google Would you recommend our site to others?: definitely Comments: My Quincy boy is 11 yrs old, and diagnosed with dm about 4 months ago... was told there was no treatment except some pain meds, which seems to have outworn its purpose. Today he refused to eat anything, and had an upset stomach. He didn't even want to get up! I'm very scared and have spent the night crying because I feel so helpless. The look in his eyes broke my heart today. Now my dad is talking about that awful "last" choice... I don't know what to do.. what can I do...I do know now that my boy is in the end stages, and I am terrified... someone please help! Entry: 2007-09-17 02:24:33 Visitor's Name: Carol Solley Homepage URL: No website supplied You are from: Columbus, Ohio, USA How you found our site: information Would you recommend our site to others?: yes Comments: I am currently losing my 10 year old Pembroke Welsh Corgi, King, to DM. His brain is so sharp but he is quickly becoming numb in his back legs. King is going to walk in the park, chase his cat, Tex, and bark at the UPS man until I have to put King down. No tests, no worries. Entry: 2007-09-16 20:52:49 Visitor's Name: JAN Homepage URL: No website supplied You are from: england How you found our site: google Would you recommend our site to others?: yes Comments: hi, i believe today i have found out my 12 year old german shepherd has this dm. our vet said early 18 months ago it was his nerves but that was all she said he wobbles with his back end, and all the symtoms you have descripted he has yesterday he had diarreo and somehings he poos his self and another day his fine also yesterday he couldnt get up the step but he then got up i am very worried that this is what he has he is on no medication. jan Entry: 2007-09-16 20:48:27 Visitor's Name: Daryl Herman Homepage URL: No website supplied You are from: Erie, PA, USA How you found our site: Browsing for my biology research paper Would you recommend our site to others?: yes Comments: Two years ago I had to put my Shepherd Golden retrieve mix down because of this disease. I would had paid for a treatment, she was with me for thirteen years, and I still miss her. Entry: 2007-09-16 11:34:05 Visitor's Name: Jeff Corey, DVM Homepage URL: healingpawsri.com You are from: Providence, RI How you found our site: google search Would you recommend our site to others?: yes Comments: Just wanted to mention that I thought your site is very informative and helpful for those dealing with DM. I also wanted to letr you know of my facility which is in Providence RI and does have a hydrotreadmill. Right now unfortunately most people are coming at the end stage and I think your site helps provide awareness of keeping them moving- within reason. Thanks again, Jeff Entry: 2007-09-15 02:36:21 Visitor's Name: Michelle Homepage URL: No website supplied You are from: TN How you found our site: Researching for help Would you recommend our site to others?: Absolutely!! Comments: My Great Dane, Sloan, was diagnosed 3 days ago. She's 7 1/2 years old and also has epilepsy, so we thought the ataxia was from the phenobarb she's taking to control her seizures. We adopted her 4 years ago. She's deaf and partially blind and has been since birth and is the most loving friend I've ever know. She's already a "senior" and I'm so concerned about her because she's already having "accidents" on the carpet on a daily basis and due to her large size she's really having trouble getting up. My heart goes out to all of you and I wish you all the best. Entry: 2007-09-13 01:22:03 Visitor's Name: Stephanie Hannah Homepage URL: No website supplied You are from: Millville, NJ How you found our site: scanning for info on DM Would you recommend our site to others?: yes Comments: please realize and note that this disease is also very prevelant in Boxers. My Chelsea girl had to be put down because of this horrible disease! Entry: 2007-09-09 09:12:30 Visitor's Name: Julie and John Homepage URL: No website supplied You are from: Janesville Wisc. U.S.A. How you found our site: a link from--- eddieswheels.com Would you recommend our site to others?: yes Comments: This site is fantastic. I have found information that even the vet don't know. Our 12 yr old GSD is in the final stages. Your stories, pics of Jack, and info will help us through to the end. Entry: 2007-09-08 22:55:22 Visitor's Name: Geoff & Julie Homepage URL: No website supplied You are from: Bradenton, FL How you found our site: Would you recommend our site to others?: Yes Comments: We lost our best friend Winston on 08/24/07. He was 9 1/2 years old. In December of 2003 we were told Winston had DM and 2-3 months to live. We lived in Virginia at the time. We did not accept this news. He had an MRI done filmed by the U of Florida. He was put on steroids and responded well. In fact he had little problems until June 2005. At this time he began to have a hard time walking. He had another MRI and xrays. We decided to have disc surgery after consultation with our vet. The surgery did not help that much. he recovered but still had problems. He spent the rest of his life on steroids. We honestly believe it kept him going. At the end he had many accidents and could hardly walk. We did not want him to suffer so we made a difficult dicision. It was so bad. We have been so upset. We are not sure if he had DM but I thnk it is a 85% chance. Ask your vet about steroids. I think we got extra time because we went this route. By the way we moved to Florida in 2004. Winston loved the long ride from VA to FL. Note from Marjorie: Steroids are not recommended for dogs with Degenerative Myelopathy! Steroids cause muscle wasting, which is already a huge problem in DM. One would not want to use any medication that accelerates muscle wasting. That will only cause a dog to go down, more quickly! Entry: 2007-09-06 06:01:05 Visitor's Name: Gumbee Homepage URL: No website supplied You are from: Oshawa, Ontario How you found our site: Would you recommend our site to others?: Comments: My 7 year old GSD was diagnosed with this in June 9,07, it's now Sept 5 ,07 and no change. Since a pup, he's always had a wobbly bum and has always rested with his paws knuckled under.He has always stretched and flipped his rear paws onto their knuckles. So when the vet did the test on the rear paws it wasn't an unusual position for him. Maybe I'm in denial , but here's hoping he doesn't have this. My sympathy to everyone whose gone through this. The thought of watching this illness transpire to my buddy,leaves me with great angst. Entry: 2007-09-05 23:17:36 Visitor's Name: Sue Hendrickson Homepage URL: No website supplied You are from: Lago Vista, TX USA How you found our site: My friend Would you recommend our site to others?: yes Comments: My friend recently lost her baby Egan to this horrible desease. He was 8. He was such a wonderful unconditional friend to her and her husband. Entry: 2007-09-05 17:37:07 Visitor's Name: robindo Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: (No comment made) Entry: 2007-09-03 04:08:01 Visitor's Name: Charlette A. Miller Homepage URL: No website supplied You are from: Gainesville, Florida How you found our site: Through Dr. Clemmons who diagnosed our GS female with DM Would you recommend our site to others?: Yes Comments: We adopted Duchess from a GS rescue group in Tampa at age 6, 13 months ago, only to see her experiencing strange weakness in her hind legs, and took her to UF vet school for a neurological exam with Dr.Clemmons only to find out that this lovely, sweet girl has a most distressful illness. We don't want to lose her yet! She has wormed herself into our hearts. Entry: 2007-08-31 05:08:16 Visitor's Name: bruce flemmer Homepage URL: No website supplied You are from: Lodi, CA , USA How you found our site: browsing Would you recommend our site to others?: yes Comments: just put down my shepard today. the dm was fast and hard to watch. he was 8 years old. sure will miss him. Entry: 2007-08-27 14:59:23 Visitor's Name: Steve Sim Homepage URL: No website supplied You are from: Novato, CA, USA How you found our site: Research on the Net Would you recommend our site to others?: DEFINITELY Comments: My wonderful friend, Mondo, a 5 & 1/2 year old GSD, has all the signs of DM. The signs began appearing a few months ago. Is there anyone I can chat with about his condition? Entry: 2007-08-24 04:22:39 Visitor's Name: Rick Bajackson Homepage URL: No website supplied You are from: Sparks, MD USA How you found our site: I looked for it Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2007-08-23 01:39:12 Visitor's Name: Lynn Homepage URL: No website supplied You are from: University Park, MD How you found our site: surfing the web Would you recommend our site to others?: oh yes Comments: We just adopted our GSD Raven from GSD rescue in May 2006...she's about 11 now and the vet just diagnosed DM...she is degenerating quickly...thank you for your wonderful site...it is so hard to watch this process Entry: 2007-08-22 03:16:18 Visitor's Name: Gayle Cartwright Homepage URL: No website supplied You are from: Altus,Ok How you found our site: Pharmacy Would you recommend our site to others?: Yes Comments: A Wonderful and Helpful site for lost souls like me who are very new to this. Thank you so much. Entry: 2007-08-15 21:35:12 Visitor's Name: NUALA SIMONS Homepage URL: No website supplied You are from: BELFAST, NORTHERN IRELAND How you found our site: EMAIL Would you recommend our site to others?: MOST DEFINITELY Comments: My 12 yr GS was put to sleep on 11.7.07 due to DM. I had no veterinary advice or help when caring for mr b once he was properly diagnosed. However from march 06 to july 07 i didnt do to bad, did I?? My only regret was that i never knew about this site. Entry: 2007-08-15 06:06:56 Visitor's Name: J. R. YOTZ Homepage URL: No website supplied You are from: Enumclaw, Washington How you found our site: MSN Web Search for "Degenerative Myelopahty Support Group" Would you recommend our site to others?: ENTHUSIASTICALLY! Comments: I'm impressed---greatly--- so far after only 30 minutes in the site. I have been studying the report off the UFla web site and the "Jack Flash" intial report for the lst 3 weeks. Decided to try to find you and did on the first try. This web site should (must?) be shown on the "Two Hearts" link off the UFla site, please (for the next person) Entry: 2007-08-14 18:01:05 Visitor's Name: Claire Sutherland Homepage URL: No website supplied You are from: Holstein, ON Canada How you found our site: Google Would you recommend our site to others?: yes Comments: We have just learned that our Shepherd/heinz 57 has this disease. The vet (right out of university) wasn't too sure in the beginning. However, when he told me his suspicions I went to the internet. She has all the symptoms. She is 14 years old and lost her best friend, my male doberman to Osteocarcoma last year. Although she has a new friend now, she didn't appear to be as active as she was, keeping pretty much to herself. We just put it down as missing Caleb (dobie) and getting older. Since last week she has been on Medicam, what a difference in her already. She is the happy girl we remember, the girl I did Agility with. It was so hard losing Caleb to that dreaded disease, now seeing Kelsey having to deal with this....it's very hard. Not sure how we are going to handle this one. Entry: 2007-08-14 00:28:35 Visitor's Name: Denise Day Homepage URL: No website supplied You are from: North Carolina........USA How you found our site: google Would you recommend our site to others?: most definantly Comments: Thank you so much for all of the information you've provided, if it wasn't for your website I may have never known my girl has this condition. Thanks to all of your links I was able to get her on the necessary medication and I have since provided all of this info to my veterinarian (as he was unaware of the meds available from westlab) Thank you so much!!!! God Bless You! Entry: 2007-08-13 12:59:19 Visitor's Name: WENDY ONEILL Homepage URL: No website supplied You are from: SCOTLAND How you found our site: GOOGLE Would you recommend our site to others?: YES Comments: WE HAVE AN 8 YEAR OLD BITCH CALLED HOLLY BOB WHO HAS THIS DISEASE, SUCH A SHAME SUCH A LOYAL FRIEND... Entry: 2007-08-09 16:00:47 Visitor's Name: Brenda Pearman Homepage URL: No website supplied You are from: Springbrook, WI How you found our site: Google Would you recommend our site to others?: Definitely. Comments: I have an 8-year old German Shepherd named Pard. He started showing symptoms about 4-5 months ago and has shown marked deterioration since then. He can still get around, swim, and run, but he is terrified of my hardwood floors (I've now covered them with carpet remnants). I have him on a vitamin regimen which seems to have slowed, but not stopped, the progression. The vet was not helpful and basically said "there's not treatment". I am terrified of losing him. Entry: 2007-08-05 13:32:31 Visitor's Name: susan whitaker Homepage URL: No website supplied You are from: eugene, oregon usa How you found our site: searching, surfing divine intervention Would you recommend our site to others?: absolutely Comments: Thank God i found this site! I'm so overwhelmed with gratitude and information tonight and i'm so glad i have a place to come for support and advice from people just like me. Entry: 2007-08-04 11:08:00 Visitor's Name: Wendy Hartley Homepage URL: No website supplied You are from: South Africa How you found our site: google Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-08-02 00:54:52 Visitor's Name: Pat Andros Homepage URL: No website supplied You are from: Smyrna, GA, USA How you found our site: web search Would you recommend our site to others?: yes Comments: It's hard to find anything other than medical terminology and definition, which provides no hope - just a description of a terminal disease. It has been heartbreaking to watch my dog's ability to use his legs deteriorate, even as he is alert, happy and responsive. I am appreciative of the efforts and support intended by this site and from its creator and all participants. Entry: 2007-07-31 23:08:06 Visitor's Name: Steve Boers Homepage URL: No website supplied You are from: Ankeny Iowa How you found our site: breeder Would you recommend our site to others?: yes Comments: We have a 9 year old Irish Setter named March who is in the latter stages of this horrific disease. It is one of the most helpless feeelings you can experience. Entry: 2007-07-29 19:30:31 Visitor's Name: sue snell Homepage URL: No website supplied You are from: garrett, indiana, usa How you found our site: looking for anything on DM Would you recommend our site to others?: yes Comments: I believe my 11 year old, Chance, is in his final stages by what I have read. any information would be helpful. he seems to be getting more agressive toward some people which he never was before. could this be caused by his discomfort? Entry: 2007-07-26 23:43:52 Visitor's Name: Lisa McGinnis Homepage URL: No website supplied You are from: Campo, CA USA How you found our site: search Would you recommend our site to others?: yes Comments: We just lost the battle of DM with our beloved 11 year old German Shepherd. It has been the hardest thing I have even gone through. Entry: 2007-07-24 00:16:40 Visitor's Name: Tim Wells Homepage URL: No website supplied You are from: Springfield, Ma. 01128 How you found our site: Searching for DM information for my Border Collie Would you recommend our site to others?: Yes, Absolutely Comments: Beatiful dog, such an ugly, unfair disease. My mother bread and showed German Shepards and I had at least four all my life. Great dogs. Thank you for this site and its information. Entry: 2007-07-21 15:35:44 Visitor's Name: YOLANDA TAYLOR Homepage URL: No website supplied You are from: CARTERET,NJ,US How you found our site: LOOKED UP DEGENERATIVE MYELOPATHY Would you recommend our site to others?: INDEED Comments: I AM VERY NEW TO THIS AND FEEL HELPLESS AS WE DID NOT NOTICE FONZYS PROBLEM UNTIL HE STARTED STUMBLING FOR NO REASON AND WAS NOT AS READY TO EAT AS USUAL. i TOOK HIM IN AND THEY CHECKED HIM AND ALSO DID THE PAW BENDING IN WHICH HE DID NOT RESPOND TO AT ALL. HE IS SO MANNERABLE AND LOVABLE AND I AM GOING TO LOSE MY FRIEND TO SOMETHING I CANNOT CONTROL. I'M HEARTBROKEN BECAUSE HE IS ONLY 8 AND I WAS NEVER TOLD ABOUT THIS POSSIBILITY. Entry: 2007-07-20 19:34:44 Visitor's Name: sharon austin Homepage URL: No website supplied You are from: kent england How you found our site: web search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-07-18 19:42:34 Visitor's Name: Ginni Bagnatori Homepage URL: No website supplied You are from: Rehoboth Beach, DE How you found our site: Just looking on the internet for answers about DM Would you recommend our site to others?: Yes, it\\\'s very empathetic, caring and offers support Comments: I have a 12 year old Pit Bull mix named Beamer who also is 3 legged and now she\\\'s developed DM so she has a lot of disadvantages going on for her. I love her dearly and hate watching how much this has slowed down her life, yet she manages a good tail wag and many kisses. Thanks for keeping your site going on in memory of Jack Flash Entry: 2007-07-12 01:51:34 Visitor's Name: Lynn Homepage URL: No website supplied You are from: Rosamond, CA USA How you found our site: Surfed in Would you recommend our site to others?: DEFINITELY Comments: Thank you for your informative site. My friend had a 9 year old GSD that ultimatley was put to sleep due to DM. I had the opportunity to baby sit Baron a month before his dad made his decision. It broke my heart to come home at night to Baron who just cried and many of those nights I cried with him. I knew him in his younger days jumping in the pool, going for hikes, swimming and playing with his Beagle girl Duchess. Now my friend has gotten another GSD, Thor is almost 18 months old and is showing signs of lameness I am concerned that Thor is unfortunately headed down that same path as Baron. This disease breaks my heart. I wish all of you that is dealing with this disease the best of luck and my deepest sympathy when and if you have a decision to make. Entry: 2007-07-10 18:37:49 Visitor's Name: Jeanne A. Harrington-Lucas Homepage URL: No website supplied You are from: Downingtown, PA How you found our site: Researching GSDM Would you recommend our site to others?: Absolutely Comments: This site is truly a God send for anyone who has a dog with DM. It is both inspirational and informative. My German Shepard "Diva" has been suffering with DM for just over a year. Dog Cart is now essential to her mobility. Fingers crossed she is doing quite well. Entry: 2007-07-09 07:43:05 Visitor's Name: sharon benson Homepage URL: google You are from: scunthorpe england How you found our site: by chance Would you recommend our site to others?: yes Comments: today we will be having our beloved tara put to sleep due o dm.shae is my baby i will miss her so much.she was diagnosed with m about 4 months ga but has had symptoms for about 10 months.she can hardkly walk and drags her legs.it is a hard decision to put her to sleep but is for the best.rest in peace my ngel Entry: 2007-07-08 19:26:50 Visitor's Name: Shaylea Grahame Homepage URL: No website supplied You are from: Canada How you found our site: By Accident Would you recommend our site to others?: yes Comments: I thimk that the site is really well put together and is beautiful. Good job! Entry: 2007-07-05 22:50:23 Visitor's Name: deb demarco Homepage URL: none You are from: riverside rhode island us How you found our site: google Would you recommend our site to others?: absolutely Comments: Jeges expired this morning after a 1 hour bout with cardiac arrest. he would have been 12 in august and was diagosed with DM a year ago. my husband and I decided to give dr Clemmons protocol a try, and we were faithful to it each and every day this year. While Jeges' condition did not improve much, nor did it worsen as he was able to live out this last year with dignity, faithfulness, and with the knowledge that his owners cared for him. he never lost the use of his legs, and he maintained his appetite and stigma throughout the year. we are truly grateful to Dr Clemons reasearch on DM, and the generousity of westlab Pharmacy for their medicine and backup. We miss our old boy, but couldn't have asked for a better last year with him. Entry: 2007-07-03 17:16:24 Visitor's Name: johanna Homepage URL: No website supplied You are from: phila., PA USA How you found our site: google search Would you recommend our site to others?: yes Comments: My 4 yr old white shepard, SHmoo, started wobbling over a year ago 9 he was about to turn 3) He has elilepsy since he was 16 months old. HE's a great dog very layed back and very much a momma's boy. He has been under medication of predisone for 3 months now and his dose increassed now to 60mg daily with vitamins and seizure medications. Now he has water retention swelling in his legs all but on front. I don't want him to suffer but the thought of being without him is upseting. When my vet told me, a month ago when they realized it was DM, that there is a medication that can help, I was hopefull but when they told me because of his size and dosage it would cost me about $400 a month and I know that was thier low price, I just felt like my whole world fell from under me. I'm on disability and bearly had the money for his 2 seizure meds, I was thinking I'm selfish because I couldn't pay for the meds. Anyway finding a site like your's helps ease the pain of feeling alone with this crule disease. Thank YOu Entry: 2007-07-02 07:37:20 Visitor's Name: dennis sanchez Homepage URL: No website supplied You are from: corrales, nm How you found our site: eddies wheels Would you recommend our site to others?: yes Comments: when buster was diagnosed i focused on making his remaining life comfortable. i ordered supplements, cooked his food, vet visits, wheel chair, and lots of time. i have 5 other dogs and 8 arabian horses but buster was special. everyone in my life understood that i was not resonable in regards to his care when it came to my boxer i spared no exspense and he was worth it. he adapted to the wheel chair quickly and loved life until the very end. it has been 2 months since he asked me to let him go and the loss is worse that i ever imagined. listen to your heart and not the critics that say that dogs should not be in wheelchairs. i can be reached at actionriorancho@aol.com Entry: 2007-07-02 07:19:17 Visitor's Name: Dennis Sanchez Homepage URL: No website supplied You are from: Corrales, NM How you found our site: Eddies wheels Would you recommend our site to others?: yes Comments: what a great tribute. i lost my 12 year boxer who was my best friend 2 months ago. he was in a wheel chair for 10 months. I understand how you feel. its hard but i would not have changed a thing. Entry: 2007-07-02 03:55:07 Visitor's Name: Glenys Cadman Homepage URL: No website supplied You are from: Brisbane, Australia How you found our site: Searched for Degenerative Myelopathy Would you recommend our site to others?: Yes Comments: I was only just informed by my vet, up until then I believed Jackie was just suffering from arthritis. There is a prescription diet that is on the market here that has shown some improvement in dogs with DM. Also I have tracked down the pharmacy in Australia that makes the medication that is recommended. So, from feeling very depressed about having to watch my beautiful Jackie deteriorate I now feel that I can at least do something to improve her wellbeing. I shall alos share my research with the Vet so she can help others. I was especially glad to find the info about exercise as I had been keeping it to a minimum which would have done more harm than good. We are now back to regular excercise. Thanks for the website and the help and good to know I am not alone. Take Care, Glenys and Ms Jackie Entry: 2007-07-02 03:02:20 Visitor's Name: sharon elstone Homepage URL: sharelstone@sympatico.ca You are from: ancaster,ontario.canada How you found our site: browsing on DM Would you recommend our site to others?: yes Comments: Erika I live in ontario. If you want to e-mail go ahead. Casey is a rottiX and has had DM since sept 2006. I need someone to talk to also so feel free to write. Entry: 2007-07-02 00:56:21 Visitor's Name: sharon elstone Homepage URL: No website supplied You are from: ancaster,ontario.canada How you found our site: browsing on DM Would you recommend our site to others?: definitely Comments: (No comment made) Entry: 2007-07-01 21:15:59 Visitor's Name: Judith Withers Homepage URL: No website supplied You are from: Warner Springs,CA How you found our site: Website search of DM Would you recommend our site to others?: yes Comments: I have just found out about this Disease. I think my 12 year old AKC large boned Shepard, Axel, may have this disease. In fact, my vet suspected it finally, because I told her,he is walking like a drunkard.She had been treating him for arthritis with Rimadyl and natural supplements, but hearing my complaints on my third visit in six months told me about this disease and suggested an internet search. I went right home and did that, and he has every symptom, plus he is now old. I am going to treat him, but wish I had know sooner,and wonder how long we have, and if I can help him. I am very sad. Entry: 2007-06-29 06:21:32 Visitor's Name: Vicky Homepage URL: No website supplied You are from: Algonquin, IL, USA How you found our site: search Would you recommend our site to others?: yes Comments: I just found this site and was able to realate to all I read. I learned some things I could have possibly done to help her, though now it's too late for us. I said good-bye to my precious girl on January 12th due to this dreadful disease of DM that took away her freedom to walk and all the joy of living from her beautiful brown eyes. It was the worse day of my life. I miss my precious girl that I shared my life with for 13 years. Rest in peace my sweet baby girl. Sasha Joy - My Beloved Companion 01/01/1994 - 01/12/2007 Entry: 2007-06-25 17:41:00 Visitor's Name: Burkes' Homepage URL: No website supplied You are from: Warrenton, VA How you found our site: Researching disease Would you recommend our site to others?: Grab a box of tissues first Comments: I just found out today what is DM in our 6 year old rescued shepherd. I am not strong enough to put her down and was looking for any help or treatments available. In reading everyone elses cases I feel that I am not alone in this heartache. Any assitance though would be appreciated. Entry: 2007-06-22 22:46:05 Visitor's Name: mary irvine Homepage URL: No website supplied You are from: fulton ky usa How you found our site: found you in nov. and visit periodically Would you recommend our site to others?: most definitely Comments: our symptoms first appeared in july 2006 and confirmed in nov. 2006. DX was 6-9 mo. from onset. Started Dr. C's protocol within days of DX and we're still here. Totally incontinentbut that's why they make carpet shampooers. Totally down in back end 3 weeks after DX. Attitude sometimes down but majority of time is very good. One day at a time is all any of us has got. Make the best of it!!! Entry: 2007-06-20 23:30:26 Visitor's Name: Jeremy Homepage URL: No website supplied You are from: Chicago How you found our site: web search for DM Would you recommend our site to others?: yes Comments: My GSD is showing the beginning signs of what may be DM. Yes, her back nails are worn down and yes she sits with both legs on one side but she has always done this. Her hips started bothering her a few months ago and was diagnosed as minor hip dysplasia. Recently she stopped lifting her tail and bending it at that point where all dogs do when they go #2. Has this happened with your dogs? If this is the case, I feel I can be pretty positive that she has DM. More tests from specialists lie ahead but your opinion would be valued. email me at jeremyhenry2000@aol.com Entry: 2007-06-19 18:51:31 Visitor's Name: Erika Homepage URL: No website supplied You are from: Port Perry Ontario Canada How you found our site: looking for info about the desease Would you recommend our site to others?: I think so, haven't the time yet to read it Comments: My shepherd Barlo has DM and I am trying to learn as much as possible to help him. Do you have any people in Ontario with the same problem in their dog? Erika Entry: 2007-06-15 23:36:14 Visitor's Name: Melissa and Tim Homepage URL: No website supplied You are from: Glendale Heights, IL How you found our site: search Would you recommend our site to others?: yes Comments: I signed here in February after receiving the horrible news that our dear GS, Lexus, has DM. Today we said goodbye to her. It hurts my heart so much. This is a horrible disease, I hope one day they find a cure. This site helped in answering questions and understanding what my baby had. Thanks. RIP my baby girl - I will miss you so much. 04/16/97-06/15/07 Entry: 2007-06-13 01:25:40 Visitor's Name: Laura Santo Homepage URL: No website supplied You are from: Michigan, USA How you found our site: Web search on Degenerative Myelopathy Would you recommend our site to others?: yes Comments: Hello, my name is Laura and our family has a nine and a half year old GSD named Roman. He was fine until about 3 weeks ago (except for some arthritis) when he started walking *funny*. Today he was *diagnosed* with CDM. I don't know what to do and I'm glad I found your site. I think we're going to need a lot of support through this. Entry: 2007-06-11 18:52:31 Visitor's Name: Marilyn Homepage URL: No website supplied You are from: Conroe, Tx How you found our site: search engine Would you recommend our site to others?: yes Comments: Your site is very helpful, I have an 8.5 year old Boxer who has been diagnosed w/ DM. I will be doing alot of research to make sure he stays w/ me comfortably for a very long time. Thank you Entry: 2007-06-11 15:53:39 Visitor's Name: Donna Toomey pets name: KYA Homepage URL: No website supplied You are from: Washingtonville, N.Y. USA How you found our site: Pets with disabilities site through eddie's wheels Would you recommend our site to others?: yes Comments: I really need to connect with other dog owners who have gone through this, my dog Kya is only three years old today. She is not taking to her cart. I don't know what to do anymore. Help please.... Entry: 2007-06-09 16:53:46 Visitor's Name: Pat Homepage URL: No website supplied You are from: Naperville, IL USA How you found our site: researching health issues associated with GSD Would you recommend our site to others?: Absolutely Comments: I have scheduled my almost 11 yr old GSD for a blood test and x-rays on 6/14/07, part of the blood work is to be send to Dr Clemmons for the "flash" test. I guess the reason I am writing to this web site is that it will make me feel better by saying that no matter what diagnosis is to come; I will keep him pain free and with me as long as I can! Thanks for listening Entry: 2007-06-09 15:39:02 Visitor's Name: Diane Durgin Homepage URL: No website supplied You are from: Weare, NH USA How you found our site: internet Would you recommend our site to others?: yes Comments: We are having our 9 year German Shepherd examinded for DM. From what I have found on line there is no doubt in my mind this is what we dealing with. My heart is breaking.Any help will be deeply appreciated. Entry: 2007-06-09 03:05:56 Visitor's Name: Diana Homepage URL: No website supplied You are from: Akron, Ohio, USA How you found our site: online research Would you recommend our site to others?: absolutely Comments: Wonderful website. My beloved GSD, Katie, was 12 in April and just this week was diagnosed with DM. She suddenly started to drag her left leg on walks and stopped jumping on the couch for her naps. I am considering a dog cart, but as her right leg seems to be getting a little weak already, I wonder if it is the right thing to do. She has severe food allergies and has a special diet, so the only thing I may be able to give her is some of the natural supplements recommended by Dr. Clemmons. I would appreciate any suggestions about carts. Entry: 2007-06-08 04:20:07 Visitor's Name: barbara flannery Homepage URL: No website supplied You are from: shelton ct usa How you found our site: searching Would you recommend our site to others?: yes excellent Comments: hi this week it was confirmed that my GSD has the start of DM. he drags his right hind. this dog is my life and the only family i have he is my angel that walked in (see email) and i intend to do whatever i can for him. i signed up for swimming classes for him and just ordered the meds recommended from dr clemons although i used a different pahrmacy. i also bring him for accupressure and after his treatment tonight he climbed up the stairs all by himself. if anyone would like to chat please send me an email. i would love that. god bless all of us and our angels barbara Entry: 2007-06-08 02:34:35 Visitor's Name: Elizabeth Stephen Homepage URL: No website supplied You are from: texas How you found our site: online Would you recommend our site to others?: yes definitely Comments: I wish I would have found this site years ago! Almost 3 years ago my best friend Wolfie died from DM! He was such an awesome dog!! More than a dog to me a true part of the family! He had a sense of humor and a ready smile! He also LOVED women:-) He had a way of kissing all the girls in the vet clinic before he would leave!:-) He was even suppose to be my ring bear at my wedding!! Till one day he went to take out the trash (something he loved) with my dad and could not walk back in! His back legs wouldn't work! My dad and mom picked him up and rushed him to the vet! They diagnosed him with late stages DM! He was only 8 and I was devastated! I even looked at doggy wheelchairs! My parents had to convince me it wouldn't be right!! Putting him down was one of the hardest things I've ever had to do in my life!! This site truly is awesome! Thank you for getting more info out there are DM!!!!!! Entry: 2007-06-05 22:37:16 Visitor's Name: Susan Brown Homepage URL: No website supplied You are from: Brookeville, MD How you found our site: Looking for DM info Would you recommend our site to others?: Definitely Comments: Rami, my GSD, came to us from the pound at 5 and is now 10. Appears he may have DM or herniated disks. He probably was a pedigree pup and has no displasia. He had lyme disease. I have a friend with advanced lyme and she says it seems to be related to MS. Hoping its "just" herniated disks. Entry: 2007-06-05 18:36:38 Visitor's Name: tim coates Homepage URL: No website supplied You are from: palm coast, fl usa How you found our site: web surfing Would you recommend our site to others?: definitely Comments: This is a wonderful site. Entry: 2007-06-05 11:47:19 Visitor's Name: Brent Homepage URL: No website supplied You are from: Puyallup, WA How you found our site: Google Would you recommend our site to others?: yes Comments: It has been almost one month since I had to have my beloved Angel put down. She was late stage DM and she could barely stand. My vet said it was time, so it helped to have that confirmation. It still hurts so much. Angel was 12 years old, and a beautiful, devoted friend. Her quality of life had been breached and for me, that was why I made the decision. I had a week before "the day". Each minute seemed to take forever, but the day did come. An hour before, I gave her tranquilzers. I knew then that there was no turning back. I carried her in and laid her down. I sobbed and sobbed. I held her tightly and buried my face in her fur. It was over very quickly. My vet cried too. It's not easy for them either. God gives us our dogs to bring us joy. Twelve years of joy will not eclipse that last week. It has been said that life is like an onion, you peel off one layer at a time and sometimes you cry. I wish you peace and comfort in the difficult days ahead. Entry: 2007-06-04 15:19:25 Visitor's Name: Lisa Kohr Homepage URL: No website supplied You are from: Thomasville PA How you found our site: GSD Clubs of America Would you recommend our site to others?: Yes Comments: We own our 3rd GSD. They are wonderful dogs! Our girl Heidi was diagnosed with Hip Displasia at the age of 1. She is now 3 1/2. I was wondering if anyone reading th is would suggest we have her tested for DM. You may contact me at the above e-mail address for more info. Thank you. And this is a beautiful site! Entry: 2007-06-01 19:59:35 Visitor's Name: Jeune Williams Homepage URL: No website supplied You are from: Los Angeles, CA How you found our site: Searching the web Would you recommend our site to others?: absolutely Comments: My best friend Ranger, who is a 16 1/2 year old English Springer Spaniel, has DM. We don't know how long he has had it since he was misdiagnosed several times until recently when a new vet casually mentioned it, and not by name. My son researched the symptoms on the web and came across Dr. Clemmons' treatment program. We have had Ranger on the program ever since. It is difficult, but worth it. We told the vet what to prescribe and furnish to us. He knows very little about this disease, but is co-operating. Ranger is still able to go on walks, but has trouble getting up and down, and cannot stand for long periods of time without his legs twisting causing him to collapse. However, his quality of life is still good and he sure enjoys his food and us. Thank you so much for this website and your devotion. Entry: 2007-06-01 14:03:39 Visitor's Name: Lynne Homepage URL: No website supplied You are from: Thunder Bay, Ontario, Canada How you found our site: researching DM Would you recommend our site to others?: yes Comments: My best friend Dax has been diagnosed with DM. It is now two months since the diagnosis but in hindsite, the paw dragging began in the fall. Dax is a Hovawart (Hoffawart). This breed is a wroking class breed originating in Germany. It's lineage is the shepard and beranese mountain dog. He is beautiful, oh so smart and has an amazing disposition. I have begun including a number of the items in the diet into his diet. A lot of the items I was already giving him so the transition wasn't drastic. He has days of brilliance and then days where I fear he has slipped another rung. He is valliant though and forges ahead. I have found that if he is on leash, he trots along quite well and the rear left leg doesn't drag. When he walks, he is far less coordinated and the dragging is predominant. He is so smart that he is adapting to his condition by finding new ways to do things that he could have done normally before (i.e. urinate). I want to get adaptive aids and probably will need them soon. I would appreciate some guidance on this if anyone can help. How does moving to adaptive aids affect the dogs psychologically. I can see it in his eyes when games and play that would come naturally can no longer be accomplished. It breaks our hearts. It would be nice to hear from other owners about things you are doing that may prolong the inevitable. Dax by the way is 10 years old and the best friend anyone could hope for..... Entry: 2007-05-28 21:26:37 Visitor's Name: Katherine Strugov Homepage URL: No website supplied You are from: Edmonds, WA, USA How you found our site: Northwest School of Animal Massage website Would you recommend our site to others?: Yes! Comments: I feel my dog, a 9 yr. shepherd mix, may be diagnosed early and am hopeful that we will be able to slow the progression of DM. I use to work in a vet clinic so was quick to gather information at the first early signs of a problem; I really sensed it was more than regular slowing down with age. I am so thankful for this website and for my own vet who is familiar with DM. I wish the treatments and pools were not so expensive ... Entry: 2007-05-28 06:05:39 Visitor's Name: DEBORAH BOWERS Homepage URL: No website supplied You are from: SEQUIM, WA USA How you found our site: DM SEARCH Would you recommend our site to others?: YES Comments: I HAVE A 14 YEAR OLD AMERICAN ESKIMO THAT HAS DM, SHE HAS WALKED LIKE A DRUNK SAILOR FOR ABOUT THREE YEARS, THEN ON THE MORNING OF 12-06-2006 SHE HAS NOT BEEN ABLE TO WALK, SHE PULLED HERSELF AROUND FOR A THREE MONTHS, BUT NOW IS IN THE FINAL STAGES. SHE IS NOT ABLE TO PULL HER SELF AROUND AT ALL. BUT STILL LOVES HER TOYS AND TO BE HELD AND KISSED. THE VET SAYS WE NEED TO BE THINKING ABOUT HER QUAILTY OF LIFE, BUT I JUST CAN NOT PUT HER DOWN WHEN SHE LOOKS AT YOU WITH THOSE WEYES, STILL BEING ABLT TO TELL IT IS DINNER TIME, THAT SHE WANTS WATER, HER TOYS AND ATTENTION. HOW DO YOU DO IT? MY HEART ACHES JUST TO THINK OF OUR LIFE WITHOUT HER. Entry: 2007-05-27 16:47:04 Visitor's Name: jackie tracy Homepage URL: No website supplied You are from: palm beach gardens, fl. 33418 How you found our site: Dr Clemmons website Would you recommend our site to others?: yes Comments: How do you become a member of the support group? Entry: 2007-05-25 16:07:06 Visitor's Name: Diane Parsons Homepage URL: No website supplied You are from: Cincinnati, OH USA How you found our site: I was looking for info on dog therapy pools. Would you recommend our site to others?: don't know yet! Comments: I have a 10yr old wolf/husky hybrid with DM. She's exhibiting all of the symptoms you list, she has been seeing an acupuncturist/chiropractor now for about a year, but is steadily worsening. The closest treadmill therapy tank is about 60 miles away...wish we had one in Cincinnati Entry: 2007-05-19 20:26:24 Visitor's Name: Lynn Ciccarello Homepage URL: No website supplied You are from: Tampa, FL USA How you found our site: Searching for DM Would you recommend our site to others?: Yes Comments: My son's boxer has DM. It breaks all our hearts, because nothing can be done. This is a terrible disease, our best friends don't deserve this. It's more common than I ever knew, because all his vets have given him so many diagnosis' and he has spent so much money without any results. His best friend was finally diagnosed by a Holistic doctor, but she also said there was nothing to be done, she did however suggest some special kind of supplements. Entry: 2007-05-19 02:05:10 Visitor's Name: Gill Reilly Homepage URL: No website supplied You are from: East Kurrajong, NSW, AUSTRALIA How you found our site: search on DM Would you recommend our site to others?: yes, absolutely Comments: it was fabulous to see so much information collected and to feel that we could at least try and do something for this insidious condition which has no common treatment Entry: 2007-05-14 22:47:52 Visitor's Name: marsha victory Homepage URL: www.livermorehorses.com You are from: ca How you found our site: google search Would you recommend our site to others?: I would recomend it to everyone! Comments: You suggestions saved us so much stress on our Sheltie Max with urine burns and how to cope with his not being able to walk right now, if at all. Thank you!! I am so lucky I found your site! Entry: 2007-05-14 19:37:56 Visitor's Name: Veronica Homepage URL: No website supplied You are from: Beacon NY How you found our site: Looking for info on DM Would you recommend our site to others?: yes Comments: My beautiful 13 and 1/2 year old shepard , Bruno, has this awful disease and cannot walk anymore. (even with the rearend leash) I have to make a decision but I cannot bear to lose him. Entry: 2007-05-12 02:59:19 Visitor's Name: Mary Klaebel Homepage URL: No website supplied You are from: Memphis, TN, USA How you found our site: Google Would you recommend our site to others?: Yes Comments: I think our chocolate lab has DM. He's been dragging one hind foot some and become significantly more clumsy. Until we take him to the vet, I am doing as much research as I can to make sure we do everything possible for him. Thank you for this resource. Entry: 2007-05-08 23:57:34 Visitor's Name: Cathy Griffiths Homepage URL: No website supplied You are from: magnolia nj usa How you found our site: got very lucky on the internet Would you recommend our site to others?: highly recommend Comments: my dor thor was just diagnosed with md and was trying to find out all i can do to help him. jack was beautiful!!!!!! Entry: 2007-05-07 22:05:45 Visitor's Name: Brent Homepage URL: No website supplied You are from: Puyallup, WA How you found our site: Google Would you recommend our site to others?: yes Comments: Angel is going to Heaven (how fitting) on Thursday. She is in late stage DM. My heart is breaking. She is a beautiful black and tan, but mostly black. It came so quick. She was stricken at about 11 years eight months. She is now 12 years, three months. I know its best, but I don't want Thursday to come. Entry: 2007-05-01 19:43:51 Visitor's Name: Debbie Carbaugh Homepage URL: No website supplied You are from: Wirtz, Virigina,U.S.A. How you found our site: Looking for hope Would you recommend our site to others?: Yes Comments: I can so relate to Jack's story, living one of our own Entry: 2007-04-30 11:13:20 Visitor's Name: Michaela Homepage URL: No website supplied You are from: Queensland Australia How you found our site: Google Would you recommend our site to others?: Yes Comments: Thank you for such an informative and friendly site. We arent diagnosed yet, but I can see the signs. My girl 'Kerry' is only 5. Entry: 2007-04-28 02:27:19 Visitor's Name: George Sparks Homepage URL: www.fau.edu You are from: Ocean Ridge, FL, USA How you found our site: Google Would you recommend our site to others?: Yes Comments: Thanks for your website. My Siggy, a white german shepherd has DM. I am searching to make sure that I can help him to the maximum and know when to let him go. He is the best! Just the best! Entry: 2007-04-27 20:16:50 Visitor's Name: Kevin Casper Homepage URL: No website supplied You are from: Lewiston, NY USA How you found our site: searching for info Would you recommend our site to others?: yes Comments: I need to know the steps of progression- what comes next- how long does she have ??? Entry: 2007-04-26 06:52:49 Visitor's Name: Ron Anderson Homepage URL: No website supplied You are from: Treasure Island, Fl How you found our site: Researching information on DM in GSD Would you recommend our site to others?: yes Comments: Have noticed what I would suspect to be "very early" signs of DM in my four and a half year old GSD, Sam. Have been to neurology vet today for primary exam, she not certain at this time. Did exam, took spinal xrays, plan on cat scan next Wednesday, and possible spinal tap depending on results of cat scan. Also, made an appointment with Dr. Clemmons in Gainesville for May 28th, the first available., Plan on checking for cancellations and going sooner if possible. Entry: 2007-04-26 02:13:38 Visitor's Name: bryon beck Homepage URL: No website supplied You are from: weddington, n.c.//usa How you found our site: through friend Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2007-04-24 20:14:09 Visitor's Name: mark miller Homepage URL: No website supplied You are from: Virginia How you found our site: Search vehicle Would you recommend our site to others?: Yes Comments: My 11 year old Schutzhund III female GSD, Inja, is in the final stages of DM. I don't know when is THE time. She still climbs the steps each night to come up to the bedroom. It must be like climbing a mountain, but she struggles to do it. It is the Schutzhund training, I am sure. The time is close, but I don't want to deprive her of any time left. I am battling with her urine burns, too. What a tough battle. All this just 6 weeks after my Dad's death. It is almost more than I can bare. Inja has been my saviour, my daughter, my friend. She was there on many a cold night after a marriage failed. Her loss will devalstate me. Sorry for getting so emotional. Best Regards, Mark Miller Entry: 2007-04-24 05:01:09 Visitor's Name: Stefany Feeney Owens Homepage URL: No website supplied You are from: Pearland, Texas How you found our site: Google Would you recommend our site to others?: Yes Comments: I think our 8 year old male boxer has dm and this website has helped me to come to this conclusion based on his symptoms. The vet hadn't even thought of this yet. I am going to send them some of this info and see if this is what he has. Entry: 2007-04-22 18:52:55 Visitor's Name: Lois Homepage URL: No website supplied You are from: Mt Shasta, California - USA How you found our site: Through a Member in Disabled Dogs Would you recommend our site to others?: YES! I would Comments: I think this sight will help many with a paralyzed Dog, now matter what the problem is. Great Job! Entry: 2007-04-22 03:35:52 Visitor's Name: Sue Q Homepage URL: none You are from: Mexico, MO USA How you found our site: searching for DM info Would you recommend our site to others?: YES! Comments: Our old Abe, a 10 yr.old boxer has all the symptoms of this awful disease. I'm sure our vet will tell me just to enjoy what time we have left with him, as he did last Aug. when I last had Abe there. Then, the diagnosis was arthritis. I now know it's not. We can't afford extreme measures to prolong his life but we will do all we can to make what time he has left meaningful and enjoyable. Thank you for creating this website for those of us who lack the knowledge of this disease. I now know what to watch for with our other two boxers. Entry: 2007-04-22 01:03:13 Visitor's Name: pam Homepage URL: No website supplied You are from: England How you found our site: desperation Would you recommend our site to others?: definitely Comments: Thankyou for being there Entry: 2007-04-20 08:46:17 Visitor's Name: yolandi Homepage URL: No website supplied You are from: centurion, south africa How you found our site: browsing net for german shepherd Would you recommend our site to others?: absolutely Comments: your dog is beautiful, we also hav one and is such an important part of our family, we hav 5 kids and he is so good with them, we all love him so much, thank u for taking the time to establish this website . Entry: 2007-04-20 05:51:34 Visitor's Name: deb demarco Homepage URL: none You are from: Riverside, RI USA How you found our site: google Would you recommend our site to others?: absolutely Comments: Our 11+ year old Komondor Jeges was diagnosed with DM in August of 2006. While we are not seeing a notable improvement, his condition has not advanced. He is able to lift himself up, climb stairs and move about to do his business. Regular walks have been a part of our regime, as is a fortified diet, and Dr Clemmons medications from Westlab. We are grateful, every day. Entry: 2007-04-17 09:41:45 Visitor's Name: Frances West Homepage URL: No website supplied You are from: Scotland UK How you found our site: intrrnet Would you recommend our site to others?: a big yes Comments: your site opened my eyes to this disease ,my own beloved Cookie is going under tests at the moment ,and depending on what the results are i will know what to say to the vet and will be able to cope with his answer thankyou. Entry: 2007-04-16 20:35:31 Visitor's Name: Renza Homepage URL: No website supplied You are from: Sunnyvale, CA USA How you found our site: Looking for GS diseases in the internet Would you recommend our site to others?: yes Comments: Dound out about DM about 2 months ago, ma Gs has it.. its heartbreaking! Entry: 2007-04-15 01:13:25 Visitor's Name: Christina Clark Homepage URL: http://www.geocities.com/jecmc21/JECMC_Family_Home_Page.html You are from: Deer Creek, IL, USA How you found our site: Searching for swimming pools for Diego. Would you recommend our site to others?: Most Certainly -Yes! Comments: Dear Friends, I decided to write in an attempt to help the Degenerative Myelopathy population. Diego, my GSD, was diagnosed with Degenerative Myelopathy January 24, 2005. He was 1yr 9mo. What first caught my eye was when I watched him trip over nothing. When I walked him on pavement I could hear his nails drag, but for some reason that was never a warning sign to me. Our veterinarian, Dr. Hayes with Whitney Veterinary Hospital, has known Diego all his life and has been a great help thru this journey. Since there is so little information about DM I have been on my own in alot of ways trying to figure out how I can help increase the longevity of my best bud. In July'06 there was an article about DM in the AKC Gazette. This article mentioned Dr. Clemmons website. I took the AKC Article to Dr. Hayes and ran the idea of starting Diego on the mentioned diet and vitamin regimen (he's been on the aminocaproic acid since his diagnosis in Jan'05). She encouraged trying it out. On July 24, 2006 I had done all my researching & shopping, and had figured out how to provide key elements of the new diet. And as of today it appears to be helping, plus having other benefits. Since starting the new feeding menu Diego has not had any of the sever gastric upsets he used to have, and I've had more success at getting him to eat. January 24, 2007 marked Diego & I's two year diagnosis anniversary. I know this is a huge feat and hope our success continues to last. Diego has only had one massive decline which happened March 2006. Along with having Degenerative Myelopathy, Diego also has a really bad elbow and is on daily pain medication. March'06 was when the pain medication he was currently taking began to show signs of loosing it's effectiveness. In order to change him to a different medication all medication had to be stopped for seven days to avoid stomach ulcerations. That seemed to also be the time where he declined to the point he was dragging all four feet so badly he had open wounds on the tops of his paws. He also stopped being able to keep up with me when I would go horseback riding. At this time I started saying he was never going to make it to see 2007. I think it was some hopeless desperation to prepare myself for what I dreaded most. Well, I am the happiest person alive to be able to say he proved me wrong! It took many months, lots of love, care, & devotion, but somehow he gained strength. We had also been training for the new AKC event called Rally, so I don't know if the extra training & exercise is what did it, but by Memorial Day Weekend '06 the open wounds on the tops of his paws were still there but they were now healing scabs. He was still weak but we competed in the Rally Novice Dog Show that weekend and earned our first competitive title. We have continued with our training & competition, and he has continued to improve. He now has his Rally Excellent title & his Companion Dog title along with his CGC. However, after all of this success we are hitting another speed bump. He's been going very strong all winter with us having our classes, dog shows, & frequent visits to the dog park. I knew he'd never be as strong, coordinated, & balanced as a healthy GSD, but I had hoped if I could keep him active this past winter & eating his new diet (cause he's a very difficult dog to get to eat), we'd have a good chance of not having another decline. And as far as I can tell it worked! But within the last month I've notice a new limp developing. Remember he also has that horrible elbow. So I have a catch 22 with him. The DM calls for exercise. The severely arthritic elbow calls for no exercise. It's been since 2004 that his elbows were x-rayed, so it was decided to take some new pictures. The x-rays were taken and with alittle relief the films showed no change in either elbow. Dr. Hayes instructed to put him on two weeks of zero activity. This terrifies me because so far I feel alot of our success is based on Diego & I's bond with the activates we share. He's also a certified therapy dog & we have several visits a month we do on top of everything else. He's been on his current pain medication since March'06. If he is still limping after the two weeks my thought is to discuss with Dr. Hayes the possibility of changing his pain meds again. However, my obvious fear is he will have another severe decline during the seven day period of having no pain meds. We have been going in the right direction for about a year now, and if I can keep it going in that way we have a fighting chance to not let the DM take complete control... not yet anyway. After recently reading Jack Flash's website while doing research for swimming pools, I called the University of IL inquiring about their swimming opportunities for canines. The first person to answer the phone, who I'm assuming was a physical therapist by the way she talked, wanted to hear about Diego. I told her much of what I typed above. Her opinion was that Diego did not "fit in the box". I greatly respect her for sharing her thoughts, ideas, & recommendations, but my overall impression was she felt Diego was too young to have Degenerative Myelopathy. She spoke of the patients she has seen and it sounded like her clientele was made up of mostly elderly GSD's, who in the end perished from other complication such as old age or sever arthritis, and not at the hands of DM itself. After getting off the phone with her I have to admit my foundation was alittle shaken. I sat for a minute and thought what I should do. I decide it best to go to the one person I trusted the most. -Dr. Hayes-. She reconfirmed with me that she strongly concludes after all her testing & observation that Diego does have DM. I bring this up incase there is any doubt due to Diego's age and positive steps that he may not be a DM patient. At this point, I'm not sure what I'm looking for. I guess part of me wants to start vocalizing the journey Diego & I find ourselves on. I feel I have been avoiding saying it out loud. I've only recently have come to this realization, and the first thing it makes me think of is my own battle with Hodgkin's as a teenager. I went into the same vocal avoidance routine for years, which I'm assuming there must be some psychological connection between the two. Plus I feel if Diego & I's failures and successes can help others it would be best to share those experiences. I also feel like I am on constant alert for any new information I can get my hands on that may help Diego. The website constructed by Dr. Clemmons, and Jack Flash's website have been very helpful and inspiring. Thank you very much, -Christina Clark Entry: 2007-04-13 08:01:50 Visitor's Name: cathy Patzer Homepage URL: No website supplied You are from: berwyn,Illinois How you found our site: looking up d.m. Would you recommend our site to others?: yes Comments: I found it helpful in that I feel like they do about their dog.I am finding it very hard to even imagine down the road how I will be able to take care of her and more so how I will ever be able to say goodbye Entry: 2007-04-06 21:06:56 Visitor's Name: Benae Homepage URL: No website supplied You are from: Rome, GA How you found our site: google search Would you recommend our site to others?: definitely Comments: My 11-year-old black lab mix Bailey was diagnosed with degenerative myelopathy 2 days ago. I had never heard of this disease before, and now I am determined to learn all that I can about it and to fight to retain Bailey's mobility. Thank you so much for all the information your site provides. I am sorry you had to suffer such a great loss so that we might be educated about DM, but Jack Flash would be proud to know how much you are helping other owners to help their pets. God bless you! Entry: 2007-04-06 06:22:31 Visitor's Name: Ami McDivitt Homepage URL: No website supplied You are from: Eaton, Ohio How you found our site: Google Would you recommend our site to others?: Yes Comments: Our GS Lexie was diagnosed a few months ago with DM. We're actively pursuing treatment but your site has provided a lot more useful information. Thank you for possibly extending Lexie's life. If anyone can recommend a wheelchair or knows where I may find a used one at discounted rate any info would be greatly appreciated. Entry: 2007-04-06 05:31:01 Visitor's Name: Miriam Barkus Homepage URL: No website supplied You are from: Davie, Florida U. S. A. How you found our site: recommended by internet friend Would you recommend our site to others?: absolutely Comments: This is a beautiful and moving tribute to a beautiful and most beloved dog. Thanks for sharing. Entry: 2007-04-01 03:55:38 Visitor's Name: Phyllis Roberts Homepage URL: No website supplied You are from: Pasadena, TX, USA How you found our site: by googling handicapped pets Would you recommend our site to others?: absolutely Comments: my pug has recently been diagnosed with dm and i'm reading everything i can find about this disease and what i might do for him to make his remaining days as good as he's made mine these past nine years. your site has been very helpful to helping me understand more about this disease. Entry: 2007-03-29 06:05:33 Visitor's Name: susan and david seligson Homepage URL: No website supplied You are from: phoenix,az. How you found our site: surfing for information Would you recommend our site to others?: yes! Comments: thank you for your web site...i wish we could have known your Jack Flash.it was comforting to know that their are others out there who understand how deeply those of us who are lucky enough to share home and hearth with a special animal feel when something like degeneraative myelopathy strikes. Entry: 2007-03-21 17:05:07 Visitor's Name: Carol Bollar Homepage URL: No website supplied You are from: Brookfield, WI, USA How you found our site: Found link to info by Dr. Clemmons on GSD Rescue site Would you recommend our site to others?: Yes Comments: My 10 year old German Shepherd, Astro shows signs consistant with this disease. He was stricken with rear leg weakness almost one year ago. The vet said x-rays were negative for dysplasia, but he had some arthritis showing, and 'might' have a neurological problem. He's treating him with Dermaxx for the arthritis, but did not suggest anything else. I hate to see my best friend in the world struggling so was looking to try and get more info and educate myself to see if I can help him in anyway. Entry: 2007-03-20 20:36:25 Visitor's Name: Carol Carlson Homepage URL: No website supplied You are from: Little River, SC, USA How you found our site: friend Would you recommend our site to others?: yes Comments: My LiLi was tested and was negative for DM, however, she is textbook classic. LiLi is 13.4 years. Entry: 2007-03-15 20:14:39 Visitor's Name: Diana Knight Homepage URL: No website supplied You are from: Fayetteville, NC USA How you found our site: internet search for DM Would you recommend our site to others?: yes, very touching and comforting Comments: I left the vet's office heartbroken and in tears today with the echoing in my mind of the DM diagnosis/prognosis. My 12 year old Doberman is in the early stages of DM. I will contact Dr. Clemmons for more information on alternative treatments. Entry: 2007-03-13 04:07:43 Visitor's Name: Lisa Homepage URL: No website supplied You are from: Adelaide South Australia How you found our site: google Would you recommend our site to others?: yes Comments: Its only been 2 weeks today since my baby Max (red heeler - cattle dog) has been diagnosed by 2 cold and uncaring vets with DM. I havent received any advice as to how I can help him etc and have been desperately trying to search the internet on what to do next to improve and sustain his quality of life. I am coping with this on my own and my dog is only 8 years old. I am going to try to speak to a holistic vet - that is if he speaks to me ! Another problem i have is that my dog is aggressive and wont let anyone near him ! Which makes it very hard for both of us. I will be getting onto the Dr Clemmons website and try to help Max with his diet and massage etc. Entry: 2007-03-08 07:54:48 Visitor's Name: Renee Wallis Homepage URL: No website supplied You are from: San Diego, CA How you found our site: Google Would you recommend our site to others?: Absolutely Comments: I work in the veterinary field and I learned more about DM by reading this website. Entry: 2007-03-05 11:13:10 Visitor's Name: Helen Preshous Homepage URL: www.paddyspages.co.uk You are from: Northumberland, England. How you found our site: Searching for GSD feet problems Would you recommend our site to others?: Yes Comments: I am the proud mother of Keilen, (10yr old White GSD) Mia, (5yr old black & tan GSD) and Paddy (16 month Irish Wolfhound). I love your site - the tears are still wet on my face as I write this. Helen x Entry: 2007-03-05 02:56:06 Visitor's Name: Chris Homepage URL: West Lab Links You are from: Pittsfield, MA USA How you found our site: Link from West Lab Would you recommend our site to others?: Yes Comments: Wonderful site, wonderful story and information for those of us who's best friends are suffering from DM.I thank you and my Nicki thanks you. Entry: 2007-03-04 13:44:23 Visitor's Name: Claire Homepage URL: No website supplied You are from: UK How you found our site: Google search Would you recommend our site to others?: Yes, already have done so! Comments: I lost my beautiful GSD, Maddison, on 15th January 2007. She was diagnosed with CDRM in September 2002 and our world changed forever. When we had recovered from this awful news, we set about doing everything we could for her. She swam every week, though I dont know who ended up wetter at the end, her or us!! We kept up her exercise, although tried to avoid her turning corners too sharply, or she would end up on her bum, looking at us, as if to say "what did you do that for?" We also added vitamins and supplemnts to her diet, to help keep her as fit as possible. Last year she had deteriated sufficently for us to buy her a cart, and despite my reservations, she took to it straight away, enjoying the freedom of movement that had slowly left her. She still loved her ball, and would run around us and our younger GSD, Sihon, often running over his tail in the process! Maddi loved life, and fought the disability that this cruel disease brings with it, she was never a disabled dog in her mind. In early January this year, Maddi was diagnoise with cancer of the pancreas, again she was very brave, and tried to carry on looking forward to the next adventure, but the pain was too much, and we made the heartbreaking decision not to let her suffer any longer. I miss her every day. Dont forget to meet me at the bridge Maddi. Rondeauxs Maddison 21.3.94 - 15.1.07 Entry: 2007-02-26 02:58:34 Visitor's Name: Tania Costa Homepage URL: www.caninewellness.com You are from: Toronto, Ontario Canada How you found our site: friend Would you recommend our site to others?: yes Comments: i work with Dm and find that it is a positive experience dealing with clients and their dogs and giving them the support they need for this dibiliating disease. Since i have MS myself, it is of particular interest to find ways to help these dogs tania Entry: 2007-02-24 17:50:29 Visitor's Name: Mary Homepage URL: No website supplied You are from: UK How you found our site: google Would you recommend our site to others?: don't know yet Comments: (No comment made) Entry: 2007-02-24 05:28:45 Visitor's Name: Linda Homepage URL: No website supplied You are from: Westlake, Ohio How you found our site: google search Would you recommend our site to others?: Yes Comments: My 13 1/2 year old baby Poncho, ( German Sheppard Mix), has been given a possible diagnosis of DM, but before they could further explore they diagnosed him with Third Degree AV Block and I was advised he needs a pacemaker before they can do any further diagnosis, since he is at risk for sudden death. I don't know what to do. Do I let them place a pacemaker in and help his heart and take my chances? Would it be better to let him go quickly from his heart or take my chances on DM? I don't want to let him go, but I don't want him to suffer either. Any advice would be greatly appreciated. Thank you. Entry: 2007-02-24 05:16:03 Visitor's Name: Linda Wilkins Homepage URL: No website supplied You are from: Tampa , fl usa How you found our site: checking on internet Would you recommend our site to others?: yes Comments: I have a German Sheppard that I adopted from a friend that was leaving the area and could not take her and I noticed rigth away that there was something wrong but he insisted that she had no problems with her back legs. It aeemed to get better but then it got worse and I got two opinions and both told me it was DM. I was heartbroken and still am. I had so many plans for the two of us. Now it is never going to happen. My dream was to have a German Sheppard. She is so sweet and I really love her. I have had her for 10 months and she is 8 years old. As soon as it warms up I have a pool and hopefully she will be able to swim and I hope that will help some. I am so sorry about your friend. I cried watching the video. Well thanks for letting me unload on you. Entry: 2007-02-23 18:29:01 Visitor's Name: Melissa and Tim Homepage URL: No website supplied You are from: Glendale Heights, IL USA How you found our site: search Would you recommend our site to others?: yes Comments: Our 9 year GS mix was just diagnosed today. 4 months ago is when it started and we were told it was arthritis and have been giving her Cosequin (sp). She just went downhill at a rapid rate. I tried to wait a couple months to give the Cosequin a shot but finally grew so concerned I brought her back to the vet today. I wish I would have brought her in sooner before it got this bad but I really was trying to give the meds she was on a shot before running her back to the vet. I had no idea about this disease until today. I don't know what to expect but when the vet said she was sorry I lost it and have been crying ever since. I don't know what to do. The vet gave her a strong anti inflammatory shot and I start her on Prednisone tomorrow as well as Cholodin Tablets and continuing with the Cosequin as well. I also have her on N-Zymes as well. Is there anything else I should be doing. I don't want to do too many things that start making her sicker. Entry: 2007-02-23 14:07:59 Visitor's Name: Marcia Kathleen Hodge Homepage URL: No website supplied You are from: Missoula, Montana USA How you found our site: My Veterinarian Would you recommend our site to others?: Definitely Comments: Thank you for the hope!!!! Entry: 2007-02-23 13:12:03 Visitor's Name: Kim Homepage URL: No website supplied You are from: Somerset, ENGLAND How you found our site: Searching for "THE ANSWERS" Would you recommend our site to others?: Definately Comments: We said our final goodbyes to our German Shepherd "ZAK" 21st Feb 2007. In September 2006 we first realised our "Dearest Dingle" had started to drag his rear leg, he had recently slipped up and we thought it was down to this so took him to the vet to get it checked. From that moment on his life would never be quite the same. He was 7 at the time and we had never heard of DM, I found this site when trying to make sense of what he would have to face. Over the coming months it never ceased to amaze me how he found the strength to overcome each physical challenge set before him, to him there was always another to do it. His 8th birthday arrived 19th February 2007 together with his brother Max they walked in their favourite spot, for Zak the challenge had now turned to frustration, he no longer had the strength nor the sparkle in his eye, he had had enougth. I hope others find the strength I found from this site - it was (and am sure it will remain)a great place to release my emotions in private so I always had a smile for our "Dingle". Entry: 2007-02-21 15:36:30 Visitor's Name: Patricia Love Homepage URL: No website supplied You are from: Pinckney, Michigan USA How you found our site: Google Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2007-02-21 01:43:44 Visitor's Name: Pam Tewes Homepage URL: www.aquadogfitness.com You are from: Waltham, Ma USA How you found our site: My instructor, Cindy Horsfall of La Paw Spa Would you recommend our site to others?: Absolutely! Comments: I just opened a dog pool in the Boston area and would like to be added to your list of pools. Entry: 2007-02-20 20:31:24 Visitor's Name: Kim Schwartz Homepage URL: No website supplied You are from: Southfield, MI 48076 How you found our site: Searching for a Pool to take my German Shepherd to swim. Would you recommend our site to others?: Yes Comments: I have a 5 year old male German Shepherd his name is the Duke of Earl.He was diagnosed with DM on Friday 2/17/07, and my heart was broken. Thanks to your Web-site, I know the future can be a little brighter. Entry: 2007-02-19 09:59:52 Visitor's Name: john Homepage URL: http://rentnet.org You are from: Marietta, GA USA How you found our site: memory Would you recommend our site to others?: yes Comments: Thanks Marjorie, you have a wonderful and helpful site. Garrison, my relatively new German Shepherd turned one in January 2007. He's healthy, happy and lots of fun to be around. Entry: 2007-02-15 06:03:03 Visitor's Name: Ira Odessky Homepage URL: No website supplied You are from: Los Angeles Calif. 90046 How you found our site: Desperatly searching for help Would you recommend our site to others?: Yes Comments: I am taking my boy Bubba in on Tuesday. I hope I can survive without him. I dont know. Entry: 2007-02-14 18:02:39 Visitor's Name: Mike Charlton Homepage URL: No website supplied You are from: Pontefract , West Yorkshire England How you found our site: Internet Would you recommend our site to others?: Already have Comments: Hi marjorie, This is the first time I think I have signed your web book. It is full of great information and I have recommended your site to some folks that are discussing this problem over here. I just said why go look any further when you have a site dedicated to educating people about this awfull condition. We all want to know why how and a million other questions that no one can answer bu this site goes a long way to helping people understand the problems and treatments available to help out. You certainly have a great site with loads of work done . I only wish I could give as much to the breed as you have done. Well done Gal. Love and Hugs Mike Entry: 2007-02-13 02:24:15 Visitor's Name: Maine Hibbard Homepage URL: No website supplied You are from: Gouldsboro Me. USA How you found our site: Eddies wheels Would you recommend our site to others?: yes Comments: We have 2-wolves that are kids that have this disease an any information or new treatments that might help them please email us or call us so we could help our puppies, thank you vary much phone number 207-963-2376 Entry: 2007-02-12 20:25:08 Visitor's Name: Meghan Homepage URL: No website supplied You are from: Warminster,PA USA How you found our site: yahoo search Would you recommend our site to others?: yes Comments: I have n 8 year old male shepherd, Cody, suffering from DM. He can still walk, not great, but he loves to go for walks, he scrapped his nails down to where they were bleeding, so I put boots on him ,that makes it even harder for him to walk. I am a dog groomer, and we sell a product called soft claws, they are rubber nails, they fit over you own dogs nails, they are glued on and last about 2 weeks. I put these on my dogs 2 middle nails on each rear leg and now I can take him for walks without his nails bleeding or him tripping over the boots. The soft claws won't protect the top of the foot, but for now he luckily still lifts that up. Just some advice that hopefully will help people and their dogs suffering from this awful disease. Soft Claws can be bought at Petsmart stores or on-line and I think at Petco too. Entry: 2007-02-11 21:53:42 Visitor's Name: Connie Homepage URL: No website supplied You are from: Las Vegas, NV How you found our site: google Would you recommend our site to others?: yes Comments: My 12 yr old Welsh Corgi has jsut been diagnosed with DM. This site is reconfirming the urgency of exercise that my doctor stressed. Thank you for sharing. Entry: 2007-02-11 14:30:44 Visitor's Name: Lyn Sheridan Homepage URL: No website supplied You are from: Houston, TX USA How you found our site: Dr. Clemmons website when researching DM Would you recommend our site to others?: Yes, so far Comments: Yesterday my Cardigan Corgi was tenatively diagnosed with MD. I was trying to find information on the disease. Entry: 2007-02-09 21:22:58 Visitor's Name: sande pshot Homepage URL: No website supplied You are from: Milwaukee, Wi How you found our site: Surfing Would you recommend our site to others?: yes Comments: Is this web site active or abandoned? The archives end in 2003.......Most literature appears out dated also....... ********************************************* Note from Administration: This site is updated daily- nothing here is out of date, as we work closely with Dr Clemmons. Entry: 2007-02-07 16:26:18 Visitor's Name: Carl A Nylund Homepage URL: www.carlnylund.com You are from: Grandview, MO USA How you found our site: Invitation Would you recommend our site to others?: Most certainly Comments: Big Jack is a beaut... Entry: 2007-02-05 03:10:11 Visitor's Name: Suzanne Every Duffany Homepage URL: No website supplied You are from: Falmouth,MA How you found our site: search for DM Would you recommend our site to others?: yes,find it emotionally helpful Comments: I started Shu Sha with chiropractic adjustments 2.5 yrs. ago when she started to trip up in the back end on occasion and started so slow down. Found the adjustments to only last 3-4 days. The vet suggested I try acupuncture. The results after the first treatment were like a miracle! We continue acupuncture treatments monthly. I believe that I caught her symptoms so early that it kept the DM at bay for about 1.5 years. Her hind end strength started to deteriorate and she was diagnosed with DM a year ago. For the last year we have added Chinese Herbs which helped with her physical and emotional well being. Also helped some with the fecal incontinence and helped her be restful instead of restless at night.My vet Mark Russo has been a God send to Shu Sha and myself. After researching carts ,we made an appointment at Eddies Wheels to have a custom made cart. I wanted Shu Sha to get use to it before the days she would need it. The people at Eddies Wheels are wonderful. The quality of the cart is excellent and Shu took to it immediately!Seeing how much I adore Shu, my Vet said this disease will kill me before it takes her. I pray every day she can still walk, she was the best hiking buddy I could ever ask for. This week Shu had what seems to be a stroke and has lost sight in her L eye and her R eye has cataracts so she is doing a lot of wandering and bumping into things which is heart wrenching. Her balance is off too. Four days after the stroke she appeared to have a 20 min.seizure, I thought she was dying taken the week off from work to be with her, hoping the stroke symptoms were temporary. She has come back some, and I am trying to take a day at a time. I hope she can clearly indicate to me when she has had enough. When I rescued her I made her a promise that I would always keep her safe and that she would be with me until the day she decided to leave. Thirteen wonderful years have passed so quickly,seems like yesterday she was chasing squirrels. I tried Dr. Clemmens liquid but she would not take it and fighting her twice a day was upsetting her too much. I also took She to physical therapy with massage-she had a hard time relaxing while strangers wanted to massage her but she did well with the under water tread mill. I swam her once it got warmer. The end is near. Thanks for support from chats,vets and Eddies Wheels - I'll be forever grateful! SED Entry: 2007-02-04 05:03:05 Visitor's Name: Darrell Homepage URL: No website supplied You are from: Cleveland,Ohio How you found our site: just searching the web Would you recommend our site to others?: YES Comments: I couldn`t stay on this site to long because of the memories of my of my 12 year old shepherd I just lost to this spinal disease.This is a wonderful site that will be a great help to all that may have to go through this one day. I do want to say NEVER give up on your dog. My shepherd was diagnosed with spinal myelopathy at 8, but lived to 12 and never stopped walking. The key is to excercise them as much as possible to build up the muscles in the back legs.I use to walk my shepherd up hills to increase leg strength.My vet wanted to put him down at 8, but he still had 4 more wonderful years left with me.Dont always go bye what the vet says.One more thing that works is PRAYER, GOD loves animals too. It does work.Your shepherds are in my prayers. Entry: 2007-02-04 03:39:20 Visitor's Name: Dee Cheslock Homepage URL: GSD You are from: Columbus, Ohio USA How you found our site: thru a friend who had lost her friend from ms Would you recommend our site to others?: yes Comments: I am so very sorry about Jack Flash. I lost Tex, my Lab in Oct 06. He had cancer in his jaw & radiation treatment helped & shrank it but then he couldn't get up & I believe he was in that stage. I wish I could have found this website earlier. I miss him sooo. I can't hardly get thru the days without him. Tex was my life.She said nothing could be done-I can't help him anymore.God Bless all of you & your "KIDS" Entry: 2007-01-28 18:23:40 Visitor's Name: Linda Terwilliger Homepage URL: No website supplied You are from: Wausau. WI, USA How you found our site: google Would you recommend our site to others?: It looks great here at the beginning Comments: We have just lost our adorable little barely-turned-6 Shih-tsu to DM. When the disease hit, we had never heard of it and neither our competent vets, nor did team at the University of Wisconsin-Madison Vet school consider the diagnosis since Lucy's case was atypical for the breed and her relatively young age. She was dead in 3 weeks. If anyone knows of a researcher who could use unusual and atypical cases, I would appreciate their websites. thanks, Linda Entry: 2007-01-27 01:37:03 Visitor's Name: Rose Northuis Homepage URL: treedog@suwanneevalley.net You are from: How you found our site: Would you recommend our site to others?: yes Comments: Dr. Clemmons site is up and it is so informative. Read it all and don't miss a thing. It is so helpful. Kody did so well on Dr. Clemmons protocol and probably would have lived longer if I had started it ASAP. When your dog is gone you'd just about die for that extra month or so you could have had with him. They are worth every inconvenience to take care of them. They are worth all the money in the world! Entry: 2007-01-22 17:22:06 Visitor's Name: Kathrine Beck Homepage URL: No website supplied You are from: Rainier, Oregon USA How you found our site: DM search on Google Would you recommend our site to others?: Yes Comments: Do you still want the lineage of a dog with DM? I came back to your site to enter my dog's family tree and was unable to find the link. Thanks! Entry: 2007-01-20 01:55:14 Visitor's Name: Rose Northuis Homepage URL: No website supplied You are from: McAlpin, Florida USA How you found our site: googled Would you recommend our site to others?: Absolutely Comments: I just wanted to tell Jim I'm sorry his dog Penny just passed away. It must be unbearable especially after just loosing Buck recently. I lost my GSD Kody on the 12th (last friday) and am just now able to go out of the house without clutching his picture. I just want to tell people to be sure and read all the advice from Dr. Clemmons thoroughly. As i read it now I see things I could have done better, although I did do almost everything I reasonably could. One thing that really helps is to gently massage the dog's rear feet and gently up along each side of the spine. Do this 15 minutes a day. Or you can gently brush the dog--this stimulates the nerves or something. This advice was given to me by a visiting Vet from China that was studying under Dr. Xie at Dr. Clemmon's University of Florida. I have read everybody's posts. I hope Dr.Clemmon's site is up soon. It is very good and he outlines the whole diet and nutrition program. I wish all of your dogs the best, my heart goes out to all of you. Entry: 2007-01-19 18:49:19 Visitor's Name: valarie nuttall Homepage URL: No website supplied You are from: vineland nj usa How you found our site: dr robert guilly Would you recommend our site to others?: yes Comments: my belgian malinois was dialgnosed with DM in july of 2006. he is involved in a physical therapy treatment progam and we just wanted to find out as much as we can to help him. he is starting to get a little worse now Entry: 2007-01-18 05:41:27 Visitor's Name: Jim Allegro Homepage URL: None You are from: Fairfield, NJ How you found our site: Searching on Google Would you recommend our site to others?: Yes Comments: Our beloved female German shepard, Penny, passed away yesterday, January 16, 2007. We will miss her so much. She was such a beautiful, sweet loving girl. Penny was just short of her 10th birthday. Penny was diagnosed with DM in late September and she quickly lost the use of her back legs. Penny also had hip dysplasia and severe arthritis. It was a very sad time since we had just lost our beloved white golden retriever Buck when Penny first started having trouble with her legs. Buck was like her older brother and she missed him very much and then had to deal with her own disability. We gave Penny as much love, attention and care as we could and she was a great patient. We put Penny on Dr. Clemmons protocal, even though she was no longer able to use her back legs. I tried to give extra Turmeric because of the positive recent studies with it being able to stop a multiple sclerosis type of disease in mice. I also gave it with bromelain (at least 2,000 GDU per gram strength) and also bioperine, a black pepper extract which is supposed to make the turmeric more bioavailable. I also fed Penny a big bowl of fish (sardines, salmon and tuna fish) every day along with the essential fatty acids omega 3-6-9 and fish oil. It seemed to be helping as Penny got stronger and there was no worsening of her condition to the front. However, yesterday she seemed alittle more tired and did not have a good appetite. At night time, Penny was laying on the bed area we made for her of foam cushion, quilts and pillows. She moved up and changed position and then passed away. It must have been an organ that failed. We love her so much and she gave us so much love. She tried so hard and had adjusted well to not being to use her back legs. It has been tough to lose both of our beloved dogs in a four month period, but we know they are together on heaven. Entry: 2007-01-18 04:00:45 Visitor's Name: cheryl pari Homepage URL: No website supplied You are from: coventry rhode island How you found our site: surfing looking fot info on dm Would you recommend our site to others?: yes Comments: heart touching story, and i wish i could do all you have dont for your dog. wish i had the funds to try all you did, but my dog is still happy for now, and i will stay by his side until the end also.. jack was very luck to have you cheryl Entry: 2007-01-17 14:35:56 Visitor's Name: Cathy Flum Homepage URL: cathyflum@wildmail.com You are from: How you found our site: Would you recommend our site to others?: Comments: A second try because you have to fill in Website to include your email. Buddy's cart is on order from K9 carts; I hope to have it in the next couple of weeks. He cannot go upstairs on his own anymore, but he can walk, if he does it s-l-o-w-l-y. Otherwise he pulls himself along with his front legs. I was worried about winter, but he actually gets along better in the snow. It is easier to pull himself along. I use the Bottoms-up Harness for walks. It took about 3 weeks to really get the hang of it, but it works pretty well now. He is becoming incontinent with poop, mostly when I'm too dull to read his signals that he needs to go out. He has one sore on his left hind from dragging his paw. I have several pairs of boots, but can't keep any of them on him for more than a couple of steps. Entry: 2007-01-17 14:29:37 Visitor's Name: Cathy Flum Homepage URL: No website supplied You are from: How you found our site: Google Would you recommend our site to others?: I don't know yet Comments: My 8 year old German Shepherd, Buddy, a rescue, was diagnosed this summer with DM, after having symptoms since Sept 2005 Entry: 2007-01-16 22:35:50 Visitor's Name: Rose Northuis Homepage URL: treedog@suwanneevalley.net You are from: How you found our site: Would you recommend our site to others?: Comments: Please note that your email address won't come up unless you fill in the 'Website' space (not the e-mail space as one would think) Entry: 2007-01-16 03:00:34 Visitor's Name: Rose & Ladd Northuis Homepage URL: treedog@suwanneevalley.net You are from: McAlpin, Florida USA How you found our site: google Would you recommend our site to others?: Yes Comments: I forgot our email in case anyone wants to correspond. Entry: 2007-01-16 02:56:53 Visitor's Name: Rose & Ladd Northuis Homepage URL: No website supplied You are from: McAlpin, florida How you found our site: googled DM Would you recommend our site to others?: absolutely Comments: We just put our Kody to sleep on Friday. I can not describe the grief. Kody had so much presence. He was a gentle clown. He was 13 1/2 when I lost him to DM. Kody was diagnosed with DM by Dr. Clemmons in Gainesville. We followed his program for about one and a half years along with acupuncture and massage. Only in the last 3 months did we see him go down rapidly. Even though he had lost the use of his back legs he would let us pick him up like a wheel barrow and herd his favorite ball. Only when his front legs started to weaken and he looked miserable did we decide to put him to sleep. It was a hard decision, we did not want to let him go, but we knew the worst was coming. Now I miss him so much and wonder if I did all that I could have done. Each day I see new information on DM and MS (the people version of this disease). This website has been a Godsend. It brings me such comfort to know that Kody was not alone and that other people love their dogs as much as I loved Kody. I hope that someday they make a breakthrough on this disease so that our dogs can live out their already short lives to the fullest. God Bless you All! Entry: 2007-01-14 03:36:42 Visitor's Name: Sarah Dickerson Homepage URL: No website supplied You are from: Willo Springs ,IL , USA How you found our site: Google Degenarative Myelopathy Would you recommend our site to others?: yes Comments: I am currently trying to find out what is wrong with my 9 year old GSD. He originally presented with hind end weakness. Which was diagnosed as hip problems, he has now progressed to unsteady gait and excessive drinking and peeing. We are seeing a specialist next Friday as all other tests for diabetes, cushings ect have come back negative. Entry: 2007-01-12 14:04:26 Visitor's Name: Lori Panen Homepage URL: No website supplied You are from: Lindenhurst, NY USA How you found our site: Search Would you recommend our site to others?: Yes!! Comments: I have a 13 year old GS mix who was diagnosed in August with DM. Up until this point I saw very little of the disease and think it is due to the fact that he has always been extremely active and is in great shape. Lately though I have noticed he is really starting to have a hard time. One hind leg seems to be much worse than the other. I have just sent away for Dr. Clemmons treatment plan from Westlab pharmacy and I am hoping and praying that it will give me more time with him. I have also signed him up for a swimming program. He does swim alot in the summer, but It seems from other testimonials that it is key to continue throughout the year. I am really glad I came across this site it has certainly given me some hope. What a terrible way to loose a dog. Everything else about them is 100 percent. Thanks again and I will let you know how it works out. Lori Entry: 2007-01-05 02:12:06 Visitor's Name: David Homepage URL: No website supplied You are from: Kentucky How you found our site: dogpile search Would you recommend our site to others?: yep Comments: I think my 11-year-old shepard mix is early stage DM, her rear toes are starting to knuckle occasionally. The vet basically says neuropathy and doesn't think I should push for a specific diagnosis because she is older. I don't necessarily disagree with that, I just want to make Mandy as comfortable as possible during her last year(s)????? Entry: 2007-01-04 16:32:55 Visitor's Name: Peter Bojlevski Homepage URL: No website supplied You are from: Syracuse, New York 13203 How you found our site: google Would you recommend our site to others?: YES!!!! Comments: Thanks For the tips I have been able to give my dog the best quality of life he has left thru this site. One question I have is my dog has dm and he drags himself around but when I tickle his back paws he kicks. Entry: 2006-12-31 02:03:22 Visitor's Name: MJ Irvine Homepage URL: No website supplied You are from: Fulton,KY US How you found our site: daughter found after diagnosis Would you recommend our site to others?: very,very definitely Comments: I thought I had only a few months at most but Dr. C's program gives us more hope each day. We may not get back to "normal" but we are getting back. Entry: 2006-12-25 02:01:34 Visitor's Name: Stephanie Neale Homepage URL: No website supplied You are from: Anderson, Missouri, USA How you found our site: researching DM Would you recommend our site to others?: yes Comments: My 11 year old rat terrier has been diagnosed with DM & my heart is already heavy with the thought of losing her. I am a veterinary technician and I am trying to learn all that I can to help her as her disease progresses. Your website is a comfort to me. Entry: 2006-12-19 20:00:20 Visitor's Name: laurie Homepage URL: No website supplied You are from: st louis How you found our site: chairs to go @yahoo.com Would you recommend our site to others?: yes Comments: Hi to jack flash's angel my mom just passed, tell her hi for me. she misses her german shepard scully but keeps an eye on her from above. love laurie from andy if you know anyone who needs adaptive equipment at very low prices in good condition let me know hoyer lifts $100 laurie is my job coach! love you jack flash angel! Entry: 2006-12-19 18:59:20 Visitor's Name: Audrey Homepage URL: No website supplied You are from: St Louis Missouri How you found our site: google Would you recommend our site to others?: Comments: On July 31, 2006, we had our Sadie put to sleep after a year long battle with DM. She would have been 11 years old in August. When it came to the point where she could no longer walk on her own, her feet were worn from dragging them and we were concerned that she would suffer injury, we made the difficult decision. Have hope and compassion for your friend, but keep it set firmly in reality. Entry: 2006-12-16 14:06:18 Visitor's Name: Deb Demarco Homepage URL: none You are from: Providence, Rhode Island USA How you found our site: google Would you recommend our site to others?: yes, absolutely Comments: Our 11 year old Komondor Jeges was diagnosed with DM in August, and we have been adhering to the protocol prescibed by Dr Clemmons. We are seeing positive results. Westlab Pharmacy in Florida is a wonderful resource for both guidance AND medications, as is the information posted at Dr Clemmons site. Jeges is a stoic male, and prefers to manage himself. We are using his harness infrequently, and he is able to climb stairs and raise himself up on his own. He benefits from longer walks every other day. I am dreading the winter however. Write me at demarko@4dpg.com. Entry: 2006-12-15 04:57:15 Visitor's Name: ona heimstadt Homepage URL: No website supplied You are from: duluth,mn How you found our site: been here before Would you recommend our site to others?: most definitely Comments: Thank you so much Marjorie & Jack flash for this site. I lost my beautiful Sammy (GS) to this horrible disease 1 year ago. You have given me so much support & understanding with this site, I still cry everytime I visit, but don't know what I would have done without you. God Bless You and every one that has to deal with this horrible disease that attacks our beautiful best friends. Entry: 2006-12-12 07:30:56 Visitor's Name: Kristin Pinkerton Homepage URL: No website supplied You are from: Las Vegas, NV How you found our site: on google Would you recommend our site to others?: yes Comments: My dog has started showing symptoms the last few months. I'm taking him to a "Referral clinic " tomorrow. I'm praying that it's not DM, but it looks like it. I'm hoping it's not going to be a rough go for my buddy. Kristin Pinkerton Entry: 2006-12-10 16:12:10 Visitor's Name: nayoo Homepage URL: No website supplied You are from: BURMA How you found our site: nice Would you recommend our site to others?: Comments: ur dog is cute Entry: 2006-12-06 15:36:12 Visitor's Name: Cheryl Paquette Homepage URL: No website supplied You are from: Sidney Maine USA How you found our site: Would you recommend our site to others?: yes Comments: Yesterday I did the hardest thing I have ever had to do in my life. I laid my best friend Hanz to rest. He was a 12 year old German Shepard who was diagnosed 1 1/2 years ago with degenerative myeolopothy. My heart aches so badly for him, I can't sit on my couch because he is not there by my feet anymore. The tears will not stop, I miss him so much. My heart goes out to all of you who are dealing with this disease with your best friends. I live in Maine and the weather has gotton so cold here it was taking a huge tole on Hanz's mobility and he finally got to the point where he could not go outside due to the ice on the stairs and me being afraid he would slip and break his back because he had no muscle left at all in his back end. During the night he apparently got up and tried to go into the kitchen and slipped on the linolium floor and could not get up. I found him in the morning lying in his own feces and urine. I couldn't stand to see him like this anymore and I made that horrible decision to let him go. I stayed with him right to the end, like he would have done for me. I have a wheelchair I had purchased for Hanz last summer that he fortunely did not have to use because he stayed mobile up until a few days ago. If anyone is interested in it you can e-mail me at jola8687@adelphia.net Entry: 2006-12-05 21:04:41 Visitor's Name: faith gallucci Homepage URL: none You are from: bellmore new york usa How you found our site: google.com Would you recommend our site to others?: yes Comments: thank you for this website. given the news today about my pug,charlotte it will be a beautiful place to come for support and comfort. thank you from my heart. Entry: 2006-12-05 19:04:57 Visitor's Name: faith gallucci Homepage URL: No website supplied You are from: How you found our site: google.com Would you recommend our site to others?: yes Comments: how can it be slow down Entry: 2006-12-05 15:12:39 Visitor's Name: Cheryl Coker Homepage URL: No website supplied You are from: Neptune Beach, FL, USA How you found our site: internet search for DM Would you recommend our site to others?: yes Comments: I just received diagnosis on my dog yesterday and have not even had time to discuss with the neurologist yet. Your site was the first I hit and it led me to the UF vet site. It was nice to see that there is hope of at least slowing the progress of the disease which has afflicted my otherwise completely healthy 10 year old Lab/Chesepeake Bay Retriever mix. Thanks. Entry: 2006-12-04 14:29:18 Visitor's Name: Buzz and Judy Jameson Homepage URL: No website supplied You are from: Toledo, OH USA How you found our site: Handicappedpets.com Would you recommend our site to others?: Yes Comments: Your method for turning large dogs is different from the technique we are currently using but we will try it to avoid putting out Dallas on his back. He is down from his shoulder blades to his hips and we are trying long-term rest and care for his recovery. Buzz Jameson Entry: 2006-11-21 01:50:55 Visitor's Name: Sandy S Homepage URL: No website supplied You are from: Oregon City, Oregon USA How you found our site: google Would you recommend our site to others?: YES Comments: I just read the helpful hints section and learned I shouldn't use booties on my GSD. Does anyone have suggestions for keeping the toenails from bleeding all over the carpet? We don't have concrete walkways just good old grass,dirt and gravel but his toes still bleed after a walk. Thanks Entry: 2006-11-18 19:31:50 Visitor's Name: Julia & Fred Homepage URL: downwarddog.net You are from: Glendale How you found our site: Would you recommend our site to others?: RE: offer for kanine life vest Comments: I thought my e-mail address would appear with my message but it didn't. I am still offering the doggy life vest to anyone who needs it for their DM stricken friend. Please just e-mail me at jules@downwarddog.net -- BTW: Does anyone know how likely it is that my great dane could be developing DM? She occassionally steps on the top of her feet like our GS eventually did but the vet just thought it was some kind of neurosis. Can DM be passed among kanines? Entry: 2006-11-17 20:07:50 Visitor's Name: Patricia Brown Homepage URL: No website supplied You are from: Canton, OH, U.S.A How you found our site: Google search on DM led to your article at vetmedicine.com Would you recommend our site to others?: yes Comments: We have a male English Cocker Spaniel that I suspect has DM. We estimate his age at 13-14 and weighs about 39 lbs, down from 48. He has all the symptoms of DM you describe on your web page. Our vet has not mentioned DM, sees him regularly for allergies and IBD. Did a physical and standard blood work recently and says his heart, lungs, kidneys and liver are in good health. But he can barely stand without help and topples over very easily. And he's becoming incontinent. We're trying to decide if we should put him thru all the tests necessary to get a firm diagnosis. Thank you for your wealth of information. Kudos to you and Jack Flash. Entry: 2006-11-13 03:12:41 Visitor's Name: Julia & Fred Homepage URL: No website supplied You are from: Glendale, Arizona, USA How you found our site: Google Would you recommend our site to others?: YES! Comments: Our beloved Kato was put to rest just a few weeks ago. He was nearly 15 years old and wasn't correctly diagnosed with DM until early this year. After we learned about his condition we took him off all processed foods and began to cook natural meals for him. We gave him several herbal and vitamin supplements all of which had been recommended on another vet's site. It seemed to help somewhat but the swimming was absolutely key! The aqua therapy did wonders and I strongly encourage others facing this awful disease to start that therapy as soon as possible. Kato was too weak to swim unassisted by the time we started so he wore a kanine life vest. We'd like to offer it to someone else who can make good use of it with their GS. Please feel free to contact me at the e-mail address provided. Best wishes and blessings for all of you who have a dog with DM. You're not alone in your fight or your grief. Julia and Fred Entry: 2006-11-09 07:10:46 Visitor's Name: Kristin Pinkerton Homepage URL: * You are from: Las Vegas, NV How you found our site: looked for dm on web Would you recommend our site to others?: yes Comments: I have a GS that's not even 4 years old that is showing symptoms of DM. He's been dragging his back feet, nails are all worn down. Was diagnosed with grade 2 hip dysplasia; I thought that was bad news! Then the vet noticed his nails and mumbled something about a nerve disorder. He got sick about a week ago, throwing up all day. I had to take him to the emergency clinic and leave him all night,(worried about bloat) He was pretty traumatized by them wrestling with him to take x-rays, etc. After that, it seemed like his DM symptoms increased, (maybe from the stress) Anyway, I guess I'm in a state of denial. I'm taking him to his regular (holistic) vet in a week. I'd appreciate any suggestions about treatment. He's getting weaker in the hind end. He's such a great guy. I cry just thinking about losing him, and about having to be the one to make "the" decision. Ever since I had him sent to me from Canada, It seems like he's been my constant companion, always anticipating my every move. He waits by the door all day for me to come home when I'm gone. He's so eager to protect and to please me. I guess I'm in denial because every time I try to get "realistic", I get all freaked out about having to go through all that pain, and make that horrible decision. Anyway, sorry for rambling. Thanks for your website, Kristin, (and Lutz) Entry: 2006-11-06 13:20:34 Visitor's Name: Nadine Johnson Homepage URL: No website supplied You are from: Whitesburg, Ga. How you found our site: Looking for info on DM Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2006-11-04 20:56:44 Visitor's Name: zella norman Homepage URL: No website supplied You are from: california pa usa How you found our site: thru vet Would you recommend our site to others?: yes although i hope i never have to Comments: (No comment made) Entry: 2006-10-27 07:56:51 Visitor's Name: Sadie's People Homepage URL: No website supplied You are from: Streamwood IL How you found our site: Would you recommend our site to others?: YES! Comments: I would like to send out a word of encouragement to those that are newly diagnosed. Our vet gave the prognosis "nothing to be done but put her down when it gets too bad" but was agreeable to trying the protocol if we wanted to "bother." This was back in March of this year. Sadie is on the following supplements: Vitamins E, C, B complex; Evening Primrose Oil; Fish Oil; Cucurmin and Bromelain; and selenium. We give her candied ginger (she refused to eat anything with the dry in it) and garlic. And she is on aminocaproic acid in low sodium beef broth. The first couple of weeks she was still getting worse. After a few weeks she no longer needed to be supported with a sling during walks or when using the yard. She started going up and down the stairs more frequently during the day without assistance. The progress has been slow but even this fall we still feel like we are seeing small gains. Sadie seemed to have been somewhat frustrated and depressed by her limitations so it was a real joy to see her back to her old self!! I was not very optimistic about the protocol in the beginning but I am glad we have gave it a chance. Every day is a blessing and a victory. Entry: 2006-10-19 08:35:07 Visitor's Name: Mickey Johnston Homepage URL: No website supplied You are from: Placentia, Ca How you found our site: yahoo search Would you recommend our site to others?: YES !!!!!!!!!! Comments: You been a big help. I was looking at Jack Flashes pictures he was a good looking pup. He looks a lot like my Cody. Keep up the good work !!!!!! Thanks Entry: 2006-10-17 17:49:28 Visitor's Name: Peggy Sheppard Homepage URL: No website supplied You are from: Avon, Indiana 46123 How you found our site: yes Would you recommend our site to others?: yes Comments: I come to this site faithfully everyday, hoping, hoping, hoping for that day when they will find a cure. Today I cried when I read your message, Sarella...God bless you for giving King a home in the last few months of his life...This past summer I lost my C.J. to this disease. And until I found this site, I was tormented. I still miss him so much. GS are like that. They become so close to you that they know your next move. I've come to the conclusion that I'll never be over him, and that's OK because he had brought so much into my life. And he was only 31/2 years old when we had to make the decision to put him down. And that's why I come every day to this site. I find people here that had loved their pets as deeply as I had. I can feel their anguish and their pain. It's sorta like bonding with people I don't even know..Good people. So Sarella, spend all the time you possibly can with him. ( I know from the sound of it that you got yourself a good GS. ) Entry: 2006-10-17 04:38:58 Visitor's Name: Sarella Wolff Homepage URL: www.canineshelterrescue.org You are from: North Augusta, SC, USA How you found our site: I was looking up degenerative myelopathy Would you recommend our site to others?: yes Comments: I rescued a 10 year old GSD male 2 days ago that took my breath away with his royal presence....I took him out of the shelter cell and saw he is in the "foot draging" stage of DM....I could not look into his wonderful face and not bring him home with me. His new name is King. There is only one other dog I have met that has this same presence and that is my beautiful 8 year old GSD, Stella who is recovering from Gallblader removal surgery. I brought King home to allow him to enjoy freedom during this last part of his life. I know my life will be much richer for having been blessed to know and love King even for a short time. Entry: 2006-10-17 03:48:02 Visitor's Name: John DeCoursey Homepage URL: No website supplied You are from: Palm Springs, CA, USA How you found our site: With Google (and the help of our vet) Would you recommend our site to others?: yes Comments: This is my first time at this site, but I really like what I see already. Flash, our 9-year-old German Shepard, was diagnosed with DM and the last few months have brought about a huge change in her physical abilities. But, like her, we've adapted to these changes. Sites like this, where people can talk about DM, are a big help, especially for people like us who (until a few months ago) had never even heard of DM. Great site! Entry: 2006-10-17 03:35:50 Visitor's Name: Cindy Hayden Homepage URL: No website supplied You are from: Ballwin, Mo How you found our site: Search engine Would you recommend our site to others?: Yes Comments: I need to talk to someone who understand how I feel. This is a horrible disease and all I have is my pup. We do the best we can together but he is getting sadder and sadder. all I do is cry when I can and he isnt by my side. Entry: 2006-10-15 23:40:11 Visitor's Name: P Polly Homepage URL: No website supplied You are from: Canada How you found our site: research Would you recommend our site to others?: Comments: My Cole Now 14 Has this, It is very difficult, He is a grand German Shepard & my best friend. I know im going to lose him Thanks for Listening Paul Entry: 2006-10-13 22:24:55 Visitor's Name: Dodie Durachko Homepage URL: No website supplied You are from: Graham,FL USA How you found our site: mmy vet told me about it Would you recommend our site to others?: oh yes!!!!!!!!!!!!!!!!! Comments: My dog Bubba most likely has this disease. He also has epilepsy. So he is being two-barreled. his condition is not good. can hardly walk now or get up. waiting for test results from blood work now. Vet said hes possitive he has DM. i'm so close to Gainesville vet university so my vet is going to be making calls for me and Bubba. i'm not ready to give up a fight yet... love all my dogs. Bubba, Candy, Harley and Max. this site is very supportive and would recommend it to anyone with DM or and diseases. thank you...Dodie and Bubba Entry: 2006-10-11 21:08:42 Visitor's Name: William Inabinet Homepage URL: No website supplied You are from: Orangeburg, SC 29115 How you found our site: Louise Cauthen sent me a link Would you recommend our site to others?: yes Comments: A wonderfull site. So very sorry for your loss - but their love will always be in our hearts. I am pretty sure that I loss my Caesar to this. They are never with us long enough - but I know in my heart that when I pass on from this world - Caesar will be there waiting for me Entry: 2006-10-10 21:53:08 Visitor's Name: john galczynski Homepage URL: http://rentnet.org You are from: Marietta, GA, USA How you found our site: memory, a link on my site. Would you recommend our site to others?: yes, always Comments: Love your site Marjorie. Happy News! A new addition (German Shephard) Garrison made his arrival in June of this year -- he's a rescue. A tad runt but boundless energy in this lad. He bounces up and says hi by licking you in the face. Garrrison plays with his buddy Shadow, a pit bull who is full of fun and play. Entry: 2006-10-10 01:31:07 Visitor's Name: Serene Homepage URL: No website supplied You are from: Hamilton, Ontario How you found our site: google Would you recommend our site to others?: yes Comments: My male Rottweiller, TANK, will be having an operation in the morning on his anterior cruciate ligament. I have been desperate to find a facility that provided water therapy for dogs, and I wasn't too sure if this type of facility existed. Your site has provided me with the information we need to achieve a (hopefully) full recovery. Thank you so much for all of your hard work with researching these facilities. Serene Hunt Entry: 2006-10-05 11:22:27 Visitor's Name: Joanne Hopwood Homepage URL: www.mygermanshepherd.co.uk You are from: England How you found our site: Searched Internet for Genetic Faults Would you recommend our site to others?: Yes Comments: What a beautiful site, made me cry, my dog has been diagnosed with HD and in the process of gathering info on the condition, your site is sooo helpful, I could do with your knowledge on my site. mygermanshepherd.co.uk Entry: 2006-10-05 11:22:09 Visitor's Name: Joanne Hopwood Homepage URL: www.mygermanshepherd.co.uk You are from: England How you found our site: Searched Internet for Genetic Faults Would you recommend our site to others?: Yes Comments: What a beautiful site, made me cry, my dog has been diagnosed with HD and in the process of gathering info on the condition, your site is sooo helpful, I could do with your knowledge on my site. mygermanshepherd.co.uk Entry: 2006-09-28 05:37:16 Visitor's Name: Fiona Homepage URL: No website supplied You are from: Australia How you found our site: google Would you recommend our site to others?: Yes Comments: Hi, I have emigrated to Australia in Jan. this year from the UK and brought my Ridgeback Zak with me. He had slight syptoms of DM when we flew over but his vet did not detect it and said it was "wobblers". Since being here, and consuting a new vet who diagnosed him straight away, I have watched him slowly worsen until he can barely walk now and is bowel incontinent. I know the time is fast approaching when I will have to make that awful decision, I can see it in his eyes, but he can still wag his tail. He did quite well for a time, I had him on mega doses of Fish Oils which helped. But now his back legs can barely hold him up, especially when the weather gets hot. He has been my best friend for 10 years and I will miss him more than words can say but I know I have to do the right thing by him. Sending love to all who are going through this hard and heartbreaking time aswell, lets hope for cure soon. Entry: 2006-09-26 18:43:38 Visitor's Name: Cat Lewis Homepage URL: No website supplied You are from: Allston, MA How you found our site: search for DM Would you recommend our site to others?: yes Comments: My American Pitbull Terrier was diagnosed some months ago when I brought her in to have her hip replaced and was told not to bother because she has DM. She just turned 13 and is on many pain meds and I am under pressure to make a decision I cannot make and finding all this info is wonderful and I hope to make use of what I have learned so that I might keep my beloved Kimba for as long as possible. Thank you. Entry: 2006-09-26 03:55:17 Visitor's Name: Janna Henderson Homepage URL: No website supplied You are from: Estes Park, CO How you found our site: Web search for DM Would you recommend our site to others?: Definitely! Comments: Dear Marjorie, I have sent a separate e-mail, but thought it might be worthwhile to share our experience with everyone. My name is Janna Henderson. I found your website a year ago when Augie, our male German Shepherd, was diagnosed with DM a week shy of his 5th birthday. For several months he had been coming up lame on his right hind leg periodically. Each time, his vet recommended an anti-inflammatory (Zubrin) and 2 weeks rest. This seemed to work, except the problem was recurrent. Finally, Augie started refusing to jump into the back seat of our pick-up, which he had always done very easily. He clearly wanted to jump in, but just sat there and whined. This time, the vet suggested that he might have a spinal injury and recommended getting an MRI. We then took him to the Vet School at Colorado State University where they did the MRI and performed some neurological tests in addition to attempting a spinal tap. After two unsuccessful tries at the spinal tap they gave up. Augie's MRI was clean and there were no signs of other illness or disease - thus the DM diagnosis. After combing the internet for information, I found your website and Dr. Clemmons' site. We immediately put Augie on a rigorous exercise schedule. Every day for the past year we have hiked an average of 3 to 3½ miles/day on fairly rugged mountain deer trails. This is divided into 5 walks a day - 2 of which are about a mile. The first walk starts between 6:00 and 6:30 every morning and the last one between 8:30 and 9:00 at night. Our goal is to minimize the number of hours he is not active during the night. In addition to the walks, Augie steps over 32 8" hurdles and does 16 sit-to-stands, each 5 times a day. He does stairs (3x up and down) and works 2 minutes on a balance board at home on alternating days. In addition, we do 5 adductor stretches ("spread eagles") every day. Augie also goes to physical therapy for an hour a week, where he spends at least 20 minutes on the water treadmill along with walking slopes, on curbs, over and around obstacles, balance board, balance ball, etc. We feed Augie a combination of the Clemmons diet, Nature's Recipe Vegetarian dry, California Natural Chicken and Rice dry and a mixture of cooked hamburger, ground turkey and steak, with Vitamin C, Bone Meal and dry mustard added. He has been on the aminocaproic acid 3x/day and the N-Acetylcysteine 3x/day (every other day) for the past year without interruption and takes the Antiox-QCB liquid vitamins twice a day. And, finally, the reason for my e-mail. Augie has done extremely well and just had his one-year follow-up with the Professor at CSU (her name is Laurie Pearce and it seems she studied under Dr. Clemmons some 20 years ago). She found a normal gait with no signs of ataxia, his reflexes were good, there is no scuffing of the nails or dragging of the paws. Her assessment was that "either Augie has had a remarkable and unexpectedly good response to medication not seen in most DM patients or he does not have DM". While we are thrilled with this possibility, we are also uncertain as to how to proceed. Our plan is to stay with the program he's been on, but to consider cutting back on the N-Acetylcysteine. Blood work was done and everything is within normal levels except his platelets are somewhat low at 171,000 (with 200,000-500,000 being normal). We tried contacting Dr. Clemmons when this all began and never got a direct response. (By the way, we did have the genetic test done at Florida State and it came back positive.) That's why we've turned to you at this point. Would it be possible for you to find out from Dr. Clemmons whether there are any long-term effects from any of the medications (in particular the N-Acetylcysteine) and how we should go about tapering off the N-Acetylcysteine if he recommends doing that. I want to tell you that your website is wonderful. I have returned to it time after time for information. I don't understand why there is so little information out there about DM. I had never heard of this disease, but it seems that countless dogs are stricken with it. Anyway, any help you could give us with our questions would be greatly appreciated. Thanks very much for your time. We look forward to hearing from you. Best regards, Janna (and Augie) Entry: 2006-09-24 05:12:39 Visitor's Name: Deb Demarko Homepage URL: n/a You are from: Providence, RI 02903 How you found our site: google Would you recommend our site to others?: absolutely Comments: I have learned of this disease today, as my Komondor age 11 was "guess" diagnosed of it, in its apparent late stage. I will likely pursue Dr Clemmons treatment. Thank you for this very informative website. Entry: 2006-09-22 15:22:17 Visitor's Name: Alida Roos Homepage URL: n/a You are from: Pretoria, South Africa How you found our site: Research on DM Would you recommend our site to others?: Yes Comments: My baby, Tess, now 11 years old, was diagnosed with DM just over a week ago. I have printed all the information I could gather and will read through it this weekend - quitely in a little corner where I can cry and cry and cry. I feel so guilty by not recognising the signs earlier - and have difficulty in accepting the diagnoses. Entry: 2006-09-21 22:34:47 Visitor's Name: Peggy Sheppard Homepage URL: No website supplied You are from: Avon, Indiana 46123 How you found our site: I check this site daily for possibly hope for others Would you recommend our site to others?: absolutely Comments: My precious C.J. passed away the 3rd week of June. I posted a message here around the 4th of July. This site that Marjorie has allowed us to share with one another, has helped me greatly. It was here that I got all my questions answered.. I still miss him terribly. And I can't ever bring myself to replace this precious friend of mine. Nothing would compare to him. He was the perfect German Shepherd. Only wanted to please me. No matter where I was in the house, he was there, watching me. Even at the end, he would still get himself up to follow me. He was only 31/2 years old. And it took him so fast. I guess that's why I check back daily, possibly hoping to see that there's a cure for this awful disease. Thanks again for allowing this site to continue.....Peggy Entry: 2006-09-21 03:37:11 Visitor's Name: DARLENE BELANGER Homepage URL: No website supplied You are from: RICHMOND,RI USA How you found our site: LOOKING FOR INFORMATION ON DM THE DAY MY DOG WAS DIAGNOSED Would you recommend our site to others?: YES Comments: MY DOG IS A DALMATIAN. Entry: 2006-09-20 15:59:00 Visitor's Name: Terry Traphagan Homepage URL: No website supplied You are from: Columbus, Ohio, USA How you found our site: extensive searching on DM Would you recommend our site to others?: Yes Comments: Our GSD, Shelby, was recently diagnosed with DM. She is taking the Clemmons protocol now. Entry: 2006-09-19 23:29:00 Visitor's Name: Patty O'Meara Homepage URL: No website supplied You are from: Portland, OR. USA How you found our site: DM search Would you recommend our site to others?: yes Comments: Our Lucy is almost 12. A lovely Bernese Mountain Dog. A wonderful resource in Portland, OR is Back on Track, vet rehab. (Dr. Bianca Shaw). Tread mills under water and more. Thank you for your supportive web site in honor of Jack Flash. Entry: 2006-09-16 22:01:11 Visitor's Name: Madalyn Fliesler Homepage URL: www.Designing-Touch.com You are from: St. Louis, MO How you found our site: Yahoo search for DM Would you recommend our site to others?: Yes, I'm going to link your site! Comments: I'm a dog massage therapist & one of my clients appears to have DM. I'm looking for information and ways to help him. I will let his guardian know about your web site. Thank you! Entry: 2006-09-14 20:23:50 Visitor's Name: Tonya Price Homepage URL: No website supplied You are from: Gahanna OH USA How you found our site: looking for DM resources Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2006-09-13 23:37:28 Visitor's Name: Rhonda Graser Homepage URL: No website supplied You are from: Nazareth,PA,USA How you found our site: degenerative mylopathy internet search Would you recommend our site to others?: YES!!! Comments: This site was very informative and allowed me to have a better understanding about the disease. Entry: 2006-09-12 01:40:46 Visitor's Name: debra carrithers Homepage URL: No website supplied You are from: newport news,va How you found our site: myelopathy search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2006-09-09 04:20:18 Visitor's Name: Taz & Linda G Homepage URL: No website supplied You are from: Newfoundland, NJ USA How you found our site: Myleopathy search Would you recommend our site to others?: yes Comments: Taz was just diagnosed recently after seeing 2 vets. The first vet thought it was a sprain but when he didn't seem to be doing better after a month, I brought him to my mom's vet for a second opinion which confirmed my worst feeling. Entry: 2006-09-07 20:25:22 Visitor's Name: stephanie kanach Homepage URL: No website supplied You are from: pottstown,pa How you found our site: just looking Would you recommend our site to others?: yes,yes,yes!!!!!!!!!!!!!!!!! Comments: i would like anyone help i could get right now, i put my pet lab storm to sleep on tuesday, he could not walk anymore and the symptoms came on quite sudden, the vet gave us no other options ,like a pet chair or anything, i am so distrought to think i could of kept him longer, i only thought of it today, thursday to look up information on him, i havent eaten in 3 days and cant stop crying Entry: 2006-09-05 05:02:05 Visitor's Name: Sally Sinclair Homepage URL: No website supplied You are from: Port Clyde, ME How you found our site: google Would you recommend our site to others?: yes Comments: Thanks for putting this out. My Mollie is 14 1/2 year old black lab/golden mix with some shephard. She is in end stages of DM, it has been very hard to watch. I am probably putting her down this week, which is a very tough decision, as you know. She has been my best friend since she was 3 weeks old. Thanks again for this site. Entry: 2006-09-02 01:02:18 Visitor's Name: Karen McGowan Homepage URL: No website supplied You are from: Clarkston, MI, USA How you found our site: Google search Would you recommend our site to others?: Absolutely Comments: I am so distraught with my golden retrievers advancement of DM. He has had an MRI, I work for a vet, I just want to find a cure just like people want a cure for cancer. It is so sad to see, it is breaking my heart. He is on many supplements, swam all summer, I'm worried about the winter here in Michigan. Any great advise I would love to hear. Entry: 2006-08-30 03:29:06 Visitor's Name: Fatima Keeley Homepage URL: No website supplied You are from: Rochester, NY USA How you found our site: i believe my dog has DM Would you recommend our site to others?: definitely Comments: I would like to join your support group. How do I go about doing that? Entry: 2006-08-28 22:58:14 Visitor's Name: Chris Homepage URL: n/a You are from: Tulsa, Oklahoma How you found our site: surfing Would you recommend our site to others?: yes! Comments: I am so glad to have found this website, my precious Lacey is in the last stages of dm, and it helps to know I am not the only one going through the constant care and heartache. Entry: 2006-08-26 09:13:50 Visitor's Name: susan seligson Homepage URL: No website supplied You are from: phoenix,az. 85028 How you found our site: looking for DM information Would you recommend our site to others?: absolutely! Comments: Thank you for sharing Jack FLash with us....what a beautiful and loving story about your wonderful and special friend. Entry: 2006-08-24 18:39:52 Visitor's Name: Shan Smith Homepage URL: No website supplied You are from: Hampshire UK How you found our site: Google Would you recommend our site to others?: Yes Comments: My GSD Duke was diagnosed Feb 05 with DM, we were told the prognosis was not good and he would probably be gone within 6mths. We bought a magnetic therapy collar for him and hes still with us now. Before he couldnt get up the stairs without falling , now he can get up there. Even the vet is amazed at how well he is doing. Hes not even on medication any more. Im glad hes still with us. Entry: 2006-08-23 21:17:54 Visitor's Name: lisa & Peter Shaffaval Homepage URL: No website supplied You are from: salisbury, ma us How you found our site: good dog aquatic site Would you recommend our site to others?: yes Comments: it helps to have support and to know your not alone. Our GSFemale, is 9 1/2 and she just had emergency spinal surgery, her back legs are paralyzed,we are devastated, and we hope and pray she will feel better soon, we are going get a cart for her at Eddie's wheels soon. As of yet there is no sign she has the dm but we are not out of the woods yet. Entry: 2006-08-23 04:07:52 Visitor's Name: Nancy Kay Smith Homepage URL: No website supplied You are from: Rapid City, South Dakota How you found our site: Friend, Lori James Would you recommend our site to others?: Yes Comments: German Shepherds are awesome not matter what fate brings them..they will always have my heart. Entry: 2006-08-22 20:56:06 Visitor's Name: Debbie Homepage URL: No website supplied You are from: Southern California, USA How you found our site: Researching DM Would you recommend our site to others?: Yes Comments: Our beloved 9 1/2 yr. old GSD, Thor, we believe has DM. After reviewing all the symptoms, I'm (and vet) pretty sure he has it. We're devastated. He has very little control over his back legs now, but still wants to run catch the ball daily. Instead of playing for 45 minutes, it's down to just a couple. I hope he won't suffer long. Your website is lovely. Best wishes, Debbie Entry: 2006-08-22 19:08:26 Visitor's Name: Dee Dee Collins Homepage URL: No website supplied You are from: chicago, IL How you found our site: Google Would you recommend our site to others?: Yes Comments: I have just diagnosed my dog Buddy myself from doing research. He sees the neurologist tomorrow. I cried my eyes reading about Jack and I feel this will be my fate but unfortunately I don't have the resources to prolong Buddy's fate as you did but I can understand the efforts taken. I think I will have some hard months ahead. Entry: 2006-08-17 20:43:43 Visitor's Name: Miranda Cook Homepage URL: No website supplied You are from: Cambridge, UK How you found our site: Google Would you recommend our site to others?: Absolutely Comments: I have just come back from the vet. My beautiful long haired, honey coloured GSD has DM. He has only months to live. I can only thank heavens for the time we have had together and pray that I can make his last months as comfortable and happy as possible. Sending anyone who is going through this or who has lost a dog through DM my heartfelt sympathy. Miranda Entry: 2006-08-17 14:45:50 Visitor's Name: Miranda Cook Homepage URL: No website supplied You are from: Cambridge, UK How you found our site: Google Would you recommend our site to others?: Certainly Comments: I'm sobbing having read your story and my heart aches for you. I am taking my GSD, Shane, to the vets today as he is displaying all the signs of DM. I don't know how I will cope without him and am dreading the diagnosis. Shane is the most loyal, loving and gentle dog in the world. Thinking of you and Jack, with love and prayers, Miranda Entry: 2006-08-17 02:19:51 Visitor's Name: Rae MacDougall Homepage URL: No website supplied You are from: Dunrobin, Ontario, Canada How you found our site: surfing Would you recommend our site to others?: absolutely! Comments: very touching and informative. I hope I can give my friend the same love and care you have given Jack Flash. Entry: 2006-08-08 21:19:39 Visitor's Name: Nancy Powers Homepage URL: No website supplied You are from: Cape May Courthouse,NJ USA How you found our site: looking at Cesar Milan when I noticed GM Would you recommend our site to others?: I most certainly would Comments: My Tucker was lost to DM about 2 years ago. I had never heard of the disease before. It was heartbreaking, watching him struggle Our Vet did not know much about DM He was gracious and very sad when he had to put Tucker down. We have a new shepherd and I would like to be aware of any changes that might be occuring in Dunkin. Entry: 2006-08-06 14:51:57 Visitor's Name: Linda Bland Homepage URL: No website supplied You are from: Coral Springs, Florida USA How you found our site: Looking for answers to the back leg weakness & no pain Would you recommend our site to others?: It is wonderful, GoD Bless you,the Dr. and Jack Flash! Comments: I had two dogs, brother and sister Lab/Rhodesian Ridgeback mix the female Sissy passed March 17th on her own, lost the use of back legs and within 3 days left us. Very surprised as her brother Hunter, had been "diagnosed" two years previously (they were 10 years old then)with a hemangioma sarcoma, bleeding in the urine and through the nose, they wanted to operate, remove his spleen, give him chemo when they told me the cancer had already metastisized to the liver...I opted to take him home put him on steroids and just let him live, well the boy lived now an additional 2 1/2 years! I thought he would "go" first...as his hind legs would drag, and started to "give out" I though arthritis...but he seemed to have NO pain..I would increase the steroids and his walking would improve then decrease them back..gave them both glucosamine and vitamins, very healthy diets too. now almost 5 months after his sister passed, Hunter would crouch and fall down when outside, seemed to lose control of his bowels and fall in it. Got to the point he looked at me whenever I got his leash out like"Oh NO I don't want to go out" then he totally lost the use of his hind legs...again no pain..I am thinking maybe a tumor on the spine...but with that there might be pain...this was 3 weeks ago...I just made him comfortable on an air mattress, give him a bed bath everyday clean him up he's laying on disposable pads and I use a premie diaper "parked" at his "pee pee". His third eyelid in one eye is now not going back down, probably due to weight loss, as his appetitite is much diminished, he has lost now the use of his front legs and one day one leg was swollen but that has gone down, he is able to pull his self up to drink and eat, his bark is weak and he barks when wet or dirty or if we are out of site for too long...I am having such a hard time, hoping he will go naturally without me having to look into his eyes and let him go with euthanasia...I struggle with this decision as I know he knows he is cared for and does not have to feel "bad" for "messing" (the first day he was incontinent in the house he looked at me like I'm sorry I know I did a "bad" thing...but with consolation and acceptance he just barks weakly to let me know he is dirty...) I will write when he is gone and let you know if he went on his onw or finally with the help of the vet at home...Hunter was over 100lbs..I always had a home vet except for when he was bleeding I took him to a hospital for testing then..Thank you so much for your site. Sincerely, Linda Entry: 2006-08-05 22:04:54 Visitor's Name: Katlynn Griffin Homepage URL: No website supplied You are from: Whitehall, MT USA How you found our site: looking up info on degenerative myelopathy Would you recommend our site to others?: YES Comments: I'm a Mom in denial, knowing he has DM just diagnosed in June. He's still doing well, we go for a slow trot every day. He rests a lot inside, at almost 7, is the way he has always been. He's a Kuvasz, about 100 lbs. He's still so young. We have to do our slow trots on leash as he has a tendency to lag, even behind our 4 other large dogs. But, he's always raring to go! This is all brand new to me. Luckily, when he gets to the point of needing a chair, Doggon Wheels is just 56 miles away. We will get measurements now as suggested. I'd like to think we will have a long time before he gets to the point of needing a chair. Thanks for all your time spent dealing with the very sad disease!! Entry: 2006-08-04 05:25:15 Visitor's Name: Marjorie Homepage URL: http://www.gsdbbr.org You are from: NY, USA How you found our site: Its my site Would you recommend our site to others?: I hope so.... Comments: Jack Flash… ...On the 8th anniversary of your passing… I still see you as clearly as if you were here. I remember each and every single one of your little personality nuances… I remember the feel of your coat, your happy eyes, your gentle ways, and the nobility with which you lived your life, even at the end. I remember holding you in my arms, as I sent you back to God, and the intelligence with which you looked at me for that last time, before you nodded off and laid your head to permanent rest upon your fuzzman. I remember the promise that I made to you… This is to let you know I will never, ever forget that promise, and each passing year only serves to make my resolve that much stronger...…Rest in peace my sweet beautiful boy....I will never stop loving you or missing you…you are, and will always be, a part of my soul... All my love, Mommie Entry: 2006-08-02 19:01:20 Visitor's Name: Jen Homepage URL: No website supplied You are from: MN USA How you found our site: web search Would you recommend our site to others?: Oh yes Comments: I did not have a GSD but I had an Akita that passed on due to this disease. He did live to be 13yrs. I would really have liked to know of this site before. I am glad you have done this. Thank you! Entry: 2006-08-01 05:02:59 Visitor's Name: Eileen Homepage URL: No website supplied You are from: E. Setauket NY USA How you found our site: German Shep List Would you recommend our site to others?: YES Comments: I just found out I have a DM dog. He is 10 1/2 a very large coat. I still have trouble dealing with it Entry: 2006-07-30 14:55:01 Visitor's Name: Stephanie L Homepage URL: No website supplied You are from: Rossville, GA How you found our site: searching web Would you recommend our site to others?: yes Comments: I have a beagle. You'd think this would only affect larger dogs but Pongo has all the symptoms and has been diagnosed with DM. It started about 2 months ago with the 'fishtailing' back as he walks and the back end crouching. He's not in pain. His eyes are bright, his appetite is good--I'm not sure yet how I will handle this. I just know that the idea of putting him down when his eyes are still full of life is killing me. The information on this site will help me decide what I can handle physically & financially in the long/short run and what I can do to make him comfortable now. Thanks. Entry: 2006-07-27 17:12:02 Visitor's Name: Gina Homepage URL: No website supplied You are from: South Carolina How you found our site: Petfinder.com Would you recommend our site to others?: Oh yes especially to ALL and EVERY vet out there!!! Comments: Sites like these are SO helpful and are appreciated by people like me. A past,present, and future gsd owner!! Thanks so much for this vital information that could well possibly help me. Entry: 2006-07-26 13:12:24 Visitor's Name: IN MEMORY OF TYSON Homepage URL: No website supplied You are from: ENGLAND How you found our site: Would you recommend our site to others?: YES Comments: Treat me kindly, my beloved master, for no heart in all the world is more grateful for kindness than the loving heart of me. Do not break my spirit with a stick, for though I should lick your hand between the blows, your patience and understanding will more quickly teach me the things you would have me do. Speak to me often, for your voice is the world's sweetest music, as you must know by the fierce wagging of my tail when your footstep falls upon my waiting ear. When it is cold and wet, please take me inside, for I am now a domesticated animal, no longer used to bitter elements. And I ask no greater glory than the privilege of sitting at your feet beside the hearth. Though had you no home, I would rather follow you through ice and snow than rest upon the softest pillow in the warmest home in all the land, for you are my god and I am your devoted worshipper. Keep my pan filled with fresh water for although I should not reproach you were it dry, I cannot tell you when I suffer thirst. Feed me clean food, that I might stay well, to romp and play and do your bidding, to walk by your side, and stand ready, willing and able to protect you with my life should your life be in danger. And, beloved master, should the great master see fit to deprive me of my health or sight, do not turn me away from you. Rather hold me gently in your arms as skilled hands grant me the merciful boon of eternal rest --- and I will leave you knowing with the last breath I drew, my fate was ever safest in your hands." Entry: 2006-07-25 09:44:37 Visitor's Name: Nikki Dearing Homepage URL: No website supplied You are from: England How you found our site: search engine whilst researching Would you recommend our site to others?: YES Comments: So sad to say that I lost my darling Tyson last night. Despite hoping that we would have a few months left, he suddenly deteriorated rapidly over past week.Yesterday he collapsed and was paraylised. He was in distress and scared, could hardly breathe and being sick. So distressing to see him like that, we had no option but to relief his suffering. All the family were with him at the end. The vet kindly gave him lasting peace, and although our hearts are broken, I know he is with my Dad in heaven and running throughthe fields with my beloved Bella who we lost 5 years ago. Will never know what killed him, but this site has made me so aware of DM and I'm sure that is what he had. He had been slowly getting worse over the last year, but in the end the condition just got rapidly worse and took him from us. Goodnight my darling Tyson, xxx Entry: 2006-07-24 19:40:49 Visitor's Name: Kari Buchholz Homepage URL: No website supplied You are from: Berlin, CT How you found our site: Would you recommend our site to others?: Yes Comments: It has been ten long days since our beautiful companion Rio was put to sleep. I fist noticed there was something wrong when he would not walk on our hardwood floors because he would lose his footing. Much to my dismay he began to fold over his back foot. After some research I had an idea of what may be ahead thanks to your web site. We tried many different things, an all natural diet, herbs, medicine,and even a doggie cart. Rio had slow moving DM and fought with this terrible diease everyday for the last few years. It was the most difficult decision for us to make but Rio had given up his fight and was tired of the struggle each and every day. My husband and I took him to the vet together and I am very happy to say he ate two steaks before he went. We held him and talked to him and kissed him as he took his very last breath, he was finally at peace. We miss him so much but are so thankful for the 13 years he blessed our lives.He is now running free with my grandmother who also passed on the very same day. Entry: 2006-07-24 00:40:07 Visitor's Name: Teri Worline Homepage URL: No website supplied You are from: Wheaton, IL, USA How you found our site: googled dm Would you recommend our site to others?: yes Comments: My baby Cassie girl, the sweetest, bravest, most loving friend is in the advanced stages of DM. I pray each day for guidance. I am so in awe of her wonderful spirit and courage. I can't imagine the day I wake and she is no longer here. She is still so with me in every way...she doesn't want to leave me I can tell. But this last week unlike any other has me questioning everything I'm doing. I wish she'd give me one more kiss and gently pass but I don't think it's going to be that way. I hate having this choice to make. She's my baby chow chow girl and my best friend. Please pray for us! God bless all the animals and the people who love them. Entry: 2006-07-19 16:23:19 Visitor's Name: Nikki Homepage URL: No website supplied You are from: ENGLAND How you found our site: Search Engine Would you recommend our site to others?: Definitely Comments: I have just read through all the messages after posting my last one. I just want all those suffering on behalf of their loved dogs to remember whatever you decide is best to do for your dog is what counts. I had a beautiful golden Labrador -Bella- who we had to put to sleep 5 years ago. She was 15 years old, and we were told when she was 6 months old, to put her to slepp then as she had no hips at all! Bless her, she never complained and built up muscle to compensate for the no hips. She gave us 15 years of devoted, selfless love. On valentines Day 5 years ago, she suddenly collapsed. She had no movement in her back legs at all. She couldn't go to the toilet. Her eyes told me, that it was time to go. I know my dad in heaven was waiting for her. So we took her out to her favourite spot in the country and had a last picnic with her.Then she slipped away peacfully at the Vets suggestion. I cried for months, and had to have time off work. Did I do the right thing? Yes, despite missing her dreadfully, I know that she wanted her dignity at the end. I now have to face the prospect with my Black labrador- Tyson. I know he has DM, even if the Vets know nothing about it. He is deteriorating rapidly, and I may only have a few months left. With luck maybe a year. When his legs go all together I will make that heart rendering decision, and once again feel like my world has ended. However, He has given me 12 years of Love, and I would never change that. Of course if you feel that your Dog is not ready to leave you, then i understand anyone's decision to try to keep them for as long as possible. Bless you all! God takes the best they say! Entry: 2006-07-19 13:28:46 Visitor's Name: Nikki Dearing Homepage URL: No website supplied You are from: How you found our site: Search engine on Yahoo Would you recommend our site to others?: YES Comments: I am crying reading Jack's story. I have a 11.5 yr old Black Labrador. He is displaying all symptons of DM. I took him to vet yesterday, who think it is arthritis. He also breathes with difficulty and has incontinence problems.He can hardly go out anymore.He has no reflex re-action in hindquarters, his legs co ackimbo when trying to walk. He collapsed yesterday at the park. Vet has given him Steroids. I am worried now in case they make hime worse. Entry: 2006-07-19 11:40:15 Visitor's Name: Nikki Dearing Homepage URL: No website supplied You are from: How you found our site: Search engine on Yahoo Would you recommend our site to others?: YES Comments: (No comment made) Entry: 2006-07-19 03:34:00 Visitor's Name: Carole Godfrey Homepage URL: No website supplied You are from: Loris, SC USA How you found our site: friend Would you recommend our site to others?: I already have told everyone and the vets also. Comments: I sit here and read about Jack Flash, who looks so much like my late Mazal Tov and I cry and cry for both of them. My GSD, Sabra, leaves the room because she gets too sad when I cry. My other girl GSD, Misty, is very sick. We have been giving her the Dr. Clemmons regime, but she has not responded. He told my vet she may have polyneuropathy. Nothing can be done. Today she can't walk at all...had acupuncture this afternoon and no results yet. She is a beautiful 10 year old rescue GSD. All I know about her background before I took her was she was born in Maryland and ended up here in SC. We love her so very much and I just wish she could walk again. I just cry for Jack Flash, Mazal Tov and Misty and all the wonderful dogs who do not deserve the terrible disease. Entry: 2006-07-17 16:41:04 Visitor's Name: anne b. Homepage URL: No website supplied You are from: centereach, NY How you found our site: google Would you recommend our site to others?: yes Comments: I have an 11 yr. old boxer with DM, it has been very difficult caring for her but I can't bring myself to put her down, there is such sadness with this disease, because she is not really sick, but needs 24 hr. care, my heart is aching.thank you Entry: 2006-07-16 19:39:18 Visitor's Name: Lisa Heaton Homepage URL: No website supplied You are from: Richmond, Va How you found our site: Looking for sites having to do with DM Would you recommend our site to others?: Absolutely Comments: I'm in the diagnosis phase right now with Dylan. I'm hoping for the best and preparing for anything. Your site is VERY helpful. Thank you Entry: 2006-07-13 00:33:27 Visitor's Name: joyce Homepage URL: No website supplied You are from: PA How you found our site: Looked for degenerative myelopathy on internet Would you recommend our site to others?: yes Comments: My almost 11 year old sheppard was just diagnosed with the disease.She had anal gland surgery which aggravated the condition which had not been previously diagnosed Her name is TRicia and I love her dearly. Entry: 2006-07-12 02:37:50 Visitor's Name: Tamie Ince Homepage URL: na You are from: Conowingo, MD; USA How you found our site: looked for it from the list you sent me Would you recommend our site to others?: yes absolutely Comments: Great site, Marj. I just took a look at Jack's pedigree. He appears to be very heavily line bred, with some close inbreeding on the dam's side. I also saw that he has some Witmer's lines. Since I'm from the East coast, I know those lines and in the ring they all show the DM signs of scuffing the rear paws. But, the DM had to come from somewhere further back. Hawkeye and Hammer didn't do us any favors I've been told. Thanks for the info and the site. Entry: 2006-07-10 07:34:22 Visitor's Name: Nancy Klassen Homepage URL: N/A You are from: Oak View, California, USA How you found our site: Through Google Would you recommend our site to others?: Yes, if their canine seems to be having simular symptoms Comments: (No comment made) Entry: 2006-07-08 16:00:55 Visitor's Name: Pamela and Misty Dawn Homepage URL: No website supplied You are from: Corpus Christi How you found our site: self surfing Would you recommend our site to others?: yes definitely Comments: Thanks so much for this site. My Misty Dawn is a GS/Husky mix. She is already 16 years old, but she still seems so young to me. She is starting to experience the degeneration of this cruel disease. I am sure, like all of us, I was hoping my Misty would make the Guiness Book of World Records for being the oldest dog ever. I have had her since I was only 19. She was 3 weeks old. Her mother, Katydid, was my dog growing up. I can only hope and pray for the best and for whatever time I may have left. Entry: 2006-07-04 18:00:10 Visitor's Name: Peggy Sheppard Homepage URL: No website supplied You are from: Murfreesboro, Tn. USA How you found our site: Searching for answers why and how Would you recommend our site to others?: It's the best site I've come across Comments: Marjorie, Please keep this site going. I cannot tell you how much it's helped me as I'm now without my beloved CJ 14 days now. It happened to us so quickly. CJ was only 31/2 years young..We thought he had so much life ahead of him. He was a 133 lbs last year at this time...He lost 30 of those lbs. They say german sheperds become your life...How true that statement is. No matter where I was at any given time, his eyes were on me..If you saw me, you saw C and if you saw C... I was following right behind. It happened so quickly. At first there was the change in his bark (about 9 months ago ) then we thought he had gotten a sticker in his back paw, the way he kept shifting from one foot to the other. That was in March. And now I'm utterly shocked at how fast it took him....and I didn't know one thing about this dreadful disease...It's like losing a child if you have let yourself love that deeply. The first week was just sobbing in my bed. Last week was feeling guilty....did I end his life too soon? Then along came your Jack Flash site and I got all my answers. CJ still had his dignity when he went to heaven. Now he can run again. No more embarrassing moments when his legs became tangeled up and he'd fall down..going up small hills he'd lose his footing...and the strange way he began moving his back legs together when he'd run... like a rabbit....I read there's not much pain with DM. I don't agree. In the house, he never walked. And when I'd gently try to lift up his leg, he'd whine.....I believe he's waiting at heaven's gate for me, looking for my arrival. And I believe till I get there, he's been entrusted to my grandmother's care. People want to give me another dog. That won't work for for me...CJ was my life..And now he's gone.....Peggy Entry: 2006-07-03 17:49:29 Visitor's Name: Carla Simmons Homepage URL: No website supplied You are from: Rolla, MO,65401 How you found our site: search Would you recommend our site to others?: yes Comments: Our 9 year old Shepherd most likely has DM, advancing rapidly. Entry: 2006-07-02 01:59:03 Visitor's Name: al sugerman Homepage URL: No website supplied You are from: scarborough, me, usa How you found our site: web search on DM Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2006-06-29 16:18:30 Visitor's Name: Marie Griffiths Homepage URL: No website supplied You are from: Colorado How you found our site: searching for more info on DM Would you recommend our site to others?: yes Comments: Lost Hondo a year and 3 month ago to DM; he was not diagnosed with it but after reading so much, even I figured out what was wrong...our Vet and the Vet hospital had NO clue. Even though there was nothing that could be done (he was 12 1/2 years old) it would have been nice if they could have/would have told me what was wrong. I miss him very, very much. But I now have a 5 mo old GSD from Argentina and I will certainly know what signs to look for. And if it turns out that he also develops this disease, he will also be well loved and cared for just like Hondo. We'll do all we can and just love him like his predecessor. The pup's name is Luca and he is such a great "little" guy! Can't say enough about him. Thanks for this site. Wish I had known about it a year ago! Entry: 2006-06-28 19:25:02 Visitor's Name: veronica Homepage URL: No website supplied You are from: cambridge, ont How you found our site: looking for information on dm Would you recommend our site to others?: yes Comments: We just found out last week our beautiful german shepard yukon has dm.we bought him 6 years ago for one dollar.he was ten months old and we were the third family for him. I could not understand why anyone would not want him.he is smart and well behaved.our vet thinks he might have cancer besides the dm.we are waiting for some tests to come back. its suprising how many people tell us to have him put to sleep instead of trying to help him.we really love this big gentle dog and will do whatever we can.I am so glad that I found this site,it helps knowing that we are not the only ones that love our pets. Entry: 2006-06-28 13:04:08 Visitor's Name: Anita Munoz Homepage URL: No website supplied You are from: Plaistow, NH USA How you found our site: Search Would you recommend our site to others?: Yes Comments: Thank you for the information and all your help. P.S. I have a 15 month old shepherd who looks just like Missie T's puppy pictures. Entry: 2006-06-26 04:14:18 Visitor's Name: Lisa Ida Homepage URL: No website supplied You are from: Sydney, Australia How you found our site: Search Engine Would you recommend our site to others?: Definately Comments: I found this site while looking for "something" to help with the loss of my beauty, Chicha. While she did not have DM other parts of the site really helped. Now knowing about I am aware should I own another GSD - and can tell my Mum about it. she owns a GSD too. Entry: 2006-06-22 17:06:32 Visitor's Name: LINDA ANDERSON Homepage URL: MSN You are from: LAS VEGAS, NV , USA How you found our site: DISEASE SEARCH Would you recommend our site to others?: YES Comments: WE HAVE A 15 MONTH OLD MASTIFF AND WE WERE JUST TOLD HE HAS DM. WE HAD ALREADY HAD HIP SURGERY DONE ON HIM LAST YEAR. I NOTICED MOST EVERYONE HAS OLDER DOGS OR SHEPPARDS WITH THIS DISEASE. WOULD LIKE TO KNOW IF ANYONE ELSE WITH MASTIFF HAS IT. REALLY ENJOYED READING. I AM SURE WE HAVE ONLY JUST BEGAN A REALLY HARD FIGHT. Entry: 2006-06-19 18:52:23 Visitor's Name: Lisa Homepage URL: No website supplied You are from: Connecticut How you found our site: Yahoo search Would you recommend our site to others?: Yes Comments: My beautiful 10 year old Lab/Rot mix was diagnosed last Thursday with DM. Originally she had a little trouble putting weight on one leg and used the other to compensate. Now, 4 days later, she appears to be completely lame in both rear legs. I am taking her in tonight to another vet to rule out any other possibility as I am new to the area and didn't know anythign about the original vet. Loss of mobility in BOTH legs in 4 days seems odd to me. But regardless of what they tell me, I am committed to doing whatever I can to help my beautiful dog. I have ordered a rear support harness (she is 80 lbs and I cannot lift her!) and will take measurements for a cart. She still has the playful look and is trying so hard to get around with her condition, but it breaks my heart. When she indicates to me that she is in pain it is time for her to go, I will end her suffering. Until then, I will continue to research and do wahtever I can to make her comfortable and give her back a quality life. Many thanks to all who have posted inspirtation mesagges and have shared the joys of their pets. May God bless you all! Entry: 2006-06-18 19:09:45 Visitor's Name: Colleen Renwick Homepage URL: salt spring island You are from: british columbia How you found our site: online Would you recommend our site to others?: yes Comments: Thank you for this wonderful site which I discovered after my beloved Callie, a 9 year old collie-x was diagnosed with DM in 2005. I found this site very helpful--in particular Dr. Clemmons diet and exercise regime which I feel extended Callie's life. Tragically about 7 months after the DM diagnosis ( and after showing marked improvement following Dr Clemmon's regime) Callie developed bone cancer and died shortly thereafter. Like Jack Flash my dog had such a wonderful spirit and I miss her greatly. Thank you so much for this wonderful, supportive site-- I am so grateful... Regards, Colleen Renwick Entry: 2006-06-14 02:34:30 Visitor's Name: sharon ellis Homepage URL: No website supplied You are from: melrose,fl How you found our site: looking for help with my shituz with myelopathy Would you recommend our site to others?: yes i would it was very beautiful Comments: I've been giving my shituz skippy who is 4fluid joint hoping it will help his back legs stronger so hopefully he'll walk again one day.at first when we had his operation he couldn't move his back legs at all but now he's getting movement in them.so i'm trying all kinds of medcine to help him. thank you for your story about jack flash sharon Entry: 2006-06-11 19:55:41 Visitor's Name: John Ott Homepage URL: No website supplied You are from: Pine Valley, NJ USA How you found our site: Google Would you recommend our site to others?: yes Comments: Thanks for your efforts. Entry: 2006-06-09 12:31:49 Visitor's Name: Jackie Roberts Homepage URL: No website supplied You are from: aiken, S.C. usa How you found our site: Would you recommend our site to others?: yes Comments: Dear Cheryl, PLEASE e-mail me about your dog. Mine has been unable to walk on his own for 6 months! Wheelchairs are great! As long as the poopies are hard who cares. Lite a match after picking it up! You will see it in their eyes when they are ready to go so you hang in there. Entry: 2006-06-08 23:26:13 Visitor's Name: Tim Remington Homepage URL: No website supplied You are from: Freeport, IL USA How you found our site: Would you recommend our site to others?: Yes Comments: I wrote the previous entry. My email address is barns638@yahoo.com. Thanks. Entry: 2006-06-08 23:18:15 Visitor's Name: Tim Remington Homepage URL: No website supplied You are from: Freeport, IL USA How you found our site: Google search for DM Would you recommend our site to others?: Yes Comments: My dog Kristi has had DM for over 2&1/2 years now. It started in the fall of 2003 when I noticed her turning her right rear foot in a strange way as I took her for a walk. Soon she began dragging her rear nails on the floor as she walked. Now she's been down in her back legs for over a year. I had been giving her the medication recommended in Dr. Clemmons article but stopped once her rear legs became totally useless. Kristi is a shepherd mix and is only 38 pounds. I am a fairly big guy so I have no trouble helping her around. We do "wheelbarrow walks" and I carry her up and down the stairs and put her on my bed for the evening (where she's always slept). I bought her a cart from Doggon Wheels and last summer we enjoyed long walks together. This spring, however, the disease has been rapidly spreading into her front legs. I didn't know it would do that. I have her back on the medications in hopes of slowing down the progression of the disease. Kristi's mind is alert and she has a great attitude. She isn't in any pain and she takes her disabilities in stride. She still enjoys her life. Has anyone taken care of a DM dog after they've lost use of their front legs too? If so, please email me and tell me of your experiences. Any tips would be appreciated too! Thank you! Entry: 2006-06-07 01:20:13 Visitor's Name: Cheryl Palmer Homepage URL: No website supplied You are from: Sidney Maine USA How you found our site: looking up information on DM Would you recommend our site to others?: YES Comments: I have a beautiful 12 year old German Shepard named Hanz and he is entering the last stages of DM. Hanz has been my love, my soulmate for over 12 years and it is killing me to know that soon I will have to make that horrible decision. I have been told by many people lately that I am in denial about his condition. Hanz can still walk on his own but needs help getting up. He has recently lost all control of knowing he is having a bowel movement but does seem to know when he has to urinate. He has lost almost all of his funtion in his left hind leg. Once he is up tough, he is able to get around very well. I still see the sparkle in his eyes everytime he looks at me and feel that just because we have to pick up his accidents and help him to get into a standing position, its not time to let him go yet. Others around me disagree and its been very difficult for me. I know the disease is progressing very fast now and I don't have much time before Hanz will not be able to walk at all. But until that time comes, and as long as he has the life in his eyes and in his heart, I will not give up on him. Everyone out there that has a DM dog in its final stages, don't give up on your beloved pet just because you might have to help him around and clean up behiend him. If he still has the life in his eyes then he is still happy to be with you even if he can't run and play like he use to. When that sparkle of life fades from his eyes, then it is time to let him go. He will tell you when. Entry: 2006-06-04 02:35:42 Visitor's Name: jackie roberts Homepage URL: none You are from: aiken, s.c. U.S.A How you found our site: internet search Would you recommend our site to others?: yes Comments: I am dealing with late stage D.M. in a (almost) 9 year old male. This is my 4th out of 7 shepherds with D.M. Have been following Dr. Clemmens regime with my Vet's O.K. This dog has lasted 1&1/2 years since startup. A year longer than any other! Dr. Wobblybutt (Rupert) has been having urine accidents. Will I need to express his bladder? He is outside often just lying in the shade (quite happily) then when brought in piddles. Geez! I work outside the home but the hubby has a computer business from home. Dr. Enormous (Rupert again) weighs in at 90 lbs and is NOT fat. Big Dang Dog. Anyone who has dealt with the extreme late stages please contact me. jr1under@bellsouth.net You can't scare me I just need help to make the correct choices. Thanks Entry: 2006-06-03 04:40:34 Visitor's Name: Jerry & Annette Homepage URL: No website supplied You are from: San Diego, CA How you found our site: Looking for info. about DM Would you recommend our site to others?: Yes Comments: The duration of his DM was 8-9 MONTHS. Entry: 2006-06-03 04:37:00 Visitor's Name: Jerry & Annette Homepage URL: No website supplied You are from: San Diego, CA How you found our site: Looking for info. about DM Would you recommend our site to others?: Yes Comments: We just put our sweet 11 year old GSD, Jake, to sleep yesterday, after a 8-9 battle with DM. It began with occasional "slipping" of his back legs, and stayed like that for several months. Last week he started dragging his back paws until they bled. We cleaned his paws, put antibiotic ointment on them, but booties on with duct tape over the top. He felt so great for the next week and a half, he was like a new dog. But sadly, his symptoms became increasingly worse, he began to be listless and depressed. Then yesterday, he couldn't pick up his leg at all, so we knew it was time. We loved him too much to stand to see this once proud dog unable to function. We will miss him dearly, and for anyone else going through this horrible ordeal, our thoughts are with you! Entry: 2006-05-31 17:09:54 Visitor's Name: Karen & Bo Cross Homepage URL: www.lorenzatti.org You are from: Massachusetts How you found our site: germanshepherds.com Would you recommend our site to others?: yes Comments: My Bo is stricken with this and it came on very suddenly. He can hardly get up at times and I may have a matter of a few more weeks with my beautiful obsession. I stay strong for him and help lift him when he wants to get up. I pray every day for him and watch for the signs that he's had enough. I haven't felt this helpless in a while. I try to let him know that even though he was a rescued boy that he is my boy and forever will be my life and love. Thank you for this site. It helps me know he and I are not the only ones dealing. God bless all the fur babies that are affected. Entry: 2006-05-29 01:18:08 Visitor's Name: Barb TAylor Homepage URL: No website supplied You are from: Paso Robles, CA USA How you found our site: search word German Shepherd Arthritis Would you recommend our site to others?: YES! Comments: Jack Flash was a beautiful GS love dog! Thank you for this website, I am taking printouts to my VET tomorrow as this may be the cause of my GS love dog's pain and suffering so far diagnosed as arthritis. Difficult to read through all the tears!!! Entry: 2006-05-25 19:40:31 Visitor's Name: Jeff Williams Homepage URL: No website supplied You are from: Topeka, KS USA How you found our site: searching on DM Would you recommend our site to others?: Absolutely Comments: My 12 1/2 year old Shepherd Zeus has had DM for almost 5 yrs now. I have to help him stand more than half the time and am just not ready to let go. He is still happy and not in pain but his legs are so very weak. I love him so much and can understand how heartbreaking this experience is for everyone. May God bless and watch over all of us, especially our best friends. Entry: 2006-05-25 18:11:44 Visitor's Name: Kate Homepage URL: No website supplied You are from: How you found our site: Looking for dog pools Would you recommend our site to others?: yes Comments: I have my hands full with a nine month German Shepherd. They require alot of work and demand so much attention. I love my Max but we are still learning how to live together. Any suggestions on raising a good Shepherd is much appreciated. Entry: 2006-05-22 22:03:46 Visitor's Name: nancy Homepage URL: No website supplied You are from: west orange, nj, usa How you found our site: dr clemmons website Would you recommend our site to others?: yes Comments: How do I join you support group? Bear and I need HELP. Entry: 2006-05-20 04:42:42 Visitor's Name: David Stone Homepage URL: No website supplied You are from: Owosso, Michigan USA How you found our site: Research on DM Would you recommend our site to others?: Yes Comments: My GSD is an 8.5 yr old. He has been my partner in Law Enforcement for 6.5 years. His DM seems to be in the latter stages. He will bve retiring within the next couple of weeks and will be missed by ours and surrounding agencies. He really made his mark in the police dog community. Thanks for the helpful info your site provided Entry: 2006-05-20 03:15:08 Visitor's Name: T. Homepage URL: No website supplied You are from: bronx,newyork How you found our site: looking for answers Would you recommend our site to others?: yes Comments: My family was blessed with two pugs just under 12 years ago. Milo was diagnosed with cancer and was put to sleep 2 years ago. Now my family is preparing to put Otis to sleep, he was diagnosed with DM a few weeks ago. He is not doing very well because he went undiagnosed until it was to late. Say a prayer for my family in this painful time and pray Milo will be reunited with his brother and best friend Otis when he gets to doggy heaven. Entry: 2006-05-19 10:17:49 Visitor's Name: Jerick Homepage URL: No website supplied You are from: Woodland Hills, CA, USA How you found our site: web search for DM Would you recommend our site to others?: Yes Comments: Our 11 yr.old Wire Fox Terrier, Maxwell, now has DM and we haven't heard of any other sm/med. breeds with it. Does anyone out there know why? In every other way, he has always been the most adorable, Mr. personality, smartest, & healthiest dog. Why us? We are devastated. Entry: 2006-05-18 22:38:25 Visitor's Name: ruth Homepage URL: No website supplied You are from: New Jersey How you found our site: google Would you recommend our site to others?: yes!! Comments: I have lost 2 GSDs to DM and now, I have a Great Pyrenees who may have the same thing. She has terrible pain in her right rear leg and Rimadyl wasn't much help. She is on Deramaxx now but it doesn't appear to be helping sufficiently either. Please put her in your thoughts and well wishes!!! I am sooooo afraid for her! THank you and Thank you for this wonderful site! Entry: 2006-05-18 17:55:31 Visitor's Name: Sarah Pinner Homepage URL: No website supplied You are from: Yorktown, VA How you found our site: my mom Would you recommend our site to others?: yes Comments: I had to put my GSD, Bandit, to sleep a couple of days ago. Now I think of him everywhere.. I think that I see him off in the distance. This site was very informative for my family during Bandits last couple of years. It is comforting to know we are not alone. Now I wrestle with the question of will I see him again.. in heaven. I have decided to look forward to finding out. When I go one day I will find peace in believing that God will reward me by returning my best friend to me for eternity. Entry: 2006-05-15 02:07:49 Visitor's Name: Lisa Homepage URL: No website supplied You are from: Ohio How you found our site: searching for info Would you recommend our site to others?: YES Comments: My American Standard Poodle, Layla, was diagnosed last month. She is 11 yrs old and still likes to run in her yard and chase bunnies. I am giving her the medication, vitamin supplements and exercise that is recommended and praying it helps. Thank you for a place to learn more. Entry: 2006-05-14 01:59:17 Visitor's Name: Erin Frank Homepage URL: No website supplied You are from: Manchester New Jersey How you found our site: searching google Would you recommend our site to others?: yes Comments: Hi, My name is Erin and I have a beautiful German Shepard female named Shera. She is 12 years old and has DM. When she was first checked out by the vet for her problem I was told it was arthritis. Now I am told she has DM. I feel she has had this disease for longer. She now has trouble with everything she does. I would love to speak to someone who has been through this before. If you can help me out I would greatly appreciate it. I see how much love you have for your dog Jack and that is how I feel about Shera. Thankyou so much for the information you have given to me. Thankyou so much!!!! ERIN Entry: 2006-05-10 16:58:43 Visitor's Name: Ted McMorris Homepage URL: No website supplied You are from: Brooklyn , NY How you found our site: Would you recommend our site to others?: Comments: email address id tedmcmorris@yahoo.com Thanks again Entry: 2006-05-10 16:55:45 Visitor's Name: Ted McMorris Homepage URL: No website supplied You are from: Brooklyn, New York How you found our site: I was desperate for answers Would you recommend our site to others?: Yes Comments: We are still in need of answers, our 6 1/2 year old female Boxer Dyna was diagnosed with DM in October. We have had Spinal MRI and Brain MRI which had negetive results for tumors. After ruling out everything else it was determined she has DM. We contacted Dr. Clemmons in Florida and started her on his diet recommendations and medications in December. Dyna has been progressing but not with great quickness. Our problem is Dyna experiences incredible sleep siezures, thrashing about the floor but she can be woken up from it. her neurolgist suggested Phenabarbitol which we began yesterday. We are looking for anyone who has experienced any of the sleep siezures and if anything helped. We also have a 11 yr.English Springer Spaniel, she is in remission at this time from lymphoma for 10 months. please feel free to contact me with any helpful information... " Our kids in fur coats " will appreciate it. and we pray for a cure!!!!! someday???? Entry: 2006-05-10 04:20:36 Visitor's Name: kate Homepage URL: No website supplied You are from: raleigh, nc How you found our site: google Would you recommend our site to others?: yes Comments: Our dalmatian has all the signs/symptoms of DM and recently has had a turn for the worse. Keeping her on carpeted areas has helped her mobility. I also tried to find something that could help me get her outside to go to the bathroom. A towel around her midsection was hard on both of us. I went to the local pet superstore trying to find anything that could help. I ended up buying a doggie lifejacket just to try. It has been great for us.... it supports her midsection while leaving her hindquarters free to urinate/defecate. There is a handle on the jacket that was made for lifting a dog out of the water but for us, it is perfect to hold on to in order to give her some extra stability. She is able to walk fairly well using the jacket (though we get alot of looks from people driving by). I do have a question though... when do you know that enough is enough? When a companion is still alert and loving when do you make the decision that the disease process has taken its toll? I know that decision is looming on the horizon but I'm not ready to go that route yet. Do you know by looking at the dog? This website has been very informative for me even though it has also made me realize how difficult the next few months will be. It helps knowing there are others out there who can sympathize... my heart goes out to anyone who has this happen to their beloved friend/companion. Entry: 2006-05-10 02:49:52 Visitor's Name: Pam Masse Homepage URL: No website supplied You are from: Seattle, Washington How you found our site: I was looking up rehab sites and found yours Would you recommend our site to others?: YES..Just e-mailed it to a friend that has german shepherds Comments: Each time I come to your site, I cry and cry for the love you must have had for your Jack Flash. I have a huge shepherd/malmute mix. He is the love of my life and I always repeat to him your saying " Everything I do, I do it for you" Theo is his name and when he was hit by a car, I had to start him in water therapy and that is how I came across your site. That was a year ago, and to this day, I have it in Theo's folder and send it on to people that either need it or would just be interested in it because they have a shepherd. Thank you so much for your never ending love you have shown in Jack's memory by carrying the site on. Blessings to you. Entry: 2006-05-09 15:29:32 Visitor's Name: Tracy Homepage URL: No website supplied You are from: England, United Kingdom How you found our site: Google Would you recommend our site to others?: Definitely Comments: I have today just had to put my 12 year old German Shepherd dog, Misty, to sleep. She had DM and unfortunately she had had enough. I'd just like to say thank you for the website, in helping us to understand the illness and also helping us come to terms with it. Keep up the good work for people out there like me. Entry: 2006-05-08 02:31:33 Visitor's Name: Carole Godfrey Homepage URL: No website supplied You are from: Loris, South Carolina, USA How you found our site: friend Would you recommend our site to others?: yes Comments: I am still very worried and upset over my Misty and DM. I believed the Flash test when last year she was negative. She has become much worse and they believe she has DM. I wasted a year of her life. Entry: 2006-05-07 05:42:32 Visitor's Name: Carol and Bob Diehl Homepage URL: No website supplied You are from: Moriarty, NM 87035 How you found our site: Searching for help online Would you recommend our site to others?: Absolutely-it is wonderful! Comments: Our 15-1/2 year old gsd - perfect health checks - only needed shots - in the past 3 weeks has gone downhill rapidly. We are giving Rimadyl. The warning signs on your website are evident in our Einstein. I have never had a gsd live this long; also have his litter brother Jackson; fortunately he is showing no signs- This appeared to proceed so quickly - we are steeling ourselves to having to euthanise Einstein next week. He can no longer control his legs and keeps falling down; he is very frustrated!! Fortunately no pain is evident Entry: 2006-05-05 21:27:17 Visitor's Name: deborah Homepage URL: No website supplied You are from: chicago, IL How you found our site: google Would you recommend our site to others?: yes Comments: I just found out our Scout has DM and today we had 2 cyst-like masses removed. When the bioposy comes back from them we will move ahead with the nutritional and medical course. I sit in front of my computer and research and cry every day. Entry: 2006-05-01 04:46:05 Visitor's Name: Bridget Homepage URL: No website supplied You are from: Puyallup, WA How you found our site: Researching my dog's illness Would you recommend our site to others?: YES!!!! Comments: Your site has helped me to understand what was happening to my dog and what to expect.I took her to a specialist who said that she most likely had DM, but would not confirm that as she is not a german sheperd but a rottweiler. Entry: 2006-04-28 16:42:03 Visitor's Name: Michael Tucker Homepage URL: No website supplied You are from: Winter Springs, Florida USA How you found our site: Searching the Web on MD Would you recommend our site to others?: Absolutely! Comments: I, too, have a beautiful GSD named Annie that I call my gift from God. She was truly a gift as a friend of the family asked us if we would take her when she was 6 months old. She was originally intended to be a gift for my two sons, but they weren't into dogs at that time. Naturally, Annie became "my" dog which was absolutely fine with me. I grew up watching Rin Tin Tin and Bullet from the Roy Rogers shows so I realized what a wonderful companion she would be. She has been even more than I could hope for or dream of. We are really family in my mind as we are both of German heritage and we were both adopted. Annie will be 8 next month and the time has gone oh so fast. Annie was diagnosed with DM just over 3 weeks ago and I am devastated. As so many have said on this site, they were expecting a diagnosis of hip dysplasia and I had all these questions lined up about surgery for that problem. (I don't know if Annie's regular Vet was hoping against hope or just missing some of the signs, but he referred us to a locate group of specialists.) When the specialists looked at Annie's x-rays and asked for several hours to examine her, I knew something was terribly wrong. But again, I never expected DM because I never heard of it before. Annie was my strength 2 1/2 years ago when I underwent femoral artery bypass surgery. I had her picture next to my bed to cheer me up and to share her beauty with all of the doctors, nurses and staff at the hospital. I even joked that since Annie was so large, that we were going to have her stand on her hind legs and where a trench coat and hat so that she could come visit me. I know that every parent (not an owner) of a German Shepherd Dog that has gone through what Annie and I are going through had to have the strength of a rock to make it through this horrible time. I just hope that God gives them all comfort and that he will lead Dr. Clemmons at the University of Florida to the right answers so that someday parents like us don't have to see their beloved German Shepherds finish their life of giving joy end this way. We recently had an $84 million lottery here in Florida. Although I bought a ticket (didn't win), I knew that all the money in the world would be able to help my Annie. If anyone knows of any additional help available, then please feel free to email Annie and me. God Bless German Shepherds and the parents that love them! Entry: 2006-04-24 01:05:54 Visitor's Name: Lynda Homepage URL: No website supplied You are from: cathedral city ca us How you found our site: My gsd couldnt walk last year and I found your site Would you recommend our site to others?: oh yes Comments: I want to thank you so much for all the research you do and share with the world. God Bless your beautiful Jack Flash and by beloved Peaches who also had arthritis, hip dysplasia and most likely dm. He was 14 1/2. May they both run and play with joy in Heaven with God our/their creater. I am so sorry for your loss of Jack Flash and I feel your pain. Peace of Christ be with you and Jack Flash. Entry: 2006-04-23 16:09:50 Visitor's Name: Carol B Homepage URL: No website supplied You are from: Homosassa, Florida How you found our site: Google Would you recommend our site to others?: Yes! Comments: The website is very informative since I had never heard of the diseases before. My 6 year old collie has been recently diagnosed and his condition is deteriorating. Anyone know of other collies with DM? Entry: 2006-04-23 00:37:02 Visitor's Name: SUE EBEL Homepage URL: No website supplied You are from: WHEATON, ILLINOIS DUPAGE How you found our site: SEARCHING FOR ANSWERS TO MY PET'S PROBLEM Would you recommend our site to others?: YES Comments: (No comment made) Entry: 2006-04-19 04:30:29 Visitor's Name: Pam Homepage URL: www.animalinstinctspetphotography.com You are from: Gainesville, Florida USA How you found our site: Google Would you recommend our site to others?: Absolutely Comments: I am supposed to up early for work, and instead have been surfing the web for the third night in a row trying to read everything I can about DM. My main search tonight was to find out about the longevity that can be expected after a diagnosis of DM. I usually have such an optimistic viewpoint. When the vet said she thought my German Shepherd, Storm, had DM, I thought okay - fine, I'll exercise him, have been doing passive range of motion, read about the special homemade diets, etc. Only until last night did it occur to me that I may not have this beautiful animal much longer. Can I tell you about Storm? I've only had him for about 1 1/2 months, was a retired K9 from my full-time job (work part-time as an E.R. R.N. - where I need to be in a few hours!). Long story how Storm ended up with me, and already I am so attached to him. Had two other shepherds in the past, and there has been something very, incredibly special about this one. Storm "thinks", he has facial expressions that are amazing and is loving and good to my other pets. I heard that when K9's retire, they go downhill fast since they're not going to "work" everyday. I made it a goal to let Storm think he has a new job now and have kept him busy. Now I am crushed to find out that he has DM and not simply hip dysplasia. I am pulling a nursing shift tomorrow in order to put aside money for a cart for him when the time comes. I am confused, though. Will that time come? Can a German Shepherd with DM make it long enough to enjoy life using a cart? I saw some videos of dogs using them, and they seemed so happy, were playing and everything, but I didn't get the feeling they had DM. Can anyone answer this for me? I cried while reading the website and tonight I go to bed with a heavy heart knowing what is going to happen eventually. I do know that I will let every day that I have left with Storm be one that is appreciated. Thank you for such a wonderful website and my heart goes out to everyone who has posted here. Pam in G'ville Entry: 2006-04-16 23:16:29 Visitor's Name: Pam Cheatham Homepage URL: No website supplied You are from: Conyers, GA USA How you found our site: google Would you recommend our site to others?: Absolutely Comments: My Reagan (GSD) was dianosed with hip dysplasia at 3 years old last fall. Two surgeons and 1 vet recommended replacement. It's been nearly 4 months since surgery and she's been showing signs of DM (dragging, crossing legs, etc.) Had I a clue about DM, I NEVER would have put her through the surgeries (she had to have 2 because of complications). Your story about Jack Flash is heartbreaking and thank you for sharing that as well as all of this wonderful information. I'm sure I'll be using your site often in the coming months as we cope with this. Thank you! Entry: 2006-04-11 00:35:02 Visitor's Name: Cheryl Bradford Homepage URL: No website supplied You are from: Port Saint Lucie, Florida, USA How you found our site: Kindness Animal Hospital Would you recommend our site to others?: Yes Comments: I have just been told that it is a good possibility that my German Shephard, Kayla, has MS which has just devistated me since she is only 7 yrs old. I have started her on a regiman of special food, vitamins and exercise including the pool. It was very interesting to see that there are other possibilities that I need to check into. I have had German Shephards all my life and never once have heard of this condiditon. Of course I thought it was the hip dysplasia and this has been ruled out. I hope that I have caught this in time so that I can keep it from progressing as much as possible. Thank you for having this sight available :) Entry: 2006-04-07 17:01:21 Visitor's Name: Charm Gentry Homepage URL: No website supplied You are from: Charleston, WV USA How you found our site: Looking for something on Gracili Tendon Myelopathy Would you recommend our site to others?: Yes Comments: This site doesn't specifically say what I've been told is my GSD's problem, but it is relative. Nicely written. C Entry: 2006-04-06 16:43:15 Visitor's Name: Natalie and Dana Homepage URL: None You are from: Bradley Beach, NJ How you found our site: Whispah - GS Rescue Would you recommend our site to others?: YES Comments: Just started looking into info to help Dana, she was diagnosed on Saturday and the Vet said there was nothing I could do for her. He doesn't believe Dr Clemmons regiment will do any good. Entry: 2006-03-30 21:49:40 Visitor's Name: Alesia M. Homepage URL: No website supplied You are from: Wallingford, CT How you found our site: search for aging of Shepherd Would you recommend our site to others?: Yes! Comments: Although my dog Hunter has not been formally diagnosed w/DM, in my heart I now know what she has. Our beautiful dog has been with us since she was 6 weeks old and is now 12 years old. She has been a great companion to my husband and I initially, and then welcomed our two sons with her love and gentleness when they were born. It is hard to see her go down hill so fast (she shows all the signs) and I am not sure where to go from here and when the time will be right to put her down and give her peace. Your website has been very informative and heartwarming! Entry: 2006-03-30 08:44:20 Visitor's Name: christopher humberson Homepage URL: No website supplied You are from: issaquah, washington, usa How you found our site: google search Would you recommend our site to others?: yes Comments: 12 year old Pembrooke Welsh Corgi with DM. Has done well until just the past month. Plan to have him put down end of April as disease is progressing rapidly and want to spare him sufferring. Thanks for your site. Entry: 2006-03-28 23:54:25 Visitor's Name: John Homepage URL: http://rentnet.org You are from: Atlanta, Georgia, USA How you found our site: memory Would you recommend our site to others?: yes Comments: Thanks for your wonderful site offering help for our best friends. Reginald, formally "Bo", died 16 August 2005 - reggie was about 12 and 3/4 years old. Wonderful, friendly, cheerful, a joy to be with, shy, protector of Shanney ( as of "Shanney the human dog" fame ) a rascal -- all describe Reginald. Reggie was in the latter part of his second year of Dygenerate Myleopathy. Ever the trooper, Reggie's zest for life was strong and he's missed often. Entry: 2006-03-28 03:00:09 Visitor's Name: Karl Zacharias Homepage URL: n/a You are from: Seymour, CT USA How you found our site: google search for DM Would you recommend our site to others?: Yes Comments: Prince is our 100+ pound 13 year old GSD that was diagnosed with DM close to a year ago. My wife and I are lucky...he had a heart enlarged by 3 times at 11 and we had a pericardial (spelling?)window done. The surgery was a complete success...they (the vets) called him the wonder dog. We are blessed to still have him at 13. We began Dr. Clemmons treatment several weeks ago...he is certainly not getting any worse...in fact his energy levels have increased and his gate appears improved. We hope he passes quietly in his sleep in a year or so...walking and climbing into bed on his own for the last time. Entry: 2006-03-26 19:53:35 Visitor's Name: MARTIN M OORE Homepage URL: No website supplied You are from: Salmon Arm B.C. How you found our site: Through google Would you recommend our site to others?: Yes Comments: Your site made my last monthe easeir and my final decision easeir . My dog cody has left a big hole but I know it was time But helpful to know my pain is shared with others he will never be forgotten Entry: 2006-03-13 07:49:32 Visitor's Name: robert ollna Homepage URL: No website supplied You are from: port orchard ,wa How you found our site: yahoo search Would you recommend our site to others?: if needed Comments: my best friend of 14 yrs has been fighting dm for about year. her condition has rapidly declined in the last 4 months. the disease starts so slowly that its easy to miss at first, its like a smoldering ember but then strikes with surprising speed , before you know it you have a wildfire on your hands. i feel soon the friend i have had for over 1/3 of my life will gone. i can see it in her eyes she's almost ready but i'm not sure i am. Entry: 2006-03-07 23:26:54 Visitor's Name: Lori Shea Homepage URL: No website supplied You are from: Largo, FL, USA How you found our site: Google Would you recommend our site to others?: yes Comments: I wasn't going to make a comment but decided to come back and enter one. My dog Billy, a Dalmatian, has had DM for almost four years now. He was diagnosed in Colorado right before we moved here to Florida. Frankly I'm surprised he lived this long after what I read about the diease, but upon further research I think it's because i always feed him a high quality dog food with plenty of vitamins. Unfortunately, I recently made the decision to put him down on Friday March 10, 2006. I think the progression is starting to accelerate and he falls more and more often every day. Though it kills me to do it I must do what is right for him. I don't want him to suffer and I want to try to preserve his dignity while I can. Please light a candle for my sweet dog and say a prayer for him. I love you Billy. Entry: 2006-03-05 11:33:01 Visitor's Name: Dawn Homepage URL: No website supplied You are from: fullerton, Ca How you found our site: dm search Would you recommend our site to others?: absolutely Comments: My boxer Sassy has been visibly struggling with this horrible disease for over a year now. It has taken that long to get a diagnosis. Most vets do not consider dm an option for boxers. Yet I have now personally known several, including her mother. I would like to ask that this site or any other dm site get the word out. Boxer's do get dm. I put Sassy on the westlab program but haven't seen signs of improvement. She is really having a hard time walking and falls in her excrement. I do think the meds are helping to slow the disease and I want to applaud this site and the many courageous hearts that have gone through this. We ordered her a chair and are making the best of the time we have left. I knew Sassy in my dreams before we met. She helped me through a cancer diagnosis. It is because of her that I am healed and now help others heal as a yoga teacher. God let me borrow this beautiful little soul; she was never mine to keep. I cry a lot now and with each tear I say thank you. I know this excrutiating pain in my heart is a small price to pay for the time we've shared. If I close my heart now she'll have no legacy. Sassy will go home soon and I'm certain her sister will follow. I keep reminding myself that all things come from god and all things go to God. One day I'll go home too. I know she'll be by the door, waiting to greet me like she's done so many times before. Entry: 2006-03-01 03:50:43 Visitor's Name: Denise Rohl Homepage URL: No website supplied You are from: Baltimore, MD, USA How you found our site: Yahoo search Would you recommend our site to others?: yes Comments: I found out much too late about my Buddy having DM. I found him on the road 21/2 years ago and he quickly won my heart. He is in the final stages today and I think the end is near. I wish more could have been done but reading your information made me feel better. Thank you Entry: 2006-02-25 16:07:27 Visitor's Name: Mary Jo Simon Homepage URL: No website supplied You are from: How you found our site: Yahoo search Would you recommend our site to others?: Comments: Very informative. Thank you. I'll be changing my e-mail soon, so I'm not leaving it right now. Entry: 2006-02-21 21:21:29 Visitor's Name: Pamela Tewes Homepage URL: No website supplied You are from: Boston, Ma USA How you found our site: We met in Cindy's level 1 training class in May of 05! Would you recommend our site to others?: YES!! Comments: just looking over my notes from class and came across your wonderful literature! I am starting to create mailing lists for my grand opening of my pool (hopefully by Dec 06). I am currently practicing in home massage therapy sessions / Reiki sessions and thought that there are probably many GSD's in need in the Boston area. Entry: 2006-02-19 20:11:27 Visitor's Name: Victoria Millward Homepage URL: No website supplied You are from: Plymouth,Devon, ENGLAND How you found our site: Link from heavens gate Would you recommend our site to others?: Yes!! Comments: Hi there what an awesome web site - i've just sat here bawling my eyes out. Im fortunate not to have experienced the loss of a dog, my baby boy is only 11 months old but he's not just my dog he's my best friend and its good to know there are so many people out there who feel so much love for their German Shepherds as I do. Best wishes Vicky Entry: 2006-02-16 20:44:52 Visitor's Name: Denise Homepage URL: No website supplied You are from: Yakima Washington How you found our site: pets with disabilities Would you recommend our site to others?: yes Comments: Our beloved Max just passed on from this disease. H was 11 years old and the most wonderful friend. He was a therapy dog for handicap children and when he became paralized and wheelchair bound it made the children feel they were not the only ones with rubber wheeled legs. A wonderful friend in Flordia donated his wheelchair to him and made thae last year of his life much better. This is a sad disease since the plast thing to go is their minds and love for you. My heart goes out to all with animals with this disease. Hang in there. Entry: 2006-02-13 01:24:37 Visitor's Name: Michelle Vario Homepage URL: Yahoo You are from: Warren, Michigan How you found our site: I am a member of the group GSD United Would you recommend our site to others?: Yes Comments: Hi my name is Michell Vario 2-12-2006 I would like to tell you first of all how I felt when I had to put my GSD male to sleep he had Bone Cancer and Hip Displaysia very bad and he just could not take any more of it. He stoped eating and just wanted to lay around in his favorite spot. Illo was his name and he was 2 when we got him and 11 when he was put to sleep. The Vet asked my Dad if he wanted me to make the decision well if was the wroNG THING TO JUST WATCH HIM DAY TO DAY AND SUFFER LIKE HE WAS i JUST GOT TIRED OF SEEING HIM GO THROUGHT THAT.....It broke my heart to have to decide that but i knew it was the right thing to do for him..... I love him still and will never forget him and hes in a better place now called Doggy Heaven just like we have People Heaven. Eventhough the pain of missing him is still there after 10 years...... It still hurts me inside...... I am going to get another one but I am not sure when but I plan on it soon...... GSDS are my favorite dog breed and I had alot of these dogs growing up with the breed. Well thank you for your time and have a nice eveing..... Sincerely, Michelle Vario. Entry: 2006-02-11 16:23:26 Visitor's Name: chelsea jessop Homepage URL: No website supplied You are from: uk How you found our site: i was looking at some pictures of your dog Would you recommend our site to others?: yes deffinatly Comments: hi my name is chelsea i love dogs to peacers im so sorry for your loss i may be young but i no how it feels, my dog died about 2-3 years ago and i thought it was my falt i was takin her for a walk whan all of a suddan her back legs went i didnt no what to do this woman held her for me well i ran around the corner to get my mum then my mum came and we called my dad then all we herd is a big yelp my dad came home in about 5 mins and we rushed to the vet and she had already died.well as i say im so sorry for your loss and i hope to hear back from you ur website made me cry i read every word and i would still miss him now like i still miss my dog xxxx Entry: 2006-02-11 14:35:10 Visitor's Name: Gail Santus Homepage URL: No website supplied You are from: Valdosta, Georgia USA How you found our site: looking for info regarding health problems of the CORGI bree Would you recommend our site to others?: YES!!!!! Comments: I have 10 yr. old Male Corgi who's name is TC. He has not been feeling well and after a visit to our vet here in town, they made us an apt. with the Vet school in Gainesville, Fl. They did some blood test which later came back pretty much normal except for his Thyroid test which was what they called borderline. So we have been giving him two pill a day. This did seem to make a difference in how he feels. But this past week again we have noticed a change in him. After reading some of the info on your site I can see that this is normal for them to have good time and them not so good times. We are waiting for another apt back at the Vet school in Gainesville and will have them check for DM. One of the test that they did do was to take his rear feet and turn them over to see TC's reaction time in turning his feet back right side down. There is a waiting time before he does this so this has me and my husband concerned that this could be what is bothering him. As we have not had any contact from the breeder that we got him from a lady breeder who lived in and around Phonexville, Pa. We do have him registered. Will let you know how we made out when we go for our next apt. Thanks for suce a wonderful site. Entry: 2006-02-11 07:10:59 Visitor's Name: Barbara Hartley Homepage URL: No website supplied You are from: Crown Point, IN USA How you found our site: Web search / by accident Would you recommend our site to others?: yes Comments: It has meant a lot to me to read about Jack Flash. My Katie Lynn was diagnosed in 1999 while being treated for a dislocated and broken elbow. The accident brought on symptoms of DM that the doctors were able to identify. It is 2006 and we're taking it one day at a time. Thank you for posting your story. I wish I'd learned of the vet in Florida earlier because like you, I was told that there was nothing that could be done. Katie is now completely paralysed in the back, with the front legs now being impacted. I am sure we are into our 7th year because of all the advanced nutritional supplementation I gave her, including endocrine support and glyconutritionals. Again, Thank You! Entry: 2006-02-10 17:50:13 Visitor's Name: dr. robert merrill Homepage URL: No website supplied You are from: san miguel de allende, guanajuato mexico How you found our site: internet Would you recommend our site to others?: yes Comments: good information for my patient and clients Entry: 2006-02-09 23:54:59 Visitor's Name: Shari Allen-Gaetzman Homepage URL: No website supplied You are from: Bakersfield, Ca: 93312 How you found our site: Thru a breeder in Bend, Or: Would you recommend our site to others?: YES Comments: Helps soooo much to know what is finally wrong with your dog, to know how to find answers to those nagging questions that you aee that others see but can't find out WHAT is wrong with your loved one, and HOW to do something about it to give them a GOOD life thats left of it............. Entry: 2006-02-09 11:34:28 Visitor's Name: christine Homepage URL: No website supplied You are from: UK How you found our site: Google Would you recommend our site to others?: Definitely Comments: What a relief to find some advice and support. Sampson, our beautiful GSD was recently diagnosed with DM and our vet has been less than useless, refusing to prescribe the EACA and NAC. We have started to follow the diet, supplement and exercise regime, but cannot find any UK source of these "acids". If anyone has any suggestions we would be grateful. Thankyou for helping us feel less alone with this cruel disease. Entry: 2006-02-07 00:33:24 Visitor's Name: Joanne Finnegan Homepage URL: No website supplied You are from: Newbury, MA, USA How you found our site: Researching DM Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2006-02-06 18:08:30 Visitor's Name: John Homepage URL: http://rentnet.org You are from: Kennesaw, Georgia How you found our site: memory Would you recommend our site to others?: yes, I provide links to here Comments: This site is a treasure, a dedication to our wonderful furry friends who really just want our love and for us to be there. I don't regret for a moment sharing my life or having to tutor "my children". My memories along with the "in the moment" experiences and insights bring a happy face and a warm heart. Thank you Marjorie for all that you do, for you enable us to share our experiences here while helping us to improve the quality of life for us all, especially our German Shepherd friends and companions. Entry: 2006-02-01 20:06:21 Visitor's Name: Nicci Homepage URL: No website supplied You are from: Chesapeake, Virginia USA How you found our site: Google search Would you recommend our site to others?: Most definitely Comments: My Rescue GSD "Niner" is showing the early signs of DM. Your site has been so helpful in taking me through the process... warning signs, testing, dietary supplementation, what to expect as the disease progresses, etc... It has given me a little more hope that I may have Niner around longer than I was originally told by my vet. After reading the beautiful tribute to Jack Flash, I look at my own dog with new insight and awe. Thank you. Entry: 2006-01-29 12:31:30 Visitor's Name: benjamin Homepage URL: No website supplied You are from: How you found our site: searched 'dogs' Would you recommend our site to others?: dont know Comments: funny pictures Entry: 2006-01-22 19:41:54 Visitor's Name: Janet Richardson Homepage URL: www.tresaithcorgis.com You are from: Birmingham Alabama How you found our site: Bonnie Schick Would you recommend our site to others?: I have already to friends with their corgis who have DM Comments: I am still in tears after reading your tribute to Jack.My 12 year old Delyth has DM and I know her days are numbereed so am treasuring every day with her. Entry: 2006-01-22 15:40:49 Visitor's Name: Ilene Morris-Sambur Homepage URL: www.coraworks.com You are from: Marshall, VA USA How you found our site: search Would you recommend our site to others?: yes Comments: 15 year old dalmation just diagnosed witih DM Vet thinks there is no treatment available. Entry: 2006-01-22 15:22:53 Visitor's Name: Sandy Homepage URL: No website supplied You are from: IL How you found our site: search Would you recommend our site to others?: yes Comments: Please help if you can find a link to the support group or message boards. My 1 year old pup has been recently diagnosied with DM. He is loosing back leg mobility and I could really use people who understand Entry: 2006-01-16 19:52:40 Visitor's Name: Jackie Homepage URL: No website supplied You are from: New Jersey How you found our site: Jack Flash Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2006-01-16 02:26:52 Visitor's Name: chris Homepage URL: No website supplied You are from: milwaukee, wi How you found our site: jack flash Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2006-01-12 21:27:37 Visitor's Name: Gayle Coffey Homepage URL: No website supplied You are from: How you found our site: Google Search Would you recommend our site to others?: Yes! Comments: My 12 year old GSD has not been formally diagnosed with DM, but he is exhibiting all of the early signs. I am starting him on NAC and EACA as recommended on Dr. Clemmons website. He is a very picky eater and I cannot even get him to drink the chicken broth without the medicine in it. I am wondering if anyone else had a similar problem and am looking for alernative ways to administer the medicine that may have worked for others. Thank you! Entry: 2006-01-11 01:39:43 Visitor's Name: ona heimstadt Homepage URL: No website supplied You are from: duluth,mn How you found our site: been hee before Would you recommend our site to others?: yessssssssssss Comments: 31/2 hours ago I released my best friend Samantha(Sammy kins). She hade lost mobility of her back legs awhile ago but because I LOVED HER SO MUCH I couldn't let her go. Today is my sons birthday (I lost him a year ago) and I gave him my Sammy for his birthday. I miss her so much - both of them. It was so hard to do but I had to think of her. She went peacefully - with a tranquilizer before hand - I don't know how I will get along without her, she was my best friend - always there for me. She will be in my heart forever. Entry: 2006-01-10 15:53:16 Visitor's Name: Chris Homepage URL: No website supplied You are from: Boxford, Ma. How you found our site: google Would you recommend our site to others?: most definitely Comments: When my vet told me she suspected DM and informed me that my 9.5 yr. old Shephard/lab mix would need to be put down in 6 - 9 months, I was in no way ready to let go. I found this web site and want you to know how greatful I am. It is so comforting to know that it is possible to delay the progression of this disease. It will never be easy to say good bye to Clementine a.k.a. Tiny, and hopefully thanks to your website i'll have alot more time with her. thank you so very much . Entry: 2006-01-09 19:51:55 Visitor's Name: Angus Homepage URL: http://www.angmail.fsnet.co.uk/ You are from: UK How you found our site: I helped develop it! Would you recommend our site to others?: Certainly, without a doubt! Comments: Great site .... lovely graphics and music. It's been a pleasure to be part of it! Entry: 2006-01-07 02:58:53 Visitor's Name: Suzanne DuBarry Homepage URL: www.thegentlereminder.com You are from: Henderson, NV How you found our site: Google Would you recommend our site to others?: Absolutely Comments: What a beautiful dedication to yet another incredible German Sheppard. Entry: 2006-01-06 08:00:11 Visitor's Name: michael golden Homepage URL: Found This Outstanding Website: Jack Flash's Homepage You are from: Terre Haute, Indiana How you found our site: Google Search Engine Would you recommend our site to others?: Absolutely, - In a Heartbeat Comments: Note to Dr. Clemmons: Have you done everything possible to make your protocol available (published in the literature, ect.) for DVM's and graduate students to review? Entry: 2006-01-06 04:20:36 Visitor's Name: toni soward-gatford Homepage URL: No website supplied You are from: milwaukee, wi, usa How you found our site: google under degenerative myelopathy Would you recommend our site to others?: yes Comments: we have a golden retriever who is losing function in his hindquarters. he is 12 1/2 yrs old. our vet said he had nerve damage, but never said what the name was or never said that this would be his demise. he had masticatory myositis dx'ed 1 1/2 yrs ago. we just learned the name from people in a pet loss support group tonight. they lost their shepherd mix and we are facing euthanasia very soon. thank you for your site. Entry: 2006-01-03 23:11:20 Visitor's Name: Homepage URL: No website supplied You are from: Northville, Mi How you found our site: been here before Would you recommend our site to others?: I have Comments: (No comment made) Entry: 2006-01-03 14:23:33 Visitor's Name: Terri Palombi Homepage URL: No website supplied You are from: Fredon, NJ 07860 How you found our site: Yahoo Search Would you recommend our site to others?: Absolutely!! Comments: I was extremely touched by Jack Flash's story (it took almost a whole box of tissues to get through it). I lost my beloved Zak a year ago due to DM. He was only 9. He was totally immobile for 9 months and enjoyed his cart very much. I wish I would have known about this web site then. I miss him terribly and wish I could have done more for him. Pneumonia took his life and he died peacefully at home on his own. I look forward to viewing the rest of your site and would love to be able to help others who are going through to agony of watching this horrible disease take over their dog. It's such a shame that so many vets don't know enough about it. Thank you so much for this wonderful website! Entry: 2006-01-02 20:53:53 Visitor's Name: Steve Poiry Homepage URL: No website supplied You are from: Northwood Ohio How you found our site: German Shepherds .com Would you recommend our site to others?: yes Comments: This site has allowed me to better understand this disease and how to see the early signs. It has also been so very good for me to see and talk with others that have loved and lost such dear creatures. Those darn GSD's leave such a footprint on our souls! Thank you. Steve Entry: 2006-01-02 09:54:49 Visitor's Name: Mrs Piggins Homepage URL: No website supplied You are from: UK How you found our site: searched degenerative spinal myleopathy Would you recommend our site to others?: YES Comments: very informative site, had me in tears Entry: 2005-12-31 02:59:49 Visitor's Name: Cindie Allnutt Homepage URL: No website supplied You are from: Lexington, KY How you found our site: Google search Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-12-30 01:59:22 Visitor's Name: Francine Wilkins Homepage URL: No website supplied You are from: Marietta, GA USA How you found our site: Web search Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2005-12-30 00:58:44 Visitor's Name: Gayle Homepage URL: No website supplied You are from: Stateline NV USA How you found our site: search engine for DM Would you recommend our site to others?: Definitely. VERY helpful Comments: My GSD has just tested positive for DM. I tried to join your support group but never heard back. This site has been very helpful as well as beautifully done. Please tell me how to join the support group. Entry: 2005-12-28 22:13:41 Visitor's Name: Sharon Ansell Homepage URL: No website supplied You are from: Altamont.NY USA How you found our site: vet referral Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-12-27 22:16:11 Visitor's Name: Victoria Grando Homepage URL: No website supplied You are from: Little Rock, AR How you found our site: grom Google Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-12-27 16:24:29 Visitor's Name: Jackie Flummer Homepage URL: No website supplied You are from: huntington, NY How you found our site: google Would you recommend our site to others?: absolutely Comments: (No comment made) Entry: 2005-12-23 21:23:24 Visitor's Name: Loretha McIntyre Homepage URL: No website supplied You are from: Clio, Mi 48420 How you found our site: looking for info on what was wrong with my GSD and Newfie mx Would you recommend our site to others?: deffinately Comments: I wondered why my vet turned Buddy's right hind paw onto his toes and was concerned with the very slow attempt to correct his foot. My GSD also one of the giants, has rear end problems..progressive and he has panus (is?) and is only 4 yrs old!! he is registered and . neutered. Not much to look forward to I guess Entry: 2005-12-22 02:47:04 Visitor's Name: Barbara & Peter Homepage URL: No website supplied You are from: Chicago, IL How you found our site: did a search on the disease Would you recommend our site to others?: yes Comments: We have a 7 yo boxer that has been diagnosed most likely with this horrible disease. The vet has ruled out almost everything else, but we are still praying that it is something else. We will be sending for a flash test although that may not resolve anthing either. We are very thankful for the hard work put into this website. It has given us some hope that we can prolong our Rocky's life. He is the 80 lb. baby of the family and we just can't imagine our life without him. Thank you so much for giving us so much more information and hope! Entry: 2005-12-16 18:07:15 Visitor's Name: Michele Cupples Homepage URL: No website supplied You are from: Syracuse, NY How you found our site: Internet Would you recommend our site to others?: Absolutely! Comments: (No comment made) Entry: 2005-12-15 16:43:44 Visitor's Name: Sharon Ansell Homepage URL: No website supplied You are from: Altamont,NY USA How you found our site: surfing the net Would you recommend our site to others?: yes Comments: thank you thank you thank you Entry: 2005-12-02 22:43:27 Visitor's Name: Linda Gardner Homepage URL: No website supplied You are from: Coopersburg, PA How you found our site: Would you recommend our site to others?: Comments: Majorie I can't remember my password to get on the site, I know my user name was Javiebear. Anyhow Java isn't doing good and I need some advise, I took her to the vet last night thinking that she had bed sores because she doesn't get up and walk much, they told me it's her immune system shutting down and these are fissures, they put her on antibiotic but told me if it doesn't work I would have to put her to sleep in two weeks. I am not ready to put my girl down. This summer she had a tumor on her foot that was removed and I was told it was a cancer that would reoccur so they stopped her hydro therapy and her walking has gotten worse. Last night at the vet it's a tile floor and she couldn't get up I had to lift her. My girl is only 9 years old, please give me some advise I am not ready to let her go. Thank you Linda Gardner Entry: 2005-11-28 07:58:15 Visitor's Name: Steve Cesare Homepage URL: Chezaday.com You are from: Naperville, IL USA How you found our site: Searching for DM information Would you recommend our site to others?: Yes Comments: Over the summer I had to make the painful decision to let my best friend in the world go. Rocky was a pure bred Shepherd full of life. He began having difficulty walking around the age of ten. We began treating him with Rymidyl and that seemed to help. The winter came and it progressively got worse. I thought the weather may have been the reason. He still slept beside my bed everynight .. going up the stairs one step at a time. Then it was just last February that he had trouble coming down the stairs. All this time we still went for our walk twice a day, over a mile everyday, for over ten years. We had to cut the stairs off and the walks became shorter and shorter. All the usual DM symtoms were there .. and the vet had no solutions for me. We tried a specialist who gave us hope. She started accupuncture and a series of shots and medications. We actually saw improvement and he was walking again. This of course was short lived .. and after about a month he was back to dragging his hind legs around. I can't tell you all I went through .. all the sleepless nights just trying to find an answer. I made a sling to carry him outside to releave himself. He was still alert and hungry ... all the way till the end. There was nothing more I could do for him and on July 7, 2005 .. reluctantly, I finally set him free. I still hurt for him everyday .. and the guilt is still there .. did I miss something? Did I do the right thing? I just wish I could have done more for my friend .. he was and always will be the "king." Take care my buddy .. Steve Entry: 2005-11-25 15:11:23 Visitor's Name: Julie Homepage URL: No website supplied You are from: Dover, Pennsylvania How you found our site: Google search Would you recommend our site to others?: Yes Comments: Our 9 year old black German Shepherd, Kodi, has had DM for over a year and is at the stage where she can no longer walk with her hind legs. She is still very alert and seems to be a "normal" dog otherwise. We are looking to obtain a wheelchair for her to try to make whatever time she has left comfortable and happy for her. It is painful, but helpful and reassuring to read all the messages here and to know that we are not alone in dealing with the very cruel disease. Thank you for the support! Entry: 2005-11-24 02:55:07 Visitor's Name: Blaine Homepage URL: No website supplied You are from: Edmonton, Alberta, Canada How you found our site: Web Browsing Would you recommend our site to others?: Yes-very much so. Comments: Over the past year, I had been treating my female german shepherd, Caitie for arthritis. She was receiving glucosamine, vitamins and Metacam. However, her condition never stabilized and I noticed she was getting increasingly worse...with the symptoms waxing and waning. Some days were better than others. Over the past month, she was losing control over her hind quarters. Her legs becoming entangled, an inability to climb stairs, loss of weight and muscle mass in the back and starting to lose it in her front. then she seemed to be having difficulties in defacating. On Friday night (18 Nov 05), I thought I would throw a mattress on the rug and sleep with her. It was then I noticed how restless she was and unable to relax. During Saturday I took her to some of our old haunts, but this ended up being a particularly bad day for her. She could hardly take a few steps with either entangling her legs or collapsing into a sitting position. I knew that she was not enjoying life...Caitie was no longer smiling. Anyone who has truely looked into the eyes of their german shepherd can feel and sense the soul that resides within. On 20 November at 9:15am, we ended our journey together. The decision to have her put to sleep has almost torn apart my heart, but it was the best decision for her. While on the visit to the Emergency Vet Clinic, the Dr. noted she may have the condition known as DM. I had never heard of it before so I decided to find out more about it. Caitie was 13.4 years old and was a relatively healthy dog until this condition took hold. Throughout the past ear, Caitie showed courage, resilience and maintained her indomitable spirit. I feel very proud to have been a part of her life. Entry: 2005-11-24 00:35:12 Visitor's Name: Jim Homepage URL: jkturner77@hotmail.com You are from: California, USA How you found our site: Web browsing Would you recommend our site to others?: Yes Comments: On Nov. 8, I put my Shepherd mix Paco down. It had been 14 months since the first signs of DM. As many of you have written here it was an agonizing, horrible decision to have to make. Shortly after the diagnosis, I thought I could stick it out until he stopped walking but as things got worse and worse I found it impossible to wait that long. I'm still suffering from guilt, but am getting better, and starting to accept the fact that maybe, just maybe, I made a correct and humane decision. In my case, that is. I know how personal each situation is and only each individual dog owner knows when the time is right. The following is a copy of an email I wrote to Marjorie, the founder of this site, three days before he was put down: "Dear Marjorie, My name is Jim and I'm dealing with my shephard mix Paco and DM. He's ten years old, and judging by what you've written he's in the early-late stage of DM. To top it off, I live in San Francisco in a multiple story house surrounded by steep streets. Paco has been diagnosed via a myelogram as well as all the other typical symptoms, and is currently having great difficulty balancing while defacating, he frequently falls to a sitting position while out for walks, but he still has the bright eyes you mention Jack Flash continued to have. I think it's a lot harder for me than for Paco. I'm crying almost daily (this from a mentally stable, 47 year old man, who is far from a crying type of person), especially when we're out for walks and he's unstable, falls down, etc. The reason I am writing you I think, is to seek a form of absolution which I have no idea whether you can offer or not. Paco can still walk, and at times he even trots and runs for short periods. But I am suffering so much watching him fall apart that I think may put him down sooner rather than later for my own quality of life. I am consistently depressed, sad, and emotionally exhausted. I feel terrifically guilty even thinking this when I look into his searching eyes. My friends and family tell me it is more than time to go ahead but as you are no doubt aware, it is next to impossible when one's dog still looks at you with all that love and trust in their eyes. My vet also concurs that Paco is at a more than justifiable point to do this. What do you think? You took Jack much further than where I am now, I find that so admirable. But I don't think I can do that yet at the same time I don't want to betray my beloved dog's trust. Thank you for heartfelt writings on the web." For better or worse this email was returned undelivered. But I went with my gut. Three days later Paco was put down in the peaceful environment of his own home. I'm lucky enough to have one of the greatest friends a person can have, who came to the house and was with him to the end. I could not bear to watch him die, and surely he would have sensed my extreme upset. In the end, putting him down was FAR harder than I expected, the grief was and is immense. But I'm recovering, as will you other owners whose dogs are also suffering from this terrible affliction. Best of luck to everyone on this site, it's been an enormous comfort through a very difficult time. Here's to a cure one day for DM. Entry: 2005-11-17 18:50:43 Visitor's Name: Densie Homepage URL: No website supplied You are from: Michigan How you found our site: surfing net Would you recommend our site to others?: yes Comments: Your site is great.Very helpful. I have a friend that has a 10 month old paraplegic bunny that she adores.She rescued it from a bad living situation. She absolutely adores this bunny. She had made the comment to me that she wished he had a wheel chair to use as he is young and could make good use of it. I was going to buy her one,but unfortuantely they are out of my price range. He's a 6# bunny and I would buy used if I could find one,but haven't seen any. Anyway, your site is great. THanks dmd Entry: 2005-11-14 08:52:25 Visitor's Name: John Chambers Homepage URL: www.jccnc.co.uk You are from: UNITED kINGDOM How you found our site: Net Search Would you recommend our site to others?: Absolutly. Comments: It is with great regret that Amber our 12Year old GSD bitch went to join her brothers and sisters peacefully after having been put to sleep on the 11th November 2005. Amber fought the DM disease with vigour and such courage for several months but could no longer continue the battle falling over and fighting to stand up, she was a loving and happy doggy to the end and left us with dignity and her respect in tact. We are all so devistated here and Amber will always be in our Hearts and Minds for ever more. We know now that she has been set free from this terible disease and is running free as she did when she was younger. We hope and pray that a solution will be found to this cripplerling disease sooner rather than later and GSD will no longer have to suffer. Our thoughts are with one and all who has been or is going through this heart wrenching time. We have so many happy times with Amber over the years from been a Puppy to her demise and that is what is currently keeping us going. We see her now stretching out over the Heavenly Fields without a care in the World where Amber has no restrictions and the Horizon never appears. We will always LOVE her. Entry: 2005-11-14 03:11:46 Visitor's Name: Glynda Holman Homepage URL: No website supplied You are from: Conway, Arkansas 72034 How you found our site: My daughter found it while helping me research DM Would you recommend our site to others?: Absolutely Comments: This is a beautiful site. It is most informative and helpful. I filled out you survey and tried 4 or 5 times to send it, but it kept telling me to put in a valid e-mail address and correct name. The information was correct, but I never could get it to send. I'll try again later. Entry: 2005-11-13 23:26:01 Visitor's Name: Dorothy Shelton Homepage URL: none You are from: San Diego, California, USA How you found our site: Researching on the web Would you recommend our site to others?: Definitely Comments: I am so grateful to have found your website. It has been very helpful and has given me hope that perhaps we may be able to help our Great Pyrenees dog. Entry: 2005-11-10 18:00:33 Visitor's Name: Sandra M. Bak-Chrisco Homepage URL: No website supplied You are from: Myrtle Beach, South Carolina USA How you found our site: Web Search Would you recommend our site to others?: yes Comments: This is a very helpful site. Thank-you Entry: 2005-11-07 21:54:10 Visitor's Name: Janet Ayling Homepage URL: No website supplied You are from: England How you found our site: Searching for info on spinal disease in GSD's Would you recommend our site to others?: Most certainly Comments: Reading your site broke my heart but at the same time gave me the information I so deperately needed. My beautiful 10 year old GSD Kye has recently started showing signs of DM. Entry: 2005-11-07 14:36:14 Visitor's Name: Eileen Jordan Homepage URL: www.logi-tec.co.uk You are from: Ripon, North Yorkshire, England How you found our site: Searching for guidance and a cure for CDRM (DM in USA) Would you recommend our site to others?: I would recommend it all dog lovers - irrespective of breed Comments: I have just found your website whilst searching the net, as you did, for some lifeline to help me with the CDRM my German Shepherd "Sabie" (Sabastian Superstar) is now experiencing. I lost my beloved "Ziggy" (Ziggy Tinkerbell) to this most dreadful disease on 17th October. Both dogs were rescued from the German Shepherd Rescue and so I have no way of knowing anything about their background. Ziggy was tied up in a forest and left to starve and I was offered her when my previous beautiful rescued GSD "Shone" died at 11½ years old. For two weeks there was no wagging tail and she would only stay in one corner of a sofa. Her eyes were dead and she was terrified of us. On returning home from work one day she was there behind the glass door of the front porch waiting for me, eyes bright, yapping and tail going round like a propeller. The love affair began and contiued for almost 10 years. When our first six months with us had gone by we took in another GSD - Sabie, and they were never separated for anything other than vet appointments until she died. I write this now with tears rolling down my face and brace myself for having to watch this ghastly, hideous disease grasp Sabie who is a most wonderful dog and is already lost without Ziggy. I hate breeders. If they can breed in colour, stance, temperament, eye colour and anything else the Kennel Club digbats feel appropriate why can't they breed this thing out? Sabie has been through a course of steroids and we visit the vet tomorrow for a progress report. Ziggy had acupuncture, swimming, and anything else I could through at her but in the end I could not bear to see her drag her back end along as she tried to follow me on the last morning. She was worthy of every tear I have cried. I wish I knew of a Dr Clemmons at this side of the pond. Your website is a lifeline and a light to show others so far away that we are not alone in our grief. Your beautiful Jack Flash was so like Ziggy when he was a youngster. Ziggy never did grow into her ears and had earned the name "fruit bat" - she was a joy. Entry: 2005-11-06 01:12:50 Visitor's Name: George Denison Homepage URL: No website supplied You are from: Wichita, KS 67217 How you found our site: Remadyl search Would you recommend our site to others?: Yes Comments: I have a nearly full bottle (#87) of 75 miligram Remadyl chewables to donate to someone for their Pet, buddy or loved one. They're too expensive to throw away. I can be contacted at the above e-mail address or calmissplaced@msn.com Entry: 2005-11-05 05:32:38 Visitor's Name: George and Jeanette Denison Homepage URL: George and Jeanette Denison You are from: Wichita, KS How you found our site: Surfing the web for info on Remadyl Would you recommend our site to others?: Yes Comments: Last week we had to make the toughest decision we ever had to make. Our Lab-Rot Gertie was put to sleep. She was 13 1/2 and was very much loved. She was afflicted with seizures when we first got her. Her eyes would glaze over and her head would shake, and she would search out one of us to sit on the floor with her and comfort her until they quit. After trying several drugs from the vet, it was found that Phenobarbitol controlled her seizures. Then she started limping. The vet said it was her cushuary tendion, it had gotten torn. $1800 later she was out running around again having a ball. We had been warned that her hips were wearing out and it would be only a matter of time. She also had arthritis, which the Remadyl helped with some. Her rear finally gave out and she could barely walk. She was a great dog and very much loved. Too much to be allowed to be in pain the way she was. For the sake of your Loved one, I hope you can make the required decision when the time comes. John Edwards, Von Pragg, Silvia Browne all say that we will see our loved ones again. Be strong. Taking care of our loved ones can be stressful. Entry: 2005-11-05 03:32:53 Visitor's Name: Terry Stange Homepage URL: No website supplied You are from: bay city, mi 48708 How you found our site: by chance Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-10-23 02:48:29 Visitor's Name: Debbie Homepage URL: No website supplied You are from: Elyria, OH How you found our site: Web Search Would you recommend our site to others?: Definitely, Yes Comments: My white german shepherd(Sheba) was diagnosed with DM in August of 99/I was told to put her to sleep; there was nothing that could be done!! The muscle tone in her hips was almost non-existent and she had difficulty walking. At that time, she was 7 years old. I refused to believe that there was nothing that could be done. I got on the internet and found some articles regarding Dr. Clemmons treatment and began receiving automatic shipments of the vitamins and amino acids from a lab in FL. There was a remarkable improvement in her condition and her mobility returned as well as the muscles in her rear hind quarters. She was able to walk and run as well as play again. IT WAS TRULY AMAZING! We managed to prolong her life six more years. Sadly, we had to have her put to sleep-October 17, 2005. She began stumbling and falling a lot and could not keep her balance. She became ill one morning and within 2 days could no longer get up at all. She lived to the ripe old age of 13+. We were told that we were lucky to have her as long as we did with this horrible disease. WE WERE TRULY BLESSED TO HAVE HER AS PART OF OUR LIVES. SHE TOUCHED SO MANY LIVES DURING HER STAY. SHE IS MISSED TERRIBLY. WE ARE TRYING TO COPE WITH OUR LIVES WITHOUT HER!!!!!!!!!! IT IS SO HARD NOT HAVING HER HERE ANYMORE!!! Entry: 2005-10-22 13:23:14 Visitor's Name: jean vickers Homepage URL: No website supplied You are from: danville,wv How you found our site: a friend from the Neuf.net Would you recommend our site to others?: yes---very helpful Comments: we have a definitive diagnosis and have begun a medication routine, and exercise routine that is slowing the dm a little. Zena is so brave and determined. i would like to hear from some of you about your experiences with the wheeled carts--and from anyone experienced with the friction sores developing on heels...I am grateful for the company of others with this disease in their beautiful companions....jeanvickers@aol.com Entry: 2005-10-18 19:34:29 Visitor's Name: Carol Wood Homepage URL: No website supplied You are from: Sheffield,England How you found our site: Would you recommend our site to others?: Have done on a regular basis. Comments: I told you in May of the fight which my beloved Arko was making against this dreadful disease but he lost his fight on 3rd.October. I am now trying to cope with the guilt of having my beautiful, trusting boy euthanized. Part of me has gone and I know that as long as I live I will not be able to recover from this. I feel absolutely inconsolable. Thank you for your site which has been a comfort to me. Entry: 2005-10-17 19:49:09 Visitor's Name: Bridget Homepage URL: No website supplied You are from: Seattle, WA USA How you found our site: Google Would you recommend our site to others?: Yes Comments: I have a wheelcart, hind sling and an unused bottle of Antiox QCB to donate to a German Shepherd with DM. Email me at bridget_hall@msn.com if interested. My German Shepherd boy, The Mighty Quinn, was put to rest on September 12th, 2005. He was diagnosed with DM after an MRI and other tests from Dr. Clemmins diagnostic procedures were evaluated. This was in Novemebr of 2004. The disease progressed rapidly leaving his hind legs completely paralyzed by March. I had the flash test done and it came back negative, but this does not indicate that a dog does not have DM. I fit him with a wheelchair the next month and he was his old self again. There's not much he couldn't do with the aid of his wheels. He was back to chasing squirrels, bunnies, frisbees, 3 mile walks, wadding in the lake, hikes on wide paths, even going down stairs was a breeze. Unfortunately the disease is degenerative and it began affecting his organ functions. He became completely incontinent which left him stressed thinking he was being bad when he went indoors. He was losing a lot of weight, his hair began coming out in clumps and his coat was dull. I decided to let him go peacefully and not let him completely deteriorate. I wanted his last days to be great ones. I struggle with my decision every day. Entry: 2005-10-13 06:26:36 Visitor's Name: Tim Baker Homepage URL: No website supplied You are from: Ethel, Missouri, USA How you found our site: linked off another site found wth Google Would you recommend our site to others?: yes Comments: I'm afraid that our GSD, Rex, has DM. He is now at the University of Missouri School of Veterinary Medicine for further tests and evaluation. I found your site tonight while trying to find more info about this horrible disease. It is very informative about what we are facing. I'll also check out the message board and chat areas. Entry: 2005-10-13 06:16:00 Visitor's Name: Tim Baker Homepage URL: No website supplied You are from: Ethel, Missouri, USA How you found our site: link off another site found wth Google Would you recommend our site to others?: yes Comments: I'm afraid that our GSD, Rex, has DM. He is around 12 years old, very healthy and active, but he has been deteriorating since April/May. Our vet diagnosed him as having liver disease, however readily admitted that neither he nor his associates really knew what the problem was. Through our study, my wife and I came to believe he suffered from something else. We finally broke down yesterday and asked our vet to get Rex an appointment to the University of Missouri School of Veterinary Medicine. They got him an appointment for today and my wife took him there. After a very thorough exam, they had drawn no firm conclusions, but DM was mentioned as a possibility. Rex is spending the night there tonight, and our home just isn't the same without him. Our other GSD, Bo, and Peepers, Entry: 2005-10-11 22:17:15 Visitor's Name: Eddie Blair Homepage URL: none You are from: Huntsville, Alabama USA How you found our site: Google search Would you recommend our site to others?: Yes!!! Comments: Anna is 14, and looks strikingly like Jack Flash. She is declining rapidly physically but has a great attitude. She's handling this better than I am... Entry: 2005-10-07 13:33:49 Visitor's Name: Robert Black Homepage URL: No website supplied You are from: san diego, california, USA How you found our site: Yahoo search engine Would you recommend our site to others?: Yes Comments: Thank you for sharing your experience and this great site with Blanco and I. Entry: 2005-10-04 18:12:34 Visitor's Name: Lenika Brooks Homepage URL: No website supplied You are from: wsnc How you found our site: mother Would you recommend our site to others?: yes ,sure Comments: Yes i would be glad to tell people about this well thanks i wish you the best. Entry: 2005-10-04 14:03:59 Visitor's Name: Jennifer Homepage URL: none You are from: Macon, GA How you found our site: Research on internet Would you recommend our site to others?: YES!!!! Comments: I remember when I found this site a few months ago. I was terrified at losing my girl, Barakah (WGS). The message boards, unfortuantely gone now, were heaven sent, I believe! I miss them terribly. I emailed Marjorie, but for those of you that don't know, my parents and I made heart wrenching decision to have Barakah euthanized on September 14th. I have never in my life experienced something so painful!! It was not until AFTER we made this decision that Barakah began to show us how severely she was declining. She was up at night whimpering/crying. I'm not sure that it was all about pain, but also about being loneley and scared. She just wanted someone to be with her. Anyway, this affirmed that we had made the correct decision! We all miss her something terrible. My heart aches for her. She has been apart of my life for 11 years and I still can't grasp that I'll no longer get hugs and kisses from my sweet girl. It has been 3 weeks now. Unfortuantely, time does not heal all wounds, but my memories of her keep me going! I am making a scrapbook of Barakah to keep these memories alive. I know that I will mourn her the rest of my days, but I also know that she is once again running free and chasing those squirrels...maybe this time, she will catch one:-) Entry: 2005-10-04 09:10:25 Visitor's Name: Mauricio Contreras Homepage URL: n/a You are from: Sabinal, TX How you found our site: research on paralysis of my german shepard Would you recommend our site to others?: Yes! Comments: Your website has been very inpirational to my family and I. We have a German Shepard named Cowboy. Until 4 weeks ago I noticed he started losing weight and he would not jump up and greet me as he would for years. His hind legs would tremble and now he doesn't even get up to be let outside. The vet said it was arthritis. I have had him for 8 years now. I will make his days better and buy him a dogroller. I know the final outcome. My daughters and son and wife all agreed to make his days left the best! Thank-you Entry: 2005-10-03 17:06:43 Visitor's Name: Patricia Tisdale Homepage URL: No website supplied You are from: Snohomish, Washington USA How you found our site: Searching for help with DM Would you recommend our site to others?: Yes Comments: What a wonderful legacy Jack Flash has left us all. Entry: 2005-10-02 17:04:43 Visitor's Name: James T. Fallon, Jr. Homepage URL: No website supplied You are from: Spring, Tx How you found our site: The German Shepherd Quarterly and Internet research Would you recommend our site to others?: Unsure Comments: I cannot read the message boards. When I tried to do the survey I could not send it. The message said I had not properly entered my name and email. I have read some of your information and it is helpful. Entry: 2005-10-01 02:51:35 Visitor's Name: Diane Lamas Homepage URL: No website supplied You are from: Rockville, MD How you found our site: Internet search Would you recommend our site to others?: Yes, absolutely! Comments: Just want to let everyone know, I had the flash test done for Ace. The results are negative!!!!!! Sure miss the message boards! Peace, Diane Entry: 2005-09-29 01:45:36 Visitor's Name: john galczynski Homepage URL: http://rentnet.org You are from: Marietta, Georgia How you found our site: from memory, did a Google search on DM Would you recommend our site to others?: yes, definitely Comments: On 16 August 2005, Reggie, at 12 years 7 months, was euthanized by Animal Control for medical reasons - apparently he was hit by a car a few days earlier. Reggie was Shanney's protector - She is listed here on 20 December 2001. Reggie loved attention and warmed the hearts of those who met him, as they asked about the chap later. Reggie's gusto for life along with his friendly "come-on, you can pet me too" manner won admirers and made new friends wherever he went. Reg reminded me that life is short, and we have to make the most of it while we are around. Reg brought happiness by the minute and he is missed often. Thank you Marjorie for bringing back and making better your wonderful website which enables so many to share their stories. Entry: 2005-09-28 06:30:12 Visitor's Name: WhisperMel Homepage URL: No website supplied You are from: 29 palms, ca USA How you found our site: on another dog site Would you recommend our site to others?: yes Comments: when my Wolfie(m/collie/PTS at 9yrs) was dying with this, there was nothing to do for it, according to his vet. he went down, and was PTS 8 mos later. i know now what to watch for, and pray i don't loose another collie or any dog to this. i treated him with muscle relaxors, prednisone, elavil(anti-depressant)/Proin for bladder control. whisper/M/smooth-coated collie/seizures once a month for the last 4 mos mel/F/55/human mom to whisper/disabled Entry: 2005-09-27 02:09:26 Visitor's Name: Debra Homepage URL: search engine You are from: UK How you found our site: search engine Would you recommend our site to others?: Yes Comments: debra.smith7@btinternet.com - I have read many of the comments and I am saddened by what I see, until this week I had no idea this disease even exisited. I have cried for 48 hours and am afreaid to lose my dog to this dreaded illness. Can anyone help me through it - please email me as I dont think I have the same strength of mind or the wonderful character of my beautiful companion.I feel like I am folding under the weight of decisons and sadness. I wish I could be as dignified and optimistic as some of you but my heart is aching and I am afraid to say goodbye to her. Entry: 2005-09-27 01:58:27 Visitor's Name: Debra Homepage URL: No website supplied You are from: UK How you found our site: SEARCH ENGINE Would you recommend our site to others?: YES Comments: I found this site really useful as I am at a complete loss to discover my pet 'Abbey' has this illness and there is absolutly nothing I can do to reverse it. I had no real understanding of what to expect and now I do, I am devasted but thank god I found you Entry: 2005-09-23 21:13:10 Visitor's Name: Susan Homepage URL: No website supplied You are from: Cody, Wy USA How you found our site: Research on DM Would you recommend our site to others?: YES...YES...YES Comments: I wrote in your guestbook July 30, 2004, after my female GSD Timber had been diagnosed with DM. Since then, we have been giving her a daily dose of several vitamins along with Aminocaproic Acid. We did do acupuncture for about 5 months too. For the last 4 or 5 months now, she has been unable to use her hind legs. She basically pulls herself around with her Still strong front legs. It's amazing how fast she can move sometimes. She does have a few sores on her feet and now on her "knees" from dragging over rough territory. My husband is still trying to get a cart built, but it still needs many adjustments. I'm not sure how much longer we have with her, but I pray it's a while. I'm so very proud of her. She's such a good girl. She has such determination and still a lot of "SPUNK" left in her. I know her time is short, but we are making the best of it while we still can. I PRAY....that they find a cure for this hideous disease that has taken (by the looks of all the entries) so many lives. THANKS FOR YOUR WONDERFUL WEBSITE!! Entry: 2005-09-22 09:30:25 Visitor's Name: Suzanne Hickel Homepage URL: no web site at this time You are from: Gig Harbor. WA 98329 How you found our site: Looking for infromation about DM on the internet. Would you recommend our site to others?: YES! Comments: I found your site tonite while looking for info about DM. My 12 year old GSD Klaus (German Name) has this terrible disease. My vet suspected it. I am torn as to what to do. He can no longer walk very far with me. My gut instinct tells me to love every moment I have left with him and not to spends the hundreds of dollars on treatments knowing he only has a few months left. I know he has arthritis too. This dog is my beloved companion and I could hardly make it through reading all the comments. It is unbelieveable how many have written you to tell you their dogs have DM. I am now more familiar with DM than I ever wanted to be. So I will pray about it and decide what course of action to take. Your site is invaluable. Thank you for all you do. Suzanne Entry: 2005-09-20 23:41:11 Visitor's Name: Linda Burger Homepage URL: No website supplied You are from: Zelienople,Pa,USA How you found our site: GSD Review Would you recommend our site to others?: Yes Comments: Need support to get through this Entry: 2005-09-20 19:00:05 Visitor's Name: Eric Zall (Chief) Homepage URL: No website supplied You are from: Park Forest, IL 60466 How you found our site: Googled GSD Diseases Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2005-09-18 20:21:36 Visitor's Name: D.Taylor Homepage URL: No website supplied You are from: Albany NY US How you found our site: snooping Would you recommend our site to others?: yes Comments: This site makes me want to cry. I wish our animals could live forever, with no pain or loneliness.And if thats to much, maybe we'll meet them again in a much better place. Entry: 2005-09-17 22:53:54 Visitor's Name: Freny Jokhi Homepage URL: No website supplied You are from: Atlanta, GA, USA How you found our site: Treatment for Degenerative Myelopathy in German Shepherds Would you recommend our site to others?: Yes! Very informative and moving Comments: Our sweet, gentle girl is only 9 and has been diagnosed with DM. We are planning to visit Dr. Clemmons per our neurologists reccomendation. Keeping our hopes up for her well being. Entry: 2005-09-05 16:39:43 Visitor's Name: jean vickers Homepage URL: No website supplied You are from: danville,wv How you found our site: referred by friend via the Newf net Would you recommend our site to others?: yes! Comments: Am at the beginning of the diagnostics...jury is stillout waiting for MRI, and labs back. It is calming me to hear how others have processed, and dealt with this...i want to do my best for my girl...as she has done,all her eights years, for me. Entry: 2005-09-02 03:21:05 Visitor's Name: Gayle Wedgwood Homepage URL: No website supplied You are from: Stateline NV USA How you found our site: searched DM Would you recommend our site to others?: DEFINITELY!!!! Comments: What a beautiful memorial! My German Shepherd, Eros, 10 1/2 yrs, has a degenerative condition that may be DM, and I am searching for any and all info. I can't get over the comprehensive info on your site, not to mention the music. I cried the whole time. I am so pleased that there are people like you out there. Right now, every day I have with my big boy (toy in mouth, eyes intelligent and clear) is a blessing. Entry: 2005-08-22 23:49:31 Visitor's Name: John Homepage URL: rentnet.org You are from: Atlanta, Georgia How you found our site: google, and memory Would you recommend our site to others?: yes Comments: Hi Marjorie, Your site sure has changed. I see you are educating the public about DM. That's wonderful! Sadly, I have another to add to the ranks of DM, his name is Reggie or Reginald or Reginald Bo. Reggie was euthanised or put to death by CO2 gas chamber on 16 August 2005 at 5:30pm. Reggie a wonderful shy friend who had a gusto for life. Reggie entered into the beginning stages of DM about a year and eight months ago. He died at about 12 years 8 months of age weighing only 79 pounds. Five years earlier, Reggie weighed around 120 pounds. Reggie protected Shanney, another wonderful German Shepherd, who died naturally from DM on 20 December 2001. Thank you for a wonderful site in tribute to our wonderful friends. Reggie was truly my best friend and he is buried in my heart forever. Entry: 2005-08-21 21:08:20 Visitor's Name: Shannon Ferguson Homepage URL: No website supplied You are from: Batavia, NY, USA How you found our site: WestLab Pharmacy sent a notice Would you recommend our site to others?: yes Comments: It's devistating to learn of diseases that will take our precious friends from us but I will do whatever I can to keep my Dallas with me as long as possible. Any information is helpful. I continue to try to stay positive and and make whatever time we have left together as normal as possible. The potential of dogs to effect our lives continues to amaze me. After reading some of the entries on this site (through tears of course), I realize there are many others who regard their dogs as highly as I do. Dallas is my family and is doing fairly well on Dr. Clemmons' program. I would advise others to do all they can for these wonderful companions who give us unconditional love every day. Entry: 2005-08-18 13:02:28 Visitor's Name: Kristen Miller Homepage URL: No website supplied You are from: Woodbridge, VA US How you found our site: searching about information on DM Would you recommend our site to others?: yes Comments: Very informative. Entry: 2005-08-18 02:29:34 Visitor's Name: Don Scott Homepage URL: No website supplied You are from: Port Washington, NY How you found our site: My wife fnd it aftr our Montana was diagnosed... thank you. Would you recommend our site to others?: yes Comments: I read your homepage tribute to Jack Flash and it struck me that it could apply to a dog or a person. I have felt this way about many of the people--and dogs- I have been fortunate to know. Thank you. Don Entry: 2005-08-17 04:41:23 Visitor's Name: Colleen Z Homepage URL: May111974Forevr@aol.com You are from: Schenectady, NY How you found our site: browsing about DM and also laryngal paralysis Would you recommend our site to others?: Absolutely! Comments: Polly, from Springfield, MO, who posted on 7/16, at 11:49 a.m., who wrote about your beloved Moose, I would really enjoy hearing from you. Please feel free to email me--we too put our beloved Black Laborador to rest the very same date--at the very SAME TIME that you posted about saying good bye to your best friend Moose in 4 1/2 hrs--which was the EXACT TIME that I READ your post. Please contact me. I just didn't think it was an 'accident' that I'd read your post that afternoon, and realized you posted at the very time we were saying goodbye to our Shadow. Thanks and may God grant you Peace as you grieve. Though we too still grieve, we have peace in our hearts that we did the very best thing for our beloved best buddy, after promising him we would never let him suffer. He gave us 13 years of unmeasureable love, the least we could do was let him go in peace and dignity. <big sigh... Shadow, we miss you so much!> Colleen Entry: 2005-08-16 21:07:34 Visitor's Name: Amanda Baltierra Homepage URL: No website supplied You are from: Salinas, CA How you found our site: Previously browsed Would you recommend our site to others?: Yes Comments: On 4/6/05, at 10 1/2 years old, I chose to let my boxer, Joelle, go due to complications associated with DM. I feel that DM didn't take her life but simply it tired her. This condition opened a whole new world of love, respect, responsibility, dedication, and the treasure of precious time. We connected with Becky Lewis, RVT, who is certified in K9 rehab in our area of Monterey, CA. Fortunately, Jo was on the move for 2 1/2 years following her diagnosis. Although this condition has an inevitable outcome, I highly encourage all with DM dogs, no matter what breed, to give them the best care to your abilities. I would love to advise and support anyone who may need assistance from a DM dog owner. Being a sounding board is a specialty of mine, too. Joelle's condition changed my life and my character. I am grateful for all that her life has provided me. Entry: 2005-08-14 05:00:39 Visitor's Name: andy comins Homepage URL: www.andycomins.com You are from: los angeles, ca, usa How you found our site: through www.canineaquatics.com in la Would you recommend our site to others?: yes Comments: Thanks so much for your love and information. I'm looking for recommendations regarding a veterinary neurologist in LA. Any thoughts? Entry: 2005-08-12 20:16:18 Visitor's Name: Kristine Parker Homepage URL: n/a You are from: Bend, OR USA How you found our site: Westlab Pharmacy Would you recommend our site to others?: Yes Comments: I just wanted to say how great it is that you loved your dog so much! Our Shepherd turned 10 this year - and was diagnosed 3 years ago with DM. He is doing well on the Dr. Clemmons protocol - we are lucky! It is great you keep informed on the progress of research and your website is a great resource for others. I too am constantly looking up info and refuse to give up! Entry: 2005-08-02 19:42:57 Visitor's Name: Tony Roberts Homepage URL: www.swimyourdog.co.uk You are from: Conwy, North Wales, United Kingdom How you found our site: Surfing! Would you recommend our site to others?: Yes Comments: Hi Fantastic site, well done..would you mind if we put a link from ours ( we run a hydrotherapy pool in UK) Tony Entry: 2005-08-01 02:23:55 Visitor's Name: Angie Reeves Homepage URL: No website supplied You are from: Cedar Park, TX How you found our site: google Would you recommend our site to others?: YES Comments: I am stuggling with Calle right now, she is losing her appetite it seems and I just need prayer making a decison. It is so hard, thank God for me reading this site. My eyes are red, and tommorrow I will take her to the vet after the weekend of her not eating much. I encourage you to stay on this site for comfort. Angie Entry: 2005-07-29 04:14:21 Visitor's Name: lisa smith Homepage URL: No website supplied You are from: ok How you found our site: just searching and searching Would you recommend our site to others?: definitely Comments: Loved your story, although I could hardly read it through the tears. Could have been my story about my beloved,Bailey. Entry: 2005-07-27 22:23:17 Visitor's Name: Tony Marchionda Homepage URL: No website supplied You are from: Welland Ontario Canada How you found our site: Through Yahoo Would you recommend our site to others?: Yes Comments: It seems that my dog Dakota is in the middle stages of DM . We had brought him to our vet, at the time she was not sure. She put him on medication that relives the swelling of the spinal. It made him about 50% better, but the rear legs are not what it should be. If he turns a litter quicker than normal, his back legs just drop. I had this happen with my last dog also a gsd and doberman cross. Because of this i will not get another GSD. Dakota is 11 years old. Entry: 2005-07-26 01:50:08 Visitor's Name: Peggy Connor Homepage URL: No website supplied You are from: Morrisville PA How you found our site: vetinarian suggested Would you recommend our site to others?: yes Comments: I just found out about an hour ago that my beloved and faithful dog, Rio, has DM. I am sitting here crying my eyes out..I cannot imagine life without her.. Entry: 2005-07-25 15:04:26 Visitor's Name: Kristen C Homepage URL: No website supplied You are from: Littleton, MA How you found our site: Dogpile Would you recommend our site to others?: Yes Comments: I believe my 9yr old german shp/doberman dog has DM, my vet thinks he has it also but on friday he gave us antiflammatury meds. But after reading about DM I see that Tyler has all the signs. Some he has had for awhile, he has extremly long legs and has always has some sort of problems. Entry: 2005-07-25 06:04:03 Visitor's Name: shannon Homepage URL: No website supplied You are from: USA How you found our site: google Would you recommend our site to others?: yes, in fact i think you should promote it Comments: Great site! Entry: 2005-07-22 00:54:08 Visitor's Name: cheri korcsog Homepage URL: No website supplied You are from: toledo,ohio How you found our site: google Would you recommend our site to others?: absolutely Comments: Hello, your website is wonderful it is helping me through my tough times. I just found out on 7-5-05 that my 8 yr. old Sheperd Taya has DM and it's heart breaking!! She's mommies special girl. I'm just devastated. Entry: 2005-07-20 20:34:32 Visitor's Name: Mandy Homepage URL: No website supplied You are from: England .uk How you found our site: Searching for information on the net Would you recommend our site to others?: Yes Comments: Hello, Ive just come from the vets, and had my 7 year old sheperd diagnosed with the disease... Literally breaking my heart,,,never thought she would of got it as her mother is as fit as a fiddle...this site is lovely to read, and very informative. I shall come back here many times Im sure... Thankyou you very much Mandy Young (England) Entry: 2005-07-20 01:17:32 Visitor's Name: Pam Smith (Yogi, a 91/2 yr old Newfoundland Homepage URL: No website supplied You are from: Carmel, In How you found our site: Searching for info on google Would you recommend our site to others?: Yes Comments: Yogi was diagnosed today with Dm. He is in early stages and hopefully the medicines, diet and exercise will help. We want to keep him with us as long as we can. Entry: 2005-07-18 06:07:01 Visitor's Name: Karen Walker Homepage URL: No website supplied You are from: Port Saint Lucie, Florida, USA How you found our site: out of desperation and the loss of my precious Thunder Would you recommend our site to others?: yes, yes, yes Comments: Thank you for being so caring and informative of other people and their precious GSDs. I lost my poor Thunder before I found this site. 12/25/94 - 4/19/05. Please keep up the wonderful work. Karen Walker Entry: 2005-07-16 11:49:13 Visitor's Name: Polly Homepage URL: No website supplied You are from: Springfield, MO USA How you found our site: Google for information on DM Would you recommend our site to others?: Absolutely Comments: Thank you for your beautiful words about your life with your Best Friend Jack Flash. In 4 1/2 hours we will be saying good bye to my best friend and the love of my life due to this disease. We have fought hard and his eyes are still full of life and love. Three days ago My Moose went into his final stage and became paralyzed below his neck. He is in high spirits so I have waited praying for a miracle and looking for signs that he would get better. We spent today on the deck and being with guests on his pallet in the family room floor. I know this is no life for my wonderful friend and companion. As a working dog he has always been active,even accomplishing his ritual of catching a garter snake in the yard just a month ago to protect me. You have given me the courage to let him go, the hardest thing I've had to do in a very long time. Carrying him (with help) and caring for him is not nearly this hard but I have to think about his quality of life now, not mine. Thank you for sharing your beautiful life with Jack Flash. You have both given me the courage to do what is best for my best friend, my love. I worried about his fighting leaving my side, thank you for the wisdom of giving him something to relax. I had a dream Wednesday morning that a child whispered into my ear "Even the Wind could not keep me from you". Wednesday evening he went down and I knew that he had come to me in a dream to say that he will never be far from me. Yours Gratefully, Polly Entry: 2005-07-16 02:06:20 Visitor's Name: Elspeth Tapp Homepage URL: No website supplied You are from: Aurora,Colorado How you found our site: google Would you recommend our site to others?: Yes Comments: I have a 6year old Great Dane and we are in the process of diagnosis for weakness to her back legs. I fear it is DM. This is a difficult time. She is such a love and tries so hard. I will do what I can. Entry: 2005-07-13 19:29:19 Visitor's Name: Corey Bauer Homepage URL: No website supplied You are from: Appleton, WI 54914 How you found our site: browsing Would you recommend our site to others?: yes Comments: I am the Canine Rehabilitation Coordinator at the Fox Valley Animal Referral center and have been rehabing many DM dogs. Was just cruising around and noticed your site. I would be interested in being contacted about your website. Entry: 2005-07-13 04:52:44 Visitor's Name: Colleen & Jack Z. Homepage URL: No website supplied You are from: Schenectady, NY, USA How you found our site: surfing Would you recommend our site to others?: Absolutely Comments: We have thought for a few years now that our Black Laborador Retriever was battling arthritus--which had progressed quickly after discovering he had lyme disease. He had not been vaccinated for the LD, because our verts didn't feel it was necessary at that time, since he is predominantly in our yard, doesn't roam free in woods, etc. Well one year was an epidemic and he did contract it. So be it--we then treated it and he improved rather well, except for what we thought was arthritus. We treated with Rhymadil and another med which I don't recall now--and they really didn't seem to give him relief. He had groaned a LOT when getting up and down. We also gave & continue to give him a glucosamine formula for humans by Andrew Lessman, called Joint Effort. When the prescribed anti-inflammatories didn't seem to cut his discomfort, I searched the internet and discovered an herbal product for humans once again, called Trivestin--which states it is two times stronger/more effective than Celebrex (which I was on for many years, battling arthritus myself--since completely healed of the pain through hydrotherapy with our hot tub) --too bad I can't get our Lab, Shadow in there. Well, in desparation to help our best buddy Shadow, I ordered some Trivestin (fully guaranteed)--and within a very short time, he improved so much. No more groaning. Able to walk somewhat better, etc., and has been on that for about a year or better. Well, the squeaky bark, dragging foot, very weak legs with difficulty getting up, and extreme shortness of breath from walking short distances to go to the bathroom, we brought him to his Vet. Our regular vet was on vacation, so we had one of the others in the practice and she diagnosed DM immediately and the more we talked, the more she was sure. After reading this website and other's stories, there is no doubt, but I can say for SURE that Trivestin has greatly improved his quality of life for at least the last year. She suggested we TRY steroids--and take him off the Trivestin, not being sure how the two would react together.... but we are not thrilled from his changed in behaviour from the steroids and are going to stop them immediately and go back to the Trivestin, continuing the glucosamine--and pray for his continued health for as long as possible. Our other prayer is that we know without a doubt when it is time to put him to sleep and send him over the rainbow bridge. We do not want our beloved buddy Shadow to suffer. He's just been too good to us all these years. He is 13 years, 3 months old and we are thankful for every day/week/month that we've had for the last year, after his first extreme attack for failure. Thanks for your great informative website and support! Again, we have found Tivestin to be a great relief of pain, with no apparent side effects at all. God Bless all of you dog/animal lovers, who choose to CARE for them and not abuse the very creatures that were put here to add enjoyment to our lives. g'night. -Colleen Z. Entry: 2005-07-13 01:20:06 Visitor's Name: Hilary Homepage URL: No website supplied You are from: UK How you found our site: GSD helpline newsletter Would you recommend our site to others?: Yes Comments: We made the agonising decision to have Jake our treasured GSD put to sleep on Friday 24th June 2005. I miss him so very much. He was dragging himself around after his hind legs collapsed under him. The look of bewilderment on his face breaks my heart even now. DM set in quickly - he was OK at New Year. Jake would have been 13 in August and although we have had all those happy years together, I still feel like I let him down. He trusted me and I did that to him. It was even more heartbreaking as his "front end" was alert and loving. I had to muzzle him and hold him down. It was horrible and I will never forgive myself for doing that to him. Having it done at home was meant to be less stressful for him but as soon as the vet shaved his leg he knew something horrid was going to happen. I only hope that he can forgive me. I should have done more for him. Entry: 2005-07-06 22:49:19 Visitor's Name: Mary Homepage URL: No website supplied You are from: United Kingdom How you found our site: Jack's site Would you recommend our site to others?: Yes, definately Comments: My GSD is 6 yrs old and been epileptic since 18 months and when our vet diagnosed DM I dismissed the idea and put his hind end weakness down to the ataxia caused by his medication for seizures. I believe the vet now and am heartbroken, what else has my Murphy to go through? He is very long haired, mainly black, straight back and looks exactly like a huge teddy bear. I cannot bear to even think what the future holds for him. Entry: 2005-07-06 20:55:36 Visitor's Name: Duncan Homepage URL: http://www.bettyke.com/indexeng.html You are from: Budapest, Hungary How you found our site: in the www.germanshepherds.com Would you recommend our site to others?: Yes of course Comments: This is a great site, a woderful tribute to Jack, and very useful for others who must fight again the DM! Entry: 2005-07-05 19:25:18 Visitor's Name: Cristy Homepage URL: www.savetheboxers.com You are from: Texas How you found our site: Searching Google. Would you recommend our site to others?: yes Comments: Thanks for this site.. its already a comfort during a very sad time in my home. Entry: 2005-07-05 00:23:13 Visitor's Name: Debbie Homepage URL: No website supplied You are from: Aurora, CO, USA How you found our site: google Would you recommend our site to others?: very much so Comments: I have beautiful ger shep, Beaujolais, so full of life, and smart. Looks alot like Jack Flash. Has had DM for about a year. Front paw for last week has been getting weak, hard for him to walk. Am brokenhearted. He's so alive and has such a spirit. Thanks to all for the support. Any new treatments or new? I work in the neurology field and have seen lots of MS in humans. Sometimes they world can be so unforgiving. But the happiness, joy, laughter, and protection Beau has brought me through the years has been worth it. Still, watching is painful. Thanks for being there all. Entry: 2005-07-02 04:32:16 Visitor's Name: crystal Homepage URL: No website supplied You are from: al. How you found our site: surfing Would you recommend our site to others?: definitly Comments: your site is wonderful and so helpful. jack flash is very beutiful. Entry: 2005-06-30 17:41:31 Visitor's Name: Jessica Craft Homepage URL: No website supplied You are from: Coppell, Texas How you found our site: google Would you recommend our site to others?: yes Comments: My beautiful 9 year-old German Shepherd, Samson, was diagnosed with DM a few months ago. I have watched him slowly lose the use of his back legs and now he cannot walk without assistance. All this time he has remained loving and cheerful. He still loves to go outside and play with his ball any way he can. He seems so healthy and happy in spite of his handicap that I cannot bear the thought of putting him to sleep. I have a wonderful vet that says I will know when it is the right time and she will come to my house to do it. It breaks my heart to see this happen to a wonderful dog that has loved and protected me all these years. I give him good food, vitamins and exercise but I wish there was more I could do for him. None of the medications we tried made a difference. Now I am grateful for every extra day I have with him. Entry: 2005-06-30 03:45:47 Visitor's Name: Lori Homepage URL: None You are from: Westchester, NY and Boca Raton, FL How you found our site: Internet (MSN search) Would you recommend our site to others?: YES Comments: Curly, my beloved male gsd is only 7 years old and has the symptoms of DM. I am going to have my vet send Dr. Clemmons a DNA sample and if it is positive I will then start the recommended treatment. Curly survived bloat surgey only a year ago, so this is devastating. I also have a famale Cleo who is 6 years old. I can not imagine losing either one of them. I love them both so much. Jack was a beautiful boy. Thanks for your work on developing this web site. It helps to know what to expect, even if it isn't always good. Entry: 2005-06-29 20:10:45 Visitor's Name: JodyB Homepage URL: No website supplied You are from: Port Townsend, WA, Jefferson How you found our site: google Would you recommend our site to others?: Comments: My 12 1/2-y.o. GSD may have DM. Tail has been dragging for months and she started knuckling over on the right rear foot a month ago. A four-footed angel who has been my constant companion since she was 9 weeks old. I've always known our time together would end and I'm just grateful we've had this long together - my last shepherd died of cancer at 9 and I had only 4 days' notice before he was so ill we had to make the decision. At least with DM I can say goodbye properly. Jenny's last summer is going to be as good as I can make it. I keep thinking of the line from "The Prophet": "The more sorrow carves out your being, the more joy you can contain." Jenny's loss is going to set me up to hold a lot of joy some day - I comfort myself that that will be her legacy. Along with so many good memories. Entry: 2005-06-25 23:15:43 Visitor's Name: chris Homepage URL: No website supplied You are from: sharon, pa How you found our site: Would you recommend our site to others?: Comments: (No comment made) Entry: 2005-06-24 02:33:19 Visitor's Name: Jack Homepage URL: No website supplied You are from: Southern NJ How you found our site: accidentally Would you recommend our site to others?: sure Comments: In April 2004, my GSD, Fritz had his yearly exam. All was normal as was his bloodwork. In Oct. 2004, he started limping on one hind leg. By Feb. 2005 he could not walk. His tail was down and his back feet turned under. The last night before taking him to be euthanized, he lost all control of his bowels. It was a quick 6 months and it happened so fast I am still trying to believe it really happened. It seems like a nightmare. Entry: 2005-06-23 20:11:20 Visitor's Name: Al & Jeffra Clough Homepage URL: No website supplied You are from: Juneau, Alaska How you found our site: researching DM Would you recommend our site to others?: yes Comments: Our 9 year old German Sheperd Zeek was recently diagnosed with DM. We researching treatments that will slow this horrible disease. Entry: 2005-06-17 20:56:29 Visitor's Name: Carol Wood Homepage URL: No website supplied You are from: Sheffield, England How you found our site: Google Would you recommend our site to others?: Certainly Comments: My heart is truly breaking as I watch my beautiful boy Arko - a 12 yr. old German Shepherd succumb to the final stages of GSM. After reading Jack's site I took comfort from your words but dont know how I will live with the loss of my beautiful boy. The loss I feel as I see him become weaker by the day is consuming me. Entry: 2005-06-14 01:05:48 Visitor's Name: Lisa Welter Homepage URL: No website supplied You are from: Wharton,NJ USA How you found our site: Pet Health Links Would you recommend our site to others?: Absolutely Comments: I lost my Maxamilion in 95 to DM. I kept him on this earth as long as I could, until that dreaded day came and I had to make the hardest decision of my life thus far. Thank goodness for the support of a loving vet, who recently had experienced the same situation. A flood of emotion came over me when I entered this site. It has been 10 years, and 2 GSD's later, but I still miss him terribly. May someone find a cure both human and in animals. Entry: 2005-06-11 23:22:20 Visitor's Name: Colleen Hamilton Homepage URL: No website supplied You are from: Calgary, Alberta Canada How you found our site: German Shepherds Etc in a general message board Would you recommend our site to others?: Absolutly...I think everyone should cry a tear for Jack Comments: What a magnificant dog! How proud you must be...I'm on a waiting list for my dog, her name will be ~Tia~, I can only hope she'll be half as beautiful as Jack Flash~ Entry: 2005-06-11 23:16:46 Visitor's Name: Julianne Moore Homepage URL: No website supplied You are from: Park Hills, Mo. How you found our site: Through a link on GSDetc Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-06-10 22:33:00 Visitor's Name: SUSAN EIBEY Homepage URL: No website supplied You are from: Covington, Washington, USA How you found our site: On the internet 3 yrs. ago when my Jazz was diagnosed. Would you recommend our site to others?: yes Comments: I was devastated when Jazz was diagnosed with DM. I found this site to learn what to expect. Now 3 yrs later. Just 2 yrs after losing Jazz, we are trying to cope with her son Rex. He is my love. This happened even faster then Jazz. Rex was fine last September. We saw the very first signs at Long Beach. The dragging nails in the sand. With in weeks we knew. Now 9 months later, he cant climb the stairs. I put my mattress on the floor, and he still needs help up. He hates the cart, but will get use to it. His head wants to play ball, but his body wont let him. I dont know if I can ever have a dog again. But I can't not have one either. Jazz was 9 when she was put down. Rex just turned 8 . I am so happy that they picked this family. Because no one could have loved them more. Entry: 2005-06-02 13:48:33 Visitor's Name: Caroline Homepage URL: No website supplied You are from: England, UK How you found our site: Searching under german shephards ailments Would you recommend our site to others?: Most definately Comments: Hi, I have a 5 year old German Shephard Cross called Wilson, my absolute best mate in the whole world!! Over the last few months he has been a little unstable on his back legs. He's always been a bit "bambi-like" since we got him from a rescue centre at 1 years old. About a month ago he was laid sleeping and suddenly woke up and started yelping really loudly like he was in a lot of pain. It only lasted for about a minute or so but it was heartbreaking to see and I felt completely helpless. Since that first one he has had about 12 more of them. We have taken him to the vet and he has been on anti-flammotory tablets for the last month but they don't seem to be having any affect. He recently went in and had an x-ray to check for hip dysplacia but the results came back all clear. Me and my husband have been at a complete loss as to what is wrong and after browsing the net for ideas came across this site, which though a great site, I must admit has scared the hell out of me and had me in tears for the last hour. Wilson does indeed stagger when he gets up, has a little stumble as if he is stiff legged, and very often when he is running around he loses his balance and the back legs slip from under him. He tends to run like a rabbit, with both hind legs hopping up together. And when he is walking in the house you can hear his back legs scuffing along the carpet. I guess I am a bit shook up at the moment after reading the stories on here and am praying that Wilson has not got this horrible disease. My heart goes out to all of you and your "little mates" who have been or are going through this. xxx Entry: 2005-05-30 02:44:50 Visitor's Name: amber Homepage URL: No website supplied You are from: fallbrook, ca, usa How you found our site: google Would you recommend our site to others?: yes Comments: Our beloved Sissy was diagnosed with DM today. Wow, this disease has progressed fast with her. We noticed her hind legs dragging on friday and today she can't walk or get up. I will start her on diet and Dr. clemmons recommended medication as soon as I can get everything together. What a sad disease. It breaks my heart to see my little girl slowly dying. I pray the diet and medication can keep my Sissy with us for more years to come. amber Entry: 2005-05-29 11:45:18 Visitor's Name: shelby geisler Homepage URL: No website supplied You are from: Thomasville Pennsylvania USA How you found our site: This time via the search engine "dogpile" Would you recommend our site to others?: definitely Comments: Wonderful tribute to Jack Flash. A beautiful shepherd. Site is very, very helpful... Entry: 2005-05-23 16:59:04 Visitor's Name: Sue Mullins Homepage URL: No website supplied You are from: Richmond, VA, USA How you found our site: google Would you recommend our site to others?: absolutely Comments: a most incredible and informative tribute to a great dog. I am grateful that my beloved Oreo's onset of DM is late in life (age 16+)and that her life up to now has been one of freedom, adventure, and a social life that would be the envy of anyone. She is a mix of border collie, ridgeback, pitbull and chow, black & white, about 35 lbs. She spent a long career as mascot for the State Fair of Virginia Draft Horse Hitch and is known and beloved by many. She is adapting well to her disability (she no longer has any use of her hind legs) as have I in the routines of her daily care and activity schedule. We all know our lives here are short but this experience has really brought home the truth that every day is a gift to be savored in its every detail and nuance. My heart goes out to everyone who is in the midst of this ordeal watching their beloved partner slip away a little bit at a time. Entry: 2005-05-21 08:01:19 Visitor's Name: Deborah Waitz Homepage URL: No website supplied You are from: Lakewood, CO, USA How you found our site: google search Would you recommend our site to others?: yes, it is greatly helpful Comments: Marjorie: I was unable to access the "send e-mail" button on your site; perhaps my browser (Mozilla Firefox) does not support that feature. I am just writing to provide you with information regarding the newest pet hydrotherapy site in the Denver, CO area where one of my corgis swims: Canine Rehabilitation and Conditioning Group (CRCG) 3760 S. Lipan Street Englewood, CO 80110-3476 phone: 303.762.7946 This facility is a few blocks away from the Veterinary Referral Center of Colorado, listed on your site, and is owned by a physical therapist on staff there. With thanks and appreciation for your efforts on behalf of special needs dogs, Deborah Waitz, MD Entry: 2005-05-20 15:07:54 Visitor's Name: Carolyn Rice Homepage URL: No website supplied You are from: Marble, N.C. 28905 How you found our site: search for info on DM in German Sheperds Would you recommend our site to others?: Thank God for this site. Absolutely. passed info on to my ve Comments: I am still trying to figure this out.Found Dr.Clemmon's protocol on internet but I need help, especially after I start prescription about how to taper off what to do after3 months on the "plan". My vet does not have time/resources really to research and possibly not to determine how to follow up with Dr. Clemmons about all of this. I will be doing everything Dr. Clemmons recommended on his site but it looks like it was written in 1998 and I can not find if there have been any revisions in his recommendations since 1998. As I said our veterinary resources are very limited here in the rural mountains of North Carolina. **Note from Marjorie: Dr. Clemmons continually updates his site, the most recent being one month ago. Please go to Dr Clemmons' main neurology page at http://neuro.vetmed.ufl.edu/neurohp.html and review the clickable links under Degenerative Myelopathy of German Shepherd Dogs. Entry: 2005-05-07 20:54:36 Visitor's Name: Lynette Brown and Family Homepage URL: No website supplied You are from: Rock Hill, SC, USA How you found our site: Brenda Gendron Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2005-05-05 16:04:44 Visitor's Name: Tim and Dawn Bradley Homepage URL: No website supplied You are from: Hertfordshire England Uk How you found our site: web search on Google Would you recommend our site to others?: Oh yes Comments: Superb help and advice from someone who is desperate to help their old pal who has just been diagnosed with cdrm (dm). Thanks from Tim and Dawn and Timber E Dog, the E is for Edward!!!! Entry: 2005-05-01 02:17:19 Visitor's Name: Carole Godfrey Homepage URL: No website supplied You are from: Loris, SC, USA How you found our site: One of my rescue GSD's mom Would you recommend our site to others?: definitely Comments: I am just reading all of this info. Will get back to you. My Misty, a humane society rescue GSD, may have DM. I intend to have my vet send the sample for the DMFlash test right away. Just lost my heart and soul GSD, Mazal Tov, Nov. 30th to cancer. Heartbroken and can't lose my Misty. I now have 3 shepherds, 1 Border Collie, 3 mixes. Carole Entry: 2005-04-28 17:35:23 Visitor's Name: Jude Kegerreis Homepage URL: No website supplied You are from: northville, Michigan How you found our site: google Would you recommend our site to others?: Absolutely I already have Comments: What a wonderful world of info. you have done so much research extremely helpful. Having just lost my beautiful sister-in-law to the dreaded MS I plan to send donation in her memory to your research. My GSD didn't lose his life at 14yrs. to DM but now have a King Shepherd 6mos. and have posted your site on our King Shepherd Questions message board on Yahoo. No one never knows when they will need your info, but it is so great to have on hand. Your Jack sounded so wonderful. After putting down our wonderful Jake, that night the pain in my head and heart was so great, I litterally thought I too was dying, I share your pain. Thank you for your story, I was on your site till after 4 this morning. Sincerely, Jude Kegerreis Entry: 2005-04-26 18:25:27 Visitor's Name: Homepage URL: No website supplied You are from: Los Angeles, CA. How you found our site: Through the head of Collie Rescue of Southern California Would you recommend our site to others?: Absolutely Comments: An extraordinary resource. I am very grateful. Tom Moore Entry: 2005-04-24 00:40:09 Visitor's Name: Kevin Homepage URL: No website supplied You are from: Bristol, CT. USA How you found our site: Would you recommend our site to others?: Comments: Entry: 2005-02-21 13:16:10 Visitor's Name: Becki Curran Becki I know how you feel. I lost the closest friend I ever had 2 years ago. I can't put into words how close I was to this dog. When he died I felt like someone ripped out my chest. There was just an empty hole in my body where my chest was. I can tell you that time does heal the lost feeling. I still miss him so much but the pain is now gone. Now our other dog Dusty has DM and we will lose him as well. I truely don't know how I will make it through this. This dog just plain loves to be loved and pet and kissed. He follows me everywhere and has gone to work with me for 2 years now. I won't let him suffer needlessly but don't want to let him go. When the time comes I know what I will have to do. I pray that the time will pass slowly and he will not be in pain. I see that your post was 2 months ago and I hope you are feeling better now. All my best wishes to you and to everyone who has to face this heartbreaking problem in there life. I know that we will be together with our beloved pets again in the eternities. Entry: 2005-04-24 00:01:28 Visitor's Name: Kevin Artibani Homepage URL: No website supplied You are from: Bristol, CT. USA How you found our site: Link Would you recommend our site to others?: Yes Comments: Our dog was just found to have DM this week. We are devistated and feeling very sad. We are looking for information and help anywhere we can. We feel helpless and very sad. I know others must have felt what we are feeling now. We lost our other dog two years ago and now we will lose this one. I don't know what we will do. Entry: 2005-04-17 18:12:22 Visitor's Name: Brenda Gendron Homepage URL: No website supplied You are from: Rock Hill, SC USA How you found our site: Web Search Would you recommend our site to others?: Absolutely Comments: Thank you for all of the info that you provide. Entry: 2005-04-16 02:45:07 Visitor's Name: Tammy Homepage URL: none You are from: Matanuska Valley Alaska How you found our site: searching DM Would you recommend our site to others?: Yes Comments: My German Shepherd is suspected of having DM. Both vets i have seen do not want to do the Myleogram as they fear it will progress the disease in this case. It is evident by X-rays and exams that he does not have other spinal issues. He has already lost 50% mobility in one leg and the other is rapidly following. He can run but without falling and already has torn a tendon in his leg. He cannot turn without laying down his hind end. I am not sure what to do about this and would love to hear any advice. Living in Alaska I do not have the option of doing an MRI and I do not want to stress him with more tests that I know are only going confirm his DM...there is no doubt in my mind that DM is what is affecting him. His signs are all too clinical. Your web site has been an insperation but it is still so confusing and I am feeling a bit overwelmed and not sure which action to take. The specilist I seen was very discouraging about Dr. Clemmings and I was a little shot down by that. My current Vet believes in Holistic health and she is very interested to hear what Clemmins has to say. Thank you again for providing the information you do and if you ever can give private advice I would love to hear from you. Tammy Entry: 2005-04-09 00:22:07 Visitor's Name: Jennifer Dodge Homepage URL: No website supplied You are from: Bemidji, MN How you found our site: DM search Would you recommend our site to others?: yes Comments: My dog was just diagnosed w/ DM this a.m. The vet did not tell me it was fatal. Thanks for educating me on what to expect in the next year. It's never easy, but at least now I know what I'll have to do. Victoria Anne turned 10 this year. Entry: 2005-04-07 06:13:57 Visitor's Name: Amanda Baltierra Homepage URL: No website supplied You are from: Salinas, CA USA How you found our site: previously visited Would you recommend our site to others?: Comments: Today was the day I let my Joelle go after a 3 year history of DM. She is happily running and playing now although my heart is broken. Having friends who love Joelle as much as I do has helped me through her passing. For a boxer, Joelle experienced a long life even though she was afflicted with DM. I wouldn't exchange any of our lives together for anything in this world. My friend Laurie and I took 3 rolls of pictures, digital scapshots and videos of her. She will always be remembered from 8/15/94-4/6/05. Entry: 2005-03-31 02:39:38 Visitor's Name: Diana Scoccia Homepage URL: No website supplied You are from: Good News Bay, AK, USA How you found our site: researched D.M. Would you recommend our site to others?: yes Comments: What a beautiful memorial to your dear Jack Flash. The heartache of losing your precious boy to a progressively degenerative disease is so painful. I am going through it now and it hurts so terribly. I only pray the Lord will give me the strength to get through this and that He will help my precious Dino to not suffer terribly too. God bless and thank you for your website. Entry: 2005-03-27 13:59:17 Visitor's Name: Mike & Cathy Lang Homepage URL: www.hydropaws.com You are from: Steward, Illinois, USA How you found our site: Shepherd Owner Would you recommend our site to others?: Yes Comments: Our Shepherd has some mild diplasia and a digetetive enzyme problem. It is nice to find a site where you can share your questions with other dog owners. Entry: 2005-03-19 12:50:47 Visitor's Name: benita leon Homepage URL: No website supplied You are from: london, uk How you found our site: looking on the internet for support Would you recommend our site to others?: absolutely Comments: Heart rendering and yet heart warming to read of such devotion and dedication.I have previously lost 3 gsds with dm, and currently trying to get support and info for a gsd having had neck surgery for a slipped disc. Needing to believe he and I will get through it.Thank you for your site. Entry: 2005-03-18 04:16:18 Visitor's Name: ilona Homepage URL: No website supplied You are from: colorado springs, co How you found our site: Would you recommend our site to others?: Comments: (No comment made) Entry: 2005-03-17 16:32:30 Visitor's Name: Tina Valdez Homepage URL: No website supplied You are from: San Pedro, CA 90732 How you found our site: AOL German shepherd page Would you recommend our site to others?: yes Comments: I too lost my beloved best friend after a 1 1/2 year battle with DM. He was my "firstborn" and the slow progression of this disease is heartbreaking. Your chapters bring back so many of the same things we went through down to the last few minutes when we finally decided it was time for him to be free of the body that made him so unhappy. He is forever in my heart and running free in the gates of heaven! God bless the GSD. Entry: 2005-03-17 07:01:13 Visitor's Name: Tom Moore Homepage URL: No website supplied You are from: Los angeles. CA How you found our site: Referred by a friend Would you recommend our site to others?: most definitely Comments: thank you for all this information. It is a superbly designed web site, and very helpful. I have a rough coat collie that I believe may have DM Tom Moore Entry: 2005-03-15 02:37:38 Visitor's Name: Sue Homepage URL: No website supplied You are from: St Petersburg, Florida USA How you found our site: I was just browsing GSD sites Would you recommend our site to others?: yes Comments: I'm so glad to have found this website. I lost my Shepherd Marco to DM in 1998, he was a rescued dog but we estimated him to be about 5 years old. He was such a sweet boy and had had a TERRIBLE life, then just when he finds happiness, DM struck. It still makes me sad and my only consolation is that he was happy for at least a year and a half of his too short life. I work for a Vet and will pass this info on to anyone who has a dog with DM. Thank-you for sharing this info and the pictures and story of your beautiful Jack. Sue Entry: 2005-03-12 01:38:53 Visitor's Name: carl schwarz Homepage URL: No website supplied You are from: santa monica, ca. How you found our site: searching web - 12 yr old gsm has dm Would you recommend our site to others?: yes Comments: 12-13 yr old gs male had first signs of dm about a month ago. Got email for germanshepherd rescue site that put me in touch with proper person. Have started vitamins (E- 2000mg/day, B1complex- 100mg/day, C 1000mg/day. Back right rear foot is only foot not functioning well; hasn't fallen but has stumbled a bit; running differently; not getting off seat as befor. LOOKING FOR PROPER DIET. HAVE NOT CONTACTED "WESTLAB" AS YET. I bury ?"vitamins" in raw ground beef,meatloaf; if pill falls out he won't eat. No pool available - and he never liked going into water. Runs after ball slower than 3 months ago. WHAT ELSE TO DO ? NO VET TESTS SINCE IT SEEMS CERTAIN TO BE DM (might as well spend money on vitamins,etc.) Not painful when I rub/massage both rear legs. Has been a very healthy dog; only significant vet visit was "infection in ear" that vet treated. ANY SUGGESTIONS? CARL SCHWARZ Entry: 2005-03-11 18:23:05 Visitor's Name: Angie Herman Homepage URL: No website supplied You are from: Willits, CA , USA How you found our site: Google Would you recommend our site to others?: absolutely Comments: I have a 10 yr. old female GSD with possible DM. Anya has an appointment with a specialist next week. I am particularly grateful for your information on testing. Wish us luck and give me strength. I think I'm going to need it. Entry: 2005-03-10 23:14:14 Visitor's Name: B & M Winkle Homepage URL: No website supplied You are from: Hedgesville WV USA How you found our site: Westlab Pharmacy Would you recommend our site to others?: Yes Comments: Thank you for your website. Our precious Flat Coated Retriever started showing the signs of DM just before his eighth birthday and was diagnosed one week ago. We will use your website to guide us throughout the tough days ahead of us.. Thank you so much for sharing Jack Flash's story & educating everyone you can about this debilitating disease! Bill & Mary Duke & Dakoda Entry: 2005-03-06 09:54:15 Visitor's Name: Homepage URL: LIBYA You are from: LIBYA BENGAZE How you found our site: I SEARCH ABUOT IT Would you recommend our site to others?: YES Comments: (No comment made) Entry: 2005-03-05 20:19:38 Visitor's Name: Tamar Barry Homepage URL: pawsofhc.org You are from: Seffner, FL How you found our site: Web search Would you recommend our site to others?: ABSOLUTELY!!! Comments: Thank you so much for your website! My dog had surgery for a compressed disk but the surgeon came out saying the disk wasn't that bad and he must have DM. His DM Flash Test came back negative but his neurologist still thinks he has DM. He has the signs and is a lab/shep mix. He is my heart and soul and the sunshine of my life and I don't want to believe he has DM. Does anyone know if the Flash Test could be a negative on a dog that does have DM? Good luck to everybody's dogs ... I hope they all have long, happy lives! They will live in our hearts with love forever! Entry: 2005-03-02 21:15:14 Visitor's Name: Jayne Turvey Homepage URL: No website supplied You are from: Birmingham UK How you found our site: Google Would you recommend our site to others?: Yes Comments: Hi Everyone, I was asked by a friend to look up this condition because her dog has just been diagnosed as to having this problem but what was very strange, when I was reading about this condition the symptoms are very simlar to a condition that my husband suffers with which is Chronic Inflammatory Demyelinating Polyneuropathy or CIDP for short. This is also an autoimmune disease that makes the immune system attack the nerves in the body causing pins and needles, loss of feeling and weakness in the arms and legs, in some cases you can lose all the use in your arms and legs and end up bed bound as my husband did. Fortunately even though this is not a very well known disease there is treatment that can help. When my husband was at his worse they tried an intravenous infusion of immunoglobulin which unfortunately, although it works for some people it didn't for him, and as his condition got worse and he was unable to move they decided to give him a plasma exchange to get rid of the bad antibodies, they then gave him steroids and an Immunosuppressive drug called Azathioprine, with all this and physio he is now back on his feet . They have weaned him off the steroids but he will have to take the Azathioprine for quite a few years he also has to take gabapentin to help with the pins and needles he suffers with but apart from that and a little weakness in his legs at least he is up and about. I was wondering as there seems little treatment for dogs with degenerative myelopathy could the above treatment or something similar be applied to dogs and do you think it would help? I know an owner who would be very grateful for any info Entry: 2005-02-27 22:35:22 Visitor's Name: Lee Botto Homepage URL: None You are from: Cincinnati,Ohio USA How you found our site: Looking for the causes of Degenerative Myelopathy Would you recommend our site to others?: Yes Comments: Your site is a great help to me. Entry: 2005-02-23 06:18:33 Visitor's Name: Greg Homepage URL: No website supplied You are from: Minneapolis, MN USA How you found our site: Google Would you recommend our site to others?: Yes! Comments: Thanks for the wonderful website. We are losing the battle with DM and will soon lose our dear Zeus. Thanks for the support and information. Entry: 2005-02-21 13:16:10 Visitor's Name: Becki Curran Homepage URL: No website supplied You are from: Sussex, UK How you found our site: Google search Would you recommend our site to others?: yes definitely Comments: Lennon "Dalboy Tiger" Curran 24.11.94 - 19.02.05 ETERNALLY CHASING RABBITS! When I was a 20 year old (1995) university student I met Lennon. He was 3 months old when I got him and as the breeder pointed out the last one left because he was the "runt of the litter". I didn't care. He was noble, loyal, cute, loving and my best friend. We lived in London at the time and used to spend the odd weekend with my parents in Sussex where they would spoil him rotten. He became a total family dog and loved all of us! My husband and I only started dating because we used to walk Lennon across Hampstead Heath. He would jump into Camden Lock and swim like mad! He was full of adventure and fun! We moved back to sussex in 1997 and we bought him a life jacket! He used to tear into the sea and just swim for ages! He was the only dog I knew that would try to swim under the water to get a stone or would throw himself off the break waters! He loved the water what ever the temperature! He used to come camping with us, stand with his feet on the bar in our local pub and play with anyone who would show an ineterst in him. He never quite got the hang of cocking his leg! He tried it once when he was 5 months old but lost his balance and grazed his nose! From then on he used to squat like a girl! He even made it into the local paper when he was page boy at our wedding in 2002! After the birth of our daughter in 2003 my family and I decided he was better of permantely living with my parents. They could give him the time he deserved and as they lived up the road it seemed the obvious solution. All our time was taken up juggling the baby and our jobs and my mum had retired so could devote her time to hoovering him, tending to his finicky eating habits and generally treating him like a big baby! He loved it! My father walked him up on the golf course for an hour every day come rain or shine sat with him every evening for anything from 30 mnins to an hour and a half trying to get him to eat his dinner! (we tried every type of dog food imaginable and had numerous blood tests done but the vet assured us he was just being fussy. We had him weighed every few months to monitor any weight change and he loved going to the vets for this "social" visit!) Over the past year we noticed himn slow down and put it down to old age. He couldn't leap onto the bed like he used to and had trouble climbing into his special armchair looking out over the garden. We all put it down to old age (afterall he was approaching 70). Three weeks ago Dad took him for his usual walk up the golf course. A log that Lennon had always lept over was something of a problem. He waited to be lifted over it or started taking an alternative route to avoid it all together. Mum took him to the vet last Thursday and was basically told that it was old age and there was nothing that could be done. It would only get worse with time and at the age of 10 the kindest thing would be to have him put to sleep.We trusted out vet who although a quiet man always had a soft spot for Lennon - this large fierce looking dog that was anorexic and peed like a girl! He was sent home with some anti-inflamatory drugs to block the pain for the week so we could all say goodbye The family was devasted. How could this have happened so quickly? He was still a puppy to all of us and the worst of it all was that HE stil thought of HIMSELF as a puppy. He used to rush out the back door chasing the seagulls and then crach into the wall because his back legs weren't working properly. For the first time ever he started pooing in the car and became quieter and older looking. That evening my husband and I rushed round to face the reality of what was ahead of us. It was heartbreaking the speed at which he had deteriated. His eyes had lost the puppy sparkle and he looked weary, old and tired. After seeing him that evening Mum, Dad, Patrick and I decided it would be wrong to wait a week. His back foot was bleeding raw from being dragged along the ground and he kept falling over. I always swore from the day I got Lennon in 1995 that when the time came to make the decision to let him go that I would no matter how hard it was. Noble words true enough but nothing prepared me for how hard it would be. On saturday morning Patrick and I arrived at my parents early and spent his last hours together as a family. We lifted him into the car and leaving my devasted parents took him to the vets. He hobbled in and clamboured onto the scales before I could stop him. He truly though it was just a routine vistit like so many other visits. He was lifted onto the table and nuzzled him otherwise healthy, cold wet nose into my neck. As the vet gave him the injection he let out a sigh and laid his head into my arms. It was so peaceful. I couldn't take much else in because I couldn't see for the grief and tears but my husband told me that his whole back end relaxed for those few seconds before he died. He was obviously finally able to relax and not feel any pain. It was the hardest thing I have ever had to do. He was a part of my life for so long that I feel like I'll never get over the grief of losing him. Mum and Dad feel the same especially Dad who used to walk Lennon every single day and sit with him every evening encouraging him to eat his dinner for anything up to an hour and a half. He was like part of the furniture to them in his twilight years and has left a gaping great whole in all our lives. Reading your website has made me realise perhaps it was a blessing that he went downhill so fast. It made that inevitable decision so much easier and I will always remember him as the dog he was and not trapped in a failing body. They say time eases grief but I can't imagine that right now. Everything seems bleak and lonely. People that say to me "yeah but at least he was just a dog though" have my pity. Pity because it is THEY that have suffered a loss and not just me. They have never had the opportunity I've had to know such a noble spirit and to feel that reciprocated love that man's best friend gives us. That dog has seen me through so much in my twenties and had such an impact on so many lives. Lennon will never be "just a dog" to me he was an integral part of my life. I miss him so much it hurts. Entry: 2005-02-19 01:48:26 Visitor's Name: Nita Edmondson & Barney Homepage URL: No website supplied You are from: Englewood, FL., USA How you found our site: A link on The University of Fl. site Would you recommend our site to others?: Yes Comments: Banrey is 7 years old and has been diagnosed in January 2005 with Degenerative Myelopathy. I'm interested in other people's experiences. Entry: 2005-02-17 17:20:33 Visitor's Name: Sheila Hefner Homepage URL: No website supplied You are from: Reaford, NC 28376 How you found our site: On google Would you recommend our site to others?: Yes! Comments: Hey! Sry about your loss. I was lookin on google for pictures of hearts and came across Jack's website. I started reading and looing at the picutre. It all made me cry. I'm 16 years old. And reading Jack's website taught me alot. Sry again. Entry: 2005-02-10 20:35:21 Visitor's Name: Don & Viv Holker Homepage URL: No website supplied You are from: Blandford Forum, Dorset, England How you found our site: Looking for information on DM Would you recommend our site to others?: yes Comments: An excellant site. Over the years we have lost two GSDs to DM. Your site is a great tribute to your shepherd and a lot of help to others who have suffered the same loss. Our latest shepherd is three years old and we have our fingers crossed!Thank you. Entry: 2005-02-09 20:35:45 Visitor's Name: Arnie Homepage URL: www.bottomsupleash.com You are from: Los Angeles How you found our site: people keep referring it Would you recommend our site to others?: yes Comments: I would like to thank you for referring so many customers to my product, the Bottom's Up Leash. I am very passionate and proud of this. We have won the "Dog Fancy editors choice award" for 2004 as product of the year. People like yourself should be very commended for helping these wonderful creatures.I thank you very much. Arnie Costell Entry: 2005-02-07 13:47:28 Visitor's Name: sharon weeks Homepage URL: No website supplied You are from: rochester,nh 03868 How you found our site: looking for DM infomation Would you recommend our site to others?: yes Comments: I have been to your site before,I just lost my Mickey to DM after a long battle of 2 years.This whole site could have been written for me(except for the pool)I had gone through the exact same thing the same way.I felt the same as you,he was happy with me with him.I would like to know Jack's bloodline.Mickey was an AKC American bloodlines old ones.He was born in 1991 and just had him put to sleep last week.I have never been so depressed and sick in my life.I have pneumonia,both lungs,collapsed bottom lobes and was still taking care of my baby boy.I too tried everything to keep between his legs dry it was always moist,hair dryer worked for awhile but.....Also Mick did not do well in a cart,the only place he wanted to go or be was with me.I like you was on the computer all the time looking for SOMETHING to make him well again.....I have a cousin in Bethesda,he is the director of epidemiology and genetics,he is one of the top Dr's in the world,so Mick had the top drugs the best of everything.Still it over took him.I am sure you know how I feel,I am sick I am lonely,I have cried about this since he took his first lame step.I will never get over this dog for he lived for me as did him.I long for him,he would look at me and I would melt.......His pictures are all over my house,I see him but can not touch him........Our Favorite song is Always.I have a music box which I would play for him and he would beem......I have been so stressed over this disease and the feeling that I would have after he was gone,I have made myself so sick.I have let myself get run down I also am anemic.Now all I do is cry for him. Entry: 2005-02-04 20:14:13 Visitor's Name: Janet Homepage URL: No website supplied You are from: Washington, USA How you found our site: Via the support group Would you recommend our site to others?: Yes Comments: Thank you for offering so much help and support. It really makes a huge difference in being able to provide DM care and also to just survive the day. Entry: 2005-02-04 18:52:28 Visitor's Name: Ellen Melvin Homepage URL: No website supplied You are from: Methuen, MA USA How you found our site: google search Would you recommend our site to others?: yes Comments: My 8 year old German Shepard showed signs last year and the vet told us DM. We started him on the aminocaproci and he improved. Now 1 year later the symptons are back and we took him to a neurologist. Well, its not DM, he had 3 bad discs in his back! He just under went 3 hour surgery on his back. When I think of the pain and discomford he must have felt. Our vet never gave us any options and said that it was DM. Since there are no tests for DM I think he jumped to the diagnosis Entry: 2005-02-03 22:39:06 Visitor's Name: Jeff Swift Homepage URL: No website supplied You are from: Clinton Twp., MI How you found our site: Search engine Would you recommend our site to others?: For sure Comments: The best info and support I have ever found on the web. Thank you Jack Flash. Jeff Entry: 2005-02-01 01:31:00 Visitor's Name: Dawn Homepage URL: No website supplied You are from: Queens, New York How you found our site: Searching the web for any information on DM Would you recommend our site to others?: YES, ABSOLUTELY Comments: Thank you so much for this web site, I have a 9 yr GSD, Jaimoe (Jay-Mo) that has DM. Entry: 2005-01-28 23:01:19 Visitor's Name: Amanda Baltierra Homepage URL: No website supplied You are from: Salinas, CA USA How you found our site: previously visited Would you recommend our site to others?: yes Comments: My 10 1/2 year old boxer Joelle has had symptoms of DM since 2002 and was diagnosed in 2003. She has hardly any hind quarter movement, but gets around in her Eddie's Wheels cart. Bodily functions are still in control although she must wear her "pants" while on furniture or while visiting friends. My saving grace in her care is that she is a "feather weight". For those who are in need of any suggestions for care for their DM dog, a hind quarter harness from handicappedpets.com is a great tool. Eddie's Wheels manufactures light weight constructed carts that are so simple to set a dog in. Although our local pharmacy compounded aminocaproic acid for us, I didn't see any visible changes after 6 months. (The cost was affordable.) Pool therapy and exercise has kept her as strong as possible. Soon, it will be three years that Joelle first showed signs of DM. I hope other DM dogs will be able to live their lives long and comfortably like Joelle has thus far. Entry: 2005-01-26 03:42:13 Visitor's Name: Silvana Summers Homepage URL: none You are from: Wilmington, NC, USA How you found our site: about.com Would you recommend our site to others?: yes Comments: I read on Dr. Clemmons' web site that aminocaproic acid and acetylcysteine are helpful for dogs with dogs that have DM. My vet was glad to prescribe it, however, the compound pharmacy came back with some pretty consistent charges. It looks like it would cost 150 dollars per week only for the acetylcysteine! I really wish I could afford it, but I don't make enough money to buy these two compounds. Do you know if there is any way to get these two substances at less cost? Also, have you tried the vitamin/mineral/herb product which WestLab sells? Is this expensive? Please let me know, my dog Smokie is 8 and has DM. Thank you for your help, Silvana Entry: 2005-01-21 15:23:49 Visitor's Name: Linda Woodard Homepage URL: No website supplied You are from: Gray, Maine How you found our site: Google Would you recommend our site to others?: yes Comments: Looking forward to seeing more Entry: 2005-01-05 17:14:11 Visitor's Name: Sandra Homepage URL: No website supplied You are from: New Jersey How you found our site: Would you recommend our site to others?: yes Comments: My shepherd "Shane" is deteriorating very quickly...would you recommend attempting the use of a wheelchair for him...he is currently dragging both feet and when supported (towel) he is able to move about quickly and accurately...thank you in advance for your help... Entry: 2005-01-04 22:50:03 Visitor's Name: Betty Getchell Homepage URL: No website supplied You are from: Watertown, CT ,06795 How you found our site: google Would you recommend our site to others?: yes Comments: My 17 Year old Shepard has MD, and is recently gotten to the point where she can not stand up on her own. Once she is up she is OK for a few minutes. I think that she is getting nervous because she shakes when she is unable to stand up on her own. I am just searching the web to see what I can do to make her comfortable. Entry: 2004-12-28 00:29:54 Visitor's Name: Bill Homepage URL: No website supplied You are from: California How you found our site: Google Would you recommend our site to others?: Recommended, yes Comments: I've found lots of exercise to be pretty effective in keeping my DSD with DM going. He's 12 yrs., 4 mos. now, and he began dragging his hind feet 2 and a half years ago. His love for the the stick gives him the will to put one foot in front of the other, although they do get crossed a lot. We always exercise on grass, which is easy on the tops of his feet. I also have a big nursery wagon, that I put a bed on and pull him around with. We use it mostly to get to the good grassy areas of a big park. I think of DM as MS in humans, which progresses at varying rates. Good luck all with your dogs. Entry: 2004-12-21 19:33:08 Visitor's Name: Maura Frankman Homepage URL: No website supplied You are from: Riverhead, NY How you found our site: Dr. Clemmons' site Would you recommend our site to others?: YES!!!! Comments: We had to let our 10 1/2 year old GSD go on 12/03/04 after a year with DM. Your site gave me alot of information and ideas. You definitely made a horrible time easier. Thanks for all the information and tips. Entry: 2004-12-21 15:44:39 Visitor's Name: Sondra & Saihu Homepage URL: No website supplied You are from: Andrews AFB, MD How you found our site: Browsing GSD sites Would you recommend our site to others?: Very much so Comments: I am so glad I found this site!! My gorgeous GSD Saihu was retired from his life as a military working dog almost 2 years ago at age 8. I thought it was because of arthritis but since I have read this site I have noticed that he has the same symptoms of the other DM dogs including the splenic mass and after reading Jack's story it was like I could have placed Saihu's name in for Jack's because of how similar they are! Luckily Saihu's condition does not seem to be progressing very fast if at all. I only hope that this treatment continues to stabilize him. We too were brought together by fate when we met in Korea after an e-mail went out to advertise his availability for adoption. Originally I was going to care for him until someone else adopted him since I would not have a place to keep him when I returned to the States but not even a week later I was long long distance half a world away begging my parents to let me bring him home and stay at their house, which lucky for me is only an hour away from where I am currently stationed. We are the best of friends and I will be heartbroken when the "time" finally comes to say goodbye. I love all the new info I can get and I send my prayers to those of you who have DM dogs or who have lost a friend to DM. Entry: 2004-12-18 15:20:34 Visitor's Name: Dan and Kathy Eaddy Homepage URL: No website supplied You are from: Jacksonville, Florida, USA How you found our site: Via a veternary web site link Would you recommend our site to others?: Yes Comments: We also lost our German Shepard to DM this year in May (2004). Your site was moving and educational. We took our dog, Max, to the Univ of Fl. Vet School for examination, but never heard of the Vet who specialized in DM. I wish we had found your site as the information on your site might have prolonged his life. We also had bad experiences with a cart we ordered from England for Max. It also was poorly engineered, and we sent it back as Max could not adjust to it. Keep up your efforts at educating others on DM. Dan and Kathy Eaddy, Jacksonville, Florida. Entry: 2004-12-18 05:59:38 Visitor's Name: Laura Ricci Homepage URL: No website supplied You are from: Rockledge, FL How you found our site: surfing the web Would you recommend our site to others?: yes Comments: My 12 1/2 year old GSD bitch has had progressive ataxia in her rear for the past couple years, along with CP deficits. My vet thought spondylosis (spine is very arthritic). Was seen by Dr. Chris Mariani at the University of Florida 12/03 and be thought Wobblers (although didn't rule out DM) - could not do the diagnostics as she also has ciliary dyskinesia and is therefore very prone to pneumonia and because of that did not want to anesthesize. Two weeks ago was seen by Dr. Clemmons and he agreed with Dr. Mariani's assessment, but we were also able this time to utilize the DNA marker, and that came back positive. So she probably has a combo of DM and Wobblers. She is currently on Dr. Clemmons' DM protocol and will be starting acupuncture treatment with Dr. Xie at UF. Entry: 2004-12-15 17:15:36 Visitor's Name: Michele Gray Homepage URL: No website supplied You are from: HOLLYWOOD,MD USA How you found our site: SEARCH ON DM Would you recommend our site to others?: OH MY YES Comments: I feel like I'm the poster child for living with a DM dog. Just this past November 18, 2004 ^Damien^ and myself lost the battle to DM. I had to let my best friend pass on. This just broke my heart but the only thing that got me through this was ^Damien^ himself. For the past year we have overcome many obstacles. It was a year ago November 18 that ^Damien^ fell due to loss of muscle and him being weak from DM. Although it wasn't DM that caused him at that time to not be able to walk, it sure didn't help him. As he became more motivated he did teach himself how to walk again but a the day went on things got worse. The day had come were "that look" was in his eyes. The only thing that I can pass on from this experience is that the more you are prepared and willing to except it the better you and your friend will be. I would recommend doing several things such as paw impressions, paw prints - done with finger-paint, professional pictures, deciding if cremation is the best option for you and if so let me suggest checking with your local funeral home - some will send them out for you, check out this web site for pendants that can hold some of their ashes - and tell Lyn that ^Damien^ sent you..... www.whisperintheheart.com , video of you furry friend, you can find these x-mas ornament that can record 15 sec. of a message - I have ^Damien^ barking on it. These are things that have helped me. But just remember that its just the physical body gone ...... their spirit will be with you always. If anyone want to chat about it email me @ pumpkinsdamcam@hotmail.com. Entry: 2004-12-13 13:46:25 Visitor's Name: Nan Schwanfelder Homepage URL: No website supplied You are from: Santa Fe, New Mexico, Uinted States How you found our site: google search Would you recommend our site to others?: Yes!!!! Comments: (No comment made) Entry: 2004-12-12 16:30:25 Visitor's Name: Conrad Fulkerson Homepage URL: No website supplied You are from: Durham, NC, USA How you found our site: Google search of canine degen myelopathy Would you recommend our site to others?: Absolutely, especially GSD fanciers even if they're not deal Comments: (No comment made) Entry: 2004-12-10 08:48:45 Visitor's Name: Homepage URL: No website supplied You are from: Cape Town, Western Cape, South Africa How you found our site: DM Research Would you recommend our site to others?: Yes Comments: Good information :) Entry: 2004-12-10 01:43:49 Visitor's Name: Maria Werner Homepage URL: No website supplied You are from: Temple City, California How you found our site: Using Yahoo to find info on DM in GSD Would you recommend our site to others?: Highly Comments: In incredible wealth of information. Nine year old Ragnar is receiving acupuncture and chiropractic work, along with supplements and homeopathic herbs. There has been noticeable improvement, but I have been warned that it is not a permanent solution. I am still at the stage of shock and denial after being initially told that toe dragging was related to dysplasia, and that Adequan was the answer. Thanks so much for all the work you did on this website and I am so sorry about Jack. Entry: 2004-12-10 00:19:39 Visitor's Name: cindy Homepage URL: www.tail-endspetcare.bigstep.com You are from: quakertown,pa usa How you found our site: web surffing Would you recommend our site to others?: YES I WOULD!!!!! Comments: Your site helped me so much and made a bad day with my best freind seem ok THANKS SO MUCH From Chance and his dog mommy Entry: 2004-12-09 07:26:24 Visitor's Name: Kathy & Nikki Werner Homepage URL: none You are from: Kennett Square, Pa USA How you found our site: Looking for information on DM, used 'AskJeeves' search engin Would you recommend our site to others?: yes Comments: Your story, like mine breaks my heart. I haven;t reached the final stages, but they are inevitable, I'm praying for Christmas. Would you suggest wheels? We're fortunately on one floor.. Entry: 2004-12-08 04:30:46 Visitor's Name: thomas j. benandi Homepage URL: No website supplied You are from: chicago,Ill. cook How you found our site: Dr. Clemmons Would you recommend our site to others?: yes Comments: It,s been very hard to see my dog callie go through this dibilatating disease, it tears me up each and every day. Entry: 2004-12-06 23:12:23 Visitor's Name: Chris Homepage URL: msn You are from: U.K How you found our site: Through my daughter Kelly who bought a harness for Giz Would you recommend our site to others?: Certainly Comments: My Shepherd Gizzi has DM following several anaesthethsia after being diagnosed with histiocytosis my vet Jonanathan was absolutely brilliant and this condition cleared up with lots of steriods which Giz took without any complaints,Bless him! I cried buckets when i read about Jack Flash as i realise Gizzi's time could be short. However, we have a puppy Taz (definitely a Tasmanian Devil) but a very lovable character who i feel has kept Gizzi more mobile than if we hadn't had this pup. Gizzi tells him off whenever he is "naughty". Entry: 2004-12-06 19:57:47 Visitor's Name: Tommy Homepage URL: www.geocities.comtawalters.geo You are from: Lavonia, Georgia How you found our site: Talking Hands Would you recommend our site to others?: Yes Comments: very nice site. Entry: 2004-12-01 20:35:15 Visitor's Name: WONTSAPONADYME Homepage URL: No website supplied You are from: How you found our site: ACCIDENTLY Would you recommend our site to others?: DEFINITELY Comments: SIMPLY BEAUTIFUL...A LOVELY TRIBUTE TO JACK FLASH...I TO OWN A GERMAN SHEPHERD AND WAS NEVER AWARE OF THIS HIDEOUS DISEASE...YES WE ARE THEIR VOICE...THANK YOU... AND HELLO JOSS YOU BEAUTY YOU... Entry: 2004-11-27 08:51:17 Visitor's Name: Jean-Ann Webster Homepage URL: No website supplied You are from: Grand Blanc, Michigan, USA How you found our site: Google search on DM Would you recommend our site to others?: yes Comments: I'm sure my Sheba's been visiting with Jack. She left us 9/14/04. She was only 9. I'm still heartbroken. Please continue to champion this cause. Entry: 2004-11-23 04:13:20 Visitor's Name: Toby Burroughs Homepage URL: www.nogsr.petfinder.org You are from: New Orleans, La How you found our site: Google Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2004-11-13 00:56:43 Visitor's Name: Bill & Sigrid Hala Homepage URL: No website supplied You are from: Monroe, NY USA & Oliphant ,Ontario, Canada How you found our site: WestLab Pharmarcy Would you recommend our site to others?: Yes Comments: Our five year old GSD, Cody, was recently diagnosed with DM. It's hard to think that this beautiful animal in the prime of life has developed such an insideous disease. We will strive to keep him with us as long as we can. He is so spirited and it is heartbreaking to see him struggle to keep his dignity. Entry: 2004-11-12 10:54:50 Visitor's Name: Dee Woodcock Homepage URL: www.dogsense.org.uk You are from: Reading, Berkshire, England How you found our site: Searching the web for information on DM Would you recommend our site to others?: Yes Comments: I read the story of Jack Flash and cried for you both. I have lost two of my GSDs to DM - both were almost fourteen years old. It was hard, but not so hard as it is now when we face the loss of our 7 year old Ashla. She is now suffering paresis, very unstable in her movements and some days cannot rise or walk. But she is in great spirits, wants to go out albeit for such a short walk, and wanting to play. She is still continent apart from the odd accident of which she is unaware. In all other ways she is a beautiful healthy dog - never a day's illness in her life. In addition we have our three year old Golden Retriever with terminal cancer. It's been a tough year, but we just value every day with each of them, and hope there are many days still to come. There are surveys and examinations in the UK into this crippling disease. I hope so much that one day someone somewhere will find a cure. My good wishes and thoughts go to anyone who has a dog suffering with DM Dee Woodcock Entry: 2004-11-12 07:47:28 Visitor's Name: Deb Ungar Homepage URL: No website supplied You are from: Arroyo Hondo, NM 87513 How you found our site: google search for DM Would you recommend our site to others?: absolutely! Comments: I smiled and I cried and I will be back. Thank you. Entry: 2004-11-11 06:48:55 Visitor's Name: Cynthia Morani Homepage URL: No website supplied You are from: Boca Raton, FL, USA How you found our site: Dr. Clemmons Would you recommend our site to others?: yes! Comments: My 13 year old German Shepher, Princess Leia, has DM. I am just starting her on Dr. Clemmon's plan: exercise, whole "live" food, aminocaprioic acid, actyelcysteine and antiox QCB. Please pray for our success. I love Princess Leia more than mere words can express. She is my Soulmate. We are One Soul in two bodies. Entry: 2004-11-10 03:08:27 Visitor's Name: Larry Moss Homepage URL: No website supplied You are from: Chicago, Illinois How you found our site: google Would you recommend our site to others?: yes Comments: Thank you for wonderful site. My wonderful GS Mix Thunder has DM, just confirmed today, but fairly advanced. I live alone and work all day in an office, so I don't know if I will be able to give him the care needed to give him a fighting chance to preserve quality of life for a while. But I am grateful for the humanity of your site. Larry Entry: 2004-11-03 19:06:26 Visitor's Name: Kara Homepage URL: No website supplied You are from: Burr Ridge, IL How you found our site: Google Would you recommend our site to others?: YES!!! Comments: My 10yr old boxer, George was just diagnosed with DM. Very sad to hear of so many other people struggling with the same. My heart goes out to everyone. Entry: 2004-10-30 03:44:26 Visitor's Name: Betsy Ritter Homepage URL: n/a You are from: Mechanicsburg, PA, USA How you found our site: aol message boards/GSD Would you recommend our site to others?: absolutely Comments: (No comment made) Entry: 2004-10-28 00:15:27 Visitor's Name: Barbara P. Homepage URL: No website supplied You are from: Yorktown, VA, USA How you found our site: Web search Would you recommend our site to others?: Yes Comments: We believe our GSD Bandit has DM. He has been showing signs since last year and progressively getting worse. He has just started having bowel problems and it is heartbreaking to watch him decline. He is a big part of our family and we love him dearly. Entry: 2004-10-26 20:15:59 Visitor's Name: Anita Carlsson Homepage URL: vovve.info/anita You are from: Sweden How you found our site: On a dog chat in sweden Would you recommend our site to others?: Yes Comments: He was a beatiful dog Entry: 2004-10-11 20:26:26 Visitor's Name: Chris Homepage URL: No website supplied You are from: Connecticut How you found our site: Google search on DM Would you recommend our site to others?: Definitely! Comments: My 8 year old pug was just diagnosed with DM this week, and as many of you can relate, it was a heartbreaking and devestating blow. After the diagnosis, I immediately started to search for information on the web and came across your site. What a godsend! To be able to locate this information, and to know that support is out there -- it has given me so much hope. Thank you for the incredible service of this website, and thank you for letting me know that my little Dante is not alone in his plight. Entry: 2004-10-03 22:35:55 Visitor's Name: Sara Handley Homepage URL: No website supplied You are from: New Salem, Ma. USA How you found our site: searching for help Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2004-09-29 18:57:44 Visitor's Name: Jessica Donovan Homepage URL: No website supplied You are from: Glens Falls, NY, US How you found our site: Internet Search on "degenerative myelopathy" Would you recommend our site to others?: absolutely Comments: While it's heartbreaking to learn more about this aweful disease, it's helpful to find a site with such useful information. Our vet really isn't familiar w/ DM, so it's been up to us to research what's happening. Feeling so helpless as to how to comfort our baby, I'm grateful to have come across your site. I just wish we knew more about DM when the 1st vet diagnosed Sam with arthritis, 4-5 months ago. His quality of life could've been prolonged. Like you said, he still has that "spirit in his eye's", but he's starting to get tired. With all of the information you've provided, I'm hoping we'll know when it's time to make that dreaded "unselfish" descision. Thank you. Entry: 2004-09-27 09:22:42 Visitor's Name: Marjean Rowan Homepage URL: No website supplied You are from: Amery, WI How you found our site: searching the web for info on DM Would you recommend our site to others?: most definately Comments: Our GSD Lacey has DM. She just turned 7 August 1 which makes dealing with this even harder. I found comfort in the articles regarding Jack's saga. I think my husband and I could benefit from your support group as I know I can't go through this alone. Thank you for sharing your story and your efforts to bring hope to those with a beloved friend afflicted with DM. Entry: 2004-09-20 06:06:36 Visitor's Name: Maryann Homepage URL: none You are from: Toronto again How you found our site: Would you recommend our site to others?: yes Comments: I have 2 beautiful "boys". They are 6 and 13 years old. My 13 year old is getting very "wobbly", we are looking for some type of treatment now for myelopathy. I was told by my vet there was nothing to do except, keep excersizing him and keep his weight up. I am rather angry at this because after reveiwing a few sites I see that Dr. R. Clemmons has some type of formula that may be followed and beneficial. I will be contacting my vet tomorrow and have a little heart to heart with him as to why he would withhold this info from me. I will start the drug therapy asap. Has anyone out there had any positive signs after doctor Clemmons therapy? Thank you. Entry: 2004-09-20 06:02:03 Visitor's Name: Maryann Rizzo Homepage URL: None You are from: Toronto, Canada How you found our site: Surfing the web for MS info for my dog. Would you recommend our site to others?: Yes, but I don't know how to use it, or post messages Comments: First I'd like to say GOD BLESS ALL OUR COMPANIONS and I am not overly religious. They are all gorgeous souls. I love them all. Second I am glad I found you but I don't know how to post or read this forum. Entry: 2004-09-20 05:40:35 Visitor's Name: Catherine Dodd Homepage URL: No website supplied You are from: San Francisco, California USA How you found our site: from Doggon Wheels Would you recommend our site to others?: yes Comments: When we took Becky to the vet we did not realize that eventually the front legs would be involved. She is now turning over her left leg, her right seems weaker, she doesn't have the stamina she used to. We are going to order a wheel chair. We have no access to swimming and she does not like the water. Do you have suggestions on cart companies? Doggone wheels and Eddies Wheels are the two I am exploring. Thank you for all this information. Catherine Entry: 2004-09-12 04:35:01 Visitor's Name: Susan Page Homepage URL: No website supplied You are from: Louisville, Ohio 44641 How you found our site: google search for canine lamness Would you recommend our site to others?: absolutely Comments: Even though "Bruin" wans't offically diagnosed with DM,he had manny of thr criteria. He was a mixed breed,part German Shepard & part Alaskan Malamute.Maybe that 's why the vet never offically discussed DM with us.hindsight tell me the Thyroid, irritalbe bowel, skin allergies,srcaping toenails,&stumblingwere major clues. Entry: 2004-09-06 15:30:14 Visitor's Name: Ona Heimstadt Homepage URL: No website supplied You are from: Duluth, Minnesota How you found our site: searching for help / information Would you recommend our site to others?: yes Comments: It is so helpful to get information on this terrible disease. I have a 9 year old wonderful female who was diagonised 2 months ago with DM. I have been giving her the medications recomended by Dr. Clemmons and purchasing them from Westlab Pharmacy. What a Godsend that has been. She seems to be responding to the medications, I don't know what I would have done without this site. Thank You so much - God Bless you and your wonderful Jack Flash. Entry: 2004-09-02 21:17:30 Visitor's Name: SUE Homepage URL: No website supplied You are from: UK How you found our site: LINKS FROM HYDROTHERAPY Would you recommend our site to others?: YES Comments: TYLER IS 11, HAS HAD DM FOR 8MONTHS AND CANNOT MOVE HIS BACK LEGS, BUT TRIES TO USE THEM IF YOU HOLD HIM UP. HE HAS HYDROTHRAPY ONCE A WEEK, 100 MILES ROUND TRIP, AND HAS BEEN ON AMINO CAPROIC ACID AND ACETYLESTEINE, AND VARIOUS VITAMINS, E C MULTI COD LIVER OIL AND GLUCOSAMINE FOR A MONTH. HE LOOKS WONDERFUL FROM THE FRONT! I THINK WE STARTED TOO LATE, DUE TO LACK OF KNOWLEDGE OF ANY TREATMENT, BUT WE WILL KEEP TRYING FOR ANOTHER 2 MONTHS OR UNTIL HE HAS HAD ENOUGH. ANY ADVICE WOULD BE WELCOME. THANX-SUE SCHWIESO Entry: 2004-09-01 00:49:34 Visitor's Name: celina dillsworth Homepage URL: No website supplied You are from: Indianapolis Indiana How you found our site: showgsd-1 Would you recommend our site to others?: yes Comments: now I know where to find more info....celina dollsworth Entry: 2004-08-30 16:49:08 Visitor's Name: Deborah M. Swan Homepage URL: none You are from: Amissville, VA , USA How you found our site: Google Would you recommend our site to others?: Yes Comments: I have registered with the message board but still have not been able to get into the board itself, only to an EZ Board page, no further. I feel as if I'm in a race against time here, so any suggestions would be appreciated. Thanks! Entry: 2004-08-28 09:45:49 Visitor's Name: Geri Ome Best Homepage URL: n/a You are from: Kailua, Hawai'i 96734 How you found our site: Barbara Lee Williams Would you recommend our site to others?: MOST DEFINITELY!!!! Comments: Thank you for being so giving in sharing your deep and abiding love for Jack , the heartaches, the efforts to sustain quality of life for him as he suffered from DSM and your concern for us who have lost a very precious fur kid to DSM. I am still teary eyed from your account and dedication to helping us deal with this heartache. Geri Entry: 2004-08-22 21:11:46 Visitor's Name: Judy Pfaff Homepage URL: none You are from: Toledo, Ohio--USA How you found our site: Through a "search" about DM Would you recommend our site to others?: Yes Comments: I am very glad to find your website. Our 14 year old "Lady" was diagnosed with DM on August 14, 2004. We were previously told for a few years that her condition was just arthritis. She is a Shepherd-Husky mix(and beautiful. Her symptoms have advanced very quickly. We will join your message board to further our knowledge and share our experience. Thank you for your commitment to raise awareness of DM. Entry: 2004-08-22 15:24:12 Visitor's Name: Amanda Baltierra Homepage URL: No website supplied You are from: Salinas, CA USA How you found our site: Previously browsed Would you recommend our site to others?: Yes Comments: Hello once again! My Boxer Joelle just turned 10 on 8/15, and she's still telling me in her boxer way that life certainly isn't over eventhough DM has changed her life. Although Jo's case has progressed within the last 6 months, she sure gets around and quickly at that! Continued pool therapy and daily 1-2 mile walks is what keeps her going. She still has that "spring" in her step as she strolls in her cart. Having to alter my life to fit hers has made me realize I have come to understand all elders and the conditions that occur. It has softened me up even more than I already am. Although I know there will be a day when the inevitable with arrive, for now, Jo is the director of how she wants to live her life. Right now, she's not ready to give up her position. This experience has brought me much closer to Joelle, and I hope it has for other DM dog owners. Entry: 2004-08-19 22:29:09 Visitor's Name: Jean A. Parker Homepage URL: No website supplied You are from: amarillo Texas USA How you found our site: Florida pharmacy recomendation Would you recommend our site to others?: yes Comments: Please pray for my Delta... Entry: 2004-08-18 23:10:38 Visitor's Name: Patty Dickerson Homepage URL: No website supplied You are from: Pleasanton, California, USA How you found our site: Search for DM Would you recommend our site to others?: YES Comments: I lost my VERY best friend and loyal companion to DM on Aug. 12, 2004. She lived 13 years and 2 months.I miss her so very much it. It feels like my heart is breaking. She was truly the ultimate Goodwill Ambassador. Her natural beauty and loving, playful nature always brought a smile and kind word from all who crossed her path. She is gone from our daily lives but forever in our hearts. Shadow, we will miss you and love you always. My heart goes out to anyone who must watch their beloved pet gradually become overwhelmed by this terrible disease. Thank you for an extremely helpful website. My Shadow was very regal..just like your Jack Flash. Entry: 2004-08-18 18:57:19 Visitor's Name: Nydia Homepage URL: No website supplied You are from: Fredericksburg, VA USA How you found our site: Yahoo Search Would you recommend our site to others?: Absolutely!!!! Comments: My beloved GSD Jimbo was initially diagnosed with DM when he was approx 9 1/2 years. Swimming indoors helped build his muscles up however a recent knee ACL surgery cut him back. He is now 11 1/2 and is definetly showing all the DM signs. A true fighter but gentle giant, he struggles to get up and has learned to tap when he needs assistance. While he still have his rear legs, he has lost all rear muscles. Thank you so, so very much for sharing your experiences with your beloved Jack Flash! I dread the day but fear it is coming really fast. I need to keep strong for my Jimbo, let go of him when he can't go on and allow him the dignity he deserves. I pray for a cure of this evil disease and as yourself will continue to support any/or all research to help obtain this cure. Thank You!! Entry: 2004-08-15 20:56:30 Visitor's Name: Cathy Scapicio Homepage URL: No website supplied You are from: Toms River, NJ , USA How you found our site: web search Would you recommend our site to others?: absolutely Comments: Aug. 15, 2004 Thank you for sharing your wonderful moments with us. I've noticed for a short while now that our Brandy has shown signs of "something". She had been diagnosed many times before with a "terminal" illness only to survive but this was different. I'm sure that this (DM) is what she has. She's 12 and is a mixed breed (shepard and golden retriever) and is the love of our lives. We have 3 childrn and they are living out of the house now but still run to her and love her when they're home. It breaks my heart to think of the journey that seems to be inevitable (one that you've experienced before) but we've had GREAT years with her. With your site, you've given me smiles, tears and hope of the peace that must be there for Brandy. Thanks again. Warmest Regards, Cathy Scapicio Entry: 2004-08-13 00:25:21 Visitor's Name: DENISE Homepage URL: No website supplied You are from: NEW JERSEY How you found our site: AOL MESSAGE BOARD Would you recommend our site to others?: ABSOLUTELY Comments: THANKS FOR SUCH AN IMPORTANT SITE....I WILL DO ANYTHING TO KEEP MY GIRL HAPPY & HEALTHY FOR A LONG LIFE WITH US. THANKS FOR THE HUGE HEADS UP ABOUT THIS AWFUL DISEASE JACK MUST HAVE BEEN A VERY SPECIAL BOY!! HE'S SO REGAL LOOKING, I CAN SEE WHY YOU LOVE HIM STILL..... Entry: 2004-08-11 22:00:21 Visitor's Name: Joanne E. Parris Homepage URL: No website supplied You are from: Lunenbury, Massachusett 01462 How you found our site: Doggon Wheels Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2004-08-07 12:38:45 Visitor's Name: Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: Feel so sad, cant do my message for the tears. Our beaitiful boy Sabbie aged 8 has the symptoms just started recently. We don't know how long we will have him. Will know more on seeing the vet after a week's preliminary treatment to diagnose whatever it is. I feel I know already after seeing your site. Good to know you have helped so many with the information. Entry: 2004-08-06 08:44:31 Visitor's Name: Johanna and Les Homepage URL: www.freewebs.com/erikaroyce/ You are from: huddersfield UK How you found our site: surfing Would you recommend our site to others?: yes Comments: my old gsd has had DM for about a year now she is 15 and a half and the other day she was rushed to the vets having a stroke she surrvived and is now home head tilt and more wobberly i will add your site to my web site Entry: 2004-08-04 10:23:05 Visitor's Name: Ann Hoare Homepage URL: No website supplied You are from: Brisbane, Queensland, Australia How you found our site: Google searching for information on DM Would you recommend our site to others?: Yes! Comments: I lost my "Wild Child" Sam in February 2004. He was 13 years, 7 months and 12 days old and I have been heart broken ever since. I love the site and I wish I had found it sooner. I have heard it said that there is no such thing as coincidence so it must be fate that I found the site today, August 4, Jumping Jack Flash's anniversary.Jack was fortunate to have such a dedicated owner. Keep up the good work. Entry: 2004-08-03 22:25:57 Visitor's Name: Peggy Homepage URL: No website supplied You are from: Colorado How you found our site: web search Would you recommend our site to others?: yes Comments: I have just found out our 9 yr Chocolate Lab had DM. I imagine another 6 months is all we will enjoy him in our life. Thanks for the frank and direct information on your site. I think it is a shame there is no help for Duke, but I know now that my job is to make him happy for the rest of his life. Entry: 2004-07-30 17:35:42 Visitor's Name: Susan Cover Homepage URL: http://pages.ivillage.com/scover2002 You are from: Cody, Wyoming USA How you found our site: When I was looking for information on DM Would you recommend our site to others?: Yes, but they better have a BIG box of Kleenex!!! Comments: Last April I started to notice my female GSD Timber showing signs of weakness in her hind legs. She also was crossing her back legs quite often. We took her in to see the vet and he took x-rays and they did show some hip damage and also an area in her lower lumbar area. She has gotten progressively worse, so we saw another vet who sent us to a Neurologist in Colorado. We had an MRI done and after reviewing it, she told us she did not think that the area damaged in her lower lumbar area was significant enough to warrent surgery. She said in her opinion, it wasn't bad enough to be causing Timber's symptoms. She said she believe's she has DM. This was just 2 days ago. After we drove back home, a 9 hour drive with Timber in the back seat, we are treating her with vitamins and Prednisone. I talked with our local vet this morning and he is trying hard to reassure me of other options. One being a certain (expensive) drug, which he said has helped some of his clients dogs. He told me that people donate drugs back to him after their pets die and if he has any of this drug, he is going to give it to me to give Timber. He also wants to work with me on PT for Timber. He's not so sure I should continue with the Prednisone. He told me it can cause muscle deteriorzation. He and the Colorado vet also mentioned trying acupuncture. Meanwhile, my heart is just breaking apart. Entry: 2004-07-30 11:52:10 Visitor's Name: Pavlos Simeon Homepage URL: No website supplied You are from: Athens, Greece (Hellas) How you found our site: Internet Would you recommend our site to others?: Definitely Comments: I was so moved and burst into tears when I was reading your site. I reside in Athens, Greece and I am in the process of trying to get the medication suggested (Amicar?) from the US because it's not allowed in Greece. Do you know if I can get it from the UK? Thank you and Jack Flash again for your support. May God bless you and keep Jack Flash company with thousands of gog angels!!! Entry: 2004-07-30 06:10:30 Visitor's Name: chris Homepage URL: No website supplied You are from: west palm beach florida How you found our site: google Would you recommend our site to others?: yes Comments: I have tears all over my keyboard. we lost hidie the awsome gsd to dm dec3 2003. she was 14 years old when she was put to sleep i never use the heartless vet we trusted he just shaved her leg gave her a shot and walked out of the room .we are distroyed by the way she died .i cry every time i read about your gsd jack flash so very sorry. huggs Entry: 2004-07-29 09:22:10 Visitor's Name: Linda Homepage URL: No website supplied You are from: Canton, MA USA How you found our site: GS BB Would you recommend our site to others?: absolutely Comments: Hi Marjorie, Your photo's are absolutely magnificent. Jack Flash was so handsome! He had a real regal look! Your other fubabies are of equal elegance! I would just love to hug them. How lucky they are to have you as their mommy! There aren't words to thank you for all the hard work you have done for trying to help find a cure for DM. You haver done all this work to benefit the breed. Thanks again for being you! Linda and Heidi Poh Peidi Entry: 2004-07-27 01:48:06 Visitor's Name: Robbin Homepage URL: No website supplied You are from: Rochester, NY How you found our site: Google search Would you recommend our site to others?: Yes Comments: I'm dealing with my second dog with DM. The other I lost 14 years ago at age 16 and little was known (although I see now I was lucky to have her so long!). Sites like this make it a bit easier. Thanks. Entry: 2004-07-26 20:29:14 Visitor's Name: Denise Homepage URL: No website supplied You are from: Charlotte, NC, USA How you found our site: google Would you recommend our site to others?: already did Comments: In memory of my German Shepherd Charcoal who was paralyzed after being hit by a car and put to sleep last year Entry: 2004-07-25 01:32:52 Visitor's Name: MELANIE SEARS Homepage URL: No website supplied You are from: LANCASTER PA. USA How you found our site: YAHOO SEARCHING Would you recommend our site to others?: YES Comments: MY BELOVED GHIA HAS DM SHE IS HOARSE BARK NOW LOST CONTROL OF HER BOEWELS. BUT SHE STILL FOLLOWS ME EVERYWHERE. I LOVE HER SO MUCH SHE IS 12 I KNOW I MUST GET MYSELF READY FOR THE END. THIS WEB SITE MAKES ME FEEL IM NOT ALONR IN MY FEELING. THANK YOU Entry: 2004-07-20 08:50:21 Visitor's Name: Nutritional supplements and vitamins Homepage URL: http://www.vitafly.com You are from: New York How you found our site: Would you recommend our site to others?: Comments: We like your health related site very much! Entry: 2004-07-14 19:07:47 Visitor's Name: Dr G Sharma MD Physician Homepage URL: No website supplied You are from: India, Delhi How you found our site: Via the UFL web-site Would you recommend our site to others?: yes Comments: (No comment made) Entry: 2004-07-13 03:26:19 Visitor's Name: Rachel Homepage URL: No website supplied You are from: How you found our site: google Would you recommend our site to others?: yes Comments: Thank you so much for this site. How I wish it were not needed, but as we all know, it is. My girl is 12 1/2 years old and was dx with DM 2 years ago. Her name is Tuesday, and we are doing all we can for her, her spirit is what keeps "us" going..she knows all is well in her soul! Our hearts break at times to watch her as now she can not walk, we "walk" her, we carry her out when she needs to go, and we do so with honor. Her grace carrys us through, how blessed we are to have her in our hearts, our souls and our lives. God bless you all, and your DM kids! Paw Hugs, Rachel and Tuey Entry: 2004-07-10 04:44:13 Visitor's Name: Linda Homepage URL: No website supplied You are from: Australia How you found our site: germansheperd website Would you recommend our site to others?: YES Comments: Marjorie, i cried and cried reading Jack's story. Thank you. I hope my Max will never suffer from DM, but at least now i know what signs to look for, and i know there is treatment available. Most of all, i know there is hope! Thank you so much for sharing yours and Jacks story. Entry: 2004-06-30 03:01:53 Visitor's Name: Stephanie Roberts Homepage URL: No website supplied You are from: Clearwater,ks sedgwich How you found our site: I did a search to learn more about DM Would you recommend our site to others?: Comments: Your webside is very educational. It will help me learn more how to help my German Shepherd. Entry: 2004-06-23 03:46:41 Visitor's Name: Andy Connor Homepage URL: n/a You are from: Nelson, New Zealand How you found our site: surfing through German Shepherd sites Would you recommend our site to others?: Yes, without hesitation Comments: As a lover of this wonderful and remarkable breed, and owner of three, sme pages of the site are very, very hrad to read without a lump developing in the throat or the eyes becoming very damp. Great site for GSD lovers Entry: 2004-06-22 04:03:13 Visitor's Name: Sharon Senter Homepage URL: No website supplied You are from: Grosse Pointe Woods, Michigan How you found our site: AOL GSD Message Board Would you recommend our site to others?: Yes...and I have. Comments: Thank you to a wonderful group. Entry: 2004-06-18 17:56:48 Visitor's Name: Judy Homepage URL: No website supplied You are from: Burnsville, Minnesota, USA How you found our site: web surfing Would you recommend our site to others?: Comments: My GSD Shadow will be 10 years in August 2004. After talking to a veterinarian friend, I concluded that he has DM and he has had hind quarter weakness for about a year now and didn't test well for knuckling. I started the prescription meds from Westlab in January 2004. I don't know that it is helping, but he can still maneuver on his own. He did, however, fall over when stepping off a curb yesterday during our walk. I also am feeding the BARF diet. I read somewhere that dogs with DM shouldn't be fed raw, but he has had so many problems with commercial dog food all his life. His allergies only got better after switching him to raw. According to the Merck vet manual, DM usually progresses within 6-12 months to the point where euthanasia should be considered. I cannot bear to be without a GSD, so two months ago I brought another GSD pup into our household. At least when it is necessary for me to put Shadow down, I will have another friend to come home to and mourn with. The pup is now 4 mos old and very easy going, although on occasion I do have to chastise him for pestering Shadow too much. For the most part, the dogs get along well and play together some--less often now, as Shadow seems to be tiring more easily these days. Entry: 2004-06-18 02:37:03 Visitor's Name: Linda Gardner Homepage URL: No website supplied You are from: Coopersburg PA How you found our site: Friend Would you recommend our site to others?: Yes Comments: (No comment made) Entry: 2004-06-16 06:26:43 Visitor's Name: Sara Handley and Kasha Homepage URL: No website supplied You are from: New Salem, Ma. USA How you found our site: searching Would you recommend our site to others?: yes Comments: I was quite scared and very sad when I came home from the vet today with my sweet Kasha, my Chesie of 11 years. I am so happy after looking ALL evening to finally find your site. After some sleep, I will return! Entry: 2004-06-14 19:50:49 Visitor's Name: Donna McClellan Homepage URL: No website supplied You are from: Tampa, FL USA How you found our site: Searching the internet Would you recommend our site to others?: Yes. Comments: Recently, We left the vet office with the Rule out disorder "schpiel", a $400 bill and the implied message that after he completed a barrage of costly exams the vet would turn to me at long last would say we are no further along than when we first started. You see, Coty had had bilateral cruciate ligament surgery 2 years ago. When I saw his nails start to wear to the point of bleeding I only assumed something relating to his earlier surgery was failing. How would this new, specialist, vet know how special my Coty is. For 10 years, he's been the secret spring in my step, the twinbkle in my eye. He is my first dog.. my own first pet. I now own four, but Coty is my beloved. Somehow easier to love. I thought our vet had failed .. but perhaps now after reading your thru your site he was just being all to gentle in attempts to spare us from what lies just ahead. He referenced the likelihood of DM. So I began my studying. As I read on, my eyes so welt up with tears such that I could hardly read the words on the screen. I have come to realize that our diagnosis is real and thanks to your site, I am taking real action to understand the exact disease state and hopefully slow the progress. I realize now that our time together is likely to be far less than I had dreamed it would be. I know now we will likely need to pull from the strength and guidence of strangers to make it through. But, we are committed to new a regime in attempts to savor these moments. I am committed to spending quality time with my dear friend Coty. I remain steadfast in the beleif, that this is now my turn to stand by Coty's side as he would have mine. Please keep us in your thoughts and prayers and accept our gratitiude for your website, you make us feel far less alone. Donna and Cotyboy Tampa, FL Entry: 2004-05-30 20:53:53 Visitor's Name: Michael and Coby Werner Homepage URL: http://www.bsap.us/ You are from: Lubbock, Texas USA How you found our site: Referred by Owner Would you recommend our site to others?: Yes Comments: Please disregard my previous comments in respect of this site. At that time my frustrations following my dog: Shane being diagnosed with DM were starting to show through, badly. Since that time we have obtained the recommended medicene and he is starting to pull back from his original nosedive into oblivion. Although he will never be the dog he was, his walking has improved and he manages to get over all the problems that lay in his path. His "mate" Sable helps in this by looking after him and keeping him happy. This site has managed to get my perspective correct, and I will be glad if Shane is granted another 2 years making it to 10. He is in no pain, doesn't really understand his afliction, but is managing to compensate for them. He tends to use both rear legs at once to run and this stops them getting tangled and falling. He also places his rear feet further apart when standing and eating, which stops any sag to one side or the other. So to you all that never thought that your pet would make it passed the first couple of weeks, take hope. The drugs do work to some extent, and certainly hold the disease in check, rather than let it run its course. For those having problems in getting your dogs to palate the strange taste, even with chicken broth; try oatmeal. (instant) It is easier for them to eat, hides the taste and stops any side effects from upset stomach. It also helps to keep them regular and reduces their fat intake. DM is not the end, merely a change from one lifestyle to another. Keep up the exercise, but don't let your dog tire and don't walk him too far each day. Best Wishes, Entry: 2004-05-19 22:41:53 Visitor's Name: Rita Homepage URL: No website supplied You are from: Los Angeles, CA How you found our site: friend Would you recommend our site to others?: yes Comments: I just found out my "baby" Hawker has DM!!! This site is an increible help and I will keep coming back for more support! Entry: 2004-05-18 02:05:38 Visitor's Name: Homepage URL: lpoiry@accesstoledo.com You are from: Northwood Ohio Wood Co How you found our site: Germanshepherd.com Would you recommend our site to others?: definately Comments: What a terrific site. I lost Conan and Oafums over time and it really helps to know that there are so many others that understand this deep loss. Jack Flash is a real looker just like my Conan-so handsome! Thank you for this site! Steve Entry: 2004-05-14 18:27:48 Visitor's Name: Steph Homepage URL: No website supplied You are from: Burlington/Ontario Canada How you found our site: a link someplace Would you recommend our site to others?: yes Comments: My beloved Buddy was PTS Monday, May 10th. My son said he couldn't stand to see him in pain like this anymore. But he wasn't in pain. He just couldn't get up. It was not hip dysplasia - I had an Akita who had that - and this was different. Arthritis didn't seem to fit, either. He was bright to the end, eating well, playing with his sqeaky hamburger lying down, following me from room to room, with help up. I slept with him in the kitchen the last 3 nights. Had already done baby gates at both stairs,, carpet runners on ALL floors tried rear leash and blanket support. I have to work full time, and I couldn't even be there to help him get a drink. No bloat - he was still eating standing up, mostly. Pooing lying down, seems in his sleep. Our vet did not name DM, but said 15 mos ago: there is a condition that affects the nerves in GS's legs that causes this, and there is no cure. W/b $200/mo for pills that MIGHT help. Could not pay that. I gave him glucosamine, dog vitamins in amount for sick dogs, coated aspirin daily. Tried add'l Vit C, got diareaha. Ability to rise was worse when my son, who was unemployed for some time, moved out, believe due to no movement during day. Worst in morning, and when 2nd son came home in afternoon. And this winter was a killer. Son shovelled a circular path for Bud in the front yard. Could not afford a cart, and wouldn't have helped with the 2 steep front steps. Buddy was supposedly a mixed breed. We answered an ad in the newspaper. Were told his mother was a shepherd, and father a lab. But saw the mother, and she was a mix. Only went this way because had been w/o a dog for 3 yrs, and ALL of the Akitas (5 in family) had such bad inbred problems - hip dysplasia, thyroid problems, allergies to mosquitoes, etc. (were good breeders, sire and dam & winners), thought maybe a mutt was a better answer. But our vet said, "Are you SURE he's not a German Shepherd? Because I would have thought he IS." And Buddy had NO problems for many years. No allergies, no urinary infections, no hip dysplasia, no skin infections, cast-iron stomache, endless energy, healthy coat, bright eyes, until he was about 10. Started pooing when we took him somewhere unfamiliar or stressing. I have never received a diagnosis if DM, but I read 'Jack Flash' today, and it all finally fit together. THAT was the missing puzzle piece I did not have. Thank you for listening. Steph Entry: 2004-05-13 19:35:51 Visitor's Name: Helen Spears Homepage URL: No website supplied You are from: Louisville,Kentucky U.S.A. How you found our site: Looking for info on DM on Google Would you recommend our site to others?: most definitely Comments: Very moving and informative. I love it. Entry: 2004-05-12 00:35:33 Visitor's Name: Titia Geertman Homepage URL: http://titia.netpoets.net You are from: The Netherlands How you found our site: surfing the internet Would you recommend our site to others?: yes Comments: I read the story of Jack Flash and it was if I was reading the story of our own dog, Tsjip, a Korthals Griffon, who's suffering DM for the past 6 months. It's progressing rapidly and like Jack Flash, she's at the point of needing help sometimes to get off the couch. She's 8 years old and such a great dog. She has humor and 'laughs', apporting me inside when I come home by taking a piece of my trousers or any clothing she can get hold of. She's still enjoying life, playful, alert and all that. However, we've decided to put her down the moment she will not be able anymore to get up entirely. We live in a farmhouse in open land and she's used to roaming the fields (being a hunting dog), she never wears a collarband and we know that being unable to explore all ditches she comes accross, will make her very unhappy. Lucky for her, we are both retired from work, so she's not left alone for a moment, one of us is always with her. I know it will be hard, the more because we lost her sister 6 months ago, due to Addison's disease. Sarah lived on heavy medication for about 6 happy years and got very ill after a 'break out' (they were roaming fields for about 16 hours) and one day she didn't recognize me anymore when I got home from work, but the moment we wanted to lift her basket to take her to the vet (she needed her medication by infuse), she stopped breathing. It was a very sad moment, but we still had Tsjip, we thought, but short after Sarah's death she began showing the signs of DM. I knew immediately what it was, because their mother had died from it too at the age of 8. Well, this is my dog's story and it is simular to your story in every way. I know Tsjip won't be with us very long anymore, it makes me very sad, but letting her live and not being able to walk, will make our dog very unhappy, I know that for sure, so when she's going down permanently, we will put her to sleep. Entry: 2004-05-11 13:35:01 Visitor's Name: Arlene Homepage URL: No website supplied You are from: Bloomfield, NJ How you found our site: Would you recommend our site to others?: YES Comments: Marj: I just finished reading yours and Jack Flash's story. I can't stop crying. I have a 13 year old German Shepherd, Casey that was at the vet yesterday. We were told that she doesn't have long that her whole back end is going. The reason she was at the vet is she has been having incontinence at night. I believe that Casey has what Jack had. I'm just devastated. I have the same relationship with my Casey that you had with Jack Flash. Your Jack was absolutely beautiful. My Casey is also gorgeous. She and I have this relationship that I can actually tell what she wants just by looking into her beautiful eyes. I know this a long comment but I want you to know that I share your sorrow even though it was years ago that Jack Flash passed away I am sure you will NEVER EVER forget your best friend. Please feel free to email me as I could sure use encouragement right now. Arlene Entry: 2004-05-09 21:58:27 Visitor's Name: Melanie Elmore Homepage URL: No website supplied You are from: Dallas, TX USA How you found our site: Would you recommend our site to others?: yes Comments: I have one question that I have not seen addressed. My dog has advanced DM. I know she must be uncomfortable and miserable but is DM painful? I want to know if she is in a lot of pain before I make the final decision. Entry: 2004-05-09 21:49:23 Visitor's Name: Melanie Elmore Homepage URL: No website supplied You are from: Dallas, TX USA How you found our site: surfing net Would you recommend our site to others?: yes Comments: I have a 12 yr old German Shepherd who was diagnosed with DM a year ago. She is on the medication & program from West Lab. It helped for a while but she is going down fast now. It's difficult to know what to do. Entry: 2004-05-06 23:36:12 Visitor's Name: Mike and Coby Werner Homepage URL: http://www.bsap.us/ You are from: Lubbock, Texas USA How you found our site: Web Search Would you recommend our site to others?: Unlikely, as two enquiries have met with no reply. Comments: Our Shepherd Shane III is only 7 1/2 and it looks as if he will be lucky to reach 8 1/2. He has started Dr Clemmons' Treatment program, and whilst we hope for some improvement, we have our doubts. We were recommended to join this group, but it would appear that somewhere along the line, someone has lost interest. There are broken links everywhere and direct email to Margorie, some 10 days ago has not elicited any reply, so far. Whilst we realise that everyone has their own personal problems, this group was alleged to have been started as a support group for DM owners, now seems to have become a funnel for funds to Dr Clemmons research (last results found to be 1998) and a belated but loving memorial to Jack Flash (Bless his heart) and other dogs that have gone on their way much too early. Mine, I am sure, I will have to count amongst them soon enough. Perhaps I am being unkind to the people that run this group, but appearances are usually as they seem. If this is incorrect, I would be glad to discuss matters with anyone that is still interested, our vet is definitely not one of these. "Just keep bringing him in, and don't forget to pay your bill, regardless of how high it gets!" I have travelled this road before, overseas, where a female vet had me keep my first Shepherd alive (plus lots of cash) whilst he spent the most miserable year of his life. He (Shane I) did not deserve this, and neither does my current friend. In the end I told my vet that I was not willing to put him (Shane I) though any more. She told me she was so glad I had made that decision, as it was probably for the best! (I could/should have hit her) Instead I held him whilst he left us, and later found that he had been eaten away inside by cancer. If that woman had done her job, I would have given him a release a lot earlier, and saved him the suffering. This will not happen to Shane III, not if I am still alive to make that decisdion, when he needs it! REPLY from Marjorie: No one has lost interest in this group or subject matter. I never received your email until 2 days ago, and I most certainly did answer you- you never answered ME. I have had no problems receiving emails from other people, so, perhaps the error is on your part. You say perhaps you are being unkind to people who run this group. I would believe that is an accurate statement, as we rarely get to bed before 3 am, trying to help people like you. Do we support Dr Clemmons and try to raise funds for DM research? You bet we do, as he is our only hope of ever laying this disease to rest. Others have squandered large sums of money given to them, while they maintain their political agendas and raise their own status in the universities for which they work. I sent you a link to the DM message boards, and you have not applied for membership to the boards, just as you have not replied to my emails. Therefore, I believe that your comments were unwarranted and quite rude. Marjorie Entry: 2004-04-27 20:54:36 Visitor's Name: Rhonda Homepage URL: msn.com You are from: Allenstown NH How you found our site: yahoo Would you recommend our site to others?: yes Comments: My beloved Dylan has been living with DM for over a year. Breaks my heart that my best friend who brought so much happiness to my family ,is losing the battle. He's brought 12 years of joy to our family.So hard to say good bye to such a good boy . Entry: 2004-04-20 04:57:05 Visitor's Name: Susan Cover Homepage URL: http://pages.ivillage.com/scover2002 You are from: Cody, Wyoming USA How you found our site: Google Would you recommend our site to others?: Yes! Comments: I've noticed my 6 year old GSD Timber,recently showing small signs of weakness in her hind legs. She runs fine, no limping, but seems to be showing weakness when she jumps up. I've scheduled a vet appt. tomorrow to check her out. I was on the internet and found your site. I cried my eyes out. What a trooper your Jack was! What a trooper you were. I admire you both! What a handsome boy too. If you check out my web site, you'll see I'm a little partial to GSD. Sue Entry: 2004-04-17 15:09:50 Visitor's Name: kabiru Homepage URL: No website supplied You are from: Dakar Senegal How you found our site: through the internet Would you recommend our site to others?: yes Comments: I love your site Entry: 2004-04-17 07:34:36 Visitor's Name: connie vernon Homepage URL: n/a You are from: columbus, ohio How you found our site: looking for information on d/m Would you recommend our site to others?: with all my heart Comments: finding jack flash's website was truly a god send as i frantically searched for answers for my jake. all of the support group on this site got me through the most difficult year and a half of my life. the group was there every day to help me clear up until and even after i lost my best friend in the world, my "baby" jake. i only hope everyone who needs help is as lucky as i was, and stumbles across jack flash's website. it is truly a wonderful place. Entry: 2004-04-16 23:04:34 Visitor's Name: virginia dunlap Homepage URL: n/a You are from: Monte Rio, CA 95462 USA How you found our site: VetMeds Would you recommend our site to others?: absolutely! Comments: very informative and positive! My GSD has dm, we are following Dr, Clemmons. Need all info I can get. Would also like to join dm message board but have been unable to access in spite of registering. Can you help? Virginia Dunlap & Stella Entry: 2004-04-14 03:12:44 Visitor's Name: Kim Hendrix Homepage URL: No website supplied You are from: Osceola, AR How you found our site: search engine Would you recommend our site to others?: yes!! Comments: My beautiful 12 year old GSD Mike was diagnosed with DM this week, and my heart is just breaking. My family raised 3 generations of these dogs and now it looks as if it is coming to an end. I was so glad to find this site, though. It has given me a more clear picture of what to expect and I can relate so well to Jack's story. Mike is going downhill rather quickly-he has both an intestinal infection and a fungal infection he is fighting right now, but his eyes are still filled with laughter and loyalty. When the time comes, I just hope I can make the right decision to keep him from suffering. Thank you so much for the information. Entry: 2004-04-08 09:38:12 Visitor's Name: Suzanne Watterson Homepage URL: No website supplied You are from: Worcester, England How you found our site: Searching for info on DM Would you recommend our site to others?: Most defintely Comments: Thanks for a wonderful informative and caring website. I have a 15 year old GSD who is in the latter stages of DM. I look at her everyday and wonder when we should call it a day, she seems to have so much spirit still in her eyes but her body is really failing her. I wish she would just go quietly in her sleep but I know I am going to have to make the awful decision myself soon for her sake and to keep her dignity. We have had a great 15 years and i am very grateful for that but the end will be so hard. Thank you for sharing with us the highs and lows of Jack Flash's life i cannot put into words how it has helped me. Suzanne xxxxxxxx Entry: 2004-04-06 04:02:04 Visitor's Name: Steve Poiry Homepage URL: none You are from: Northwood, Oh usa How you found our site: germanshepherds.com Would you recommend our site to others?: Comments: Ten years ago, I would have thought that such a web site would have been silly. I mean, dedicated to a dog??? Then arrived my Oafums and Conan. How did I live without them? Saying goodbye to them was agony. This is a great site. I understand this deep loss and how it changes us. It's good for me to know that others understand how thier world goes dark when thier best friend leaves us behind. I look forward to meeting Conan and Oafums agian, near the bridge. I know they are patiently waiting for me. Thank you. Entry: 2004-04-05 17:41:59 Visitor's Name: Mindy Yanulis Homepage URL: No website supplied You are from: Syracuse, NY How you found our site: Cornell Veterinary College & Animal Hospital Would you recommend our site to others?: Absolutely Comments: We learned of DM only 5 days ago. This site has been so helpful to all of us. For me the tought of a support group of others who truly understand what I feel is amazing. Those who have not experienced this can not truly relate. I am glad to have found a place to turn early so when things become more difficult (is that possible - I just learned my BEST FRIEND terminally ill) I will have freinds to help support me! Entry: 2004-04-05 05:15:20 Visitor's Name: Amanda Baltierra Homepage URL: No website supplied You are from: Salinas, CA USA How you found our site: Browing the web for DM information Would you recommend our site to others?: Yes. It offers information for newly diagnosed dogs/owners Comments: My boxer Joelle, who will be 10 in August, was officially diagnosed with DM in July 2003 after I noticed rear limb favoring. We visited 3 specialists when Dr. Vincent Pedroia stated the diagnosis. I read an article on boxer DM in one of my dog magazines and knew she had it before she was diagnosed. Her condition has progressed since her dianosis, but exercise, pool therapy, and the use of an Eddie's Wheels cart has kept her mobile as possible. I am fortunate that she is 50 lbs. and still has control of her bodily functions. I have an excellent group of friends who understand that Jo's quality of life is the most important aspect of my care for her. She enjoys life, especially since using her wheels! Entry: 2004-03-20 08:08:55 Visitor's Name: Angus Homepage URL: http://www.angmail.fsnet.co.uk You are from: North London, UK How you found our site: Asked to help develop Heaven's Gate! Would you recommend our site to others?: Absolutely! Comments: This is a great site that has helped many people, and will help a lot of others in the future. The artwork here is lovely, and the music is refreshing also. Well Done and Keep Up The Good Work!! Angus. Entry: 2004-03-15 07:28:01 Visitor's Name: Bill Elliott Homepage URL: http://cba.okstate.edu/~elliowb You are from: Stillwater, OK, USA How you found our site: Search engine Would you recommend our site to others?: Absolutely Yes Comments: Thank you so much for creating the very best place on the web. When my German Shepherd, Taka, was diagnosed with DM, JackFlash's website and the DM message board were lifelines for Taka and me. His life was significantly improved with your help Marjorie. Thank you, from the bottom of my heart. Entry: 2004-03-15 07:21:00 Visitor's Name: Homepage URL: No website supplied You are from: USA How you found our site: Would you recommend our site to others?: Comments: I have just read your tribute to Jack. My tears are uncontrollable as I remember my "Sheba" who passed on the same way as Jack. I, too did the whole route as you did for my beloved friend. The two of us were so attached as the two of you; it's hard to explain to some people the feelings you and your baby are experiencing through this horrible time. Saying goodbye was perhaps one of the worse days of my life. That day I truly experienced what a broken heart felt like. Mine was broken. Anyway, pics and memories do warm our hearts always. My sympathy to you, my strength to you and stay well. Entry: 2004-03-10 10:06:58 Visitor's Name: roz Homepage URL: No website supplied You are from: USA How you found our site: Would you recommend our site to others?: Comments: thank you for this site. it's the clearest info on DM i have found so far. my little corgi has DM. she has a cart, & fortunately has no tail, so i can use regular baby diapers on her! and let me say i just cracked up when i heard "i'm still standing"! :D Entry: 2004-03-09 12:24:16 Visitor's Name: DIANE HERMORT Homepage URL: No website supplied You are from: USA How you found our site: Would you recommend our site to others?: Comments: I must tell you how your web site about your dog has touched my heart .it is the most beautiful and wonderful . thing any one could do for there beloved pet i have been through loosing pets all my life . it is the hardest most painful thing any one could ever go through .it just makes me so happy to see that there are other animal lovers out there like myself. again it is wonderful to know you loved him so much. Entry: 2004-02-29 11:36:33 Visitor's Name: Samantha Bogan Homepage URL: No website supplied You are from: How you found our site: Would you recommend our site to others?: Comments: Mick was a rescue. I found him freezing in a convenience store parking lot. His owner (police were familiar with him) apparently moved away and left Mick on his own. Your web site is a God send. I have been doing my own research on this and have seen Dr,Clemmons site. Thank goodness for him. I will not rest until this disease is conquered. Your website is brilliant and a comfort to many I am sure. Thank you for all the work you have been doing to furthur understand this terrible disease.I know Jack is smiling. Keep up the good work. Entry: 2004-02-07 18:39:06 Visitor's Name: Vicki Homepage URL: No website supplied You are from: USA How you found our site: a friend Would you recommend our site to others?: Yes!! Comments: When I found Jack's Homepage in 2000, I finally found help and friends in helping me care for Bailey the last week of his life on earth. I will never forget the education and peace this site brought me. Thank you, Marjorie. Entry: 2004-03-17 03:39:06 Visitor's Name: Marjorie Homepage URL: http://www.mzjf.com You are from: NY, USA How you found our site: Would you recommend our site to others?: Yes Comments: Welcome to our Guestbook :) Please share with us any comments you may have, regarding this site. Suggestions and comments as to how to improve the site are also welcome.